front cover of Arc of Interference
Arc of Interference
Medical Anthropology for Worlds on Edge
João Biehl and Vincanne Adams, editors
Duke University Press, 2023
The radically humanistic essays in Arc of Interference refigure our sense of the real, the ethical, and the political in the face of mounting social and planetary upheavals. Creatively assembled around Arthur Kleinman’s medical anthropological arc and eschewing hegemonic modes of intervention, the essays advance the notion of a care-ful ethnographic praxis of interference. To interfere is to dislodge ideals of naturalness, blast enduring binaries (human/nonhuman, self/other, us/them), and redirect technocratic agendas while summoning relational knowledge and the will to create community. The book’s multiple ethnographic arcs of interference provide a vital conceptual toolkit for today’s world and a badly needed moral perch from which to peer toward just horizons.

Contributors. Vincanne Adams, João Biehl, Davíd Carrasco, Lawrence Cohen, Jean Comaroff, Robert Desjarlais, Paul Farmer, Marcia Inhorn, Janis H. Jenkins, David S. Jones, Salmaan Keshavjee, Arthur Kleinman, Margaret Lock, Adriana Petryna
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Babylost
Racism, Survival, and the Quiet Politics of Infant Mortality, from A to Z
Monica J. Casper
Rutgers University Press, 2021
The U.S. infant mortality rate is among the highest in the industrialized world, and Black babies are far more likely than white babies to die in their first year of life. Maternal mortality rates are also very high. Though the infant mortality rate overall has improved over the past century with public health interventions, racial disparities have not. Racism, poverty, lack of access to health care, and other causes of death have been identified, but not yet adequately addressed. The tragedy is twofold: it is undoubtedly tragic that babies die in their first year of life, and it is both tragic and unacceptable that most of these deaths are preventable. Despite the urgency of the problem, there has been little public discussion of infant loss. The question this book takes up is not why babies die; we already have many answers to this question. It is, rather, who cares that babies, mostly but not only Black and Native American babies, are dying before their first birthdays? More importantly, what are we willing to do about it? This book tracks social and cultural dimensions of infant death through 58 alphabetical entries, from Absence to ZIP Code. It centers women’s loss and grief, while also drawing attention to dimensions of infant death not often examined. It is simultaneously a sociological study of infant death, an archive of loss and grief, and a clarion call for social change.
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Care without Pathology
How Trans- Health Activists Are Changing Medicine
Christoph Hanssmann
University of Minnesota Press, 2023

Examining trans- healthcare as a key site through which struggles for health and justice take shape

 

Over the past two decades, medical and therapeutic approaches to transgender patients have changed radically, from treating a supposed pathology to offering gender-affirming care. Based on ethnographic fieldwork in New York City and Buenos Aires, Care without Pathology moves across the Americas to show how trans- health activists have taken on the project of depathologization.

 

In New York, Christoph Hanssmann examines activist attempts to overturn bans on using public health dollars to fund trans- health care. In Argentina, he traces how trans- activists marshaled medical statistics and personal biographies to reveal state violence directed against trans- people and travestis. Hanssmann also demonstrates the importance of understanding transphobia in the broader context of gendered racism, ableism, and antipoverty, arguing for the rise of a thoroughly coalition-based mass mobilization.

 

Care without Pathology highlights the distributive arguments activists made to access state funding for health care, combating state arguments that funding trans- health care is too specialized, too expensive, and too controversial. Hanssmann situates trans- health as a crucible within which sweeping changes are taking place—with potentially far-reaching effects on the economic and racial barriers to accessing care.

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The City and the Hospital
The Paradox of Medically Overserved Communities
Daniel Skinner, Jonathan R. Wynn, and Berkeley Franz
University of Chicago Press, 2023
A surprising look at how hospitals affect and are affected by their surrounding communities.
 
