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Access
How Do Good Health Technologies Get to Poor People in Poor Countries?
Laura J. Frost and Michael R. Reich
Harvard University Press, 2008

Many people in developing countries lack access to health technologies, even basic ones. Why do these problems in access persist? What can be done to improve access to good health technologies, especially for poor people in poor countries?

This book answers those questions by developing a comprehensive analytical framework for access and examining six case studies to explain why some health technologies achieved more access than others. The technologies include praziquantel (for the treatment of schistosomiasis), hepatitis B vaccine, malaria rapid diagnostic tests, vaccine vial monitors for temperature exposure, the Norplant implant contraceptive, and female condoms.

Based on research studies commissioned by the Bill & Melinda Gates Foundation to better understand the development, adoption, and uptake of health technologies in poor countries, the book concludes with specific lessons on strategies to improve access. These lessons will be of keen interest to students of health and development, public health professionals, and health technology developers—all who seek to improve access to health technologies in poor countries.

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AIDS and the National Body
Thomas E. Yingling
Duke University Press, 1997
Thomas Yingling was a rising star in American studies, a leading figure in gay and lesbian studies, and a prominent theorist of AIDS and cultural politics when he died in 1992. AIDS and the National Body is a brilliant excursion into the mind and heart of Yingling, author of the critically acclaimed book, Hart Crane and the Homosexual Text. Robyn Wiegman, a friend and colleague of Yingling’s, has collected in this book a selection of his critical and creative work. These previously published and unpublished essays, nonacademic prose, poetry, and letters are a powerful testimonial to the intellectual legacy left by Yingling.
Contemplating the contradictions of individual identity from within a human body adapting to and living within a collective national culture, Yingling delves into such issues as canon formation, poetic theory, and the rhetoric of the body in American popular culture. In addition to Wiegman’s illuminating introduction, the conversation is joined by four other scholars—Michael Awkward, Robert L. Caserio, Stephen Melville, and David Román—whose critical and personal responses to Yingling’s writing weigh in throughout the volume. What emerges is a collection that embodies the particular difficulties of living with AIDS, of outliving someone who has died of AIDS, and of losing prematurely an important thinker.
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The AIDS Bureaucracy
Why Society Failed to Meet the AIDS Crisis and How We Might Improve Our Response
Sandra Panem
Harvard University Press, 1988

AIDS is unquestionably the most serious threat to public health in this century--yet how effective has the United States been in coping with this deadly disease? This sobering analysis of the first five years of the AIDS epidemic reveals the failure of traditional approaches in recognizing and managing this health emergency; it is an extremely unsettling probe into what makes the nation ill equipped to handle a crisis of the magnitude of the one that now confronts us.

Sandra Panem pays particular attention to the Public Health Service, within which the vast majority of biomedical research and public health services are organized, including the Centers for Disease Control and the National Institutes of Health. We learn in dismaying detail how shortcomings in communication within and among the many layers of the health establishment delayed management of the crisis.

She also investigates other problems that surface during a health emergency, involving issues such as federal budgeting, partisan politics, bureaucratic bungles, educating the public, the complications of policymaking, and the vexing role of the press. Panem makes specific recommendations for a centrally coordinated federal response to health emergencies, including the creation of a national health emergency plan.

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AIDS TV
Identity, Community, and Alternative Video
Alexandra Juhasz
Duke University Press, 1995
Camcorder AIDS activism is a prime example of a new form of political expression—an outburst of committed, low-budget, community-produced, political video work made possible by new accessible technologies. As Alexandra Juhasz looks at this phenomenon—why and how video has become the medium for so much AIDS activism—she also tries to make sense of the bigger picture: How is this work different from mainstream television? How does it alter what we think of the media’s form and function? The result is an eloquent and vital assessment of the role media activism plays in the development of community identity and self-empowerment.

An AIDS videomaker herself, Juhasz writes from the standpoint of an AIDS activist and blends feminist film critique with her own experience. She offers a detailed description of alternative AIDS video, including her own work on the Women’s AIDS Video Enterprise (WAVE). Along with WAVE, Juhasz discusses amateur video tapes of ACT UP demonstrations, safer sex videos produced by Gay Men’s Health Crisis, public access programming, and PBS documentaries, as well as network television productions.

From its close-up look at camcorder AIDS activism to its critical account of mainstream representations, AIDS TV offers a better understanding of the media, politics, identity, and community in the face of AIDS. It will challenge and encourage those who hope to change the course of this crisis both in the ‘real world’ and in the world of representation.
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Alive with Alzheimer's
Cathy Stein Greenblat
University of Chicago Press, 2004
The confusion, losses, and devastation of Alzheimer's disease are familiar to the millions of Americans suffering from the disease and to their family members. Understandably, declining abilities and changing personal characteristics shape our picture of the disease, leading some to refer to the "double death" of Alzheimer's in which the sufferer drifts away long before his or her eventual physical end.

This small, tender volume of 85 photographs and accompanying discussion powerfully shows the limitations of this view. Cathy Stein Greenblat, an internationally respected sociologist and photographer, demonstrates in Alive with Alzheimer's that, while the ravages of the disease are real, Alzheimer's sufferers can do more than survive, they can thrive. Her images, interviews, and observations attest to the possibility of their being "alive" with Alzheimer's far beyond the expectations of the general public and even of many physicians with long experience with the disease.

Greenblat offers a new vision, taking us into a world of life-enhancing institutional care. Nursing homes and similar facilities don't have to be a last resort; as Greenblat shows, with a dedicated and experienced staff and an enriched environment (that includes respect, choices, pets, and music), extraordinary changes can be effected in Alzheimer's patients. Alive with Alzheimer's, the first photographic book on the disease, offers hope and inspiration. Moreover, its vivid, impressive evidence that ongoing stimulation in a good institutional setting can sustain Alzheimer's patients at a far higher level than is generally believed has significant implications for personal and policy decisions.

The new standard of care chronicled in Alive with Alzheimer's will provide hope and inspiration to those touched by the disease. As Dr. Enid Rockwell writes in her Afterword to Greenblat's moving book, "These photographs are extraordinary for practitioners, for family members, for everyone to see what's going on with these people. The stimulation pictured in this book is more powerful than any medication that we will have in our lifetime. . . . They so vividly show us that there are people inside these bodies, people with personalities, who experience emotion, and they show that there is life after Alzheimer's."
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American Catholic Hospitals
A Century of Changing Markets and Missions
Wall, Barbra Mann
Rutgers University Press, 2016

“Wall traces the nursing and management roles of nuns and brothers in church-related US health care institutions. This well-documented volume will be a useful addition for collections supporting academic programs in public health, hospital administration, bioethics, and divinity, and for comprehensive collections in the history of medicine. Recommended.” —Choice
 
American Catholic Hospitals is fair, balanced, insightful, and intriguing. The story Wall tells—a story about a significant segment of the US health care system—is meticulously documented. Readers will find her study to be illuminating, even inspirational.” —Journal of the American Medical Association
 
“In American Catholic Hospitals, Barbra Mann Hall traces the ways Catholic hospitals have accommodated changes both within the church and in society over the last century. Her book is well researched and a fascinating read.” —Health Progress
 
“Wall presents a compelling and well-documented narrative of the dynamic transformation of Catholic hospitals in twentieth-century America. Drawing on records from Catholic congregations throughout the United States, she reveals an admirable perseverance of religious caregivers, demonstrated by their willingness to adapt to socioeconomic forces often inimical to charitable care.” —American Catholic Studies
 
American Catholic Hospitals is meticulously researched and well written. Although it is certainly appropriate for both undergraduate and graduate students, general readers also will find it to be an excellent overview of the history of the changes that Catholic health-care institutions have undergone in the twentieth and twenty-first centuries.” —Catholic Historical Review

American Catholic Hospitals offers a tremendous amount of new material and refreshing perspectives on current health care system challenges in the United States.” —Sioban Nelson, Bloomberg Faculty of Nursing, University of Toronto
 
“Wall provides solid scholarship and engaging insight into the historic and contemporary contributions of American Catholic hospitals and their ability to adapt and serve amid the changing landscapes of church and state, culture wars, and healthcare reforms of the 20th century.” —Carol K. Coburn, author of Spirited Lives: How Nuns Shaped Catholic Culture and American Life, 1836-1920
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America's Healthcare Transformation
Strategies and Innovations
Phillips, Robert A.
Rutgers University Press, 2016
A revolution in American medicine is in full swing, with the race from fee-for-service to fee-for-value at the front line in an epic battle that will transform healthcare delivery for decades to come. In America’s Healthcare Transformation, eminent physician leader Robert A. Phillips brings together key thought leaders and trail-blazing practitioners, who provide a wide-ranging exploration of the strategies, innovations, and paradigm shifts that are driving this healthcare transformation.
 
The contributors offer a panoramic look at the dramatic changes happening in the field of medicine, changes that put the patient at the heart of the process. Among other subjects, the essays evaluate innovative high quality and low cost care delivery solutions from around the United States and abroad, describe fundamental approaches to measuring the safety of care and the impact that guidelines have on improving quality of care and outcomes, and make a strong case that insurance reform will fundamentally and irreversibly drive delivery reform. In addition, America’s Healthcare Transformation reviews the role of health information technology in creating safer healthcare, provides a primer on the development of a culture of safety, and highlights ground-breaking new ways to train providers in patient safety and quality. Finally, the book looks at reports from Stanford Health Care and Houston Methodist which outline how successful behaviorally based strategies, anchored in values, can energize and empower employees to deliver a superior patient experience.
 
Drawing on the wisdom and vision of today’s leading healthcare innovators, America’s Healthcare Transformation provides a roadmap to the future of American healthcare. This book is essential reading for all health care providers, health care administrators, and health policy professionals, and it will be an invaluable resource in the effort to improve the practice of medicine and the delivery of healthcare in our communities and nation. 
 
