A SCHOLARLY BOOK REPOSITORY23 start with D start with D
How do women living with genital herpes and/or HPV (human papilloma virus) infections see themselves as sexual beings, and what choices do they make about sexual health issues? Adina Nack, a medical sociologist who specializes in sexual health and social psychology, conducted in-depth interviews with 43 women about their identities and sexuality in regards to chronic illness. The result is a fascinating book about an issue that affects over 15 million Americans, but is all too little discussed.
Damaged Goods adds to our knowledge of how women are affected by living with chronic STDs and reveals the stages of their sexual- self transformation. From the anxiety of being diagnosed with an STD to issues of blame and shame, Nack-herself diagnosed with a cervical HPV infection-shows why these women feeling that they are "damaged goods," question future relationships, marriage, and their ability to have healthy children.
Presenting personal narratives from a study that investigates the experience of people with Parkinson’s who dance, intertwined with the social and political contexts in which the dancers live, this volume examines the personal and systemic issues as well as the attitudes and identities that shape people’s relationship to dance. Taking this new primary research as a starting point, Dancing with Parkinson’s builds an argument for how dance becomes a way of helping people live well with Parkinson’s.
"Every writer has advice for aspiring writers. Mine is predicated on formative years spent cleaning my father’s calf pens: Just keep shoveling until you’ve got a pile so big, someone has to notice. The fact that I cast my life’s work as slung manure simply proves that I recognize an apt metaphor when I accidentally stick it with a pitchfork. . . . Poetry was my first love, my gateway drug—still the poets are my favorites—but I quickly realized I lacked the chops or insights to survive on verse alone. But I wanted to write. Every day. And so I read everything I could about freelancing, and started shoveling."
The pieces gathered within this book draw on fifteen years of what Michael Perry calls "shovel time"—a writer going to work as the work is offered. The range of subjects is wide, from musky fishing, puking, and mountain-climbing Iraq War veterans to the frozen head of Ted Williams. Some assignments lead to self-examination of an alarming magnitude (as Perry notes, "It quickly becomes obvious that I am a self-absorbed hypochondriac forever resolving to do better nutritionally and fitness-wise but my follow-through is laughable.") But his favorites are those that allow him to turn the lens outward: "My greatest privilege," he says, "lies not in telling my own story; it lies in being trusted to tell the story of another."
"If you read only one book this year, read Demanding Medical Excellence. It's that good, and the revolution it describes is that important."—Health Affairs
"Millenson has done yeoman's work in amassing and understanding that avalanche of data that lies beneath most of the managed-care headlines. . . . What he finds is both important and well-explained: inconsistency, overlap, and inattention to quality measures in medical treatment cost more and are more dangerous than most cost-cutting measures. . . . [This book] elevates the healthcare debate to a new level and deserves a wide readership."—Library Journal
"An involving, human narrative explaining how we got to where we are today and what lies ahead."—Mark Taylor, Philadelphia Inquirer
"Read this book. It will entertain you, challenge, and strengthen you in your quest for better accountability in health care."—Alex R. Rodriguez, M.D., American Journal of Medical Quality
"Finally, a health-care book that doesn't wring its hands over the decline of medicine at the hands of money-grubbing corporations. . . . This is a readable account of what Millenson calls a 'quiet revolution' in health care, and his optimism makes for a refreshing change."—Publishers Weekly
"With meticulous detail, historical accuracy, and an uncommon understanding of the clinical field, Millenson documents our struggle to reach accountability."—Saty Satya-Murti, M.D., Journal of the American Medical Association
You’ve argued politics with your aunt since high school, but failing eyesight now prevents her from keeping current with the newspaper. Your mother fractured her hip last year and is confined to a wheelchair. Your father has Alzheimer’s and only occasionally recognizes you. Someday, as Muriel Gillick points out in this important yet unsettling book, you too will be old. And no matter what vitamin regimen you’re on now, you will likely one day find yourself sick or frail. How do you prepare? What will you need?
With passion and compassion, Gillick chronicles the stories of elders who have struggled with housing options, with medical care decisions, and with finding meaning in life. Skillfully incorporating insights from medicine, health policy, and economics, she lays out action plans for individuals and for communities. In addition to doing all we can to maintain our health, we must vote and organize—for housing choices that consider autonomy as well as safety, for employment that utilizes the skills and wisdom of the elderly, and for better management of disability and chronic disease.
Most provocatively, Gillick argues against desperate attempts to cure the incurable. Care should focus on quality of life, not whether it can be prolonged at any cost. “A good old age,” writes Gillick, “is within our grasp.” But we must reach in the right direction.
In DES Daughters, Susan Bell recounts the experiences of this generation of “victims.” In moving, heartfelt narratives, she presents the voices of those women who developed cancer, those who were cancer-free but have concerns about becoming pregnant, and those who suffered other medical and/or reproductive difficulties.
