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Dancing with Parkinson's
Sara Houston
Intellect Books, 2019
This book explores the experience and value of dancing for people living with the neurodegenerative disorder Parkinson’s disease. Linking aesthetic values to wellbeing, Sara Houston articulates the importance of the dancing experience for those with Parkinson’s, and argues that the benefits of participatory dance are best understood through the experiences, lives, needs, and challenges of people living with Parkinson’s who have chosen to dance.

Presenting personal narratives from a study that investigates the experience of people with Parkinson’s who dance, intertwined with the social and political contexts in which the dancers live, this volume examines the personal and systemic issues as well as the attitudes and identities that shape people’s relationship to dance. Taking this new primary research as a starting point, Dancing with Parkinson’s builds an argument for how dance becomes a way of helping people live well with Parkinson’s.
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Deadly Biocultures
The Ethics of Life-making
Nadine Ehlers
University of Minnesota Press, 2019

A trenchant analysis of the dark side of regulatory life-making today


In their seemingly relentless pursuit of life, do contemporary U.S. “biocultures”—where biomedicine extends beyond the formal institutions of the clinic, hospital, and lab to everyday cultural practices—also engage in a deadly endeavor? Challenging us to question their implications, Deadly Biocultures shows that efforts to “make live” are accompanied by the twin operation of “let die”: they validate and enhance lives seen as economically viable, self-sustaining, productive, and oriented toward the future and optimism while reinforcing inequitable distributions of life based on race, class, gender, and dis/ability. Affirming life can obscure death, create deadly conditions, and even kill.

Deadly Biocultures examines the affirmation to hope, target, thrive, secure, and green in the respective biocultures of cancer, race-based health, fatness, aging, and the afterlife. Its chapters focus on specific practices, technologies, or techniques that ostensibly affirm life and suggest life’s inextricable links to capital but that also engender a politics of death and erasure. The authors ultimately ask: what alternative social forms and individual practices might be mapped onto or intersect with biomedicine for more equitable biofutures?

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The Death Gap
How Inequality Kills
David A. Ansell, MD
University of Chicago Press, 2021
We hear plenty about the widening income gap between the rich and the poor in America and about the expanding distance separating the haves and the have-nots. But when detailing the many things that the poor have not, we often overlook the most critical—their health. The poor die sooner. Blacks die sooner. And poor urban blacks die sooner than almost all other Americans. In nearly four decades as a doctor at hospitals serving some of the poorest communities in Chicago, David A. Ansell, MD,  has witnessed firsthand the lives behind these devastating statistics. In The Death Gap, he gives a grim survey of these realities, drawn from observations and stories of his patients.

While the contrasts and disparities among Chicago’s communities are particularly stark, the death gap is truly a nationwide epidemic—as Ansell shows, there is a thirty-five-year difference in life expectancy between the healthiest and wealthiest and the poorest and sickest American neighborhoods. If you are poor, where you live in America can dictate when you die. It doesn’t need to be this way; such divisions are not inevitable. Ansell calls out the social and cultural arguments that have been raised as ways of explaining or excusing these gaps, and he lays bare the structural violence—the racism, economic exploitation, and discrimination—that is really to blame. Inequality is a disease, Ansell argues, and we need to treat and eradicate it as we would any major illness. To do so, he outlines a vision that will provide the foundation for a healthier nation—for all.

As the COVID-19 mortality rates in underserved communities proved, inequality is all around us, and often the distance between high and low life expectancy can be a matter of just a few blocks. Updated with a new foreword by Chicago mayor Lori Lightfoot and an afterword by Ansell, The Death Gap speaks to the urgency to face this national health crisis head-on.
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front cover of Decentering Epistemologies and Challenging Privilege
Decentering Epistemologies and Challenging Privilege
Critical Care Ethics Perspectives
Sophie Bourgault
Rutgers University Press, 2024
Care ethics first emerged as an attempt to decenter ethics; feminist scholars like Carol Gilligan argued that women’s moral experiences were not reflected in the dominant, masculinist approaches to ethics, which were centered on a rational, disembodied, atomistic moral subject. Care ethics challenged this model by positing ethics as relational, contextualized, embodied, and realized through practices rather than principles. Over the past decades, many care ethics scholars have sought to further this project by considering care politically and epistemologically, in relation to various intersecting hierarchies of power and knowledge.

