front cover of The Biopolitics of Breast Cancer
The Biopolitics of Breast Cancer
Changing Cultures of Disease and Activism
Maren Klawiter
University of Minnesota Press, 2008

For nearly forty years, feminists and patient activists have argued that medicine is a deeply individualizing and depoliticizing institution. According to this view, medical practices are incidental to people’s transformation from patients to patient activists. The Biopolitics of Breast Cancer turns this understanding upside down.

Maren Klawiter analyzes the evolution of the breast cancer movement to show the broad social impact of how diseases come to be medically managed and publicly administered. Examining surgical procedures, adjuvant therapies, early detection campaigns, and the rise in discourses of risk, Klawiter demonstrates that these practices created a change in the social relations-if not the mortality rate-of breast cancer that initially inhibited, but later enabled, collective action. Her research focuses on the emergence and development of new forms of activism that range from grassroots patient empowerment to environmental activism and corporate-funded breast cancer awareness.

The Biopolitics of Breast Cancer opens a window onto a larger set of changes currently transforming medically advanced societies and ultimately challenges our understanding of the origins, politics, and future of the breast cancer movement.

Maren Klawiter holds a PhD in sociology from the University of California, Berkeley. She is currently pursuing a law degree at Yale University.

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front cover of Inside/Outside
Inside/Outside
A Physician's Journey with Breast Cancer
Janet R. Gilsdorf, M.D.
University of Michigan Press, 2006
To doctors, cancer means cells growing out of control; to patients, cancer means a life spinning out of control. Janet R. Gilsdorf, who writes with quiet but devastating honesty about her experience with breast cancer, offers an eye-opening glimpse, through her unique dual perspective as physician and patient, of both sides of the medical divide.

The medical system delivers cures, answers, and relief from pain to those who seek its help, but it can also offer misinformation, shattered expectations, horrible options, and inhumane consideration of the people it is supposed to serve. As Gilsdorf takes us on a journey across the terrifying landscape of cancer, she discovers that there are oases of unfathomable beauty to be found.

Inside/Outside is compelling, sometimes scary, reading as it puts us inside Gilsdorf’s skin. It ponders a vast array of profound choices most of us will be confronted with in our lives: thinking versus feeling, knowing versus not knowing, hanging on versus letting go, loving versus hating, and the immeasurable territories of life between the poles. Even as it touches on these universal human themes, ultimately Inside/Outside is a story of one person’s courage, hope, and survival in the face of terrifying odds.
Janet R. Gilsdorf, M.D., is Professor of Pediatrics and Communicable Diseases, Division of Infectious Diseases, Medical School, and Professor of Epidemiology, School of Public Health, at the University of Michigan. She is also Director of Pediatric Infectious Diseases, Mott Children's Hospital; Director of the Cell and Molecular Biology in Pediatrics Training Program; and Director of the Haemophilus influenzae Research Laboratory.
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The Politics of Breast Cancer
Maureen Hogan Casamayou
Georgetown University Press, 2001

Between 1990 and 1993, breast cancer activism became a significant political movement. The issue began to receive extensive media attention, and federal funding for breast cancer research jumped dramatically. Describing the origins of this surge in interest, Maureen Hogan Casamayou attributes it to the emergence of politically potent activism among breast cancer survivors and their supporters. Exploring the creation and development of the National Breast Cancer Coalition (NBCC), she shows how many of its key leaders were mobilized by their own traumatic experiences with the disease and its treatments.

Casamayou details the NBCC’s meteoric rise and impressive lobbying efforts, explaining how—in contrast to grassroots movements founded by dedicated individuals—the coalition grew from the simultaneous efforts of a network of women who invested their time, energy, money, and professional skills in the fight for increased funding for breast cancer research. This multiple leadership—or collective entrepreneurialism, says Casamayou—was crucial to the NBCC’s success framing the issue in the minds of the public and policymakers alike.

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