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Cancer Entangled
Anticipation, Acceleration, and the Danish State
Rikke Sand Andersen
Rutgers University Press, 2023
Cancer Entangled explores the shifts that took place in Denmark around the millennium, when health promoters set out to minimize delays in cancer diagnoses in hope of improving cancer survival. The authors suggest a temporal reframing of cancer control that emphasizes the importance of focusing on how people – potential patients as well as health care professionals – experience and anticipate cancer before a diagnosis or a prediction has been made. This argument compellingly challenges and augments anthropological work on cancer control that has privileged attention to the productive role of science and technology and to life with cancer or cancer risk. By offering rich ethnographic insights into the introduction of the first cancer vaccine, cancer signs and symptoms, public discourses on delays, social class and care seeking, cancer suspicion in the clinic, as well as the work on fast-track referral – the book convincingly situates cancer control in an ethical registrar involving attention to acceleration and time, showing how cancer waiting times become an index of the "state of the nation".
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Cannabis Consulting
Helping Patients, Parents, and Practitioners Understand Medical Marijuana
Ezra Parzybok
University Press of New England, 2018
As the movement for legalization of marijuana spreads across the country, it is important to weigh the possible benefits and pitfalls of cannabis use. Cannabis Consulting is both a handbook and a report from the front lines of medical marijuana use. Writing from the perspective of a parent and veteran schoolteacher turned professional cannabis consultant, Ezra Parzybok tells the often-inspiring stories of his practice, where he assists victims of chronic pain, terminal disease, and even conditions such as ADHD. This timely volume was written for patients and families, law enforcement and health professionals, who are trying to make decisions about cannabis during this critical era of transition. It is an honest, clear-eyed exploration of the marijuana debate that looks beyond the hype and disinformation on both sides to chart a new path toward rational and safe use of cannabis.
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Care without Pathology
How Trans- Health Activists Are Changing Medicine
Christoph Hanssmann
University of Minnesota Press, 2023

Examining trans- healthcare as a key site through which struggles for health and justice take shape

 

Over the past two decades, medical and therapeutic approaches to transgender patients have changed radically, from treating a supposed pathology to offering gender-affirming care. Based on ethnographic fieldwork in New York City and Buenos Aires, Care without Pathology moves across the Americas to show how trans- health activists have taken on the project of depathologization.

 

In New York, Christoph Hanssmann examines activist attempts to overturn bans on using public health dollars to fund trans- health care. In Argentina, he traces how trans- activists marshaled medical statistics and personal biographies to reveal state violence directed against trans- people and travestis. Hanssmann also demonstrates the importance of understanding transphobia in the broader context of gendered racism, ableism, and antipoverty, arguing for the rise of a thoroughly coalition-based mass mobilization.

 

Care without Pathology highlights the distributive arguments activists made to access state funding for health care, combating state arguments that funding trans- health care is too specialized, too expensive, and too controversial. Hanssmann situates trans- health as a crucible within which sweeping changes are taking place—with potentially far-reaching effects on the economic and racial barriers to accessing care.

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Caring for Depression
Kenneth B. Wells, Roland Sturm, Cathy D. Sherbourne, and Lisa S. Meredith
Harvard University Press

One of the major concerns about the changing U.S. health-care systems is whether they will improve or diminish the quality and cost-effectiveness of medical care. The shift from a fee-for-service to a prepaid method of reimbursement has greatly changed the incentives of patients to seek care as well as those of providers to supply it. This change poses a particular challenge for care of depressed patients, a vulnerable population that often does not advocate for its own care. This book documents the inefficiencies of our national systems--prepaid as well as fee-for-service--for treating depression and explores how they can be improved.

Although depression is a major illness affecting millions of people, it is seriously undertreated in the United States. The ongoing shift of mental-health care away from specialists and toward primary medical-care providers is causing fewer depressed patients to be appropriately diagnosed and treated. Depression is frequently more devastating than other major illnesses, such as arthritis and heart disease, because it often begins at a younger age, when people are at their productive peak and thus at risk of permanently damaging their careers. It also differs from many medical conditions in that its indirect costs are usually much higher than direct treatment costs.

