A SCHOLARLY BOOK REPOSITORY
The Rowley family's struggle began when Amy entered kindergarten and culminated five years later in a pivotal decision by the U.S. Supreme Court. In effect, the Court majority concluded that the Individuals with Disabilities Education Act did not mandate equal opportunity for children with disabilities in classes with typical children; a disappointing decision for disability advocates.
The Supreme Court decided that schools were required only to provide enough help for children with disabilities to pass from grade to grade. The Court reversed the lower courts' rulings, which had granted Amy an interpreter, setting a precedent that could affect the quality of education for all individuals with disabilities.
From the time Amy entered kindergarten in Peekskill, New York, her parents battled with school officials to get a sign language interpreter in the classroom. Nancy and Clifford Rowley, also deaf, struggled with officials for their own right to a communications process in which they could fully participate. Stuck in limbo was a bright, inquisitive child, forced to rely on partial lipreading of rapid classroom instruction and interaction, and sound amplifiers that were often broken and always cumbersome.
R.C. Smith chronicles the Rowley family's dealings with school boards, lawyers, teachers, expert consultants, advocates, and supporters, and their staunch determination to get through the exhaustive process of presenting the case time after time to school adjudicative bodies and finally the federal courts. The author also documents his own "coming to awareness" about how the "able" see the "disabled."
In the series Health, Society, and Policy, edited by Sheryl Ruzek and Irving Kenneth Zola.
Cochlear Implants in Children: Ethics and Choices addresses every facet of the ongoing controversy about implanting cochlear hearing devices in children as young as 12 months old and in some cases, younger. Authors John B. Christiansen and Irene W. Leigh and contributors Jay Lucker and Patricia Elizabeth Spencer analyzed the sensitive issues connected with the procedure by reviewing 439 responses to a survey of parents with children who have cochlear implants. They followed up with interviews of the parents of children who have had a year's experience using their implants, and also the children themselves. Their findings shape the core of this useful and telling study.
Cochlear Implants begins with a history of their development and an explanation of how implants convert sound into electric impulses that stimulate the brain. The second section focuses on pediatric implants, starting with the ways parents coped with the discovery that their child was deaf. Parents share how they learned about cochlear implants and how they chose an implant center. They also detail their children's experiences with the implants after surgery, and their progress with language acquisition and in school.
The final part treats the controversy associated with cochlear implants, particularly the reaction of the Deaf community and the ethics of implanting young children without their consent. Cochlear Implants concludes with sage observations and recommendations for parents and professionals that complete it as the essential book on the pros and cons of this burgeoning technology.
This new book for students and professionals emphasizes a functional approach to aural rehabilitation refined during the past several years. It details the use of an integrated therapy strategy designed to meet a variety of needs for each client while simultaneously working on multiple communication skill areas. Particular care has been taken to address the different requirements of deaf and hard of hearing adolescents and adults, including information about the unique needs of the culturally Deaf population. Throughout this practical text, clinicians receive encouragement to learn American Sign Language to enhance communication with Deaf clients.
Communication Therapy calls upon the expertise of various authorities well-versed in integrated therapy. They explain fully the state-of-the-art practices for all therapy areas, from global areas in communication therapy, to technology for aural rehabilitation, auditory skills, speechreading, speech and voice, pronunciation, and language skills, and telephone communication training. Case studies demonstrate the effectiveness of the integrated approach, making this book a significant advancement in communication therapy.
In 1982, the United States Supreme Court ruled that Amy Rowley, a deaf six-year-old, was not entitled to have a sign language interpreter in her public school classroom. Lawrence Siegel wholeheartedly disagrees with this decision in his new book The Human Right to Language: Communication Access for Deaf Children. Instead, he contends that the United States Constitution should protect every deaf and hard of hearing child’s right to communication and language as part of an individual’s right to liberty. Siegel argues that when a deaf or hard of hearing child sits alone in a crowded classroom and is unable to access the rich and varied communication around her, the child is denied any chance of success in life.
In The Human Right to Language, Siegel proposes that the First and Fourteenth Amendments of the Constitution be enforced so that Amy Rowley and her peers can possess that which virtually every other American child takes for granted – the right to receive and express thought in school. He asserts that the common notion of a right to “speech” is too infrequently interpreted in the narrowest sense as the right to “speak” rather than the broader right to receive and transmit information in all ways. Siegel reveals that there are no judicial decisions or laws that recognize this missing right, and offers here a legal and constitutional strategy for change. His well-reasoned hypothesis and many examples of deaf children with inadequate communication access in school combine to make a compelling case for changing the status quo.
For the parents of thousands of deaf and hard of hearing children, this step-by-step guide offers hundreds of ideas and methods that work with children ages 3 to 12. It provides scores of play activities to help parents enhance communication, solve problems, and strengthen relationships in skillful, fun ways. Also, parenting techniques are concisely presented to help parents set limits while avoiding power struggles and help foster positive behavior changes. In addition, this manual provides information about special resources and support services.
