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Healing Connection
Story Of Physicians Search For Link Between Faith & Hea
Harold Koenig
Templeton Press, 2004

"It is inspiring to see a physician who is unafraid to stand up for his religious beliefs and who understands how those beliefs can resonate with good science." —Larry Dossey, MD, author of Reinventing Medicine and Healing Words

The name Harold G. Koenig is well known in the fast-growing field of spirituality and health. Founder and director of the widely respected Duke University Center for Theology, Spirituality, and Health, Dr. Koenig is recognized worldwide for his groundbreaking work in medical science and religious faith. In this book—now available in paperback—he shares his remarkable personal story and shows how personal trials became the catalyst for his pioneering research.

In part one, he describes his turbulent youth: growing up on a California vineyard, college days of experimentation during the 1970s, adventures as a student researcher in Africa with Jane Goodall, an emotional breakdown, expulsion from medical school for disruptive behavior, battling mental illness as a street person in San Francisco. He refers to his ongoing battle with a chronic and debilitating physical disease in terms of the insights it gives him for his work, and he recounts the striking realization of God's call, the people and events that helped him refine a vision into a mission, and the subsequent professional opposition that resided alongside his success.

Part two draws on the real-life examples of former patients and summarizes Koenig's most important findings concerning the impact of Christian faith on mental and physical health, encapsulated by the statement: religious faith and practice are connected to mental and physical health.

In part three he challenges individuals and the American church to consider the implications of the research and to develop constructive ways of implementing the healing connection that can be found in faith.

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Healing to All Their Flesh
Jewish and Christian Perspectives on Spirituality, Theology, and Health
Jeff Levin
Templeton Press, 2012
Healing to All Their Flesh asks us to step back and carefully rethink the relationship between religion and health. It does so by examining overlooked issues of theology and meaning that lie at the foundation of religion’s supposed beneficial function. Is a religion-health relationship consistent with understandings of faith within respective traditions? What does this actually imply? What does it not imply? How have these ideas been distorted? Why does this matter—for medicine and healthcare and also for the practice of faith? Is the ultimate relation between spirit and flesh, as mediated by the context of human belief and experience, a topic that can even be approached through empirical observation, scientific reasoning, and the logic of intellectual discourse?8 pag e photo insert
 
The editors of this collection, Drs. Jeff Levin and Keith G. Meador, have gathered together the writings of leading Jewish and Christian theological, pastoral, ethical, and religious scholars to answer these important questions. Contributors include Richard Address, William Cutter, Elliot N. Dorff, Dayle A. Friedman, Stanley Hauerwas, Warren Kinghorn, M. Therese Lysaught, Stephen G. Post, John Swinton, and Simkha Y. Weintraub, with a foreword by Samuel E. Karff.
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Health and Community Design
The Impact Of The Built Environment On Physical Activity
Lawrence D. Frank, Peter O. Engelke, and Thomas L. Schmid
Island Press, 2003

Health and Community Design is a comprehensive examination of how the built environment encourages or discourages physical activity, drawing together insights from a range of research on the relationships between urban form and public health. It provides important information about the factors that influence decisions about physical activity and modes of travel, and about how land use patterns can be changed to help overcome barriers to physical activity. Chapters examine:

• the historical relationship between health and urban form in the United States
• why urban and suburban development should be designed to promote moderate types of physical activity
• the divergent needs and requirements of different groups of people and the role of those needs in setting policy
• how different settings make it easier or more difficult to incorporate walking and bicycling into everyday activities
A concluding chapter reviews the arguments presented and sketches a research agenda for the future.

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Health and Disease in the Neolithic Lengyel Culture
Edited by Václav Smrcka and Olivér Gábor
Karolinum Press, 2020
Lasting from around 4800 to 4000 BCE, the Lengyel culture helped usher in the Copper Age in Central Europe with the rise of mining, craft production, and the trading of copper and obsidian, in addition to larger-scale farming. In Health and Disease in the Neolithic Lengyel Culture, the authors investigate the migration of the Lengyel people as they moved west from their place of origin in modern-day Hungary to areas in what is now the Czech Republic and Poland. By drawing on research into the trace elements of strontium, carbon, and nitrogen found in human bone tissue, as well paleopathological analyses of congenital defects, this book proves that the Lengyel migration occurred in waves, providing important details about the changes in the diet, health, and mobility of a people who were crucial to the development of early European civilization
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Health and Economic Outcomes Among the Alumni of the Wounded Warrior Project
2013
Jennifer L. Cerully
RAND Corporation, 2014
In this report, the authors use the Wounded Warrior Project’s 2013 survey of its members (alumni) to understand the physical, mental, and economic challenges that Wounded Warriors face. The researchers find that at least half of alumni reported dealing with mental health conditions such as depression and posttraumatic stress disorder, and many of these alumni reported difficulties or delays in seeking mental health care, or not doing so at all.
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Health and Economic Outcomes in the Alumni of the Wounded Warrior Project
2010–2012
Heather Krull
RAND Corporation, 2014
The Wounded Warrior Project has developed programs to help care for injured service members and veterans. This report describes how project alumnus respondents are faring in domains related to mental health and resiliency, physical health, and employment and finances.
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Health and Efficiency
Fatigue, the Science of Work, and the Making of the Working-Class Body
Steffan Blayney
University of Massachusetts Press, 2022