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At Ansha's
Life in the Spirit Mosque of a Healer in Mozambique
Daria Trentini
Rutgers University Press, 2021
At Ansha's takes the reader inside the spirit mosque of a female healer in Nampula, northern Mozambique. It is here that Ansha, a Makonde spirit healer, heals the resisting ailments of her patients, discloses pieces of her story of affliction and healing, and engages the world outside her mosque. We come to know Ansha’s experiences as revolutionary and migrant, her religious trajectories, family, the healers who cured her, the spirits who possessed her, and her declining health. We follow Ansha’s shifts in her life and work in the mosque as these intersect with the visible and invisible borders of Mozambique and of its fraught history. Confronting events in her life and in the mosque between 2009 and 2016, Ansha invites us to make meaning with her, as we sit in her mosque, and engage with her family, spirits, friends, patients, and world.
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Becoming Gods
Medical Training in Mexican Hospitals
Vania Smith-Oka
Rutgers University Press, 2021
Through rich ethnographic narrative, Becoming Gods examines how a cohort of doctors-in-training in the Mexican city of Puebla learn to become doctors. Smith-Oka draws from compelling fieldwork, ethnography, and interviews with interns, residents, and doctors that tell the story of how medical trainees learn to wield new tools, language, and technology and how their white coat, stethoscope, and newfound technical, linguistic, and sensory skills lend them an authority that they cultivate with each practice, transforming their sense of self. Becoming Gods illustrates the messy, complex, and nuanced nature of medical training, where trainees not only have to acquire a monumental number of skills but do so against a backdrop of strict hospital hierarchy and a crumbling national medical system that deeply shape who they are.
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Beyond Caring
Hospitals, Nurses, and the Social Organization of Ethics
Daniel F. Chambliss
University of Chicago Press, 1996
Vividly documenting the real world of the contemporary hospital, its nurses, and their moral and ethical crises, Dan Chambliss offers a sobering revelation of the forces shaping moral decisions in our hospitals.

Based on more than ten years' field research, Beyond Caring is filled with eyewitness accounts and personal stories demonstrating how nurses turn the awesome into the routine. It shows how patients, many weak and helpless, too often become objects of the bureaucratic machinery of the health care system and how ethics decisions, once the dilemmas of troubled individuals, become the setting for political turf battles between occupational interest groups. The result is a compelling combination of realism and a powerful theoretical argument about moral life in large organizations.
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The Body Multiple
Ontology in Medical Practice
Annemarie Mol
Duke University Press, 2002
The Body Multiple is an extraordinary ethnography of an ordinary disease. Drawing on fieldwork in a Dutch university hospital, Annemarie Mol looks at the day-to-day diagnosis and treatment of atherosclerosis. A patient information leaflet might describe atherosclerosis as the gradual obstruction of the arteries, but in hospital practice this one medical condition appears to be many other things. From one moment, place, apparatus, specialty, or treatment, to the next, a slightly different “atherosclerosis” is being discussed, measured, observed, or stripped away. This multiplicity does not imply fragmentation; instead, the disease is made to cohere through a range of tactics including transporting forms and files, making images, holding case conferences, and conducting doctor-patient conversations.

The Body Multiple juxtaposes two distinct texts. Alongside Mol’s analysis of her ethnographic material—interviews with doctors and patients and observations of medical examinations, consultations, and operations—runs a parallel text in which she reflects on the relevant literature. Mol draws on medical anthropology, sociology, feminist theory, philosophy, and science and technology studies to reframe such issues as the disease-illness distinction, subject-object relations, boundaries, difference, situatedness, and ontology. In dialogue with one another, Mol’s two texts meditate on the multiplicity of reality-in-practice.

Presenting philosophical reflections on the body and medical practice through vivid storytelling, The Body Multiple will be important to those in medical anthropology, philosophy, and the social study of science, technology, and medicine.

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Cancer Entangled
Anticipation, Acceleration, and the Danish State
Rikke Sand Andersen
Rutgers University Press, 2023
Cancer Entangled explores the shifts that took place in Denmark around the millennium, when health promoters set out to minimize delays in cancer diagnoses in hope of improving cancer survival. The authors suggest a temporal reframing of cancer control that emphasizes the importance of focusing on how people – potential patients as well as health care professionals – experience and anticipate cancer before a diagnosis or a prediction has been made. This argument compellingly challenges and augments anthropological work on cancer control that has privileged attention to the productive role of science and technology and to life with cancer or cancer risk. By offering rich ethnographic insights into the introduction of the first cancer vaccine, cancer signs and symptoms, public discourses on delays, social class and care seeking, cancer suspicion in the clinic, as well as the work on fast-track referral – the book convincingly situates cancer control in an ethical registrar involving attention to acceleration and time, showing how cancer waiting times become an index of the "state of the nation".
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The Cancer Within
Reproduction, Cultural Transformation, and Health Care in Romania
Cristina A. Pop
Rutgers University Press, 2022
The Cancer Within examines cervical cancer in Romania as a point of entry into an anthropological reflection on contemporary health care. Cervical cancer prevention reveals the inner workings of emerging post-communist medicine, which aligns the state and the market, public and private health care providers, policy makers, and ordinary women. Fashioned by patriarchal relations, lived religion, and the historical trauma of pronatalism, Romanian women’s responses to reproductive medicine and cervical cancer prevention are complicated by neoliberal reforms to medical care. Cervical cancer prevention – and especially the HPV vaccination – provided Romanians a legitimate instance to express their conflicting views of post-communist medicine. What sets Romania apart is that pronatalism, patriarchy, lived religion, medical reforms, and moral contestation of preventive medicine bring into line systemic contingencies that expose the historical, social, and cultural trajectories of cervical cancer.
 
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The Changing Hospital Industry
Comparing Not-for-Profit and For-Profit Institutions
Edited by David M. Cutler
University of Chicago Press, 1999
In recent years, the hospital industry has been undergoing massive change and reorganization with technological innovations and the spread of managed care. As a result, the total number of hospitals countrywide has been declining, and a growing number of not-for-profit hospitals have converted to for-profit status. These changes raise two fundamental questions: What determines a hospital's choice of for-profit or not-for-profit organizational form? And how does that form affect patients and society?

This timely volume provides a factual basis for discussing for-profit versus not-for-profit ownership of hospitals and gives a first look at the evidence about new and important issues in the hospital industry. The Changing Hospital Industry: Comparing Not-for-Profit and For-Profit Institutions will have significant implications for public-policy reforms in this vital industry and will be of great interest to scholars in the fields of health economics, public finance, hospital organization, and management; and to health services researchers.
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Children's Mental Health
Problems and Services
A Report by the Office of Technology Assessment
Duke University Press, 1987
The important mental health problems of children have become the focus of increasing public awareness in the past few years. Adolescent suicide, the physical, emotional, and sexual abuse of children, alcohol and drug abuse by young people, as well as psychiatric hospitalization of children and adolescents have fueled a growing debate on mental illness and mental health services for our young children.

This book was prepared by the Office of Technology Assessment at the request of Senators Mark Hatfield and Daniel Inouye. It acknowledges that there are no simple solutions to the problems we face or easy answers to questions concerning the best system of mental health service delivery. Yet Children's Mental Health makes it abundantly clear that there is a need for a mental health system response to these issues and that this response must be coordinated with other existing service systems.

This book should be of value to concerned parents and community leaders, health system planners, and health care practitioners involved with both the needs of children and mental illness.

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Chinese Medicine in Contemporary China
Plurality and Synthesis
Volker Scheid
Duke University Press, 2002
As a traditional healing art that has established a contemporary global presence, Chinese medicine defies categories and raises many interesting questions. If Chinese medicine is "traditional," why has it not disappeared with the rest of traditional Chinese society? If, as some claim, it is a science, what does that imply about what we call science? What is the secret of Chinese medicine's remarkable adaptability that has allowed it to prosper for more than 2,000 years? In Chinese Medicine in Contemporary China Volker Scheid presents an ethnography of Chinese medicine that seeks to answer these questions, but his ethnography is informed by some atypical approaches.
Scheid, a medical anthropologist and practitioner of Chinese medicine in practice since 1983, has produced an ethnography that accepts plurality as an intrinsic and nonreducible aspect of medical practice. It has been widely noted that a patient visiting ten different practitioners of Chinese medicine may receive ten different prescriptions for the same complaint, yet many of these various treatments may be effective. In attempting to illuminate the plurality in Chinese medical practice, Scheid redefines-and in some cases abandons-traditional anthropological concepts such as tradition, culture, and practice in favor of approaches from disciplines such as science and technology studies, social psychology, and Chinese philosophy. As a result, his book sheds light not only on Chinese medicine but also on the Western academic traditions used to examine it and presents us with new perspectives from which to deliberate the future of Chinese medicine in a global context.
Chinese Medicine in Contemporary China is the product of two decades of research including numerous interviews and case studies. It will appeal to a western academic audience as well as practitioners of Chinese medicine and other interested medical professionals, including those from western biomedicine.
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Chronic Failures
Kidneys, Regimes of Care, and the Mexican State
Ciara Kierans
Rutgers University Press, 2020
Chronic Failures: Kidneys, Regimes of Care and the Mexican State is about Chronic Kidney Disease (CKD) and the relentless search for renal care lived out in the context of poverty, inequality and uneven welfare arrangements. Based on ethnographic research conducted in the state of Jalisco, this book documents the routes uninsured Mexican patients take in order to access resource intensive biotechnical treatments, that is, different modes of dialysis and organ transplantation. It argues that these routes are normalized, bureaucratically, socially and epidemiologically, and turned into a locus for exploitation and profit.  Without a coherent logic of healthcare access, negotiating regimes of renal care has catastrophic consequences for those with the least resources to expend in that effort. In carrying both the costs and the burden of care, the practices of patients without entitlement offer a critical vantage point on the interplay between the state, markets in healthcare and the sick body.
 
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Chronic Illness in the United States
Commission on Chronic Illness
Harvard University Press

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Comrades in Health
U.S. Health Internationalists, Abroad and at Home
Edited by Anne-Emanuelle Birn and Theodore M. Brown
Rutgers University Press
Since the early twentieth century, politically engaged and socially committed U.S. health professionals have worked in solidarity with progressive movements around the world. Often with roots in social medicine, political activism, and international socialism, these doctors, nurses, and other health workers became comrades who joined forces with people struggling for social justice, equity, and the right to health.

Anne-Emanuelle Birn and Theodore M. Brown bring together a group of professionals and activists whose lives have been dedicated to health internationalism. By presenting a combination of historical accounts and first-hand reflections, this collection of essays aims to draw attention to the longstanding international activities of the American health left and the lessons they brought home. The involvement of these progressive U.S. health professionals is presented against the background of foreign and domestic policy, social movements, and global politics.
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Continuing Care in a Community Hospital
Harold N. Willard and Stanislav V. Kasl
Harvard University Press, 1972
In this report on one of the first continuing care departments in the country, Dr. Harold Willard describes how he set up and directed a program in Thayer Hospital, Waterville, Maine, to provide the personnel and services necessary for improved care of patients with chronic illnesses. The community hospital, he maintains, must be the center for developing methods for health maintenance and care of the chronically ill. Two chapters by Dr. Stanislav Kasl provide a theoretical background for continuing care and discuss the importance of information from the behavioral sciences in the development and operation of continuing care programs.
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The Cultivation of Whiteness
Science, Health, and Racial Destiny in Australia
Warwick Anderson
Duke University Press, 2006
The Cultivation of Whiteness is an award-winning history of scientific ideas about race and place in Australia from the time of the first European settlement through World War II. Chronicling the extensive use of biological theories and practices in the construction and “protection” of whiteness, Warwick Anderson describes how a displaced “Britishness” (or whiteness) was defined by scientists and doctors in relation to a harsh, strange environment and in opposition to other races. He also provides the first account of extensive scientific experimentation in the 1920s and 1930s on poor whites in tropical Australia and on Aboriginal people in the central deserts.