Bell examines the hierarchy of knowledge and power of scientists, doctors, and daughters, tracing the emergence of a feminist health movement. The “embodied knowledge” of these DES daughters prompted them to become advocates and form a social movement that challenged reproductive medical knowledge specifically, but also the politics of women’s health in general. Bell’s important book chronicles the history and future of these grassroots activists born out of illness, suffering, and uncertainty.
In Diagnosing Desire: Biopolitics and Femininity into the Twenty-First Century, Alyson K. Spurgas examines the “new science of female sexuality” from a critical, sociological perspective, considering how today’s feminist-identified sex researchers study and manage women with low desire. Diagnosing Desire investigates experimental sex research that measures the disconnect between subjective and genital female arousal, contemporary psychiatric diagnoses for low female desire, new models for understanding women’s sexual response, and cutting-edge treatments for low desire in women—including from the realms of mindfulness and alternative healing.
Spurgas makes the case that, together, all of these technologies create a “feminized responsive desire framework” for understanding women’s sexuality, and that this, in fact, produces women’s sexuality as a complex problem to be solved. The biggest problem, Spurgas argues, is that gendered and sexualized trauma—including as it is produced within technoscientific medicine itself—is too often ignored in contemporary renderings. Through incisive textual analysis and in-depth qualitative research based on interviews with women with low desire, Spurgas argues for a more radical and communal form of care for feminized—and traumatized—populations, in opposition to biopolitical mandates to individualize and neoliberalize forms of self-care. Ultimately, this is a book not just about a specific diagnosis or dysfunction but about the material-discursive regimes that produce and regulate femininity.
Dr. Hightower’s quest for answers led her to mercury, a poison that has been plaguing victims for centuries and is now showing up in seafood. But this “explanation” opened a Pandora’s Box of thornier questions. Why did some fish from supermarkets and restaurants contain such high levels of a powerful poison? Why did the FDA base its recommendations for “safe” mercury consumption on data supplied by Saddam Hussein’s Ba’athist extremists? And why wasn’t the government warning its citizens?
In Diagnosis: Mercury, Dr. Hightower retraces her investigation into the modern prevalence of mercury poisoning, revealing how political calculations, dubious studies, and industry lobbyists endanger our health. While mercury is a naturally occurring element, she learns there’s much that is unnatural about this poison’s prevalence in our seafood. Mercury is pumped into the air by coal-fired power plants and settles in our rivers and oceans, and has been dumped into our waterways by industry. It accumulates in the fish we eat, and ultimately in our own bodies. Yet government agencies and lawmakers have been slow to regulate pollution or even alert consumers.
Why? The trail of evidence leads to Canada, Japan, Iraq, and various U.S. institutions, and as Dr. Hightower puts the pieces together, she discovers questionable connections between ostensibly objective researchers and industries that fear regulation and bad press. Her tenacious inquiry sheds light on a system in which, too often, money trumps good science and responsible government. Exposing a threat that few recognize but that touches many, Diagnosis: Mercury should be required reading for everyone who cares about their health.
Diet books contribute to a $60-billion industry as they speak to the 45 million Americans who diet every year. Yet these books don’t just tell readers what to eat: they offer complete philosophies about who Americans are and how we should live. Diet and the Disease of Civilization interrupts the predictable debate about eating right to ask a hard question: what if it’s not calories—but concepts—that should be counted?
Cultural critic Adrienne Rose Bitar reveals how four popular diets retell the “Fall of Man” as the narrative backbone for our national consciousness. Intensifying the moral panic of the obesity epidemic, they depict civilization itself as a disease and offer diet as the one true cure.
Bitar reads each diet—the Paleo Diet, the Garden of Eden Diet, the Pacific Island Diet, the detoxification or detox diet—as both myth and manual, a story with side effects shaping social movements, driving industry, and constructing fundamental ideas about sickness and health. Diet and the Disease of Civilization unearths the ways in which diet books are actually utopian manifestos not just for better bodies, but also for a healthier society and a more perfect world.
It has been known for more than a century that men and women tend to differ in the relative lengths of their index (2D) and ring (4D) fingers, which upon casual observation seem fairly symmetrical. Men on average have fourth digits longer than their second digits, while women typically have the opposite. Digit ratios are unique in that they are fixed before birth, while other sexually dimorphic variables are fixed after puberty, and the same genes that control for finger length also control the development of the sex organs. The 2D:4D ratio is the only prenatal sexually dimorphic trait that measurably explains conditions linking testosterone, estrogen, and human development; the study of the ratio broadens our view of human ability, talent, behavior, disposition, health, and fertility. In this book, Manning presents evidence for how 2D:4D correlates with traits ranging from sperm counts, family size, musical genius, and sporting prowess, to autism, depression, homosexuality, heart attacks, and breast cancer, traits that are all linked with early exposure to sex hormones.
