Since the middle of the nineteenth century, sobriety movements have flourished in America during periods of social and economic crisis. From the boisterous working-class temperance meetings of the 1840s to the quiet beginnings of Alcoholics Anonymous in the 1930s, alcoholics have banded together for mutual support. Each time they have developed new ways of telling their stories, and in the process they have shaped how Americans think about addiction, the self, and society.

In this book Eoin Cannon illuminates the role that sobriety movements have played in placing notions of personal and societal redemption at the heart of modern American culture. He argues against the dominant scholarly perception that recovery narratives are private and apolitical, showing that in fact the genre's conventions turn private experience to public political purpose. His analysis ranges from neglected social reformer Helen Stuart Campbell's embrace of the "gospel rescue missions" of postbellum New York City to William James's use of recovery stories to consider the regenerative capabilities of the mind, to writers such as Upton Sinclair and Djuna Barnes, who used this narrative form in much different ways.

Cannon argues that rather than isolating recovery from these realms of wider application, the New Deal–era Alcoholics Anonymous refitted the "drunkard's conversion" as a model of selfhood for the liberal era, allowing for a spiritual redemption story that could accommodate a variety of identities and compulsions. He concludes by considering how contemporary recovery narratives represent both a crisis in liberal democracy and a potential for redemptive social progress.

Celebrated as a major work since its original publication, The Sanitation of Brazil traces how rural health and sanitation policies influenced the formation of Brazil's national public health system. Gilberto Hochman's pioneering study examines the ideological, social and political forces that approached questions of health and government action. The era from 1910 to 1930 offered unique opportunities for public health reform, and Hochman examines its successes and failures. He looks at how health became a state concern, tying the emergence of public health policies to a nationalistic movement and to a convergence of the elites' social consciousness with their political and material interests. Politicians weighed the costs and benefits of state-run public health versus the burdens imposed by disease. Physicians and intellectuals, meanwhile, swayed them with warnings that endemic disease and official neglect might affect everyone--rich and poor, rural and urban, interior and coastal--if left unchecked. The book shows how disease and health were and are associated with nation-state building in Brazil.

Longlisted for the Fleck Prize from the Society for Social Studies of Science (4S)

Citizen science—research involving nonprofessionals in the research process—has attracted both strong enthusiasts and detractors. Many environmental professionals, activists, and scholars consider citizen science part of their toolkit for addressing environmental challenges. Critics, however, contend that it represents a corporate takeover of scientific priorities. In this timely book, two sociologists move beyond this binary debate by analyzing the tensions and dilemmas that citizen science projects commonly face. Key lessons are drawn from case studies where citizen scientists have investigated the impact of shale oil and gas, nuclear power, and genetically engineered crops. These studies show that diverse citizen science projects face shared dilemmas relating to austerity pressures, presumed boundaries between science and activism, and difficulties moving between scales of environmental problems. By unpacking the politics of citizen science, this book aims to help people negotiate a complex political landscape and choose paths moving toward social change and environmental sustainability.
 

Although the topic of habitual narcotic use first surfaced in the United States during the 1820s, it was not until after the Civil War that it became a subject of widespread public attention. Beginning in the 1870s, an increasingly urgent discussion of what some described as a national epidemic of "drug addiction" could be found in both medical journals and the popular press. Today, nearly a century and a half later, the term is so commonplace we speak of people being "addicted" to just about anything. Yet as Timothy A. Hickman argues in this revealing interdisciplinary study, the meaning of addiction has always been as much cultural as scientific and never fixed. In The Secret Leprosy of Modern Days, Hickman resituates the idea of addiction within its original late nineteenth- and early twentieth-century context. Through close readings of a broad range of literary, medical, and legal texts, he shows how Americans of that era conceptualized the dangers of drug addiction in terms of other preoccupations and fears. Anxieties about the accelerating pace of technological change, the loss of personal autonomy, and the degeneration of society attributed to both foreign influences and a decline of manliness all fed into a widespread sense of cultural crisis—a crisis of which the spiraling "drug problem" was seen as both contributing cause and consequence. Not surprisingly, Hickman points out, deeply held assumptions of class, race, and gender also figured into the popular understanding of addiction. While white middle-class addicts were often depicted as helpless victims of the social and economic pressures of modern life, their less privileged and nonwhite counterparts were regarded as morally weak. Over time the distinction between "addict as patient" and "addict as criminal" came to be accepted by the emerging medical establishment and codified into law, eventually finding expression in the Harrison Narcotics Act of 1914, the first national anti-narcotic legislation in the history of the United States—and the basis for much thinking about addiction and drug policy ever since.