“[Anderson] writes with passion, wit, and panache, and the principal virtues of The Cultivation of Whiteness are the old-fashioned ones of thoroughness, accuracy, and impeccable documentation. . . . [His] sensitive study is a model of how contentious historical issues can be confronted.”—W. F. Bynum, Times Literary Supplement

“One of the virtues of The Cultivation of Whiteness is that it brings together aspects of Australian life and history that are now more often separated—race and environment, blood and soil, medicine and geography, tropical science and urban health, biological thought and national policy, Aboriginality and immigration, the body and the mind. The result is a rich and subtle history of ideas that is both intellectual and organic, and that vividly evokes past states of mind and their lingering, haunting power.”—Tom Griffiths, Sydney Morning Herald

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The Cultural Geography of Health Care
Wilbert M. Gesler
University of Pittsburgh Press, 1992

In health care delivery and health care research, basic concepts of cultural behavior are ignored—at a high personal and financial cost—because both fields are dominated by technical solutions and quantitative analysis. They have little use for what is often regarded as irrelevant information.
In this wide-ranging book, written for students and non-specialists, Gesler applies cultural geography to health care and shows that throughout the world, in western and developing countries alike, the social sciences can inform the medical sciences nd make them more effective and less expensive.

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Dangerous Diagnostics
The Social Power of Biological Information
Dorothy Nelkin and Laurence Tancredi
University of Chicago Press, 1994
Dangerous Diagnostics is a powerful study of the pervasiveness of diagnostic testing and the potential it offers institutions to classify, categorize, and ultimately control individuals. Nelkin and Tancredi explore the ethical, social, and legal implications of cutting-edge technologies that can lead to new forms of discrimination in the name of standardized, objective measurements. They caution against the creation of an underclass deemed unemployable, untrainable, or uninsurable by such diagnostic tests.
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Demanding Medical Excellence
Doctors and Accountability in the Information Age
Michael L. Millenson
University of Chicago Press, 1997
Demanding Medical Excellence is a groundbreaking and accessible work that reveals how the information revolution is changing the way doctors make decisions. Michael Millenson, a three-time Pulitzer Prize nominee as a health-care reporter for the Chicago Tribune, illustrates serious flaws in contemporary medical practice and shows ways to improve care and save tens of thousands of lives.

"If you read only one book this year, read Demanding Medical Excellence. It's that good, and the revolution it describes is that important."—Health Affairs

"Millenson has done yeoman's work in amassing and understanding that avalanche of data that lies beneath most of the managed-care headlines. . . . What he finds is both important and well-explained: inconsistency, overlap, and inattention to quality measures in medical treatment cost more and are more dangerous than most cost-cutting measures. . . . [This book] elevates the healthcare debate to a new level and deserves a wide readership."—Library Journal

"An involving, human narrative explaining how we got to where we are today and what lies ahead."—Mark Taylor, Philadelphia Inquirer

"Read this book. It will entertain you, challenge, and strengthen you in your quest for better accountability in health care."—Alex R. Rodriguez, M.D., American Journal of Medical Quality

"Finally, a health-care book that doesn't wring its hands over the decline of medicine at the hands of money-grubbing corporations. . . . This is a readable account of what Millenson calls a 'quiet revolution' in health care, and his optimism makes for a refreshing change."—Publishers Weekly

"With meticulous detail, historical accuracy, and an uncommon understanding of the clinical field, Millenson documents our struggle to reach accountability."—Saty Satya-Murti, M.D., Journal of the American Medical Association

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Disability and History, Volume 2006
Teresa Meade and David Serlin, eds.
Duke University Press
The burgeoning field of disability studies has emerged as one of the most innovative and transdisciplinary areas of scholarship in recent years. This special issue of Radical History Review combines disability studies with radical history approaches, demonstrating how disability studies cuts across regional histories as well as familiar disciplinary categories. Disability and History also discloses how the ways in which we define “disability” may expose biases and limitations of a given historical moment rather than a universal truth.

Drawing on archival research and other primary materials, as well as on methods from labor history, ethnic studies, performance studies, and political biography, this special issue explores how historical forces and cultural contexts have produced disability as a constantly shifting and socially constructed concept. One essay examines how Western definitions of disability imposed during colonial rule shaped Botswanan perceptions of disability. Another looks at labor activism among blind workers in Northern Ireland in the 1930s; a third essay, drawing on previously untranslated political texts by disabled writers and activists from the Weimar era, dispels the simplistic assessment of the disabled as complacent in the face of the Nazis’ rise to power. Other essays interpret U.S. radical Randolph Bourne as a philosopher of disability politics and chronicle the emergence of a disabled feminist theater practice in the 1970s and 1980s.

Contributors. Diane F. Britton, Susan Burch, Sarah E. Chinn, R. A. R. Edwards, Barbara Floyd, David Gissen, Kim Hewitt, J. Douglass Klein, Seth Koven, R. J. Lambrose, Victoria Ann Lewis, Julie Livingston, Paul K. Longmore, Robert McRuer, Teresa Meade, Paul Steven Miller, Natalia Molina, Patricia A. Murphy, Máirtín Ó Catháin, Carol Poore, Geoffrey Reaume, David Serlin, Katherine Sherwood, Ian Sutherland, Geoffrey Swan, Everett Zhang

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Doctoring the Novel
Medicine and Quackery from Shelley to Doyle
Sylvia A. Pamboukian
Ohio University Press, 2012
If nineteenth-century Britain witnessed the rise of medical professionalism, it also witnessed rampant quackery. It is tempting to categorize historical practices as either orthodox or quack, but what did these terms really signify in medical and public circles at the time? How did they develop and evolve? What do they tell us about actual medical practices?

Doctoring the Novel explores the ways in which language constructs and stabilizes these slippery terms by examining medical quackery and orthodoxy in works such as Mary Shelley’s Frankenstein, Charles Dickens’s Bleak House and Little Dorrit, Charlotte Brontë’s Villette, Wilkie Collins’s Armadale, and Arthur Conan Doyle’s Stark Munro Letters. Contextualized in both medical and popular publishing, literary analysis reveals that even supposedly medico-scientific concepts such as orthodoxy and quackery evolve not in elite laboratories and bourgeois medical societies but in the rough-and-tumble of the public sphere, a view that acknowledges the considerable, and often underrated, influence of language on medical practices.
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Doctors and the State
The Politics of Health Care in France and the United States
David Wilsford
Duke University Press, 1991
All advanced health care systems face severe difficulties in financing the delivery of today’s sophisticated medical care. In this study David Wilsford compares the health systems in France and the United States to demonstrate that some political systems are considerably more effective at controlling the cost of care than others. He argues that two variables—the autonomy of the state and the strength and cohesiveness of organized medicine—explain this variance.
In France, Wilsford shows, the state is strong in the health policy domain, while organized medicine is weak and divided. Consequently, physicians exercise little influence over health care policymaking. By contrast, in the United States the state is weak, the employers and insurers who pay for health care are fragmented, and organized medicine is strong and well financed. As a result, medical professionals are able to exert a greater influence on policymaking, thus making cost control more difficult.
Wilsford extends his comparison to health care systems in the United Kingdom, West Germany, Italy, Canada, and Japan. Whether the private or public sector finances health care, he discovers, there is now an important trend in all of the advanced industrial countries toward controlling escalating costs by curbing both the medical profession’s clinical autonomy and physicians’ incomes.
[more]

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Doctors and the State
The Politics of Health Care in France and the United States
David Wilsford
Duke University Press
All advanced health care systems face severe difficulties in financing the delivery of today’s sophisticated medical care. In this study David Wilsford compares the health systems in France and the United States to demonstrate that some political systems are considerably more effective at controlling the cost of care than others. He argues that two variables—the autonomy of the state and the strength and cohesiveness of organized medicine—explain this variance.
In France, Wilsford shows, the state is strong in the health policy domain, while organized medicine is weak and divided. Consequently, physicians exercise little influence over health care policymaking. By contrast, in the United States the state is weak, the employers and insurers who pay for health care are fragmented, and organized medicine is strong and well financed. As a result, medical professionals are able to exert a greater influence on policymaking, thus making cost control more difficult.
Wilsford extends his comparison to health care systems in the United Kingdom, West Germany, Italy, Canada, and Japan. Whether the private or public sector finances health care, he discovers, there is now an important trend in all of the advanced industrial countries toward controlling escalating costs by curbing both the medical profession’s clinical autonomy and physicians’ incomes.
[more]

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Dying to Count
Post-Abortion Care and Global Reproductive Health Politics in Senegal
Siri Suh
Rutgers University Press, 2021
During the early 1990s, global health experts developed a new model of emergency obstetric care: post-abortion care or PAC. In developing countries with restrictive abortion laws and where NGOs relied on US family planning aid, PAC offered an apolitical approach to addressing the consequences of unsafe abortion. In Dying to Count, Siri Suh traces how national and global population politics collide in Senegal as health workers, health officials, and NGO workers strive to demonstrate PAC’s effectiveness in the absence of rigorous statistical evidence that the intervention reduces maternal mortality. Suh argues that pragmatically assembled PAC data convey commitments to maternal mortality reduction goals while obscuring the frequency of unsafe abortion and the inadequate care women with complications are likely to receive if they manage to reach a hospital. At a moment when African women face the highest risk worldwide of death from complications related to pregnancy, birth, or abortion, Suh’s ethnography of PAC in Senegal makes a critical contribution to studies of global health, population and development, African studies, and reproductive justice.
 