An enduring paradox of urban public health is that many communities around hospitals are economically distressed and, counterintuitively, medically underserved. In The City and the Hospital two sociologists, Jonathan R. Wynn and Berkeley Franz, and a political scientist, Daniel Skinner, track the multiple causes of this problem and offer policy solutions.
 
Focusing on three urban hospitals—Connecticut’s Hartford Hospital, the flagship of the Hartford Healthcare system; the Cleveland Clinic, which coordinates with other providers for routine care while its main campus provides specialty care; and the University of Colorado Hospital, a rare example of an urban institution that relocated to a new community—the authors analyze the complicated relationship between a hospital and its neighborhoods. On the one hand, hospitals anchor the communities that surround them, often staying in a neighborhood for decades. Hospitals also craft strategies to engage with the surrounding community, many of those focused on buying locally and hiring staff from their surrounding area. On the other hand, hospitals will often only provide care to the neighboring community through emergency departments, reserving advanced medical care and long-term treatment for those who can pay a premium for it. In addition, the authors show, hospitals frequently buy neighborhood real estate and advocate for development programs that drive gentrification and displacement.
 
To understand how urban healthcare institutions work with their communities, the authors address power, history, race, and urbanity as much as the workings of the medical industry. These varied initiatives and effects mean that understanding urban hospitals requires seeing them in a new light—not only as medical centers but as complicated urban forces.
 
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Climbing the Ladder, Chasing the Dream
The History of Homer G. Phillips Hospital
Candace O’Connor
University of Missouri Press, 2022
Nothing about Homer G. Phillips Hospital came easily. Built to serve St. Louis’s rapidly expanding African-American population, the grand new hospital opened its doors in 1937, toward the end of the Great Depression.  “Homer G.,” as many called it, joined a burgeoning group of black hospitals amid a national period of institutional segregation and strong racial prejudice nationwide.

When the beautiful, up-to-date hospital opened, it attracted more black residents than any other such program in the United States. Patients also flocked to the hospital, as did nursing students who found there excellent training, ready employment, and a boost into the middle class. For decades, the hospital thrived; by the 1950s, three-quarters of African-American babies in St. Louis were born at Homer G.

But the 1960s and 1970s brought less need for all-black hospitals, as faculty, residents, and patients were increasingly welcome in the many newly integrated institutions. Ever-tightening city budgets meant less money for the hospital, and in 1979, despite protests from the African-American community, HGPH closed. Years later, the venerated, long-vacant building came to life again as the Homer G. Phillips Senior Living Community.

Candace O’Connor draws upon contemporary newspaper articles, institutional records, and dozens of interviews with former staff members to create the first, full history of the Homer G. Phillips Hospital. She also brings new facts and insights into the life and mysterious murder (still an unsolved case) of the hospital’s namesake, a pioneering Black attorney and civil rights activist who led the effort to build the sorely needed medical facility in the Ville neighborhood.
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The Death Gap
How Inequality Kills
David A. Ansell, MD
University of Chicago Press, 2021
We hear plenty about the widening income gap between the rich and the poor in America and about the expanding distance separating the haves and the have-nots. But when detailing the many things that the poor have not, we often overlook the most critical—their health. The poor die sooner. Blacks die sooner. And poor urban blacks die sooner than almost all other Americans. In nearly four decades as a doctor at hospitals serving some of the poorest communities in Chicago, David A. Ansell, MD,  has witnessed firsthand the lives behind these devastating statistics. In The Death Gap, he gives a grim survey of these realities, drawn from observations and stories of his patients.

While the contrasts and disparities among Chicago’s communities are particularly stark, the death gap is truly a nationwide epidemic—as Ansell shows, there is a thirty-five-year difference in life expectancy between the healthiest and wealthiest and the poorest and sickest American neighborhoods. If you are poor, where you live in America can dictate when you die. It doesn’t need to be this way; such divisions are not inevitable. Ansell calls out the social and cultural arguments that have been raised as ways of explaining or excusing these gaps, and he lays bare the structural violence—the racism, economic exploitation, and discrimination—that is really to blame. Inequality is a disease, Ansell argues, and we need to treat and eradicate it as we would any major illness. To do so, he outlines a vision that will provide the foundation for a healthier nation—for all.