"Culture counts" has long been a rallying cry among health advocates and policymakers concerned with racial disparities in health care. A generation ago, the women's health movement led to a host of changes that also benefited racial minorities, including more culturally aware medical staff, enhanced health education, and the mandated inclusion of women and minorities in federally funded research. Many health professionals would now agree that cultural competence is important in clinical settings, but in what ways? Shattering Culture provides an insightful view of medicine and psychiatry as they are practiced in today's culturally diverse clinical settings. The book offers a compelling account of the many ways culture shapes how doctors conduct their practices and how patients feel about the care they receive. Based on interviews with clinicians, health care staff, and patients, Shattering Culture shows the human face of health care in America. Building on over a decade of research led by Mary-Jo Good, the book delves into the cultural backgrounds of patients and their health care providers, as well as the institutional cultures of clinical settings, to illuminate how these many cultures interact and shape the quality of patient care. Sarah Willen explores the controversial practice of matching doctors and patients based on a shared race, ethnicity, or language and finds a spectrum of arguments challenging its usefulness, including patients who may fear being judged negatively by providers from the same culture. Seth Hannah introduces the concept of cultural environments of hyperdiversity describing complex cultural identities. Antonio Bullon and Mary-Jo Good demonstrate how regulations meant to standardize the caregiving process—such as the use of templates and check boxes instead of narrative notes—have steadily limited clinician flexibility, autonomy, and the time they can dedicate to caring for patients. Elizabeth Carpenter-Song looks at positive doctor-patient relationships in mental health care settings and finds that the most successful of these are based on mutual "recognition"—patients who can express their concerns and clinicians who validate them. In the book's final essay, Hannah, Good, and Park show how navigating the maze of insurance regulations, financial arrangements, and paperwork compromises the effectiveness of mental health professionals seeking to provide quality care to minority and poor patients. Rapidly increasing diversity on one hand and bureaucratic regulations on the other are two realities that have made providing culturally sensitive care even more challenging for doctors. Few opportunities exist to go inside the world of medical and mental health clinics and see how these realities are influencing patient care. Shattering Culture provides a rare look at the day-to-day experiences of psychiatrists and other clinicians and offers multiple perspectives on what culture means to doctors, staff, and patients and how it shapes the practice of medicine and psychiatry.

An event-by-event look at how institutionalized racism harms the health of African Americans in the twenty-first century
 

A crucial component of anti-Black racism is the unconscionable disparity in health outcomes between Black and white Americans. Sickening examines this institutionalized inequality through dramatic, concrete events from the past two decades, revealing how unequal living conditions and inadequate medical care have become routine. 

From the spike in chronic disease after Hurricane Katrina to the lack of protection for Black residents during the Flint water crisis—and even the life-threatening childbirth experience for tennis star Serena Williams—author Anne Pollock takes readers on a journey through the diversity of anti-Black racism operating in healthcare. She goes beneath the surface to deconstruct the structures that make these events possible, including mass incarceration, police brutality, and the hypervisibility of Black athletes’ bodies. Ultimately, Sickening shows what these shocking events reveal about the everyday racialization of health in the United States.

Concluding with a vital examination of racialized healthcare during the COVID pandemic and the Black Lives Matter rebellions of 2020, Sickening cuts through the mind-numbing statistics to vividly portray healthcare inequalities. In a gripping and passionate style, Pollock shows the devastating reality and consequences of systemic racism on the lives and health of Black Americans. 

This report explores the complex ethical, political, psychological, and economic questions that arise from developments in medical genetics. It reviews research in applied genetics at the interface of the social and bio-medical fields, including the counseling and study of birth control, as well as the active treatment and selection of individual genetic attributes.

A volume of the Russell Sage Foundation's Social Science Frontiers, occasional publications reviewing new fields for social science development. This paper explores the links between the social and biomedical sciences concerning the prolongation and termination of life, with the aim to stimulate scholars, foundations, and government agencies to further study death and dying in American society.

This work is the fifth in a series of bulletins on the applications of sociology to various fields of professional practice prepared under the joint sponsorship of the American Sociological Association and the Russell Sage Foundation. Previous bulletins have dealt with applications of sociology in the fields of corrections, mental health, education, and military organization. Dr. Suchman has performed an important service in his clear delineation of the great potential sociology and related disciplines have for sharpening our understanding of the social factors in health and disease, for intelligent planning and mounting of appropriate action programs, and for improving the organizational structure and institutional mechanisms of the health professions themselves.

Four decades have passed since reports of a mysterious “gay cancer” first appeared in US newspapers. In the ensuing years, the pandemic that would come to be called AIDS changed the world in innumerable ways. It also gave rise to one of the late twentieth century’s largest health-based empowerment movements. Scholars across diverse traditions have documented the rise of the AIDS activist movement, chronicling the impassioned echoes of protestors who took to the streets to demand “drugs into bodies.”