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Economic Aspects of Health
Edited by Victor R. Fuchs
University of Chicago Press, 1982
Unlike earlier work in medical economics, which has focused on medical care, these ten papers stress the production and consequences of health itself. They reveal a serious concern with real-world health problems in their investigation of such subjects as infant mortality, life expectancy, morbidity, and disability. These papers are unusual, as well, in bringing to bear on these problems new and powerful theoretical and statistical tools. They draw on, and in some cases are, original sources for new bodies of data. As such, Economic Aspects of Health comprises a useful blend of relevance and rigor.
[more]

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Embodied Politics
Indigenous Migrant Activism, Cultural Competency, and Health Promotion in California
Rebecca J. Hester
Rutgers University Press, 2022
Embodied Politics illuminates the influential force of public health promotion in indigenous migrant communities by examining the Indigenous Health Project (IHP), a culturally and linguistically competent initiative that uses health workshops, health messages, and social programs to mitigate the structural vulnerability of Oaxacan migrants in California. Embodied Politics reconstructs how this initiative came to exist and describes how it operates. At the same time, it points out the conflicts, resistances, and counter-acts that emerge through the IHP’s attempts to guide the health behaviors and practices of Triqui and Mixteco migrants. Arguing for a structurally competent approach to migrant health, Embodied Politics shows how efforts to promote indigenous health may actually reinforce the same social and political economic forces, namely structural racism and neoliberalism, that are undermining the health of indigenous Oaxacans in Mexico and the United States.
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Emerging Socialities in 21st Century Healthcare
Edited by Bernhard Hadolt and Anita Hardon
Amsterdam University Press, 2017
The landscape of healthcare is changing rapidly, both on an organisational and a technological level. This book gathers medical anthropologists to examine the ways that both patients and health care workers are being affected by new policies, market, and technologies. Contributors cover a wide range of topics, including vaccination, disability, migration, and self-medication, making clear that not only are changing circumstances leading to the emergence of new socialities, but they are also driving new ethics and moralities.
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Eros and Illness
David B. Morris
Harvard University Press, 2017

Susan Sontag once described illness as “the night-side of life.” When we or our loved ones fall ill, our world is thrown into darkness and disarray, our routines are interrupted, our deepest beliefs shaken. The modern regime of hyper-logical biomedicine offers little solace when it comes to the effects of ill health on our inner lives. By exploring the role of desire in illness, Eros and Illness offers an alternative: an unconventional, deeply human exploration of what it means to live with, and live through, disease.

When we face down illness, something beyond biomedicine’s extremely valuable advances in treatment and prevention is sorely needed. Desire in its many guises plays a crucial part in illness, David Morris shows. Emotions, dreams, and stories—even romance and eroticism—shape our experiences as patients and as caregivers. Our perception of the world we enter through illness—including too often a world of pain—is shaped by desire.

Writing from his own heartbreaking experience as a caretaker for his wife, Morris relates how desire can worsen or, with care, mitigate the heavy weight of disease. He looks to myths, memoirs, paintings, performances, and narratives to understand how illness is intertwined with the things we value most dearly. Drawing on cultural resources from many centuries and media, Eros and Illness reaches out a hand to guide us through the long night of illness, showing us how to find productive desire where we expected only despair and defeat.

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Ethnicity and Medical Care
Alan Harwood
Harvard University Press, 1981

Ethnicity and Medical Care equips health professionals with the ethnographic data they need to deliver better health care within American communities of urban blacks, Chinese, Haitians, Italians, Mexicans, Navajos, and Puerto Ricans. Each chapter, dealing in turn with one of these seven American subcultures, reviews the available demographic and epidemiological data and examines sociocultural influences on each major phase of illness.

Topics range from culture-specific syndromes such as susto or “evil eye,” to concepts of disease based on blood perturbations or God's punishment, to lay-referral networks, consultation of mainstream and non-mainstream sources of medical care, and adherence to treatment regimens. But ethnic behavior often entails general styles of interaction—attitudes toward authority figures, sex-role allocations, and ways of expressing emotion and asking for help—that are carried over into the healthcare setting. Accordingly, Ethnicity and Medical Care also offers general guidelines for providing more personalized, culturally relevant care for any ethnically affiliated patient.

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Evaluating the "Keep Your Health Plan Fix"
Implications for the Affordable Care Act Compared to Legislative Alternatives
Evan Saltzman
RAND Corporation, 2014
This report describes a comparative analysis of three proposals to allow Americans to keep their existing health plans under the Affordable Care Act (ACA). The proposals are evaluated based on their potential impact on the ACA-compliant market and the cost and coverage of health insurance. The possibility of each proposal causing a “death spiral” in the ACA-compliant market is also addressed.
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Forgive and Remember
Managing Medical Failure, 2nd Edition
Charles L. Bosk
University of Chicago Press, 2003
On its initial publication, Forgive and Remember emerged as the definitive study of the training and lives of young surgeons. Now with an extensive new preface, epilogue, and appendix by the author, reflecting on the changes that have taken place since the book's original publication, this updated second edition of Charles L. Bosk's classic study is as timely as ever.
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From Crisis to Catastrophe
Care, COVID, and Pathways to Change
Mignon Duffy
Rutgers University Press, 2023
The COVID pandemic has shaken the material and social foundations of the world more than any event in recent history and has highlighted and exacerbated a longstanding crisis of care. While these challenges may be freshly visible to the public, they are not new. Over the last three decades, a growing body of care scholarship has documented the inadequacy of the social organization of care around the world, and the effect of the devaluation of care on workers, families, and communities. In this volume, a diverse group of care scholars bring their expertise to bear on this recent crisis. In doing so, they consider the ways in which the existing social organization of care in different countries around the globe amplified or mitigated the impact of COVID. They also explore the global pandemic's impact on the conditions of care and  its role in exacerbating deeply rooted gender, race, migration, disability, and other forms of inequality.
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Global Health for All
Knowledge, Politics, and Practices
Jean-Paul Gaudillière
Rutgers University Press, 2022
Global Health for All trains a critical lens on global health to share the stories that global health’s practices and logics tell about 20th and 21st century configurations of science and power. An ethnography on multiple scales, the book focuses on global health’s key epistemic and therapeutic practices like localization, measurement, triage, markets, technology, care, and regulation. Its roving approach traverses policy centers, sites of intervention, and innumerable spaces in between to consider what happens when globalized logics, circulations, and actors work to imagine, modify, and manage health. By resting in these in-between places, Global Health for All simultaneously examines global health as a coherent system and as a dynamic, unpredictable collection of modular parts.
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Globalizing Aids
Cindy Patton
University of Minnesota Press, 2002
A long-awaited look at responses to the AIDS epidemic in relation to globalization. As AIDS began to appear around the "global village" in the early 1980s, the closeness brought by new technologies no longer promised wondrous cultural exchange; instead it made possible the transmission of a frightening new kind of disease. International scientific institutions and news organizations quickly constructed a "place" for AIDS in the global imaginary: from the heart of Africa and gay bathhouses in San Francisco to the back streets of Southeast Asia and poverty-stricken neighborhoods in the United States. Such simplistic accounts helped recycle racist ideas about Africans and Asians, intensified homophobic visions of irresponsible gay sexuality, and ignored the scientific and human reality of local experiences of the epidemic. In Globalizing AIDS, pioneering cultural critic Cindy Patton looks at the complex interaction between modern science, media coverage, and local activism during the first decade of the epidemic. Patton's critique of both the production of scientific credibility and the implementation of public health policy at the local level offers a bold reevaluation of how we think about AIDS and an innovative approach to the reality of the disease. Cindy Patton is a Winship Distinguished Researcher at Emory University. She is the author of Fatal Advice (1996) and Inventing AIDS (1990).
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Healing Powers
Alternative Medicine, Spiritual Communities, and the State
Fred M. Frohock
University of Chicago Press, 1992
The personal testimony of individuals engaged in healing practices and the opposing voices of orthodox and alternative medicines are the center of Healing Powers. Focusing on medical norms and practices and on competing philosophies of the mind, the body, reality, and rationality across radically different "belief systems", Fred Frohock clarifies the social and legal dilemmas represented by "scientific medicine" and "alternative care."

"Frohock goes beyond the often irreconcilable differences between scientific biomedicine and alternative care by clarifying the social and legal dilemmas they present. . . . A noteworthy contribution forcing us to rethink what medical care is all about."—Jeffrey Michael Clare, Journal of the American Medical Association

"The book does more and better than simply provide a social-scientific proposal. It also gives not only a hearing but a voice to those who follow alternative therapies. . . . Frohock's accounts of their stories—along with the stories of the medical professionals—are eloquent and fascinating."—Allen Verhey, Medical Humanities Review

"Contains a storehouse of valuable information about the historical, philosophical, and psychological bases of alternative approaches to healing."—Marshall B. Kapp, New England Journal of Medicine

"Frohock introduces us to the scientific naturopaths and to physicians who believe in the mind's power to heal, to charismatics who believe in but cannot explain their powers, to those who test God and those who merely accept. He writes so well that I felt I had met these people."—Arthur W. Frank, Christian Century
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Health Professionals for a New Century
Transforming Education to Strengthen Health Systems in an Interdependent World
Julio Frenk and Lincoln C. Chen
Harvard University Press

One hundred years ago a series of seminal documents, starting with the Flexner Report of 1910, sparked an enormous burst of energy to harness the power of science to transform higher education in health. Professional education, however, has not been able to keep pace with the challenges of the 21st century. A new generation of reforms is needed to meet the demands of health systems in an interdependent world.

The report of the Commission on the Education of Health Professionals for the 21st Century, a global independent initiative consisting of 20 leaders from diverse disciplinary backgrounds and institutional affiliations, articulates a fresh vision and recommends renewed actions. Building on a rich legacy of educational reforms during the past century, the Commission’s findings and recommendations adopt a global and multi-professional perspective using a systems approach to analyze education and health, with a focus on institutional and instructional reforms.