As the COVID-19 mortality rates in underserved communities proved, inequality is all around us, and often the distance between high and low life expectancy can be a matter of just a few blocks. Updated with a new foreword by Chicago mayor Lori Lightfoot and an afterword by Ansell, The Death Gap speaks to the urgency to face this national health crisis head-on.
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The Death Gap
How Inequality Kills
David A. Ansell, MD
University of Chicago Press, 2017
We hear plenty about the widening income gap between the rich and the poor in America and about the expanding distance separating the haves and the have-nots. But when detailing the many things that the poor have not, we often overlook the most critical—their health. The poor die sooner. Blacks die sooner. And poor urban blacks die sooner than almost all other Americans. In nearly four decades as a doctor at hospitals serving some of the poorest communities in Chicago, David A. Ansell, MD,  has witnessed firsthand the lives behind these devastating statistics. In The Death Gap, he gives a grim survey of these realities, drawn from observations and stories of his patients.

While the contrasts and disparities among Chicago’s communities are particularly stark, the death gap is truly a nationwide epidemic—as Ansell shows, there is a thirty-five-year difference in life expectancy between the healthiest and wealthiest and the poorest and sickest American neighborhoods. If you are poor, where you live in America can dictate when you die. It doesn’t need to be this way; such divisions are not inevitable. Ansell calls out the social and cultural arguments that have been raised as ways of explaining or excusing these gaps, and he lays bare the structural violence—the racism, economic exploitation, and discrimination—that is really to blame. Inequality is a disease, Ansell argues, and we need to treat and eradicate it as we would any major illness. To do so, he outlines a vision that will provide the foundation for a healthier nation—for all.

Inequality is all around us, and often the distance between high and low life expectancy can be a matter of just a few blocks. But geography need not be destiny, urges  Ansell. In The Death Gap he shows us how we can face this national health crisis head-on and take action against the circumstances that rob people of their dignity and their lives.
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Indigenous Health and Justice
Edited by Karen Jarratt-Snider and Marianne O. Nielsen
University of Arizona Press, 2024
Colonial oppression, systemic racism, discrimination, and poor access to a wide range of resources detract from Indigenous health and contribute to continuing health inequities and injustices. These factors have led to structural inadequacies that contribute to circular challenges such as chronic underfunding, understaffing, and culturally insensitive health-care provision. Nevertheless, Indigenous Peoples are working actively to end such legacies.

In Indigenous Health and Justice contributors demonstrate how Indigenous Peoples, individuals, and communities create their own solutions. Chapters focus on both the challenges created by the legacy of settler colonialism and the solutions, strengths, and resilience of Indigenous Peoples and communities in responding to these challenges. It introduces a range of examples, such as the ways in which communities use traditional knowledge and foodways to address health disparities.

Indigenous Health and Justice is the fifth volume in the Indigenous Justice series. The series editors have focused on different aspects of the many kinds of justice that affect Indigenous Peoples. This volume is for students, scholars, activists, policymakers, and health-care professionals interested in health and well-being.
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Just Enough to Put Him Away Decent
Death Care, Life Extension, and the Making of a Healthier South, 1900-1955
Kristine M. McCusker
University of Illinois Press, 2023
As the twentieth century began, Black and white southerners alike dealt with low life expectancy and poor healthcare in a region synonymous with early death. But the modernization of death care by a diverse group of actors changed not only death rituals but fundamental ideas about health and wellness.

Kristine McCusker charts the dramatic transformation that took place when southerners in particular and Americans in general changed their thinking about when one should die, how that death could occur, and what decent burial really means. As she shows, death care evolved from being a community act to a commercial one where purchasing a purple coffin and hearse ride to the cemetery became a political statement and the norm. That evolution also required interactions between perfect strangers, especially during the world wars as families searched for their missing soldiers. In either case, being put away decent, as southerners called burial, came to mean something fundamentally different in 1955 than it had just fifty years earlier.