The authors urge the integration of both medical and economic considerations in designing policies for the treatment of depression. They show that by spending more money efficiently on care, the nation will gain greater health improvements per dollar invested and a more productive population.

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Catastrophic Diseases
Who Decides What?
Jay Katz
Russell Sage Foundation, 1975
People do not choose to suffer from catastrophic illnesses, but considerable human choice is involved in the ways in which the participants in the process treat and conduct research on these diseases. Catastrophic Diseases draws a powerful and humane portrait of the patients who suffer from these illnesses as well as of the physician-investigators who treat them, and describes the major pressures, conflicts, and decisions which confront all of them. By integrating a discussion of "facts" and "values," the authors highlight the forces which affect new developments in medicine—such as kidney and heart transplants—and the controversial issues they generate. Katz and Capron explore these issues through the use of dual conceptual perspectives. Their study first examines and evaluates the authority which should be vested in each of the chief participants in the catastrophic disease process—the physician-investigator, the patient-subject and his relatives, the professionals, and the state. Challenging questions are raised concerning medical education, informed consent, and professional responsibility. The authors next explore how the roles and capacities of the participants vary not only according to the basic issues they face but also according to the point in decision-making at which these issues arise. The process of investigating and treating catastrophic diseases, the authors believe, can thus usefully be divided into three decision-making stages—the formulation of policy, the administration of research and therapy, and the review of the decisions and their consequences. In conclusion, Katz and Capron demonstrate the need for a variety of individuals and groups with diverse values to be involved in decision-making in a manner which will not unnecessarily impede the scientific investigation of these diseases.
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The Challenge of Regulating Managed Care
John E. Billi and Gail B. Agrawal, Editors
University of Michigan Press, 2001
Representatives of industry, government, caregivers, and consumers join scholars and policy analysts in comparing market forces to regulation as potential means for righting what is wrong with managed care. The contributors that John E. Billi and Gail B. Agrawal have gathered here quickly move the healthcare debate beyond the classroom, think tank, and statehouse to the boardroom and examining room.
Some argue strongly that the solution is to be found in the democratic process and government intervention, while others maintain that only market forces in a competitive environment can respond quickly to the needs of consumers and purchasers alike. The contributors' diverse opinions about the oversight of managed care reflect an enduring divide, one that will affect how society ultimately resolves questions about the inevitable tradeoffs among health-care quality, cost, and access in an environment of limited resources.
The Challenge of Regulating Managed Care will appeal to policymakers, those in the medical field, and all readers interested in the American experience with managed care.
John E. Billi is Associate Professor of Internal Medicine and Medical Education; Associate Dean for Clinical Affairs, University of Michigan Medical School; and Associate Vice President for Medical Affairs, University of Michigan.
Gail B. Agrawal is Associate Professor of Law, University of North Carolina, Chapel Hill.
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The Changing Hospital Industry
Comparing Not-for-Profit and For-Profit Institutions
Edited by David M. Cutler
University of Chicago Press, 1999
In recent years, the hospital industry has been undergoing massive change and reorganization with technological innovations and the spread of managed care. As a result, the total number of hospitals countrywide has been declining, and a growing number of not-for-profit hospitals have converted to for-profit status. These changes raise two fundamental questions: What determines a hospital's choice of for-profit or not-for-profit organizational form? And how does that form affect patients and society?

This timely volume provides a factual basis for discussing for-profit versus not-for-profit ownership of hospitals and gives a first look at the evidence about new and important issues in the hospital industry. The Changing Hospital Industry: Comparing Not-for-Profit and For-Profit Institutions will have significant implications for public-policy reforms in this vital industry and will be of great interest to scholars in the fields of health economics, public finance, hospital organization, and management; and to health services researchers.
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The Children in Child Health
Negotiating Young Lives and Health in New Zealand
Julie Spray
Rutgers University Press, 2020
Who are the children in child health policy? How do they live and see the world, and why should we know them? A journey into the lives of children coping in a world compromised by poverty and inequality, The Children in Child Health challenges the invisibility of children’s perspectives in health policy and argues that paying attention to what children do is critical for understanding the practical and policy implications of these experiences.
 