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Health Services Research
Key to Health Policy
Eli Ginzberg
Harvard University Press
Despite the long and distinguished history of health services research in the United States, this unparalleled work is the first comprehensive account of what health services research aims to do and what the research has actually accomplished. Specially commissioned essays by a roster of leading scholars offer an incisive look at the current potential of the field.
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Healthcare and Human Dignity
Law Matters
Frank M. McClellan
Rutgers University Press, 2020
The individual and structural biases that affect the American healthcare system have serious emotional and physical consequences that all too often go unseen. These biases are often rooted in power, class, racial, gender or sexual orientation prejudices, and as a result, the injured parties usually lack the resources needed to protect themselves. In Healthcare and Human Dignity, individual worth, equality, and autonomy emerge as the dominant values at stake in encounters with doctors, nurses, hospitals, and drug companies. Although the public is aware of legal battles over autonomy and dignity in the context of death, the everyday patient’s need for dignity has received scant attention.  Thus, in Healthcare, law professor Frank McClellan’s collection of cases and individual experiences bring these stories to life and establish beyond doubt that human dignity is of utmost priority in the everyday process of healthcare decision making.
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Healthy Markets?
The New Competition in Medical Care
Mark A. Peterson, ed.
Duke University Press, 1999
When federal and state policy makers’ efforts to enact sweeping health care reform in the mid-1990s ended in stalemate, the private sector unleashed initiatives that have affected virtually every aspect of health care. With updated essays first published in issues of the Journal of Health Politics, Policy and Law, Healthy Markets? offers the most comprehensive and critical examination yet found in a single volume of the economic, political, and social implications of this recent market transformation of health care in the United States.
With original contributions from leading social science health policy analysts, this volume addresses the full context of health system change. Believing that the analysis of health care change is too important to be left to economists alone, Mark A. Peterson has collected a mulitdisciplinary group of experts who revisit the contentious debate over the market approaches to health care and consider the disparate effects of these approaches on cost, quality, and coverage of both managed care and Medicaid and Medicare. While market enthusiasts applaud the enhanced efficiency, reduced excess capacity, and abatement of the decades-long health care cost explosion, a backlash has emerged among many providers and the public against the perceived excesses of the market: diminished access to care, commercialization of the physician-patient relationship, and exacerbated inequality. Contributors assess these varied responses while examining the impact that market-based applications are likely to have for future health policy making, the significance of the U.S. experience for policy makers abroad, and the lessons that these changes might provide for thinking sensibly about the future of our health care system.
This volume will be useful for public policy analysts, economists, social scientists, health care providers and administrators, and others interested in the future—and in understanding the past—of American health care.

Contributors. Gary S. Belkin, Lawrence D. Brown, Robert G. Evans, Martin Gaynor, Paul B. Ginsburg, Marsha Gold, Theodore R. Marmor, Cathie Jo Martin, Jonathan B. Oberlander, Mark V. Pauly, Mark A. Peterson, Thomas Rice, Deborah A. Stone, William B. Vogt, Kenneth E. Thorpe

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Illness or Deviance?
Drug Courts, Drug Treatment, and the Ambiguity of Addiction
Jennifer Murphy
Temple University Press, 2015
Is drug addiction a disease that can be treated, or is it a crime that should be punished? In her probing study, Illness or Deviance?, Jennifer Murphy investigates the various perspectives on addiction, and how society has myriad ways of handling it—incarcerating some drug users while putting others in treatment.

Illness or Deviance? highlights the confusion and contradictions about labeling addiction. Murphy’s fieldwork in a drug court and an outpatient drug treatment facility yields fascinating insights, such as how courts and treatment centers both enforce the “disease” label of addiction, yet their management tactics overlap treatment with “therapeutic punishment.” The “addict" label is a result not just of using drugs, but also of being a part of the drug lifestyle, by selling drugs. In addition, Murphy observes that drug courts and treatment facilities benefit economically from their cooperation, creating a very powerful institutional arrangement.

Murphy contextualizes her findings within theories of medical sociology as well as criminology to identify the policy implications of a medicalized view of addiction.
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In Changing Times
Gay Men and Lesbians Encounter HIV/AIDS
Edited by Martin P. Levine, Peter M. Nardi, and John H. Gagnon
University of Chicago Press, 1997
The HIV/AIDS epidemic has been a major catastrophe for gay communities. In less than two decades, the disease has profoundly changed the lives of gay men and lesbians. Not just a biological and viral agent, HIV has become an opportunistic social invader, reshaping communities and the distribution of wealth, altering the social careers of gay professionals and the patterns of entry into gay and lesbian life, and giving birth to groups like ACT UP and Queer Nation.

The distinguished contributors to this volume discuss the ways HIV/AIDS has changed collective and individual identities, as well as lives, of gay men and lesbians, and how these alterations have changed our perceptions of the epidemic. They cover such topics as the impact of the epidemic on small towns, cultural barriers to AIDS prevention, gay youth and intergenerational relations, and the roles of lesbians in AIDS organizations. This collection provides compelling insights into the new communities among gay men and lesbians and the new kinds of identities and relationships that are emerging from the social and cultural ferment engendered by HIV/AIDS.

Contributors include Barry D. Adam, Lourdes Arguelles, Rafael Miguel Diaz, John H. Gagnon, Gilbert Herdt, Gregory M. Herek, Nan D. Hunter, Peter M. Nardi, John L. Peterson, Anne Rivero, Gayle S. Rubin, Beth E. Schneider, and Nancy E. Stoller.
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Institutional Change and Healthcare Organizations
From Professional Dominance to Managed Care
W. Richard Scott, Martin Ruef, Peter J. Mendel, and Carol A. Caronna
University of Chicago Press, 2000
Few large institutions have changed as fully and dramatically as the U.S. healthcare system since World War II. Compared to the 1930s, healthcare now incorporates a variety of new technologies, service-delivery arrangements, financing mechanisms, and underlying sets of organizing principles.

This book examines the transformations that have occurred in medical care systems in the San Francisco Bay area since 1945. The authors describe these changes in detail and relate them to both the sociodemographic trends in the Bay Area and to shifts in regulatory systems and policy environments at local, state, and national levels. But this is more than a social history; the authors employ a variety of theoretical perspectives—including strategic management, population ecology, and institutional theory—to examine five types of healthcare organizations through quantitative data analysis and illustrative case studies.

Providing a thorough account of changes for one of the nation's leading metropolitan areas in health service innovation, this book is a landmark in the theory of organizations and in the history of healthcare systems.
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Invasion of the Body
Revolutions in Surgery
Nicholas L. Tilney
Harvard University Press, 2011

In 1913, the Peter Bent Brigham Hospital in Boston admitted its first patient, Mary Agnes Turner, who suffered from varicose veins in her legs. The surgical treatment she received, under ether anesthesia, was the most advanced available at the time. At the same hospital fifty years later, Nicholas Tilney—then a second-year resident—assisted in the repair of a large aortic aneurysm. The cutting-edge diagnostic tools he used to evaluate the patient’s condition would soon be eclipsed by yet more sophisticated apparatus, including minimally invasive approaches and state-of-the-art imaging technology, which Tilney would draw on in pioneering organ transplant surgery and becoming one of its most distinguished practitioners.

In Invasion of the Body, Tilney tells the story of modern surgery and the revolutions that have transformed the field: anesthesia, prevention of infection, professional standards of competency, pharmaceutical advances, and the present turmoil in medical education and health care reform. Tilney uses as his stage the famous Boston teaching hospital where he completed his residency and went on to practice (now called Brigham and Women's). His cast of characters includes clinicians, support staff, trainees, patients, families, and various applied scientists who push the revolutions forward.

While lauding the innovations that have brought surgeons' capabilities to heights undreamed of even a few decades ago, Tilney also previews a challenging future, as new capacities to prolong life and restore health run headlong into unsustainable costs. The authoritative voice he brings to the ancient tradition of surgical invasion will be welcomed by patients, practitioners, and policymakers alike.

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Junctures in Women's Leadership
Health Care and Public Health
Mary E. O'Dowd
Rutgers University Press, 2021
Junctures in Women’s Leadership: Health Care and Public Health offers an eclectic compilation of case studies telling the stories of women leaders in public health and health care, from Katsi Cook, Mohawk midwife, to Virginia Apgar, Katharine Dexter McCormick and Florence Schorske Wald, to Marilyn Tavenner, Suerie Moon, and more. The impact of their work is extraordinarily relevant to the current public discourse including subjects such as the global COVID-19 pandemic, disparities in health outcomes, prevention of disease and the impact of the Affordable Care Act. The leadership lessons gleaned from these chapters can be applied to a broad array of disciplines within government, private business, media, philanthropy, pharmaceutical, environmental and health sectors. Each chapter is authored by a well versed and accomplished woman, demonstrating the book’s theme that there are many paths within health care and public health. The case study format provides an introductory section providing biographical and historical background, setting the stage for a juncture, or decision point, and the resolution. The women are compelling characters and worth knowing.
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Kampala Women Getting By
Wellbeing in the Time of AIDS
Sandra Wallman
Ohio University Press, 1996

What do ordinary women in an African city do in the face of “serious enough” infections in themselves and signs of acute illness in their young children? How do they manage? What does it take to get by? How do they maintain the wellbeing of the household in a setting without what would be considered as basic health provision in an American or European city?

Professor Wallman focuses on women in a densely-populated part of Kampala called Kamwokya. With the help of a team of Ugandans and non-Ugandans, a vivid picture emerges, enhanced by color photographs, sketches and maps.

Women are largely responsible for the management of illness in all members of the family. Young children are at particular risk and the women have to take the first crucial decisions about treatment. Formal health resources are scarce and so they most often resort to an extraordinary range of treatments provided in the informal economy. A holistic picture of all the options that local people recognize is drawn, and an enriched understanding of problems and opportunities for health care in tropical cities emerges.

Multidisciplinary work on sexually transmitted disease is rare, even in this time of AIDS, and the book effectively maps the social contexts of its perception and management. Moreover, it focuses on women as ordinary citizens, selected by residence and not by reference to known medical conditions or high risk behavior. It is important too that the field strategies have encouraged local informants to become active participants in the definition of local problems and their solutions.

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Landscapes of Activism
Civil Society, HIV and AIDS Care in Northern Mozambique
Reed, Joel Christian
Rutgers University Press, 2018
AIDS activists are often romanticized as extremely noble and selfless. However, the relationships among HIV support group members highlighted in Landscapes of Activism are hardly utopian or ideal. At first, the group has everything it needs, a thriving membership, and support from major donors. Soon, the group undergoes an identity crisis over money and power, eventually fading from the scene. As government and development institutions embraced activist demands—decentralizing AIDS care through policies of health systems strengthening—civil society was increasingly rendered obsolete. Charting this transition—from subjects, to citizens, and back again—reveals the inefficacy of protest, and the importance of community resilience. The product of in-depth ethnography and focused anthropological inquiry, this is the first book on AIDS activists in Mozambique. AIDS activism’s strange decline in southern Africa, rather than a reflection of citizen apathy, is the direct result of targeted state and donor intervention.
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The Limits of Medicine
How Science Shapes Our Hope for the Cure
Edward S. Golub
University of Chicago Press, 1997
Edward Golub, distinguished researcher and former professor of immunology, shows that
major advances in medicine are caused by changes in the way scientists describe disease.
Bleeding, sweating, and other treatments we consider barbaric were standard treatments for
centuries because they conformed to a conception of disease shared by patients and doctors.
Scientific breakthroughs in the understanding of disease in the nineteenth century transformed
treatment and the goals of medicine. Golub argues that the ongoing revolution in molecular
genetics has opened the door to the "biology of complexity," again transforming our view of
disease. This thought-provoking, timely book reveals a crucial but overlooked role of science
in medicine, and offers a new vision for the goals of both science and medicine as we enter the
twenty-first century.
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Litigating Health Rights
Can Courts Bring More Justice to Health?
Alicia Ely Yamin
Harvard University Press, 2011

The last fifteen years have seen a tremendous growth in the number of health rights cases focusing on issues such as access to health services and essential medications. This volume examines the potential of litigation as a strategy to advance the right to health by holding governments accountable for these obligations. It includes case studies from Costa Rica, South Africa, India, Brazil, Argentina and Colombia, as well as chapters that address cross-cutting themes.