This collection of eight essays examines the health, disease, and medical care of the American West—an area flanked by the Rocky Mountains, Sierra Nevada, and Cascade Mountains. Topics include Mormons and the Thomsonian Movement in the nineteenth century, the silicosis epidemic in hardrock mining, Native American health, frontier nursing, and Chinese medicine.
For decades, Katie D’Angelo and Valerie Harrison engaged in conversations about race and racism. However, when Katie and her husband, who are white, adopted Gabriel, a biracial child, Katie’s conversations with Val, who is black, were no longer theoretical and academic. The stakes grew from the two friends trying to understand each other’s perspectives to a mother navigating, with input from her friend, how to equip a child with the tools that will best serve him as he grows up in a white family.
Through lively and intimate back-and-forth exchanges, the authors share information, research, and resources that orient parents and other community members to the ways race and racism will affect a black child’s life—and despite that, how to raise and nurture healthy and happy children. These friendly dialogues about guarding a child’s confidence and nurturing positive racial identity form the basis for Do Right by Me. Harrison and D’Angelo share information on transracial adoption, understanding racism, developing a child’s positive racial identity, racial disparities in healthcare and education, and the violence of racism.
Do Right by Me also is a story about friendship and kindness, and how both can be effective in the fight for a more just and equitable society.
At last, here is a user-friendly guide to gynecologic surgery. The authors' guiding principle is that each woman for whom any kind of surgery is recommended should be well informed about the indications, the risks, and the expected results.
Using anecdotes drawn from a combined fifty years of experience, doctors Moore and de Costa provide clear and accurate information about women's anatomy, physiology, common gynecological ailments, diagnosis, alternative treatments, and, finally, full details about surgery itself. Among the surgeries discussed are removal of the uterus (hysterectomy), removal of the ovaries (oophorectomy), and removal of fibroids. The various ways of performing these procedures are examined, including minimally invasive surgery done through the laparoscope.
The authors also help the patient through the post-operative phase, revealing what to expect, how to make the recovery easier, and how to take care of yourself after the surgery. The result is a book that empowers women as they weigh their options with regard to gynecologic surgery.
What if your father had Alzheimer's disease? And what if there was a test to tell you if, as you grew older, you might develop it, too? Would you have the test? And if you did, how would the results affect the way you live your life? How would they affect your family? Your job? Your medical insurance?
Breast cancer, sickle-cell anemia, Huntington disease, muscular dystrophy--every day, people have to face the fact that a hereditary disorder runs in their family. The painful knowledge that they or their children might be at risk for a genetic disorder influences all their decisions about the future. They ask, "Is there a genetic test to let us know if we are really at risk? If there is such a test, do we really want to have it done?"
For an ever-growing number of disorders, testing is possible--but the existence of a test can raise new and troubling questions. In this book, geneticist and science policy expert Doris Teichler Zallen explains clearly and sympathetically how genetic disorders are passed along in families; which hereditary disorders can be tested for using genetic technology; how the new DNA tests for genetic disorders work; what genetic tests can and can't reveal, and why the tests often do not give clear-cut answers; what questions one should ask doctors and genetic counselors; how the health care system, government policies, and insurance companies influence our options; and what the resources are for obtaining more information and counseling.
Through the stories of real families and the choices they made about genetic testing, Zallen helps readers think through their own alternatives and discuss them with relatives. Does it Run in the Family? is essential reading for every family coping with inherited medical conditions and for the medical and genetics professionals involved in their decisions. It will also interest all readers who seek a clear explanation of the new DNA tests and the issues surrounding them.
In this panoramic and up-to-date account, we learn how the Black Death, smallpox, the 1918 influenza pandemic, and other great epidemics have not only led to enormous suffering and mass death but have also contributed to the fall of empires and changed the course of history. We also discover how new infectious diseases such as HIV/AIDS and COVID-19 emerge—and how we wage war against them.
Humanity has struck back at the microbes: antibiotics and new vaccines have saved millions of lives. But the battle with these relentless, silent enemies is far from won. We face increasing threats from new and unavoidable pandemics, antibiotic resistance, and even potential extraterrestrial microbes. Duel Without End is a fascinating journey through the long history of infection, from the dawn of life to humanity’s future exploration of deep space.
In Dying Green, award-winning educator Christine Vatovec offers an engaging study that asks us to consider the broader environmental sustainability of health care. Through a comparative analysis of the care provided to terminally ill patients in a conventional cancer ward, a palliative care unit, and an acute-care hospice facility, she shows how decisions made at a patient’s bedside govern the environmental footprint of the healthcare industry. Likewise, Dying Green offers insights on the many opportunities that exist for reducing the ecological impacts of medical practices in general, while also enhancing care for the dying in particular. By envisioning a more sustainable approach to care, this book offers a way forward that is better for both patients and the planet.
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