front cover of Waiting for Cancer to Come
Waiting for Cancer to Come
Women’s Experiences with Genetic Testing and Medical Decision Making for Breast and Ovarian Cancer
Sharlene Hesse-Biber
University of Michigan Press, 2014

Waiting for Cancer to Come tells the stories of women who are struggling with their high risk for cancer. Based on interviews and surveys of dozens of women, this book pieces together the diverse yet interlocking experiences of women who have tested positive for the BRCA 1/2 gene mutations, which indicate a higher risk of developing breast and ovarian cancer. Sharlene Hesse-Biber brings these narratives to light and follows women’s journeys from deciding to get screened for BRCA, to learning the test has come back positive, to dealing with their risk. Many women already know the challenges of a family history riddled with cancer and now find themselves with the devastating knowledge of their own genetic risk. Using the voices of the women themselves to describe the under-explored BRCA experience, Waiting for Cancer to Come looks at the varied emotional, social, economic, and psychological factors at play in women’s decisions about testing and cancer prevention.

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A Walking Disaster
What Surviving Katrina and Cancer Taught Me about Faith and Resilience
Jamie Aten
Templeton Press, 2020

Is there a meaning to our suffering? Is hope realistic when tragedy befalls us? Is a return to normalcy possible after our life is uprooted by catastrophe? These are the questions that disaster psychologist Dr. Jamie Aten wrestled with when he was diagnosed with Stage IV colon cancer. In this gripping memoir, Aten shares the life-affirming and faith-renewing insights that he discovered during his tumultuous struggle against the disease.

Aten’s journey began in 2005 when Hur­ricane Katrina struck his community. After witnessing the devastation wrought by the storm, he dedicated his career to investigat­ing how people respond to and recover from all manner of disasters. He studied disaster zones around the globe and founded the Humanitarian Disaster Institute at Wheaton College. His expertise, however, was little comfort when a fateful visit with his oncolo­gist revealed advanced and aggressive cancer. “You’re in for your own personal disaster” was his doctor’s prognosis.

Thrust into a battle for his life, with cancer cells and chemotherapy ravaging his body, Aten found his professional interest taking on new meaning. His ordeal taught him firsthand how we can sustain ourselves when burdened with seemingly unbear­able suffering. Some of his counterintuitive insights include: to find hope, be cautious of optimism; when you want help the least is when you need it most; and spiritual surren­der, rather than a passive act, is instead an act of profound courage.
This last point speaks to the element of grace in Dr. Aten’s story. As he struggled to understand the significance of his suffering, he found himself examining his Christian faith down to its bedrock and learned to experience the redeeming presence of God in his life. Dr. Aten has a natural exuberance that shines through his writing. Infused with his compassionate voice and humanitarian concern,

A Walking Disaster is ultimately an inspirational story about the power of the human spirit to endure trauma with cour­age.

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War on Autism
On the Cultural Logic of Normative Violence
Anne McGuire
University of Michigan Press, 2016
War on Autism examines autism as a historically specific and powerladen cultural phenomenon that has much to teach about the social organization of a neoliberal western modernity. Bringing together a variety of interpretive theoretical perspectives including critical disability studies, queer and critical race theory, and cultural studies, the book analyzes the social significance and productive effects of contemporary discourses of autism as these are produced and circulated in the field of autism advocacy. Anne McGuire discusses how in the field of autism advocacy, autism often appears as an abbreviation, its multiple meanings distilled to various “red flag” warnings in awareness campaigns, bulleted biomedical ”facts” in information pamphlets, or worrisome statistics in policy reports. She analyzes the relationships between these fragmentary enactments of autism and traces their continuities to reveal an underlying, powerful, and ubiquitous logic of violence that casts autism as a pathological threat that advocacy must work to eliminate. Such logic, McGuire contends, functions to delimit the role of the “good” autism advocate to one who is positioned “against” autism.

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Watching Our Weights
The Contradictions of Televising Fatness in the “Obesity Epidemic”
Zimdars, Melissa
Rutgers University Press, 2019
Winner of the 2020 Gourmand Awards, Food Writing Section, USA​

