Parents of children with disabilities often situate their activism as a means of improving the world for their child. However, some disabled activists perceive parental activism as working against the independence and dignity of people with disabilities. This thorny relationship is at the heart of the groundbreaking Allies and Obstacles.
The authors chronicle parents’ path-breaking advocacy in arenas such as the right to education and to liberty via deinstitutionalization as well as how they engaged in legal and political advocacy. Allies and Obstacles provides a macro analysis of parent activism using a social movement perspective to reveal and analyze the complex—and often tense—relationship of parents to disability rights organizations and activism.
The authors look at organizational and individual narratives using four case studies that focus on intellectual disability, psychiatric diagnoses, autism, and a broad range of physical disabilities including cerebral palsy and muscular dystrophy. These cases explore the specific ways in which activism developed among parents and people with disabilities, as well as the points of alliance and the key points of contestation. Ultimately, Allies and Obstacles develops new insights into disability activism, policy, and the family.
A radical critique of architecture that places disability at the heart of the built environment
Disability critiques of architecture usually emphasize the need for modification and increased access, but The Architecture of Disability calls for a radical reorientation of this perspective by situating experiences of impairment as a new foundation for the built environment. With its provocative proposal for “the construction of disability,” this book fundamentally reconsiders how we conceive of and experience disability in our world.
Stressing the connection between architectural form and the capacities of the human body, David Gissen demonstrates how disability haunts the history and practice of architecture. Examining various historic sites, landscape designs, and urban spaces, he deconstructs the prevailing functionalist approach to accommodating disabled people in architecture and instead asserts that physical capacity is essential to the conception of all designed space.
By recontextualizing the history of architecture through the discourse of disability, The Architecture of Disability presents a unique challenge to current modes of architectural practice, theory, and education. Envisioning an architectural design that fully integrates disabled persons into its production, it advocates for looking beyond traditional notions of accessibility and shows how certain incapacities can offer us the means to positively reimagine the roots of architecture.
What is the direct impact that disability studies has on the lives of disabled people today? The editors and contributors to this essential anthology, Barriers and Belonging, provide thirty-seven personal narratives thatexplore what it means to be disabled and why the field of disability studies matters.
The editors frame the volume by introducing foundational themes of disability studies. They provide a context of how institutions—including the family, schools, government, and disability peer organizations—shape and transform ideas about disability. They explore how disability informs personal identity, interpersonal and community relationships, and political commitments. In addition, there are heartfelt reflections on living with mobility disabilities, blindness, deafness, pain, autism, psychological disabilities, and other issues. Other essays articulate activist and pride orientations toward disability, demonstrating the importance of reframing traditional narratives of sorrow and medicalization.
The critical, self-reflective essays in Barriers and Belonging provide unique insights into the range and complexity of disability experience.
Disability in Africa has received significant attention as a dimension of global development and humanitarian initiatives. Little international attention is given, however, to the ways in which disability is discussed and addressed in specific countries in Africa. Little is known also about the ways in which persons with disabilities have advocated for themselves over the past one hundred years and how their needs were or were not met in locations across the continent. Kenya has been on the forefront of disability activism and disability rights since the middle of the twentieth century. The country was among the first African states to create a legal framework addressing the rights of persons with disabilities, namely the Persons with Disabilities Act of 2003. Kenya, however, has a much longer history of institutions and organizations that are dedicated to addressing the specific needs of persons with disabilities, and substantial developments have occurred since the introduction of the legal framework in 2003.
Disability and Social Justice in Kenya: Scholars, Policymakers, and Activists in Conversation is the first interdisciplinary and multivocal study of its kind to review achievements and challenges related to the situation of persons with disabilities in Kenya today, in light of the country’s longer history of disability and the wide range of local practices and institutions. It brings together scholars, activists, and policymakers who comment on topics including education, the role of activism, the legal framework, culture, the impact of the media, and the importance of families and the community.Contributors delve into four critical areas of study within disability history: family, community, and daily life; cultural histories; the relationship between disabled people and the medical field; and issues of citizenship, belonging, and normalcy. As the first collection of its kind in over a decade, Disability Histories not only brings readers up to date on scholarship within the field but fosters the process of moving it beyond the U.S. and Western Europe by offering work on Africa, South America, and Asia. The result is a broad range of readings that open new vistas for investigation and study while encouraging scholars at all levels to redraw the boundaries that delineate who and what is considered of historical value.