And yet not all activism creates echoes. Included among the ranks of 1980s and 1990s-era AIDS activists were individuals whose expressions of empowerment differed markedly from those demanding open access to mainstream pharmaceutical agents. Largely forgotten today, this activist tradition was comprised of individuals who embraced unorthodox approaches for conceptualizing and treating their condition. Rejecting biomedical expertise, they shared alternative clinical paradigms, created underground networks for distributing unorthodox nostrums, and endorsed etiological models that challenged the association between HIV and AIDS. The theatre of their protests was not the streets of New York City’s Greenwich Village but rather their bodies. And their language was not the riotous chants of public demonstration but the often-invisible embrace of contrarian systems for defining and treating their disease.

The Sounds of Furious Living seeks to understand the AIDS activist tradition, identifying the historical currents out of which it arose. Embracing a patient-centered, social historical lens, it traces historic shifts in popular understanding of health and perceptions of biomedicine through the nineteenth and twentieth centuries to explain the lasting appeal of unorthodox health activism into the modern era. In asking how unorthodox health activism flourished during the twentieth century’s last major pandemic, Kelly also seeks to inform our understanding of resistance to biomedical authority in the setting of the twenty-first century’s first major pandemic: COVID-19. As a deeply researched portrait of distrust and disenchantment, The Sounds of Furious Living helps explain the persistence of movements that challenge biomedicine’s authority well into a century marked by biomedical innovation, while simultaneously posing important questions regarding the meaning and metrics of patient empowerment in clinical practice.

For any country that has a large and diverse migrant population, it is a struggle to connect these people to the country’s institutions, including the healthcare system, which can be overwhelming in its complexity. Cultural and language barriers often make it difficult for doctors to fully understand the symptoms of their migrant patients, reach accurate diagnoses, or properly treat their suffering. Thus, medical practitioners must attempt new, innovative practices in order to reach patients where they are and convince them to accept treatment from doctors they don’t totally understand. In France, Serge Bouznah and Catherine Lewertowski have pioneered one such practice—that of transcultural mediation. 
 
Drawn from two decades of their experience with transcultural mediation, Spirits in the Consulting Room tells the stories of eight patients—mainly migrants—and their families. Each chapter focuses on a different patient, and Christelle, Djibril, Moncef, Alhassane, Jacinthe, Amy, Cyril, Alice, and Pierre leap off the page as distinct people with unique situations. Together, these chapters reveal how patients’ comprehension of their symptoms is shaped by their cultural background, while recounting the challenges of translating that into terms the doctors can grasp. 
 
The book shows how trained transcultural mediators can help to redress the power imbalance between doctors and the migrants they treat, providing patients with advocates who respect the authority of their background and experiences and don’t just take the side of the medical professionals. The groundbreaking insights modeled in this book can be applied to any medical situation where doctors and patients find themselves speaking different languages. 
 

2020 Choice​ Outstanding Academic Title

The moving body—pervasively occupied by fitness activities, intense training and dieting regimes, recreational practices, and high-profile sporting mega-events—holds a vital function in contemporary society. As the body moves—as it performs, sweats, runs, and jumps—it sets in motion an intricate web of scientific rationalities, spatial arrangements, corporate imperatives, and identity politics (i.e. politics of gender, race, social class, etc.). It represents vitality in its productive and physiological capacities, it drives a complex economy of experiences and products, and it is a meaningful site of cultural identities and politics.
 
Contributors to Sport, Physical Culture, and the Moving Body work from a simple premise: as it moves, the material body matters. Adding to the burgeoning fields of sport studies and body studies, the works featured here draw upon the traditions of feminist theory, posthumanism, actor network theory, and new materialism to reposition the physical, moving body as crucial to the cultural, political, environmental, and economic systems that it constitutes and within which is constituted. Once assembled, the book presents a study of bodies in motion—made to move in contexts where technique, performance, speed, strength, and vitality not only define the conduct therein, but provide the very reason for the body’s being within those economies and environments. In so doing, the contributors look to how the body moving for and about rational systems of science, medicine, markets, and geopolity shapes the social and material world in important and unexpected ways.
 
In Sport, Physical Culture, and the Moving Body, contributors explore the extent to which the body, when moving about both ostensibly active body spaces (i.e., the gymnasium, the ball field, exercise laboratory, the track or running trail, the beach, or the sport stadium) and those places less often connected to physical activity (i.e. the home, the street, the classroom, the automobile), is bounded to technologies of life and living; and to the political arrangements that seek to capitalize upon such frames of biological vitality. To do so, the authors problematize the rise of active body science (i.e. kinesiology, sport and exercise sciences, performance biotechnology) and the effects these scientific interventions have on embodied, lived experience.
 