The authors analyze what types of services and interventions have been the subject of successful litigation and what remedies have been ordered by courts. Different chapters address the systemic impact of health litigation efforts, taking into account who benefits both directly and indirectly—and what the overall impacts on health equity are.

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Man-Made Medicine
Women’s Health, Public Policy, and Reform
Kary L. Moss, ed.
Duke University Press, 1996
If not for the reproductive functions of women, would there be anything called women’s health care? A review of medical literature, practice, and policy in this country would suggest that the answer is no. Offering a startling view of the current state of health care for women in the United States and laying the foundation for a new, widely defined women’s medicine, Man-Made Medicine makes an urgent statement about gender bias in the medical establishment and its pernicious effects on the well-being of women and the care they receive.
These essays by physicians, lawyers, activists, and scholars present a rare interdisciplinary approach to a complex set of issues. Gender stereotyping and bias in the collection, analysis, and reporting of scientific data and in the ways health-related news is covered by the media are examined. The exclusion of women from the health care policy-making process and the effect such exclusion has on the determination of priorities among potential areas of research are also explored. With discussions of the plight of specific populations of women whose health care needs are not being sufficiently met—for example, immigrants, prisoners, the mentally ill, or women with HIV/AIDS, disabilities, or reproductive health problems—this book considers matters of race and class within the parameters of gender as it builds a fundamental challenge to the existing health care system. A range of current reform proposals are also evaluated in terms of their potential impact on women.
Suggesting no less than a radical rethinking of women’s medicine, Man-Made Medicine gives essential direction to the discussions that will shape the future of health care in this country. It will be of great interest to a wide audience, including health care advocates, policymakers, scholars, and readers generally concerned with women’s health issues.

Contributors. Ellen Barry, Laurie Beck, Joan Bertin, Janet Calvo, Wendy Chavkin, Kay Dickersin, Abigail English, Elizabeth Fee, Carol Gill, Nancy Krieger, Joyce McConnell, Judy Norsigian, Ann Scales, Susan Stefan, Lauren Schnaper, Catherine Teare

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Masks, Misinformation, and Making Do
Appalachian Health-Care Workers and the COVID-19 Pandemic
Wendy Welch
Ohio University Press, 2023
The firsthand pandemic experiences of rural health-care providers—who were already burdened when COVID-19 hit—raise questions about the future of public health and health-care delivery. This volume comprises the COVID-19 pandemic experiences of Appalachian health-care workers, including frontline providers, administrators, and educators. The combined narrative reveals how governmental and corporate policies exacerbated the region’s injustices, stymied response efforts, and increased the death toll. Beginning with an overview of the SARS-CoV-2 virus and its impact on the body, the essays in the book’s first section provide background material and contextualize the subsequent explosion of telemedicine, the pandemic’s impact on medical education, and its relationship to systemic racism and related disparities in mental health treatment. Next, first-person narratives from diverse perspectives recount the pandemic’s layered stresses, including the scramble for ventilators, masks, and other personal protective equipment the neighbors, friends, and family members who flouted public-health mandates, convinced that COVID-19 was a hoax the added burden the virus leveled on patients whose health was already compromised by cancer, diabetes, or addiction the acute ways the pandemic’s arrival exacerbated interpersonal and systemic racism that Black and other health-care workers of color bear not only the battle against the virus but also the growing suspicion and even physical abuse from patients convinced that doctors and nurses were trying to kill them These visceral, personal experiences of how Appalachian health-care workers responded to the pandemic amid the nation’s deeply polarized political discourse will shape the historical record of this “unprecedented time” and provide a glimpse into the future of rural medicine. Contributors: Lucas Aidukaitis, Clay Anderson, Tammy Bannister, Alli Delp, Lynn Elliott, Monika Holbein, Laura Hungerford, Nikki King, Brittany Landore, Jeffrey J. LeBoeuf, Sojourner Nightingale, Beth O’Connor, Rakesh Patel, Mildred E. Perreault, Melanie B. Richards, Tara Smith, Kathy Osborne Still, Darla Timbo, Kathy Hsu Wibberly
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Measuring Functioning and Well-Being
The Medical Outcomes Study Approach
Anita L. Stewart and John E. Ware Jr., eds.
Duke University Press, 1992
Measuring Functioning and Well-Being is a comprehensive account a broad range of self-reported functioning and well-being measures developed for the Medical Outcomes Study, a large-sale study of how patients fare with health care in the United States. This book provides a set of ready-to-use generic measures that are applicable to all adults, including those well and chronically ill, as well as a methodological guide to collecting health data and constructing health measures. As demand increases for more practical methods to monitor the outcomes of health care, this volume offers a timely and valuable contribution to the field.
The contributors address conceptual and methodological issues involved in measuring such important health status concepts as: physical, social, and role functioning; psychological distress and well-being; general health perceptions; energy and fatigue; sleep; and pain. The authors present psychometric results and explain how to administer, score, and interpret the measures.
Comprising the work of a number of highly respected scholars in the field of health assessment, Measuring Functioning and Well-Being will be of great interest and value to the growing number of researchers, policymakers, and clinicians concerned with the management and evaluation of health care.
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Measuring the Gains from Medical Research
An Economic Approach
Edited by Kevin M. Murphy and Robert H. Topel
University of Chicago Press, 2003
In 1998, health expenditures in the United States accounted for 12.9% of national income-the highest share of income devoted to health in the developed world. The United States also spends more on medical research than any other country-in 2000, the federal government dedicated $18.4 billion to it, compared with only $3.7 billion for the entire European Union. In this book, leading health economists ask whether we are getting our money's worth.

From an economic perspective, they find, the answer is a resounding "yes": in fact, considering the extraordinary value of improvements to health, we may even be spending too little on medical research. The evidence these papers present and the conclusions they reach are both surprising and convincing: that growth in longevity since 1950 has been as valuable as growth in all other forms of consumption combined; that medical advances producing 10% reductions in mortality from cancer and heart disease alone would add roughly $10 trillion-a year's GDP-to the national wealth; or that the average new drug approved by the FDA yields benefits worth many times its cost of development.

The papers in this book are packed with these and many other surprising revelations, their sophisticated analysis persuasively demonstrating the massive economic benefits we can gain from investments in medical research. For anyone concerned about the cost and the value of such research-from policy makers to health care professionals and economists-this will be a landmark book.
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Medical Care Output and Productivity
Edited by David M. Cutler and Ernst R. Berndt
University of Chicago Press, 2001
With the United States and other developed nations spending as much as 14 percent of their GDP on medical care, economists and policy analysts are asking what these countries are getting in return. Yet it remains frustrating and difficult to measure the productivity of the medical care service industries.

This volume takes aim at that problem, while taking stock of where we are in our attempts to solve it. Much of this analysis focuses on the capacity to measure the value of technological change and other health care innovations. A key finding suggests that growth in health care spending has coincided with an increase in products and services that together reduce mortality rates and promote additional health gains. Concerns over the apparent increase in unit prices of medical care may thus understate positive impacts on consumer welfare. When appropriately adjusted for such quality improvements, health care prices may actually have fallen. Provocative and compelling, this volume not only clarifies one of the more nebulous issues in health care analysis, but in so doing addresses an area of pressing public policy concern.
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Obstetrics and Gynecology in Low-Resource Settings
A Practical Guide
Nawal M. Nour
Harvard University Press, 2016

Responding to the growing need for tried-and-trusted solutions to the reproductive health care issues confronting millions of women worldwide, Obstetrics and Gynecology in Low-Resource Settings provides practical guidelines for ensuring the delivery of quality OB/GYN care to women in resource-poor countries. Including contributions from leading clinicians and researchers in the field, this welcome overview fills an important gap in existing medical literature on women’s health care and will be an invaluable resource for doctors, clinicians, and medical students at all stages of their careers who work in the global health arena.

The reproductive health risks that all women face are greatly exacerbated when health care facilities are inadequate, equipment and medications are in short supply, and well-trained medical staff are few and far away. Often in these settings, the sole doctor or medical professional on hand has expertise in some areas of women’s reproductive care but needs a refresher course in others.

This informative guide features hands-on, step-by-step instruction for the most pertinent OB/GYN conditions—both acute and chronic—that health care workers in the field confront. The authors examine a wide range of topics, including: strategies to reduce maternal mortality and stillbirths; infectious and sexually transmitted diseases, including malaria and HIV; cervical cancer; contraception; prenatal, delivery, and newborn care; and complications arising from gender-based violence and female genital cutting. Published in a convenient format with a durable binding, this reference will be an essential companion to health care providers throughout the world.

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On the Ragged Edge of Medicine
Doctoring Among the Dispossessed
Patricia Kullberg
Oregon State University Press, 2017
On the Ragged Edge of Medicine offers a glimpse into a medical practice for the homeless and urban poor. Told through fifteen patient vignettes, and drawn from the author’s decades of experience in Portland, Oregon, this revealing memoir illuminates the impact of poverty on the delivery of health services and the ways in which people adapt and survive (or don’t survive) in conditions of abuse and deprivation. Kullberg’s stories show the direct and sometimes devastating effects of poverty on public health, poignantly demonstrating that medicine is as much a social enterprise as a scientific one.
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Physicians and Hospitals
The Great Partnership at the Crossroads
Duncan Yaggy and Patricia Hodgson, eds.
Duke University Press, 1985
Physicians and Hospitals addresses an issue of concern and one of fundamental importance to the American health care system. While the ranks of physicians continue to swell and hospitals continue to expand their facilities, federal, state, and local governments remain determined to control health care expenditures. As a result, checks on the supply of services and facilities have been implemented that strain the physician-hospital relationship, often placing physicians and hospital administrations in conflict. The implications for American health care are the subject of disagreement and vigorous debate.
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A Plague of Paradoxes
AIDS, Culture, and Demography in Northern Tanzania
Philip W. Setel
University of Chicago Press, 1999
Since recording its first AIDS cases in 1983, Tanzania has reported nearly 90,000 more to the World Health Organization—more than any other country in Africa. As AIDS spread, the devastating syndrome came to be known simply as ugonjwa huo: "that disease."