This book advances this project by discussing the ways care ethics contributes to the de-centering of dominant epistemologies and to the challenging of privilege, and by considering how to decenter care ethics itself via an encounter with non-Western philosophical traditions and alternative epistemologies. Written by scholars from different countries, disciplines, and intellectual traditions, the volume offers original care ethics contributions on epistemic injustice, privileged irresponsibility, ecofeminism, settler colonialism, social movements such as BLM, and on various racialized and gendered inequities tied to care work.
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Desperate Remedies
Psychiatry’s Turbulent Quest to Cure Mental Illness
Andrew Scull
Harvard University Press, 2022

A Telegraph Book of the Year
A Washington Post Notable Work
A Times Book of the Year
A Hughes Award Finalist


“An indisputable masterpiece…comprehensive, fascinating, and persuasive.”
Wall Street Journal

“Brimming with wisdom and brio, this masterful work spans the history of psychiatry. Exceedingly well-researched, wide-ranging, provocative in its conclusions, and magically compact, it is riveting from start to finish. Mark my words, Desperate Remedies will soon be a classic.”
—Susannah Cahalan, author of Brain on Fire

“Compulsively readable…Scull has joined his wide-ranging reporting and research with a humane perspective on matters that many of us continue to look away from.”
—Daphne Merkin, The Atlantic

"Scull's fascinating and enraging book is the story of the quacks and opportunists who have claimed to offer cures for mental illness...Madness remains the most fascinating—arguably the defining—aspect of Homo sapiens."
—Sebastian Faulks, Sunday Times

“I would recommend this fascinating, alarming, and alerting book to anybody. For anyone referred to a psychiatrist it is surely essential.”
The Spectator

For more than two hundred years disturbances of the mind have been studied and treated by the medical profession. Mental illness, some insist, is a disease like any other, from which one can be cured. But is this true?

From the birth of the asylum to the latest drug trials, Desperate Remedies brings together a galaxy of mind doctors working in and out of institutional settings: psychologists and psychoanalysts, neuroscientists and cognitive behavioral therapists, as well as patients and their families desperate for relief. Surprising, disturbing, and compelling, this passionate account of America’s long battle with mental illness challenges us to revisit some of our deepest assumptions and to confront the epidemic of mental illness so visible all around us.

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The Devil's Fruit
Farmworkers, Health, and Environmental Justice
Dvera I. Saxton
Rutgers University Press, 2021
The Devil's Fruit describes the facets of the strawberry industry as a harm industry, and explores author Dvera Saxton’s activist ethnographic work with farmworkers in response to health and environmental injustices. She argues that dealing with devilish—as in deadly, depressing, disabling, and toxic—problems requires intersecting ecosocial, emotional, ethnographic, and activist labors. Through her work as an activist medical anthropologist, she found the caring labors of engaged ethnography take on many forms that go in many different directions. Through chapters that examine farmworkers’ embodiment of toxic pesticides and social and workplace relationships, Saxton critically and reflexively describes and analyzes the ways that engaged and activist ethnographic methods, frameworks, and ethics aligned and conflicted, and in various ways helped support still ongoing struggles for farmworker health and environmental justice in California. These are problems shared by other agricultural communities in the U.S. and throughout the world.
 
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Diet and the Disease of Civilization
Adrienne Rose Bitar
Rutgers University Press, 2017

Diet books contribute to a $60-billion industry as they speak to the 45 million Americans who diet every year. Yet these books don’t just tell readers what to eat: they offer complete philosophies about who Americans are and how we should live. Diet and the Disease of Civilization interrupts the predictable debate about eating right to ask a hard question: what if it’s not calories—but concepts—that should be counted?

Cultural critic Adrienne Rose Bitar reveals how four popular diets retell the “Fall of Man” as the narrative backbone for our national consciousness. Intensifying the moral panic of the obesity epidemic, they depict civilization itself as a disease and offer diet as the one true cure. 