Contributors to Sport, Physical Culture, and the Moving Body will be engaging a range of new and emerging theoretical perspectives, including new materialist, political ecology, developmental systems theory, and new material feminist approaches, to examine the actors and assemblages of movement-based material, political, and economic production. In so doing, contributors will vividly and powerfully illustrate the extent to which a focus on the fleshed body and its material conditions can bring forth new insights or ontological and epistemological innovation to the sociology of sport and physical activity. They will also explore the agency of the body as and amongst things. Such a performative materialist approach explicates how complex assemblages of sport and physical activity—bringing into association everything from muscle fibers and dietary proteins to stadium concrete or regional aquifers—are not only meaningful, but ecological.
 
By focusing on the confluence of agentive materialities, disciplinary technologies, vibrant assemblages, speculative realities, and vital performativities, Sport, Physical Culture, and the Moving Body promises to offer a groundbreaking departure from representationalist tendencies and orthodoxies brought about by the cultural turn in sport and physical cultural studies. It brings the moving body and its physics back into focus: recentering moving flesh and bones as locus of social order, environmental change, and the global political economy.
 

The atomic bombs dropped on Hiroshima and Nagasaki in August of 1945 unleashed a force as mysterious as it was deadly—radioactivity. In 1946, the United States government created the Atomic Bomb Casualty Commission (ABCC) to serve as a permanent agency in Japan with the official mission of studying the medical effects of radiation on the survivors. The next ten years saw the ABCC's most intensive research on the genetic effects of radiation, and up until 1974 the ABCC scientists published papers on the effects of radiation on aging, life span, fertility, and disease.

Suffering Made Real is the first comprehensive history of the ABCC's research on how radiation affected the survivors of the atomic bomb. Arguing that Cold War politics and cultural values fundamentally shaped the work of the ABCC, M. Susan Lindee tells the compelling story of a project that raised disturbing questions about the ethical implications of using human subjects in scientific research.
How did the politics of the emerging Cold War affect the scientists' biomedical research and findings? How did the ABCC document and publicly present the effects of radiation? Why did the ABCC refuse to provide medical treatment to the survivors? Through a detailed examination of ABCC policies, archival materials, the minutes of committee meetings, newspaper accounts, and interviews with ABCC scientists, Lindee explores how political and cultural interests were reflected in the day-to-day operations of this controversial research program.

Set against a period of conflicting views of nuclear weapons and nuclear power, Suffering Made Real follows the course of a politically charged research program and reveals in detail how politics and cultural values can shape the conduct, results, and uses of science.

In 2015, Patricia Roos’s twenty-five-year-old son Alex died of a heroin overdose. Turning her grief into action, Roos, a professor of sociology at Rutgers University, began to research the social factors and institutional failures that contributed to his death. Surviving Alex tells her moving story—and outlines the possibilities of a more compassionate and effective approach to addiction treatment.  

Weaving together a personal narrative and a sociological perspective, Surviving Alex movingly describes how even children from “good families” fall prey to addiction, and recounts the hellish toll it takes on families. Drawing from interviews with Alex’s friends, family members, therapists, teachers, and police officers—as well as files from his stays in hospitals, rehab facilities, and jails—Roos paints a compelling portrait of a young man whose life veered between happiness, anxiety, success, and despair. And as she explores how a punitive system failed her son, she calls for a community of action that would improve care for substance users and reduce addiction, realigning public health policy to address the overdose crisis.

 

A bold new indictment of the racialization of science

Decades of data cannot be ignored: African American adults are far more likely to develop Type 2 diabetes than white adults. But has science gone so far in racializing diabetes as to undermine the search for solutions? In a rousing indictment of the idea that notions of biological race should drive scientific inquiry, Sweetness in the Blood provides an ethnographic picture of biotechnology’s framings of Type 2 diabetes risk and race and, importantly, offers a critical examination of the assumptions behind the recruitment of African American and African-descent populations for Type 2 diabetes research.

James Doucet-Battle begins with a historical overview of how diabetes has been researched and framed racially over the past century, chronicling one company’s efforts to recruit African Americans to test their new diabetes risk-score algorithm with the aim of increasing the clinical and market value of the firm’s technology. He considers African American reticence about participation in biomedical research and examines race and health disparities in light of advances in genomic sequencing technology. Doucet-Battle concludes by emphasizing that genomic research into sub-Saharan ancestry in fact underlines the importance of analyzing gender before attempting to understand the notion of race. No disease reveals this more than Type 2 diabetes.

Sweetness in the Blood challenges the notion that the best approach to understanding, managing, and curing Type 2 diabetes is through the lens of race. It also transforms how we think about sugar, filling a neglected gap between the sugar- and molasses-sweetened past of the enslaved African laborer and the high-fructose corn syrup- and corporate-fed body of the contemporary consumer-laborer.