In the unique context of indigenous Māori and migrant Pacific children in postcolonial New Zealand, Julie Spray explores the intertwining issues of epidemic disease, malnutrition, stress, violence, self-harm, and death to address the problem of how scholars and policy-makers alike can recognize and respond to children as social actors in their health. The Children in Child Health innovatively combines perspectives from childhood studies, medical anthropology, and public health and policy together with evocative ethnography to show how a deep understanding of children’s worlds can change our approach to their care.
 
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Chronic Failures
Kidneys, Regimes of Care, and the Mexican State
Ciara Kierans
Rutgers University Press, 2020
Chronic Failures: Kidneys, Regimes of Care and the Mexican State is about Chronic Kidney Disease (CKD) and the relentless search for renal care lived out in the context of poverty, inequality and uneven welfare arrangements. Based on ethnographic research conducted in the state of Jalisco, this book documents the routes uninsured Mexican patients take in order to access resource intensive biotechnical treatments, that is, different modes of dialysis and organ transplantation. It argues that these routes are normalized, bureaucratically, socially and epidemiologically, and turned into a locus for exploitation and profit.  Without a coherent logic of healthcare access, negotiating regimes of renal care has catastrophic consequences for those with the least resources to expend in that effort. In carrying both the costs and the burden of care, the practices of patients without entitlement offer a critical vantage point on the interplay between the state, markets in healthcare and the sick body.
 
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The City and the Hospital
The Paradox of Medically Overserved Communities
Daniel Skinner, Jonathan R. Wynn, and Berkeley Franz
University of Chicago Press, 2023
A surprising look at how hospitals affect and are affected by their surrounding communities.
 
An enduring paradox of urban public health is that many communities around hospitals are economically distressed and, counterintuitively, medically underserved. In The City and the Hospital two sociologists, Jonathan R. Wynn and Berkeley Franz, and a political scientist, Daniel Skinner, track the multiple causes of this problem and offer policy solutions.
 
Focusing on three urban hospitals—Connecticut’s Hartford Hospital, the flagship of the Hartford Healthcare system; the Cleveland Clinic, which coordinates with other providers for routine care while its main campus provides specialty care; and the University of Colorado Hospital, a rare example of an urban institution that relocated to a new community—the authors analyze the complicated relationship between a hospital and its neighborhoods. On the one hand, hospitals anchor the communities that surround them, often staying in a neighborhood for decades. Hospitals also craft strategies to engage with the surrounding community, many of those focused on buying locally and hiring staff from their surrounding area. On the other hand, hospitals will often only provide care to the neighboring community through emergency departments, reserving advanced medical care and long-term treatment for those who can pay a premium for it. In addition, the authors show, hospitals frequently buy neighborhood real estate and advocate for development programs that drive gentrification and displacement.
 
To understand how urban healthcare institutions work with their communities, the authors address power, history, race, and urbanity as much as the workings of the medical industry. These varied initiatives and effects mean that understanding urban hospitals requires seeing them in a new light—not only as medical centers but as complicated urban forces.
 
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Closing the Cancer Divide
An Equity Imperative
Felicia Marie Knaul
Harvard University Press, 2012

Cancer has become a leading cause of death and disability and a serious yet unforeseen challenge to health systems in low- and middle-income countries. A protracted and polarized cancer transition is under way and fuels a concentration of preventable risk, illness, suffering, impoverishment from ill health, and death among poor populations. Closing this cancer divide is an equity imperative. The world faces a huge, unperceived cost of failure to take action that requires an immediate and large-scale global response.

Closing the Cancer Divide presents strategies for innovation in delivery, pricing, procurement, finance, knowledge-building, and leadership that can be scaled up by applying a diagonal approach to health system strengthening. The chapters provide evidence-based recommendations for developing programs, local and global policy-making, and prioritizing research. The cases and frameworks provide a guide for developing responses to the challenge of cancer and other chronic illnesses. The book summarizes results of the Global Task Force on Expanding Access to Cancer Care and Control in Developing Countries, a collaboration among leaders from the global health and cancer care communities worldwide, originally convened by Harvard University. It includes contributions from civil society, global and national policy-makers, patients and practitioners, and academics representing an array of fields.