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Nested Ecologies
A Multilayered Ethnography of Functional Medicine
Rosalynn A. Vega
University of Texas Press, 2023

How functional medicine leverages systems biology and epigenetic science to treat the microbiome and reverse chronic disease.

Each body is a system within a system—an ecology within the larger context of social, political, economic, cultural, and environmental factors. This is one of the lessons of epigenetics, whereby structural inequalities are literally encoded in our genes. But our ecological embeddedness extends beyond DNA, for each body also teems with trillions of bacteria, yeast, and fungi, all of them imprints of our individual milieus. Nested Ecologies asks what it would mean to take seriously our microbial being, given that our internal ecologies are shaped by inequalities embedded in our physical and social environments.

Further, Rosalynn Vega argues that health practices focused on patients’ unique biology inadvertently reiterate systemic inequities. In particular, functional medicine—which attempts to heal chronic disease by leveraging epigenetic science and treating individual microbiomes—reduces illness to problems of “lifestyle,” principally diet, while neglecting the inability of poor people to access nutrition. Functional medicine thus undermines its own critique of the economics of health care. Drawing on novel digital ethnographies and reflecting on her own experience of chronic illness, Vega challenges us to rethink not only the determinants of well-being but also what it is to be human.

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No Alternative
Childbirth, Citizenship, and Indigenous Culture in Mexico
By Rosalynn A. Vega
University of Texas Press, 2018

Recent anthropological scholarship on “new midwifery” centers on how professional midwives in various countries are helping women reconnect with “nature,” teaching them to trust in their bodies, respecting women’s “choices,” and fighting for women’s right to birth as naturally as possible. In No Alternative, Rosalynn A. Vega uses ethnographic accounts of natural birth practices in Mexico to complicate these narratives about new midwifery and illuminate larger questions of female empowerment, citizenship, and the commodification of indigenous culture, by showing how alternative birth actually reinscribes traditional racial and gender hierarchies.

Vega contrasts the vastly different birthing experiences of upper-class and indigenous Mexican women. Upper-class women often travel to birthing centers to be delivered by professional midwives whose methods are adopted from and represented as indigenous culture, while indigenous women from those same cultures are often forced by lack of resources to use government hospitals regardless of their preferred birthing method. Vega demonstrates that women’s empowerment, having a “choice,” is a privilege of those capable of paying for private medical services—albeit a dubious privilege, as it puts the burden of correctly producing future members of society on women’s shoulders. Vega’s research thus also reveals the limits of citizenship in a neoliberal world, as indigeneity becomes an object of consumption within a transnational racialized economy.

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Radical Health
Unwellness, Care, and Latinx Expressive Culture
Julie Avril Minich
Duke University Press, 2023
In Radical Health Julie Avril Minich examines the potential of Latinx expressive culture to intervene in contemporary health politics, elaborating how Latinx artists have critiqued ideologies of health that frame wellbeing in terms of personal behavior. Within this framework, poor health—obesity, asthma, diabetes, STIs, addiction, and high-risk pregnancies—is attributed to irresponsible lifestyle choices among the racialized poor. Countering this, Latinx writers and visual artists envision health not as individual duty but as communal responsibility. Bringing a disability justice approach to questions of health access and equity, Minich locates a concept of radical health within the work of Latinx artists, including the poetry of Rafael Campo, the music of Hurray for the Riff Raff, the fiction of Angie Cruz, and the performance art of Virginia Grise. Radical health operates as a modality that both challenges the stigma of unhealth and protests the social conditions that give rise to racial health disparities. Elaborating on this modality, Minich claims a critical role for Latinx artists in addressing the structural racism in public health. 
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Seeing Patients
A Surgeon’s Story of Race and Medical Bias, With a New Preface
Augustus A. White III MD
Harvard University Press, 2019