Bitar reads each diet—the Paleo Diet, the Garden of Eden Diet, the Pacific Island Diet, the detoxification or detox diet—as both myth and manual, a story with side effects shaping social movements, driving industry, and constructing fundamental ideas about sickness and health. Diet and the Disease of Civilization unearths the ways in which diet books are actually utopian manifestos not just for better bodies, but also for a healthier society and a more perfect world. 

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Diseased States
Epidemic Control in Britain and the United States
Charles Allan McCoy
University of Massachusetts Press, 2020
Outbreaks of Ebola, SARS, MERS, coronavirus, and pandemic influenza are brutal reminders of the dangers of infectious disease. Comparing the development of disease control in Britain and the United States, from the 1793 yellow fever outbreak in Philadelphia to the H1N1 panics of more recent times, Diseased States provides a blueprint for managing pandemics in the twenty-first century.

To understand why these two nations have handled contemporary disease threats in such different ways, Charles Allan McCoy examines when and how disease control measures were adopted in each country from the nineteenth century onward, which medical theory of disease was dominant at the time, and where disease control was located within the state apparatus. Particular starting conditions put Britain and the United States on distinct trajectories of institutionalization that led to their respective systems of disease control. As McCoy shows, even the seemingly objective matter of contagion is deeply enmeshed in social and political realities, and by developing unique systems of biopower to control the spread of disease, Britain and the United States have established different approaches of exerting political control over citizens' lives and bodies.
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Divided Bodies
Lyme Disease, Contested Illness, and Evidence-Based Medicine
Abigail A. Dumes
Duke University Press, 2020
While many doctors claim that Lyme disease—a tick-borne bacterial infection—is easily diagnosed and treated, other doctors and the patients they care for argue that it can persist beyond standard antibiotic treatment in the form of chronic Lyme disease. In Divided Bodies, Abigail A. Dumes offers an ethnographic exploration of the Lyme disease controversy that sheds light on the relationship between contested illness and evidence-based medicine in the United States. Drawing on fieldwork among Lyme patients, doctors, and scientists, Dumes formulates the notion of divided bodies: she argues that contested illnesses are disorders characterized by the division of bodies of thought in which the patient's experience is often in conflict with how it is perceived. Dumes also shows how evidence-based medicine has paradoxically amplified differences in practice and opinion by providing a platform of legitimacy on which interested parties—patients, doctors, scientists, politicians—can make claims to medical truth.
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Driven by Fear
Epidemics and Isolation in San Francisco's House of Pestilence
Guenter B. Risse
University of Illinois Press, 2015
From the late nineteenth century until the 1920s, authorities required San Francisco's Pesthouse to segregate the diseased from the rest of the city. Although the Pesthouse stood out of sight and largely out of mind, it existed at a vital nexus of civic life where issues of medicine, race, class, environment, morality, and citizenship entwined and played out. Guenter B. Risse places this forgotten institution within an emotional climate dominated by widespread public dread and disgust. In Driven by Fear, he analyzes the unique form of stigma generated by San Franciscans. Emotional states like xenophobia and racism played a part. Yet the phenomenon also included competing medical paradigms and unique economic needs that encouraged authorities to protect the city's reputation as a haven of health restoration. As Risse argues, public health history requires an understanding of irrational as well as rational motives. To that end he delves into the spectrum of emotions that drove extreme measures like segregation and isolation and fed psychological, ideological, and pragmatic urges to scapegoat and stereotype victims--particularly Chinese victims--of smallpox, leprosy, plague, and syphilis.

Filling a significant gap in contemporary scholarship, Driven by Fear looks at the past to offer critical lessons for our age of bioterror threats and emerging infectious diseases.

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Drugs and the World
Axel Klein
Reaktion Books, 2008
Drug trafficking and consumption are among the most pressing global issues of our time and the approaches to alleviating them are myriad and complex. With Drugs and the World,Axel Klein takes a remarkably broad approach to the issue, exploring the importance of psychoactive substances to our health and culture.

