Day In Day Out Alzheimers
Karen Lyman Temple University Press, 1993 Library of Congress RC523.L85 1993 | Dewey Decimal 362.198976831
"...an insightful and constructive view of persons with dementia and their caregivers."
--Carroll L. Estes, Institute for Health & Aging, University of California, San Francisco
Stress for care providers and distress for clients with varying degrees of dementia--these are the dynamics Karen A. Lyman discovered in her study of eight Alzheimer's day care centers in California. Speaking as an advocate for both day care providers and people with Alzheimer's disease, the author presents a model of "what works" in Alzheimer's care.
Many strategies developed by caregivers are self-defeating, Lyman found. Drawing on personal reflections, interviews, and anecdotes, she demonstrates how caregivers' struggle to maintain order through often unnecessary control contributed to patients' increased sense of self-doubt, anxiety, and incompetence. Negative expectations by caregivers brought on depression and rapid intellectual decline in patients, a "sense of hopelessness" that has been called "therapeutic nihilism."
Lyman identifies unsupportive institutional policies, restrictive environments, and poorly organized programs as chronic sources of stress. The alternatives she offers meet caregivers' needs and permit clients a degree of self-determination and identity. Her model for care will be of great interest to gerontological professionals, policy makers, and family members dealing with victims of Alzheimer's disease.
"[A]n insightful, comprehensive analysis of the unique reciprocal relationship between people with Alzheimer's disease and people who care for them. The author's compassionate concern emphasizes the need for innovative methods of care which alleviate stress for the care-giver and distress for the patients...an important book for policy makers, health care administrators, medical and nursing students, and all others who care."
--Maggie Kuhn, Founder and National Convener of the Gray Panthers
Have you ever wondered what really goes on at your child’s day-care center after you say good-bye? Harriet Brown did. To satisfy her curiosity, she spent an entire year observing Red Caboose, a center in Madison, Wisconsin. This engaging and thought-provoking book is the story of that year.
In her beautifully written personal account, journalist and mother Brown takes us behind the scenes at a day-care center that works. At Red Caboose, one of the oldest independent centers in the country, we meet teachers who have worked with young children for more than twenty years. We watch the child-care union and parents struggle to negotiate a contract without ripping apart the fabric of trust and love that holds the Red Caboose community together.
We look at the center’s finances, to see what keeps Red Caboose going at a time when other good centers are disappearing. Best of all, we get to know the children, families, and teachers of Red Caboose—their struggles, their sorrows, their triumphs.
Started twenty-five years ago by a group of idealistic parents, the center has not only survived but thrived through some pretty tough times. In the world of day care, Red Caboose is a special place, a model for what child care in this country could and should be: not just babysitting, not just a service to working parents, but a benefit for children, families, teachers, and the community at large.
Brown sets her rich and engaging stories in the greater political and social context of our time. Why is so much child care bad? Why should working Americans worry about the link between welfare reform and child care? What can we learn from the history of child care?
This book is a must-read for parents, educators, and anyone who enjoys first-rate writing and dead-on insight into the lives of our youngest children and those who care for them.
“[Brown’s] writing is beautiful and her scholarship sound. Students considering day-care careers, day-care professionals, and concerned parents will gain insight by reading this provocative book, as will anyone who cares about the future of young children in this country.”—Choice
“I admire enormously the ambition of this book—its eagle-eyed witness and engrossing detail, plus the social importance of the project. I wish there were in the world more books like it.”—Lorrie Moore, author of Who Will Run the Frog Hospital?
“The Good-bye Window is a fascinating peek into the secret world of children. With the poignancy of Anne LaMott, and the reportorial grace of Tracy Kidder, Harriet Brown has written a terrific and worthwhile book.”—Meg Wolitzer, author of This Is Your Life
“Harriet Brown’s well-told story of the Red Caboose child-care center should be read by teachers and parents, but also by every legislator and politician in the land. Only a writer as good as Ms. Brown could display the dramatic complexities of a school community in which the youngest members enter crawling and emerge a few years later as articulate, empathetic, and well-socialized individuals, ready for the ‘real world.’”—Vivian Gussin Paley, author of The Boy Who Would Be a Helicopter