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The Colonial Politics of Global Health
France and the United Nations in Postwar Africa
Jessica Lynne Pearson
Harvard University Press, 2018

In The Colonial Politics of Global Health, Jessica Lynne Pearson explores the collision between imperial and international visions of health and development in French Africa as decolonization movements gained strength.

After World War II, French officials viewed health improvements as a way to forge a more equitable union between France and its overseas territories. Through new hospitals, better medicines, and improved public health, French subjects could reimagine themselves as French citizens. The politics of health also proved vital to the United Nations, however, and conflicts arose when French officials perceived international development programs sponsored by the UN as a threat to their colonial authority. French diplomats also feared that anticolonial delegations to the United Nations would use shortcomings in health, education, and social development to expose the broader structures of colonial inequality. In the face of mounting criticism, they did what they could to keep UN agencies and international health personnel out of Africa, limiting the access Africans had to global health programs. French personnel marginalized their African colleagues as they mapped out the continent’s sanitary future and negotiated the new rights and responsibilities of French citizenship. The health disparities that resulted offered compelling evidence that the imperial system of governance should come to an end.

Pearson’s work links health and medicine to postwar debates over sovereignty, empire, and human rights in the developing world. The consequences of putting politics above public health continue to play out in constraints placed on international health organizations half a century later.