Watching Our Weights explores the competing and contradictory fat representations on television that are related to weight-loss and health, medicalization and disease, and body positivity and fat acceptance. While television—especially reality television—is typically understood to promote individual self-discipline and expert interventions as necessary for transforming fat bodies into thin bodies, fat representations and narratives on television also create space for alternative as well as resistant discourses of the body. Melissa Zimdars thus examines the resistance inherent within TV representations and narratives of fatness as a global health issue, the inherent and overt resistance found across stories of medicalized fatness, and programs that actively avoid dieting narratives in favor of less oppressive ways of thinking about the fat body. Watching Our Weights weaves together analyses of media industry lore and decisions, communication and health policies, medical research, activist projects, popular culture, and media texts to establish both how television shapes our knowledge of fatness and how fatness helps us better understand contemporary television.  
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Water Ethics
Foundational Readings for Students and Professionals
Peter G. Brown and Jeremy J. Schmidt
Island Press, 2010
Having manipulated water for irrigation, energy, and burgeoning urban centers, humans are facing the reality that although fresh water is renewable, it is as finite as any other resource. Countries, states, and cities are now scrambling to develop an intelligent, well-informed approach to mitigate the growing global water crisis. Water Ethics is based on the belief that responding to contemporary water problems requires attending to questions of value and culture. How should we capture, store, and distribute water? At what cost? For whom? How do we reconcile water's dual roles as a practical resource and spiritual symbol?  
According to the editors of this collection of foundational essays, questions surrounding water are inherently ethical. Peter Brown and Jeremy Schmidt contend that all approaches to managing water, no matter how grounded in empirical data, involve value judgments and cultural assumptions. Each of the six sections of the book discuses a different approach to thinking about the relationship between water and humanity, from utilitarianism to eco-feminism to religious beliefs, including Islam, Hinduism, and Christianity. Contributors range from Bartholemew, Ecumenical Patriarch of the Orthodox Church to Nobel Laureate economist Elinor Ostrom and water policy expert Sandra Postel. Each section is framed by an original introductory essay written by the editors. 
Water Ethics will help readers understand how various moral perspectives, even when unstated, have guided and will continue to guide water policy around the globe.
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Weighty Problems
Embodied Inequality at a Children’s Weight Loss Camp
Laura Backstrom
Rutgers University Press, 2019
Many parents, teachers, and doctors believe that childhood obesity is a social problem that needs to be solved. Yet, missing from debates over what caused the rise in childhood obesity and how to fix it are the children themselves. By investigating how contemporary cultural discourses of childhood obesity are experienced by children, Laura Backstrom illustrates how deeply fat stigma is internalized during the early socialization experiences of children. Weighty Problems details processes of embodied inequality: how the children came to recognize inequalities related to their body size, how they explained the causes of those differences, how they responded to micro-level injustices in their lives, and how their participation in a weight loss program impacted their developing self-image. The book finds that embodied inequality is constructed and negotiated through a number of interactional processes including resocialization, stigma management, social comparisons, and attribution.
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When Care is Conditional
Immigrants and the U.S. Safety Net
Dani Carrillo
Russell Sage Foundation, 2024
From its inception, the public safety net in the United States has excluded many people because of their race, gendered roles, or other factors. As a result, they must prove their moral worthiness to get resources for themselves and their families. In When Care Is Conditional, sociologist Dani Carrillo reveals the ramifications of this conditional safety net by focusing on one particularly vulnerable population: undocumented immigrants.

Through in-depth interviews with Latinx immigrants in northern California, Carrillo examines three circumstances—place, gender, and immigration status—that intersect to influence an individual’s access to health care, food assistance, and other benefits. She demonstrates that place of residence affects undocumented immigrants’ ability to get care since more services are available in urban areas, where many immigrants cannot afford to live, than suburban areas, where public transportation is limited. She also shows that while both men and women who are undocumented have difficulty obtaining care, men often confront more challenges. Undocumented women who are pregnant or mothers are eligible for some government safety net programs and rely on informal coethnic networks or a “guiding figure”—a relative, friend, neighbor, or coworker—who explains how to get care and makes them feel confident in accessing it. Most undocumented men, in contrast, are not eligible for public programs except in a medical emergency and often lack someone to guide them directly to care. Men sometimes steer one another to jobs through worker centers—where they may learn about various services and take advantage of those that increase their employability, like English or computer classes—but a culture of masculinity leads them to downplay medical problems and seek health care only in a crisis.   
 
As undocumented immigrants navigate this exclusionary system, Carrillo finds that they resist the rhetoric stigmatizing them as lawbreakers. Dismissing the importance of “papers” and highlighting their work ethic, they question the fairness of U.S. immigration policies and challenge ideas about who deserves care.

Carrillo offers concrete recommendations, such as improving labor conditions and reexamining benefit eligibility, to increase access to care for not only undocumented immigrants but also people who have been excluded because of their race, criminal record, gender identity, sexual orientation, or disability. She argues that working with and across populations creates a powerful form of solidarity in advocating for inclusive care.
When Care Is Conditional provides compelling insights into how safety net and immigration policies intersect to affect people’s everyday lives and calls for a cultural shift so that the United States can provide unconditional care for all.
 