At each chapter’s beginning, experts (some deaf, some hearing), including I. King Jordan, Jack Gannon, Merv Garretson, and others, offer their insights on the subject discussed. Designed for parents with various styles, Kid-Friendly Parenting is a complete, step-by-step guide and reference to raising a deaf or hard of hearing child.
A mother whose child has had a cochlear implant tells Laura Mauldin why enrollment in the sign language program at her daughter’s school is plummeting: “The majority of parents want their kids to talk.” Some parents, however, feel very differently, because “curing” deafness with cochlear implants is uncertain, difficult, and freighted with judgment about what is normal, acceptable, and right. Made to Hear sensitively and thoroughly considers the structure and culture of the systems we have built to make deaf children hear.
Based on accounts of and interviews with families who adopt the cochlear implant for their deaf children, this book describes the experiences of mothers as they navigate the health care system, their interactions with the professionals who work with them, and the influence of neuroscience on the process. Though Mauldin explains the politics surrounding the issue, her focus is not on the controversy of whether to have a cochlear implant but on the long-term, multiyear undertaking of implantation. Her study provides a nuanced view of a social context in which science, technology, and medicine are trusted to vanquish disability—and in which mothers are expected to use these tools. Made to Hear reveals that implantation has the central goal of controlling the development of the deaf child’s brain by boosting synapses for spoken language and inhibiting those for sign language, placing the politics of neuroscience front and center.
Examining the consequences of cochlear implant technology for professionals and parents of deaf children, Made to Hear shows how certain neuroscientific claims about neuroplasticity, deafness, and language are deployed to encourage compliance with medical technology.
To correct the paucity of information on deaf or hard of hearing children and their parents’ experiences with early intervention services, researchers explored these relationships as part of the National Parent Project. From this investigation, Parents and Their Deaf Children details the experiences of a group of parents and their deaf children from the first identification of the latter’s hearing loss through their early years in elementary school. Renowned scholars Kathryn Meadow-Orlans, Donna Mertens, and Marilyn Sass-Lehrer reveal here for the first time the goals and expectations of the parents, the children’s achievements and troubles, and the families’ satisfaction and disappointment with health and educational systems.
Parents and their Deaf Children stems from a nationwide survey of parents with six-to-seven-year-old deaf or hard of hearing children, followed up by interviews with 80 parents. The authors not only discuss the parents’ communication choices for their children, but also provide how parents’ experiences differ, especially for those whose children are hard of hearing, have additional conditions, or have cochlear implants. Also, one chapter is devoted to families from minority cultures. The final section of this distinctive study offers solid advice for other parents of deaf children and also the professionals who serve them.
Most importantly, parents will learn their roles in helping their child adjust to and successfully use the cochlear implant. The Parents’ Guide to Cochlear Implants emphasizes such critical subjects as learning to listen through home activities, implants as tools for language development, and critical issues regarding school placement. This encouraging book considers the implications for performance in light of the whole child, including issues related to Deaf culture and cochlear implants. The authors also include brief stories by parents whose children have had implants that provide reassuring actual experiences to parents considering the procedure for their own child. With a last word on parenting perspectives and a rich source of resources in the appendices, this one-of-a-kind guide will arm parents of deaf children with complete confidence to make informed decisions about cochlear implantation.
Authors Margery S. Miller, Tania Thomas-Presswood, Kurt Metz, and Jennifer Lukomski bring a wealth of knowledge and experience to this in-depth treatment of topics essential to educators and school psychologists. They cover such critical areas as test construction and measurement; the diversity in American Deaf culture; the role of parents in the assessment process; neuropsychological assessments; nonverbal methods for assessing intelligence; and the need for sign language competency when testing cognitive and language skills.
The text concludes with recommendations for the development of valid and reliable tests for all students who are deaf and hard of hearing.
Turning the Tide presents a qualitative study of deaf and hard of hearing students who attended mainstream schools. The authors conducted three focus groups in different regions in the country, enlisting six to eight participants with diverse backgrounds for each session. They also gathered information from 113 online respondents who answered the same questions used in the focus groups. The respondents discussed many issues, including the difficulties of finding friends and social access, the struggle to establish an identity, the challenges of K-12 interpreting and class placement, and the vast potential of summer and weekend programs for deaf students. Their empowering stories clearly demonstrate that no deaf or hard of hearing student should be educated alone. The authors also elicited comments on other changes that parents, advocates, and other allies could work toward to improve further the educational environment of deaf children.
You and Your Deaf Child is a guide for parents of deaf or hard of hearing children that explores how parents and their children interact. It examines the special impact of having a deaf child in the family.
Eleven chapters focus on such topics as feelings about hearing loss, the importance of communication in the family, and effective behavior management. Many chapters contain practice activities and questions to help parents retain skills taught in the chapter and check their grasp of the material. Four appendices provide references, general resources, and guidelines for evaluating educational programs.
Once parents have worked through You and Your Deaf Child, this friendly guide can be referred to for specific information and advice as different situations arise.
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