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Combating Teen Smoking
Research and Policy Strategies
Peter D. Jacobson, Paula M. Lantz, Kenneth E. Warner, Jeffrey Wasserman, Harold A. Pollack, and Alexis K. Ahlstrom
University of Michigan Press, 2001
Every year, more than 400,000 Americans die prematurely because of tobacco use. Most began smoking during their teen years. Adolescent tobacco use remains our nation's most preventable threat to life and health. This public health crisis has generated widespread debate over how best to prevent young people from initiating smoking or using other tobacco products. Combating Teen Smoking is an invaluable guide for policymakers and communities on the front lines of this prevention effort.
Synthesizing recent research regarding the prevention and control of adolescent smoking, this book offers the reader a convenient compendium of what is known about adolescents and tobacco use; it also highlights areas where additional research is needed. Based on their assessment of the considerable amount of information presented, the authors recommend various ways to help slow--or even reverse--the recent rise in teenage smoking. A comprehensive antitobacco program might include, for example, antismoking media campaigns based on social marketing strategies, clean indoor air laws, and the increase of cigarette prices.
Combating Teen Smoking will appeal to a broad spectrum of readers concerned about the problem of adolescent tobacco use, including policymakers who are actively seeking ways to help reduce teen smoking.
Peter D. Jacobson is Associate Professor, University of Michigan School of Public Health. Paula Lantz is Assistant Professor, University of Michigan School of Public Health. Kenneth Warner is Richard D. Remington Collegiate Professor of Public Health and Director, University of Michigan Tobacco Research Network. Jeffrey Wasserman is Consultant, the RAND Corporation and Senior Project Director, The MEDSTAT Group. Harold Pollack is Assistant Professor, University of Michigan School of Public Health. Alexis Ahlstrom is Research Associate, University of Michigan School of Public Health.
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Complex Sorrow
Reflections on Cancer and an Abbreviated Life
Marianne Paget
Temple University Press, 1993
"The author's multiple voices--scholar, sociologist, victim--provide an academic, yet personal, professional, yet poignant, story....Readers face...the 'contradictory meanings' that an especially articulate woman brings to the final chapter of her life." --Women and Health In 1988, Marianne Paget published the Unity of Mistakes: A Phenomenological Interpretation of Medical Work (Temple) in which she argued that error is an intrinsic feature in medicine--an experimental and uncertain activity. Her subsequent research focused on medical negligence and on miscommunication and silence a as cause and product of error in medicine. While pursuing her research on negligence, she found out that she was an example of it. Chronic back pain that had been misdiagnosed as muscle spasms turned out to be a symptom of a rare and fatal cancer that claimed Paget's life in December 1989. This collection of her personal and professional writings on the phenomenon of error in medicine chronicles a young scholar's courageous struggle to make sense of a tragic coincidence. Discovering that she was living the charges and painful topic that she had studied so deeply, Paget write poignantly and analytically until the last week of her life about this uncanny parallel. "It is very tricky to come to terms with the reality of death without becoming trapped in that reality," wrote "Tracy" Paget to her friends. In this book, she describes "the odd way my life began to mirror my work"; her search for "life rites" when face with tasks involving wills, last rites, and farewells; and her indomitable and forthright attempt to remain intensely alive in the face of death. A Complex Sorrow, her final project, comprises essays, letters, and a journal recording her last year. Ever critical of the distanced and dispassionate stance taken in much social analysis, Paget had experimented with performance as a form for enlivening social science research. The script for her play, "The Work of Talk," about communication problems between a physician and his cancer patient, is also included. Her compelling life-text speaks to those living with illness and those who care for and about them, as the investigation and representation of lived experience. Excerpt Excerpt available at www.temple.edu/tempress "Strangely, my knowledge of error has helped me deal with the errors in my care. Had I not known about the prevalence of error in medicine I would not have been able to process what has happened to me without bitterness. But I had thought these matters through already, and more than once. I now live out the complex sorrow I have before described." --Marianne A. Paget Reviews "Paget's book is stunning. It's a tribute to the invulnerable human spirit. The woman burned like a flame; obviously she died well, because she lived well; she was loved because she was loving. The book is tremendously sad, but it isn't depressing; somehow, one is left with a sense of human possibility." --Joan Cassell, author of Expected Miracles: Surgeons at Work
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Consumed In The City
Observing Tuberculosis At Century'S End
Paul Draus
Temple University Press, 2004
As a public health field worker assigned to control tuberculosis in New York and Chicago in the 1990s, Paul Draus encountered the horrible effects of tuberculosis resurgence in urban areas, and the intersections of disease, blight, and poverty. Consumed in the City grows out of his experiences and offers a persuasive case for thinking about—and treating—tuberculosis as an inseparable component of the scourges of poverty, homelessness, AIDS, and drug abuse. It is impossible, Draus argues, to treat and eliminate tuberculosis without also treating the social ills that underlie the new epidemic. Paul Draus begins by describing his own on-the-job training as a field worker, then places the resurgence of tuberculosis into historical and sociological perspective. He vividly describes his experiences in hospital rooms, clinics, jails, housing projects, urban streets, and other social settings where tuberculosis is often encountered and treated. Using case studies, he demonstrates how social problems affect the success or failure of actual treatment. Finally, Draus suggests how a reformed public health agenda could help institute the changes required to defeat a deadly new epidemic. At once a personal account and a concrete plan for rethinking the role of public health, Consumed in the City marks a significant intervention in the way we think about the entangled crises of urban dislocation, poverty, and disease.
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Consumer Attitudes Toward Data Breach Notifications and Loss of Personal Information
Lillian Ablon
RAND Corporation, 2016
Although spending on cybersecurity continues to grow, companies, government agencies, and nonprofit organizations are still being breached, and sensitive personal, financial, and health information is still being compromised. This report sets out the results of a study of consumer attitudes toward data breaches, notifications that a breach has occurred, and company responses to such events.
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Costs of Occupational Injuries and Illnesses
J. Paul Leigh, Steven Markowitz, Marianne Fahs, and Philip Landrigan
University of Michigan Press, 2000
As the debate over health care reform continues, costs have become a critical measure in the many plans and proposals to come before us. Knowing costs is important because it allows comparisons across such disparate health conditions as AIDS, Alzheimer's disease, heart disease, and cancer. This book presents the results of a major study estimating the large and largely overlooked costs of occupational injury and illness--costs as large as those for cancer and over four times the costs of AIDS.
The incidence and mortality of occupational injury and illness were assessed by reviewing data from national surveys and applied an attributable-risk-proportion method. Costs were assessed using the human capital method that decomposes costs into direct categories such as medical costs and insurance administration expenses, as well as indirect categories such as lost earnings and lost fringe benefits. The total is estimated to be $155 billion and is likely to be low as it does not include costs associated with pain and suffering or of home care provided by family members.
Invaluable as an aid in the analysis of policy issues, Costs of Occupational Injuryand Illness will serve as a resource and reference for economists, policy analysts, public health researchers, insurance administrators, labor unions and labor lawyers, benefits managers, and environmental scientists, among others.
J. Paul Leigh is Professor in the School of Medicine, Department of Epidemiology and Preventive Medicine, University of California, Davis. Stephen Markowitz, M.D., is Professor in the Department of Community Health and Social Medicine, City University of New York Medical School. Marianne Fahs is Director of the Health Policy Research Center, Milano Graduate School of Management and Urban Policy, New School University. Philip Landrigan, M.D., is Wise Professor and Chair of the Department of Community Medicine, Mount Sinai Medical Center, New York.
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A COVID Charter, A Better World
Toby Miller
Rutgers University Press, 2021
With unprecedented speed, scientists have raced to develop vaccines to bring the COVID-19 pandemic under control and restore a sense of normalcy to our lives. Despite the havoc and disruption the pandemic has caused, it’s exposed exactly why we should not return to life as we once knew it. Our current profit-driven healthcare systems have exacerbated global inequality and endangered public health, and we must take this opportunity to construct a new social order that understands public health as a basic human right.  
 
