front cover of Thirty Rooms to Hide In
Thirty Rooms to Hide In
Insanity, Addiction, and Rock ‘n’ Roll in the Shadow of the Mayo Clinic
Luke Longstreet Sullivan
University of Minnesota Press, 2014

Author Luke Longstreet Sullivan has a simple way of describing his new memoir: “It’s like The Shining . . . only funnier.” Thirty Rooms to HideIn tells the astonishing story of Sullivan’s father and his descent from one of the world’s top orthopedic surgeons at the Mayo Clinic to a man who is increasingly abusive, alcoholic, and insane, ultimately dying alone on the floor of a Georgia motel room. For his wife and six sons, the years prior to his death were characterized by turmoil, anger, and family dysfunction; but somehow they were also a time of real happiness for Sullivan and his brothers, full of dark humor and much laughter.

Through the 1950s and 1960s, the six brothers had a wildly fun and thoroughly dysfunctional childhood living in a forbidding thirty-room mansion, known as the Millstone, on the outskirts of Rochester, Minnesota. The many rooms of the immense home, as well as their mother’s loving protection, allowed the Sullivan brothers to grow up as normal, mischievous boys. Against a backdrop of the times—the Cold War, the Cuban Missile Crisis, fallout shelters, JFK’s assassination, and the Beatles—the cracks in their home life and their father’s psyche continue to widen. When their mother decides to leave the Millstone and move the family across town, the Sullivan boys are able to find solace in each other and in rock ’n’ roll.

As Thirty Rooms to HideIn follows the story of the Sullivan family—at times grim, at others poignant—a wonderful, dark humor lifts the narrative. Tragic, funny, and powerfully evocative of the 1950s and 1960s, Thirty Rooms to Hide In is a tale of public success and private dysfunction, personal and familial resilience, and the strange power of humor to give refuge when it is needed most, even if it can’t always provide the answers.

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front cover of Total Cure
Total Cure
The Antidote to the Health Care Crisis
Harold S. Luft
Harvard University Press, 2008

Proposals to reform the health care system typically focus on either increasing private insurance or expanding government-sponsored plans. Guaranteeing that everyone is insured, however, does not create a system with the quality of care patients want, the flexibility clinicians need, and the internal dynamics to continually improve the value of health care.

In Total Cure, Hal Luft presents a comprehensive new proposal, SecureChoice, which does all that while providing affordable health insurance for every American. SecureChoice is a plan that restructures payment for medical care, harnessing the flexibility and responsiveness of the market by aligning the incentives of clinicians, hospitals, and insurers with those of the patient. It uses the accountability of government to ensure transparency, competition, and equity.

SecureChoice has two major components. A universal pool covers the major risks of hospitalization and chronic illness, which account for almost two-thirds of all costs. Everyone would be in the pool, irrespective of employment, income, or health status. The second component emphasizes choice, flexibility, and responsibility. People will be able to choose any physician to serve as their “medical home,” to keep track of their health records, provide much of their care, and suggest referrals. Clinicians will have the information and incentives to continually enhance quality. SecureChoice also facilitates improvements in areas ranging from malpractice to pharmaceuticals and establishes new roles for key stakeholders such as health insurers.

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front cover of Transplanting Care
Transplanting Care
Shifting Commitments in Health and Care in the United States
Heinemann, Laura L.
Rutgers University Press, 2016
The sudden call, the race to the hospital, the high-stakes operation—the drama of transplant surgery is well known. But what happens before and after the surgery? In Transplanting Care, Laura L. Heinemann examines the daily lives of midwestern organ transplant patients and those who care for them, from pretransplant preparations through to the long posttransplant recovery.
 
Heinemann points out that as efforts to control healthcare costs gain urgency—and as new surgical techniques, drug therapies, and home medical equipment advance—most of the transplant process now takes place at home, among kin. Indeed, the transplant system effectively depends on unpaid care labor, typically provided by spouses, parents, siblings, and others. Drawing on scores of interviews with patients, relatives, and healthcare professionals, Heinemann follows a variety of patients and loved ones as they undertake this uncertain and strenuous “transplant journey.” She also shows how these home-based caregiving efforts take place within the larger economic and political context of a paucity of resources for patients and caregivers, who ultimately must surmount numerous obstacles. The author concludes that the many snags encountered by transplant patients and loved ones make a clear case for more comprehensive health and social policy that treats care as a necessarily shared public responsibility.  
 
An illuminating look at the long transplant journey, Transplanting Care also offers broader insight into how we handle infirmity in America—and how we might do a better job of doing so. 
 
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front cover of Twitch And Shout
Twitch And Shout
A Touretter’s Tale
Lowell Handler
University of Minnesota Press, 2004

The remarkable memoir of a Touretter’s journey of self-discovery—now back in print!

Lowell Handler has Tourette’s syndrome, a disorder characterized by exaggerated facial tics, sudden jerking movements of the body and limbs, and explosive public outbursts, usually in the form of expletives and racial epithets. Although he is a successful and acclaimed photojournalist, Handler has often seen himself as an outsider—a social outcast.  With courage and candor, he recalls the difficulties he suffered growing up, the confusion he experienced when doctors misdiagnosed his bizarre behavior as a psychological aberration, and finally how, restless and despairing, he embarked on a quest for answers.  

In Twitch and Shout, Handler sets out, camera in hand, on a journey through less than savory parts of America.  From a transvestite bar in Tampa to a flophouse in New Orleans to a community health center in New York, he meets a variety of people who, like himself, don’t conform to the standards of conventional society. With a keen eye for detail and an acute sense of humor, this memoir perfectly captures the unique and unforgettable life of a Touretter.
 
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