The AIDS epidemic has forced Africans to reflect upon the meaning of traditional ideas and practices related to sexuality and fertility, and upon modernity and biomedicine. In A Plague of Paradoxes, anthropologist Philip Setel observes Tanzania's Chagga people and their attempts to cope with and understand AIDS—the latest in a series of crises over which they feel they have little, if any, control.

Timely and well-researched, A Plague of Paradoxes is an extended case study of the most serious epidemic of the twentieth century and the cultural circumstances out of which it emerged. It is a unique book that brings together anthropology, demography, and epidemiology to explain how a particular community in Africa experiences AIDS.
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The Political Economy of Health in Africa
Mis Af#60
Toyin Falola
Ohio University Press, 1992
This book examines the major phases in the history of health services in Africa and treats health as an integral aspect of the deepening crisis in Africa’s underdevelopment. One important thesis is that Western delivery systems have made health care less accessible for most people. Contributors direct attention to problems engendered by food shortages, acute cases of infection, the market in fake drugs as well as the inequality of access to facilities, the violation of human rights, and the recent danger of the dumping of toxic wastes in several African countries. One major implication of this volume is that there can be no solution to the health crisis in Africa until the linkage between health and poverty is recognized. The authors consider questions that add to the contemporary discussion of the place that traditional African medicine and philosophy should take alongside modern Western medicine in Africa today.
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The Politics of Health Care Reform
Lessons from the Past, Prospects for the Future
James A. Morone and Gary S. Belkin, eds.
Duke University Press, 1994
This distinguished collection stands out from the recent flurry of books on health reform by its sustained and sophisticated analysis of the political dimension. In The Politics of Health Care Reform, some of America’s best-known political scientists, historians, and legal scholars make sense of our most turbulent policy issue. They dig below the jargon and minutiae to explore the enduring questions of American politics, government reform, and health care.
The Politics of Health Care Reform explains how successful reforms occur in the United States and shows what is unique about health care issues. Theoretically informed, politically astute, historically nuanced, this volume takes an inventory of our health policy infrastructure. Here is an account of the institutions, ideas, and interests that shape health policy in the 1990s: Congress, the federal courts, interest groups, state governments, the public bureaucracy, business (large and small), the insurance industry, the medical profession. The volume offers a fresh look at such critical matters as public opinion, the politics of race and gender, and the lessons we can draw from other nations.
The Politics of Health Care Reform is the definitive collection of political science essays about health care. Expanded from two special issues of the Journal of Health Politics, Policy and Law, the most prominent scholarly journal in the field it helped create, this collection will enliven the present debate over health reform and instruct everyone who is concerned about the future of American health care.

Contributors. Lawrence Brown, Robert Evans, William Glaser, Colleen Grogan, Robert Hackey, Lawrence Jacobs, Nancy Jecker, Taeku Lee, Joan Lehman, David McBride, Ted Marmor, Cathie Jo Martin, James A. Morone, Mark Peterson, David Rochefort, Rand Rosenblatt, David Rothman, Joan Ruttenberg, Mark Schlesinger, Theda Skocpol, Michael Sparer, Deborah Stone, Kenneth Thorpe

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Practices of Freedom
Selected Writings on HIV/AIDS
Simon Watney
Duke University Press, 1994
Since the mid-1980s, Simon Watney has been one of the leading voices in the international field of HIV/AIDS education. His monthly column on AIDS in Britain’s Gay Times is the longest-running column of its kind in Europe, and he is actively involved in HIV/AIDS issues in the United States. His work constitutes a unique dialogue between European and American perspectives on the epidemic. Practices of Freedom brings together for the first time Watney’s pioneering writings on topics ranging from gay men’s Safer Sex education to racist coverage of AIDS in Africa in the international media, from the ethics of clinical drug trials to governmental policies concerning AIDS.
Watney’s voice—neither neutral nor detached—is that of an active and influential participant in the fight against AIDS. He offers a unique view of the ways in which gay men working in community-based organizations have attempted to provide reliable and up-to-date services and information regarding AIDS treatment and health. A leader in insisting on gay men’s entitlements to education, care, and services, Watney was among the first to challenge the "de-gaying" of AIDS service organizations in the late eighties. He also devotes his attention to HIV/AIDS prevention work, research and treatment issues, and the wider cultural politics of the disease, including the role of language, television, and cinema. His analysis of the epidemic as it has unfolded provides a history of many of the major medical and political debates that have defined the course and extent of the crisis.
Practices of Freedom demonstrates the failure of national institutions, from the government to the press, to understand and effectively fight this epidemic, and directs attention to the most urgent needs in American and international AIDS work. It will be an important primary resource, particularly in the United States, where effective community-based HIV/AIDS education tragically has often been neglected.
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Protecting American Health Care Consumers
Eleanor DeArman Kinney
Duke University Press, 2002
Despite the attention to the problem of protecting the health care interests of Americans, there is little consensus on what should be done politically or otherwise to address this problem. In Protecting American Health Care Consumers Eleanor DeArman Kinney, a nationally regarded expert on health policy and law, tackles the serious and ongoing debate among state and federal policymakers, health care providers, third-party payers, and consumers about how to provide procedural justice to patients in the present health care climate.
To promote and ensure consumer protection in an increasingly adversarial and complicated health-care culture, Kinney first analyzes the procedures by which consumer concerns are presently discerned and resolved and then explains why these systems are unsatisfactory. She also discusses problematic procedures for making coverage policy and quality standards and proposes reforms in a variety of processes that would enable all consumers, including the uninsured, to influence key policies and standards and also to raise concerns and obtain appropriate remedies.
As the first comprehensive treatment of administrative procedures in American health plans and other such institutions, Protecting American Health Care Consumers will be welcomed by state and federal policymakers, managed care executives, and lawyers charged with designing and implementing protections for consumers in public and private health plans.
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Redefining Health Care Systems
Robert H. Brook
RAND Corporation, 2015
This book provides a scientific and personal perspective on health services research over the last half-century. Its essays and commentaries suggest how that science base, constructed over decades of sustained effort, can stimulate innovative thinking about ways to make health care systems safer, more efficient, more cost-effective, and more patient-centered.
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Reproducing Inequities
Poverty and the Politics of Population in Haiti
Maternowska, M. Catherine
Rutgers University Press, 2006

Residents of Haiti-one of the poorest and most unstable countries in the world-face a grim reality of starvation, violence, lack of economic opportunity, and minimal health care. For years, aid organizations have sought to alleviate the problems by creating health and family planning clinics, including one modern (and, by local standards, luxurious) center in the heart of Cit Soleil. During its height of service in the 1980s and 1990s, the clinic boasted nineteen staff members, an array of modern contraceptives, an accessible location, and convenient hours-but very few clients.

Why did this initiative fail so spectacularly despite surveys finding that residents would like to have fewer children? Why don't poor women heed the message of family planning, when smaller families seem to be in their best interest? In Reproducing Inequities, M. Catherine Maternowska argues that we too easily overlook the political dynamics that shape choices about family planning. Through a detailed study of the attempt to provide modern contraception in the community of Cit Soleil, Maternowska demonstrates the complex interplay between local and global politics that so often thwarts well-intended policy initiatives.

Medical anthropologists, she argues, have an important role to play in developing new action plans for better policy implementation. Ethnographic studies in desperate, dangerous locations provide essential data that can point the way to solutions for the dilemmas of contraception in poor communities worldwide.

 

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Seeing Patients
A Surgeon’s Story of Race and Medical Bias, With a New Preface
Augustus A. White III MD
Harvard University Press, 2019

“A powerful and extraordinarily important book.”
—James P. Comer, MD


“A marvelous personal journey that illuminates what it means to care for people of all races, religions, and cultures. The story of this man becomes the aspiration of all those who seek to minister not only to the body but also to the soul.”
—Jerome Groopman, MD, author of How Doctors Think


Growing up in Jim Crow–era Tennessee and training and teaching in overwhelmingly white medical institutions, Gus White witnessed firsthand how prejudice works in the world of medicine. While race relations have changed dramatically since then, old ways of thinking die hard. In this blend of memoir and manifesto, Dr. White draws on his experience as a resident at Stanford Medical School, a combat surgeon in Vietnam, and head orthopedic surgeon at one of Harvard’s top teaching hospitals to make sense of the unconscious bias that riddles medical care, and to explore how we can do better in a diverse twenty-first-century America.

“Gus White is many things—trailblazing physician, gifted surgeon, and freedom fighter. Seeing Patients demonstrates to the world what many of us already knew—that he is also a compelling storyteller. This powerful memoir weaves personal experience and scientific research to reveal how the enduring legacy of social inequality shapes America’s medical field. For medical practitioners and patients alike, Dr. White offers both diagnosis and prescription.”
—Jonathan L. Walton, Plummer Professor of Christian Morals, Harvard University

“A tour de force—a compelling story about race, health, and conquering inequality in medical care…Dr. White has a uniquely perceptive lens with which to see and understand unconscious bias in health care…His journey is so absorbing that you will not be able to put this book down.”
—Charles J. Ogletree, Jr., author of All Deliberate Speed

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Seeing Patients
Unconscious Bias in Health Care
Augustus A. White III M.D.
Harvard University Press, 2011

If you’re going to have a heart attack, an organ transplant, or a joint replacement, here’s the key to getting the very best medical care: be a white, straight, middle-class male. This book by a pioneering black surgeon takes on one of the few critically important topics that haven’t figured in the heated debate over health care reform—the largely hidden yet massive injustice of bias in medical treatment.

Growing up in Jim Crow–era Tennessee and training and teaching in overwhelmingly white medical institutions, Gus White witnessed firsthand how prejudice works in the world of medicine. And while race relations have changed dramatically, old ways of thinking die hard. In Seeing Patients White draws upon his experience in startlingly different worlds to make sense of the unconscious bias that riddles medical treatment, and to explore what it means for health care in a diverse twenty-first-century America.

White and coauthor David Chanoff use extensive research and interviews with leading physicians to show how subconscious stereotyping influences doctor–patient interactions, diagnosis, and treatment. Their book brings together insights from the worlds of social psychology, neuroscience, and clinical practice to define the issues clearly and, most importantly, to outline a concrete approach to fixing this fundamental inequity in the delivery of health care.