“A powerful and extraordinarily important book.”
—James P. Comer, MD


“A marvelous personal journey that illuminates what it means to care for people of all races, religions, and cultures. The story of this man becomes the aspiration of all those who seek to minister not only to the body but also to the soul.”
—Jerome Groopman, MD, author of How Doctors Think


Growing up in Jim Crow–era Tennessee and training and teaching in overwhelmingly white medical institutions, Gus White witnessed firsthand how prejudice works in the world of medicine. While race relations have changed dramatically since then, old ways of thinking die hard. In this blend of memoir and manifesto, Dr. White draws on his experience as a resident at Stanford Medical School, a combat surgeon in Vietnam, and head orthopedic surgeon at one of Harvard’s top teaching hospitals to make sense of the unconscious bias that riddles medical care, and to explore how we can do better in a diverse twenty-first-century America.

“Gus White is many things—trailblazing physician, gifted surgeon, and freedom fighter. Seeing Patients demonstrates to the world what many of us already knew—that he is also a compelling storyteller. This powerful memoir weaves personal experience and scientific research to reveal how the enduring legacy of social inequality shapes America’s medical field. For medical practitioners and patients alike, Dr. White offers both diagnosis and prescription.”
—Jonathan L. Walton, Plummer Professor of Christian Morals, Harvard University

“A tour de force—a compelling story about race, health, and conquering inequality in medical care…Dr. White has a uniquely perceptive lens with which to see and understand unconscious bias in health care…His journey is so absorbing that you will not be able to put this book down.”
—Charles J. Ogletree, Jr., author of All Deliberate Speed

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Seeing Patients
Unconscious Bias in Health Care
Augustus A. White III M.D.
Harvard University Press, 2011

If you’re going to have a heart attack, an organ transplant, or a joint replacement, here’s the key to getting the very best medical care: be a white, straight, middle-class male. This book by a pioneering black surgeon takes on one of the few critically important topics that haven’t figured in the heated debate over health care reform—the largely hidden yet massive injustice of bias in medical treatment.

Growing up in Jim Crow–era Tennessee and training and teaching in overwhelmingly white medical institutions, Gus White witnessed firsthand how prejudice works in the world of medicine. And while race relations have changed dramatically, old ways of thinking die hard. In Seeing Patients White draws upon his experience in startlingly different worlds to make sense of the unconscious bias that riddles medical treatment, and to explore what it means for health care in a diverse twenty-first-century America.

White and coauthor David Chanoff use extensive research and interviews with leading physicians to show how subconscious stereotyping influences doctor–patient interactions, diagnosis, and treatment. Their book brings together insights from the worlds of social psychology, neuroscience, and clinical practice to define the issues clearly and, most importantly, to outline a concrete approach to fixing this fundamental inequity in the delivery of health care.

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Sickening
Anti-Black Racism and Health Disparities in the United States
Anne Pollock
University of Minnesota Press, 2021

An event-by-event look at how institutionalized racism harms the health of African Americans in the twenty-first century
 

A crucial component of anti-Black racism is the unconscionable disparity in health outcomes between Black and white Americans. Sickening examines this institutionalized inequality through dramatic, concrete events from the past two decades, revealing how unequal living conditions and inadequate medical care have become routine. 

From the spike in chronic disease after Hurricane Katrina to the lack of protection for Black residents during the Flint water crisis—and even the life-threatening childbirth experience for tennis star Serena Williams—author Anne Pollock takes readers on a journey through the diversity of anti-Black racism operating in healthcare. She goes beneath the surface to deconstruct the structures that make these events possible, including mass incarceration, police brutality, and the hypervisibility of Black athletes’ bodies. Ultimately, Sickening shows what these shocking events reveal about the everyday racialization of health in the United States.