Informed and accessible, Disability Histories is essential for classrooms engaged in all facets of disability studies within and across disciplines.
“[A]n important, prescient, and necessary contribution…a kind of litmus test for the efficacy of Foucault’s concepts in the study of disability, concepts that lead to a refusal of the biological essentialism implied in the disability/impairment binary.”
—Foucault Studies
“Tremain has done an exceptional job at organizing and procuring important, rigorously argued, and entertaining essays…. This book should be a mandatory read for anyone interested in contemporary philosophical debates surrounding the experience of disability."
—Essays in Philosophy
“A beautiful exploration of how Foucault’s analytics of power and genealogies of discursive knowledges can open up new avenues for thinking critically about phenomena that many of us take to be inevitable and thus new ways of resisting and possibly at times redirecting the forces that shape our lives. Every scholar, every person with an interest in Foucault or in political theory generally, needs to read this book.”
—Ladelle McWhorter, University of Richmond
Musical talent in Western culture is regarded as an extraordinary combination of technical proficiency and interpretative sensitivity. In Music, Disability, and Society, Alex Lubet challenges the rigid view of technical skill and writes about music in relation to disability studies. He addresses the ways in which people with disabilities are denied the opportunity to participate in music.
Elaborating on the theory of "social confluence," Lubet provides a variety of encounters between disability and music to observe radical transformations of identity. Considering hand-injured and one-handed pianists; the impairments of jazz luminaries Django Reinhardt, Horace Parlan, and "Little" Jimmy Scott; and the "Blind Orchestra" of Cairo, he shows how the cultural world of classical music contrasts sharply with that of jazz and how musicality itself is regarded a disability in some religious contexts. Music, Disability, and Society also explains how language difference can become a disability for Asian students in American schools of music, limiting their education and careers.
Lubet offers pungent criticism of the biases in music education and the music profession, going so far as to say that culture disables some performers by adhering to rigid notions of what a musician must look like, how music must be played, who may play it, and what (if any) is the legitimate place of music in society. In Music, Disability, and Society, he convincingly argues that where music is concerned, disability is a matter of culture, not physical impairment.
In Their Time Has Come, Valerie Leiter argues that there are crucial missing links between federal disability policies and the lives of young people. Youth and their parents struggle to gather information about the resources that disability policies have created, and youth are not typically prepared to use their disability rights effectively. Her argument is based on thorough examination of federal disability policy and interviews with young people with disabilities, their parents, and rehabilitation professionals. Attention is given to the diversity of expectations, the resources available to them, and the impact of federal policy and public and private attitudes on their transition to adulthood.
Women with disabilities are women first, sharing the dreams and disappointments common to women in a male-dominated society. But because society persists in viewing disability as an emblem of passivity and incompetence, disabled women occupy a devalued status in the social hierarchy. This book represents the intersection of the feminist and disability rights perspectives; it analyzes the forces that push disabled women towards the margins of social life, and it considers the resources that enable these women to resist the stereotype.
Drawing on law, social science, folklore, literature, psychoanalytic theory, and political activism, this book describes the experience of women with disabilities. The essays consider the impact of social class, race, the age at which disability occurs, and sexual orientation on the disabled woman's self esteem as well as on her life options. The contributors focus their inquiry on the self perceptions of disabled women and ask: From what sources do these women draw positive self images? How do they resist the culture's power to label them as deviant? The essays describe the ways in which disabled women face discrimination in the workplace and the failure of the mainstream women's movement to address their concerns.
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