            To be properly understood, drugs should not be simply examined from a negative point of view, Klein argues. From their centrality in religious rituals to their part in the growth of trade among nation-states, Klein reveals the pivotal role that drugs have played in the advancement of human society. Klein then investigates the modern policies that define certain substances as drugs; the link between drugs, addiction, and crime; and the legal strategies and policies around the world that have largely failed to control global drug trafficking. The book also draws upon studies from the Caribbean, West Africa and Eastern Europe to propose solutions that could reinforce the eroded power of state institutions, law enforcement, and the democratic process in addressing drug trafficking.

A timely and in-depth analysis, Drugs and the World offers an expertly written examination that will be essential for all those concerned with the role of drugs in the modern world.
 
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A Drunkard's Defense
Alcohol, Murder, and Medical Jurisprudence in Nineteenth-Century America
Michele Rotunda
University of Massachusetts Press, 2021
Is drunkenness a defense for murder? In the early nineteenth century, the answer was a resounding no. Intoxication was considered voluntary, and thus provided no defense. Yet as the century progressed, American courts began to extend exculpatory value to heavy drinking. The medicalization of alcohol use created new categories of mental illness which, alongside changes in the law, formed the basis for defense arguments that claimed unintended consequences and lack of criminal intent. Concurrently, advocates of prohibition cast "demon rum" and the "rum-seller" as the drunkard's accomplices in crime, mitigating offenders' actions. By the postbellum period, a backlash, led by medical professionals and an influential temperance movement, left the legacy of an unsettled legal standard.

In A Drunkard's Defense, Michele Rotunda examines a variety of court cases to explore the attitudes of nineteenth-century physicians, legal professionals, temperance advocates, and ordinary Americans toward the relationship between drunkenness, violence, and responsibility, providing broader insights into the country's complicated relationship with alcohol.
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Dying Green
A Journey through End-of-Life Medicine in Search of Sustainable Health Care
Christine Vatovec
Rutgers University Press, 2023
The slow violence being inflicted on our environment—through everything from carbon emissions to plastic pollution—also represents an impending public health catastrophe. Yet standard health care practices are more concerned with short-term outcomes than long-term sustainability. Every resource used to deliver medical care, from IV tubes to antibiotics to electricity, has a significant environmental impact. This raises an urgent ethical dilemma: in striving to improve the health outcomes of individual patients, are we damaging human health on a global scale?
 
In Dying Green, award-winning educator Christine Vatovec offers an engaging study that asks us to consider the broader environmental sustainability of health care. Through a comparative analysis of the care provided to terminally ill patients in a conventional cancer ward, a palliative care unit, and an acute-care hospice facility, she shows how decisions made at a patient’s bedside govern the environmental footprint of the healthcare industry. Likewise, Dying Green offers insights on the many opportunities that exist for reducing the ecological impacts of medical practices in general, while also enhancing care for the dying in particular. By envisioning a more sustainable approach to care, this book offers a way forward that is better for both patients and the planet.
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front cover of Dying to Count
Dying to Count
Post-Abortion Care and Global Reproductive Health Politics in Senegal
Siri Suh
Rutgers University Press, 2021
During the early 1990s, global health experts developed a new model of emergency obstetric care: post-abortion care or PAC. In developing countries with restrictive abortion laws and where NGOs relied on US family planning aid, PAC offered an apolitical approach to addressing the consequences of unsafe abortion. In Dying to Count, Siri Suh traces how national and global population politics collide in Senegal as health workers, health officials, and NGO workers strive to demonstrate PAC’s effectiveness in the absence of rigorous statistical evidence that the intervention reduces maternal mortality. Suh argues that pragmatically assembled PAC data convey commitments to maternal mortality reduction goals while obscuring the frequency of unsafe abortion and the inadequate care women with complications are likely to receive if they manage to reach a hospital. At a moment when African women face the highest risk worldwide of death from complications related to pregnancy, birth, or abortion, Suh’s ethnography of PAC in Senegal makes a critical contribution to studies of global health, population and development, African studies, and reproductive justice.
 
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