Concluding with a vital examination of racialized healthcare during the COVID pandemic and the Black Lives Matter rebellions of 2020, Sickening cuts through the mind-numbing statistics to vividly portray healthcare inequalities. In a gripping and passionate style, Pollock shows the devastating reality and consequences of systemic racism on the lives and health of Black Americans. 

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Structures of Indifference
An Indigenous Life and Death in a Canadian City
Mary Jane Logan McCallum
University of Manitoba Press, 2018

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Tell Me Why My Children Died
Rabies, Indigenous Knowledge, and Communicative Justice
Charles L. Briggs and Clara Mantini-Briggs
Duke University Press, 2016
Tell Me Why My Children Died tells the gripping story of indigenous leaders' efforts to identify a strange disease that killed thirty-two children and six young adults in a Venezuelan rain forest between 2007 and 2008. In this pathbreaking book, Charles L. Briggs and Clara Mantini-Briggs relay the nightmarish and difficult experiences of doctors, patients, parents, local leaders, healers, and epidemiologists; detail how journalists first created a smoke screen, then projected the epidemic worldwide; discuss the Chávez government's hesitant and sometimes ambivalent reactions; and narrate the eventual diagnosis of bat-transmitted rabies. The book provides a new framework for analyzing how the uneven distribution of rights to produce and circulate knowledge about health are wedded at the hip with health inequities. By recounting residents' quest to learn why their children died and documenting their creative approaches to democratizing health, the authors open up new ways to address some of global health's most intractable problems. 
 
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Therapy Tech
The Digital Transformation of Mental Healthcare
Emma Bedor Hiland
University of Minnesota Press, 2021

A pointed look at the state of tech-based mental healthcare and what we must do to change it
 

Proponents of technology trumpet it as the solution to the massive increase in the mental distress that confronts our nation. They herald the arrival of algorithms, intelligent chatbots, smartphone applications, telemental healthcare services, and more—but are these technological fixes really as good as they seem? In Therapy Tech, Emma Bedor Hiland presents the first comprehensive study of how technology has transformed mental healthcare, showing that this revolution can’t deliver what it promises.

Far from providing a solution, technological mental healthcare perpetuates preexisting disparities while relying on the same failed focus on personal responsibility that has let us down before. Through vivid, in-depth case studies, Therapy Tech reveals these problems, covering issues including psychosurveillance on websites like Facebook and 7 Cups of Tea, shortcomings of popular AI “doctors on demand” like Woebot, Wysa, and Joy, and even how therapists are being conscripted into the gig economy.

Featuring a vital coda that brings Therapy Tech up to date for the COVID era, this book is the first to give readers a large-scale analysis of mental health technologies and the cultural changes they have enabled. Both a sobering dissection of the current state of mental health and a necessary warning of where things are headed, Therapy Tech makes an important assertion about how to help those in need of mental health services today.

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Tuberculosis and the Politics of Exclusion
A History of Public Health and Migration to Los Angeles
Abel, Emily K.
Rutgers University Press, 2007

Winner of the 2008 Arthur J. Viseltear Prize from the American Public Health Association and Nominated for the 2008 William H. Welch Medal, AAHM

Though notorious for its polluted air today, the city of Los Angeles once touted itself as a health resort. After the arrival of the transcontinental railroad in 1876, publicists launched a campaign to portray the city as the promised land, circulating countless stories of miraculous cures for the sick and debilitated. As more and more migrants poured in, however, a gap emerged between the city’s glittering image and its dark reality.

            Emily K. Abel shows how the association of the disease with “tramps” during the 1880s and 1890s and Dust Bowl refugees during the 1930s provoked exclusionary measures against both groups. In addition, public health officials sought not only to restrict the entry of Mexicans (the majority of immigrants) during the 1920s but also to expel them during the 1930s. 

            Abel’s revealing account provides a critical lens through which to view both the contemporary debate about immigration and the U.S. response to the emergent global tuberculosis epidemic.

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