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When the Air Became Important
A Social History of the New England and Lancashire Textile Industries
Janet Greenlees
Rutgers University Press, 2019
In When the Air Became Important, medical historian Janet Greenlees examines the working environments of the heartlands of the British and American cotton textile industries from the nineteenth to the late twentieth centuries. Greenlees contends that the air quality within these pioneering workplaces was a key contributor to the health of the wider communities of which they were a part. Such enclosed environments, where large numbers of people labored in close quarters, were ideal settings for the rapid spread of diseases including tuberculosis, bronchitis and pneumonia. When workers left the factories for home, these diseases were transmitted throughout the local population, yet operatives also brought diseases into the factory. Other aerial hazards common to both the community and workplace included poor ventilation and noise. Emphasizing the importance of the peculiarities of place as well as employers’ balance of workers’ health against manufacturing needs, Greenlees’s pioneering book sheds light on the roots of contemporary environmentalism and occupational health reform. Her work highlights the complicated relationships among local business, local and national politics of health, and community priorities.
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The White Plague
Tuberculosis, Man and Society
Dubos, Jean
Rutgers University Press, 1987

In The White Plague, René and Jean Dubos argue that the great increase of tuberculosis was intimately connected with the rise of an industrial, urbanized society and—a much more controversial idea when this book first appeared forty years ago—that the progress of medical science had very little to do with the marked decline in tuberculosis in the twentieth century.

The White Plague has long been regarded as a classic in the social and environmental history of disease. This reprint of the 1952 edition features new introductory writings by two distinguished practitioners of the sociology and history of medicine. David Mechanic's foreword describes the personal and intellectual experience that shaped René Dubos's view of tuberculosis. Barbara Gutmann Rosenkrantz's historical introduction reexamines The White Plague in light of recent work on the social history of tuberculosis. Her thought-provoking essay pays particular attention to the broader cultural and medical assumptions about sickness and sick people that inform a society’s approach to the conquest of disease.

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Who Will Care For Us?
Long-Term Care and the Long-Term Workforce
Paul Osterman
Russell Sage Foundation, 2017
The number of elderly and disabled adults who require assistance with day-to-day activities is expected to double over the next twenty-five years. As a result, direct care workers such as home care aides and certified nursing assistants (CNAs) will become essential to many more families. Yet these workers tend to be low-paid, poorly trained, and receive little respect. Is such a workforce capable of addressing the needs of our aging population? In Who Will Care for Us?  economist Paul Osterman assesses the challenges facing the long-term care industry. He presents an innovative policy agenda that reconceives direct care workers’ work roles and would improve both the quality of their jobs and the quality of elder care.
 
Using national surveys, administrative data, and nearly 120 original interviews with workers, employers, advocates, and policymakers, Osterman finds that direct care workers  are marginalized and often invisible in the health care system. While doctors and families alike agree that good home care aides and CNAs are crucial to the well-being of their patients, the workers report poverty-level wages, erratic schedules, exclusion from care teams, and frequent incidences of physical injury on the job. Direct care workers are also highly constrained by policies that specify what they are allowed to do on the job, and in some states are even prevented from simple tasks such as administering eye drops.
 
Osterman concludes that broadening the scope of care workers’ duties will simultaneously boost the quality of care for patients and lead to better jobs and higher wages. He proposes integrating home care aides and CNAs into larger medical teams and training them as “health coaches” who educate patients on concerns such as managing chronic conditions and transitioning out of hospitals. Osterman shows that restructuring direct care workers’ jobs, and providing the appropriate training, could lower health spending in the long term by reducing unnecessary emergency room and hospital visits, limiting the use of nursing homes, and lowering the rate of turnover among care workers.
 
As the Baby Boom generation ages, Who Will Care for Us? demonstrates the importance of restructuring the long-term care industry and establishing a new relationship between direct care workers, patients, and the medical system.
 
 
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The Work of Hospitals
Global Medicine in Local Cultures
William C. Olsen
Rutgers University Press, 2022
In the context of neoliberalism and global austerity measures, health care institutions around the world confront numerous challenges in attempting to meet the needs of local populations. Examples from Africa (including, Ethiopia, Ghana, and Congo), Latin America (Peru, Mexico, Guatemala), Western Europe (France, Greece), and the United States illustrate how hospitals play a significant role in the social production of health and disease in the communities where they are. Many low-resource countries have experienced increasing privatization and dysfunction of public sector institutions such as hospitals, and growing withdrawal of funding for non-profit organizations. Underlying the chapters in The Work of Hospitals is a fundamental question: how do hospitals function lacking the medications, equipment and technologies, and personnel normally assumed to be necessary? This collection of ethnographies demonstrates how hospital administrators, clinicians, and other staff in hospitals around the world confront innumerable risks in their commitment to deliver health care, including civil unrest, widespread poverty, endemic and epidemic disease, and supply chain instability. Ultimately, The Work of Hospitals documents a vast gulf between the idealized mission of the hospital and the implementation of this mission in everyday practice. Hospitals thus become “contested space” between policy and practice. 
 
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