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The Social Medicine Reader
Gail E. Henderson, Nancy M. P. King, Ronald P. Strauss, Sue E. Estroff, and Larry R. Churchill, eds.
Duke University Press, 1997
To meet the needs of the rapidly changing world of health care, future physicans and health care providers will need to be trained to become wiser scientists and humanists in order to understand the social and moral as well as technological aspects of health and illness. The Social Medicine Reader is designed to meet this need.
Based on more than a decade of teaching social medicine to first-year medical students at the pioneering Department of Social Medicine at the University of North Carolina, The Social Medicine Reader defines the meaning of the social medicine perspective and offers an approach for teaching it. Looking at medicine from a variety of perspectives, this anthology features fiction, medical reports, scholarly essays, poetry, case studies, and personal narratives by patients and doctors—all of which contribute to an understanding of how medicine and medical practice is profoundly influenced by social, cultural, political, and economic forces.
What happens when a person becomes a patient? How are illness and disability experienced? What causes disease? What can medicine do? What constitutes a doctor/patient relationship? What are the ethical obligations of a health care provider? These questions and many others are raised by The Social Medicine Reader, which is organized into sections that address how patients experience illness, cultural attitudes toward disease, social factors related to health problems, the socialization of physicians, the doctor/patient relationship, health care ethics and the provider’s role, medical care financing, rationing, and managed care.
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Special Care
Medical Decisions at the Beginning of Life
Fred M. Frohock
University of Chicago Press, 1986
Intensive care medicine today is as close to the miraculous as most of us are likely to see in our lifetime. Nowhere is this magic more effectively practiced than in neonatal nurseries. Infants who are born prematurely at twenty-four weeks gestation and who weigh less than a pound can now be treated successfully. No other type of medicine has a more dramatic payoff, for the infants who survive can look forward to seventy or more years of life.

But there is a dark underside to the exercise of these skills. A growing number of babies live only to be tethered to life-support systems, unconscious or suffering incessant pain for years and sometimes for the duration of their lives. The ethical issues raised by these children are among the most difficult in our society. Should life be maintained no matter what its quality? Or is there a point at which treatment should be stopped on humane grounds? Who is to make decisions on continuing or ending therapy for damaged children? Is the law a suitable instrument for regulating medical decisions in intensive care nurseries? Should the growing cost of intensive care influence therapy decisions?

Special Care explores the moral and legal issues in neonatal intensive care. Fred M. Frohock spent four months in a special care nursery, observing the daily actions of doctors and nurses and interviewing staff and parents of patients. This engaging, human drama is told through the author's own journal entries interspersed with generous excerpts from taped interviews that display the practical reasoning of staff and parents as they address the moral problems raised by intensive care medicine. Several case studies of infants highlight the often contradictory directions in which medical staffs are pulled and the painful decisions that doctors and parents together are often called upon to make. The result is a book that reconstructs the ordinary life of a neonatal nursery and presents the moral views of those who are most intimately involved in therapy decisions.

This book is an urgently needed entry in the current discussions of treatment for badly damaged babies. Frohock argues that our tradition of rights language, which rests on the premise that we know what a human being is, is inappropriate when dealing with the paradoxes of decision making in neonatal nurseries. Calling for a new moral vocabulary better adapted to the world of medicine, he introduces the notion of harm in place of rights, a concept drawn from medicine's Hippocratic oath that pledges to "do no harm," as a way to begin framing questions and making decisions. Special Care will interest anyone who wants to understand medical decisions at the margins of human life.
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Ties That Enable
Community Solidarity for People Living with Serious Mental Health Problems
Teresa L. Scheid
Rutgers University Press, 2021
Ties that Enable is written for students, providers, and advocates seeking to understand how best to improve mental health care – be it for themselves, their loved ones, their clients, or for the wider community. The authors integrate their knowledge of mental health care as researchers, teachers, and advocates and rely on the experiences of people living with severe mental health problems to help understand the sources of community solidarity. Communities are the primary source of social solidarity, and given the diversity of communities, solutions to the problems faced by individuals living with severe mental health problems must start with community level initiatives. “Ties that Enable” examines the role of a faith-based community group in providing a sense of place and belonging as well as reinforcing a valued social identity. The authors argue that mental health reform efforts need to move beyond a focus on individual recovery to more complex understandings of the meaning of community care. In addition, mental health care needs to move from a medical model to a social model which sees the roots of mental illness and recovery as lying in society, not the individual. It is our society’s inability to provide inclusive supportive environments which restrict the ability of individuals to recover. This book provides insights into how communities and system level reforms can promote justice and the higher ideals we aspire to as a society.
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Tissue Economies
Blood, Organs, and Cell Lines in Late Capitalism
Catherine Waldby and Robert Mitchell
Duke University Press, 2006
As new medical technologies are developed, more and more human tissues—such as skin, bones, heart valves, embryos, and stem cell lines—are stored and distributed for therapeutic and research purposes. The accelerating circulation of human tissue fragments raises profound social and ethical concerns related to who donates or sells bodily tissue, who receives it, and who profits—or does not—from the transaction. Catherine Waldby and Robert Mitchell survey the rapidly expanding economies of exchange in human tissue, explaining the complex questions raised and suggesting likely developments. Comparing contemporary tissue economies in the United Kingdom and United States, they explore and complicate the distinction that has dominated practice and policy for several decades: the distinction between tissue as a gift to be exchanged in a transaction separate from the commercial market and tissue as a commodity to be traded for profit.

Waldby and Mitchell pull together a prodigious amount of research—involving policy reports and scientific papers, operating manuals, legal decisions, interviews, journalism, and Congressional testimony—to offer a series of case studies based on particular forms of tissue exchange. They examine the effect of threats of contamination—from HIV and other pathogens—on blood banks’ understandings of the gift/commodity relationship; the growth of autologous economies, in which individuals bank their tissues for their own use; the creation of the United Kingdom’s Stem Cell bank, which facilitates the donation of embryos for stem cell development; and the legal and financial repercussions of designating some tissues “hospital waste.” They also consider the impact of different models of biotechnology patents on tissue economies and the relationship between experimental therapies to regenerate damaged or degenerated tissues and calls for a legal, for-profit market in organs. Ultimately, Waldby and Mitchell conclude that scientific technologies, the globalization of tissue exchange, and recent anthropological, sociological, and legal thinking have blurred any strict line separating donations from the incursion of market values into tissue economies.

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Unbecoming
Eric Michaels
Duke University Press, 1997
In 1982, the American-born anthropologist Eric Michaels went to Australia to research the impact of television on remote aboriginal communities. Over the next five years, until his death, he became a major intellectual presence in Australia. Unbecoming is Michaels’s gritty, provocative, and intellectually powerful account of living with AIDS—a chronicle of the last year of his life as he became increasingly ill. Michaels’s diary offers a forceful and ironic rumination on the cultural phenomenon of AIDS, how it relates to his concerns as both an anthropologist and a gay man, and the failure of medical and governmental institutions to come to terms with the disease. Like the AIDS testimony of artist David Wojnarowicz and filmmaker Derek Jarman, Unbecoming provides a view of the AIDS epidemic from a distinctly new vantage point.
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Unstable Frontiers
Technomedicine and the Cultural Politics of “Curing” AIDS
John Nguyet Erni
University of Minnesota Press, 1994

Unstable Frontiers was first published in 1994. Minnesota Archive Editions uses digital technology to make long-unavailable books once again accessible, and are published unaltered from the original University of Minnesota Press editions.

"John Erni's heartfelt and insightful book is a valuable contribution to the study of the cultural politics of AIDS."–Jeff Nunokawa Princeton University

The "cure" for AIDS: The search goes on, keeping pace with our belief that AIDS is incurable. How such a seeming paradox works-and how it may well work against the proper treatment of the disease-is the subject of Unstable Frontiers, a probing, critical look at the cultural politics behind the quest for a cure for AIDS.

This massive commercial and scientific project, John Erni suggests, actually hinges on our contradictory definitions of the disease as curable and incurable at the same time. Drawing on diverse sources, from popular media to medical literature to cultural theory, he shows how the dual discourse of curability/incurability frames the way we think about and act on issues of medical treatment for AIDS. His work makes a major advance in our understanding of—and, perhaps, humane response to—a national crisis.

In his critique of the logic and fantasies underlying the double definition of AIDS, Erni explores a broad range of issues: the scientific paradigm used to develop AZT; the politics of alternative treatment practices, of clinical drug trials, and of AIDS activism; and the notions of time and temporality operating in AIDS treatment science. He also addresses the problematic popular themes, such as "AIDS is invariably fatal" and "Knowledge = Cure."

Unique in its approach to a social and political issue still in the making, the book reveals how AIDS has challenged technomedicine's historical position of authority-and in doing so, recasts this challenge in a powerful and ultimately hopeful way.

John Nguyet Erni is assistant professor of communication at the University of New Hampshire. He has published essays on AIDS and is currently working on a book about AIDS in Thailand.

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Viral Frictions
Global Health and the Persistence of HIV Stigma in Kenya
Elizabeth J. Pfeiffer
Rutgers University Press, 2022
Viral Frictions takes the reader along a trail of intersecting narratives to uncover how and why it is that HIV-related stigma persists in the age of treatment. Pfeiffer convincingly argues that stigma is a socially constructed process co-produced at the nexus of local, national, and global relationships and storytelling about and practices associated with HIV. Based on a decade of fieldwork in one highway trading center in Kenya, Viral Frictions offers compelling stories of stigma and discrimination as a lens for understanding broader social processes, the complexities of globalization and health, and their profound impact on the everyday social lives and relationships of people living through the ongoing HIV epidemic in sub-Saharan Africa. This highly engaging book is ideal reading for those interested in teaching and learning about intersectionality, as Pfeiffer meticulously demonstrates how HIV stigma interacts with issues of treatment, race, ethnicity, class, gender, sexuality, social change, and international aid systems.
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The Work of Hospitals
Global Medicine in Local Cultures
William C. Olsen
Rutgers University Press, 2022
In the context of neoliberalism and global austerity measures, health care institutions around the world confront numerous challenges in attempting to meet the needs of local populations. Examples from Africa (including, Ethiopia, Ghana, and Congo), Latin America (Peru, Mexico, Guatemala), Western Europe (France, Greece), and the United States illustrate how hospitals play a significant role in the social production of health and disease in the communities where they are. Many low-resource countries have experienced increasing privatization and dysfunction of public sector institutions such as hospitals, and growing withdrawal of funding for non-profit organizations. Underlying the chapters in The Work of Hospitals is a fundamental question: how do hospitals function lacking the medications, equipment and technologies, and personnel normally assumed to be necessary? This collection of ethnographies demonstrates how hospital administrators, clinicians, and other staff in hospitals around the world confront innumerable risks in their commitment to deliver health care, including civil unrest, widespread poverty, endemic and epidemic disease, and supply chain instability. Ultimately, The Work of Hospitals documents a vast gulf between the idealized mission of the hospital and the implementation of this mission in everyday practice. Hospitals thus become “contested space” between policy and practice. 
 
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