A COVID Charter, A Better World outlines the steps needed to reform public policies and fix the structural vulnerabilities that the current pandemic has made so painfully clear. Leading scholar Toby Miller argues that we must resist neoliberalism’s tendency to view health in terms of individual choices and market-driven solutions, because that fails to preserve human rights. He addresses the imbalance of geopolitical power to explain how we arrived at this point and shows that the pandemic is more than just a virus—it’s a social disease. By examining how the U.S., Britain, Mexico, and Colombia have responded to the COVID-19 crisis, Miller investigates corporate, scientific, and governmental decision-making and the effects those decisions have had on disadvantaged local communities. Drawing from human rights charters ratified by various international organizations, he then proposes a COVID charter, calling for a new world that places human lives above corporate profits.
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Crafting a Cloning Policy
From Dolly to Stem Cells
Andrea L. Bonnicksen
Georgetown University Press, 2002

Ever since Dolly, the Scottish lamb, tottered on wobbly legs into our consciousness-followed swiftly by other animals: first, mice; then pigs that may provide human transplants, and even an ordinary house cat-thoughts have flown to the cloning of human beings. Legislators rushed to propose a ban on a technique that remains highly hypothetical, although some independent researchers have announced their determination to pursue the possibilities. Political scientist and well-known expert on reproductive issues, Andrea L. Bonnicksen examines the political reaction to this new-born science and the efforts to construct cloning policy. She also looks at issues that relate to stem cell research, its even newer sibling, and poses a key question:

How does the response to Dolly guide us as we manage innovative reproductive technologies in the future?

Various legislative endeavors and the efforts by the Food and Drug Administration (FDA) to oversee cloning, as well as policy models related to federal funding, individual state laws, and programs abroad, inform Bonnicksen's identification of four types of cloning policy. She analyzes in depth the roles of diverse interest groups as each struggle to become the dominant voice in the decision-making process. With skill and insight, she clears the mists from a complicated topic, and addresses the legal, political, and ethical arguments that are not likely to disappear from the national conversation or debates any time soon.

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Critical Issues in Healthcare Policy and Politics in the Gulf Cooperation Council States
Ravinder Mamtani
Georgetown University Press

This is the first book to examine challenges in the healthcare sector in the six Gulf Cooperation Council (GCC) countries (Saudi Arabia, Oman, the United Arab Emirates, Qatar, Kuwait, and Bahrain). These countries experienced remarkably swift transformations from small fishing and pearling communities at the beginning of the twentieth century to wealthy petro-states today. Their healthcare systems, however, are only now beginning to catch up.

Rapid changes to the population and lifestyles of the GCC states have completely changed—and challenged—the region’s health profile and infrastructure. While major successes in combatting infectious diseases and improving standards of primary healthcare are reflected in key health indicators, new trends have developed; increasingly “lifestyle” or “wealthy country” diseases, such as diabetes, heart disease, and cancer, have replaced the old maladies. To meet these emerging healthcare needs, GCC states require highly trained and skilled healthcare workers, an environment that supports local training, state-of-the-art diagnostic laboratories and hospitals, research production and dissemination, and knowledge acquisition. They face shortages in most if not all of these areas. This book provides a comprehensive study of the rapidly changing health profile of the region, the existing conditions of healthcare systems, and the challenges posed to healthcare management across the six states of the GCC.

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