A new model of health emerged in Britain between 1870 and 1939. Centered on the working body, organized around the concept of efficiency, and grounded in scientific understandings of human labor, scientists, politicians, and capitalists of the era believed that national economic productivity could be maximized by transforming the body of the worker into a machine. At the core of this approach was the conviction that worker productivity was intimately connected to worker health.

Under this new “science of work,” fatigue was seen as the ultimate pathology of the working-class body, reducing workers’ capacity to perform continued physical or mental labor. As Steffan Blayney shows, the equation between health and efficiency did not go unchallenged. While biomedical and psychological experts sought to render the body measurable, governable, and intelligible, ordinary men and women found ways to resist the logics of productivity and efficiency imposed on them, and to articulate alternative perspectives on work, health, and the body.

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Health and Health Care In Developing Countries
Sociological Perspectives
Peter Conrad
Temple University Press, 1993

In this seminal collection of articles on health care in the Third World, sociological perspectives are applied to medical issues in revealing ways. Fourteen essays (all but two of which are original to this volume) examine the social production of health, disease, and systems of care throughout the developing world. The volume covers a range of areas—central Africa, Nigeria, Singapore, Taiwan, Indonesia, Nepal, China, United Arab Emirates, Oman, and Mexico—and a broad scope of topics, from emergency care, the AIDS epidemic, and women's health care, to public health programs and national health care policies.

Contributors address the central question of whether health systems in developing areas should emphasize the role of clinical medicine and individual physicians or community and preventive medical resources. The major health problems faced by these societies—inadequate sanitation, infectious disease, high infant-child mortality, and a lack of family planning—indicate the greater need for health educators and public health workers despite many poor nations' desire for Western doctors. Other topics that are examined include the process of seeking medical aid; the relationship between traditional and modern medicines; medical education, hospital care, and communication between doctors and patients in developing countries; and the relevance and application of sociology in Third World settings.

This volume seeks to draw attention to the significance of medical sociology for understanding Third World health problems and to show how examining developing societies may necessitate reframing or modifying some Western sociological notions. In addition, these essays stretch the boundaries of medical sociology to include Third World issues.

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Health and Human Flourishing
Religion, Medicine, and Moral Anthropology
Carol R. Taylor and Roberto Dell’Oro, Editors
Georgetown University Press, 2006

What, exactly, does it mean to be human? It is an age-old question, one for which theology, philosophy, science, and medicine have all provided different answers. But though a unified response to the question can no longer be taken for granted, how we answer it frames the wide range of different norms, principles, values, and intuitions that characterize today's bioethical discussions. If we don't know what it means to be human, how can we judge whether biomedical sciences threaten or enhance our humanity?

This fundamental question, however, receives little attention in the study of bioethics. In a field consumed with the promises and perils of new medical discoveries, emerging technologies, and unprecedented social change, current conversations about bioethics focus primarily on questions of harm and benefit, patient autonomy, and equality of health care distribution. Prevailing models of medical ethics emphasize human capacity for self-control and self-determination, rarely considering such inescapable dimensions of the human condition as disability, loss, and suffering, community and dignity, all of which make it difficult for us to be truly independent.

In Health and Human Flourishing, contributors from a wide range of disciplines mine the intersection of the secular and the religious, the medical and the moral, to unearth the ethical and clinical implications of these facets of human existence. Their aim is a richer bioethics, one that takes into account the roles of vulnerability, dignity, integrity, and relationality in human affliction as well as human thriving. Including an examination of how a theological anthropology—a theological understanding of what it means to be a human being—can help us better understand health care, social policy, and science, this thought-provoking anthology will inspire much-needed conversation among philosophers, theologians, and health care professionals.

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Health and Human Rights
Basic International Documents
Stephen P. Marks
Harvard University Press
This collection of texts provides the practitioner, scholar, and advocate with easy access to the most basic instruments of international law and policy that express the values of human rights for advancing health. It is the first in a series on health and human rights from the Francois-Xavier Bagnoud Center for Health and Human Rights at the Harvard School of Public Health. Topics include: professional ethics; research and experimentation; treatment of prisoners and detainees; patients' rights; right to health; right to life; freedom from torture, war crimes, crimes against humanity, and genocide; the right to an adequate standard of living; women and reproductive health; children; persons with disabilities; rights of older persons; infectious diseases; business, trade, and intellectual property; occupational health and safety; biotechnology; and protection of the environment. This work will be an indispensable reference for students and professors in courses covering the intersection of health and human rights.
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Health and Human Rights
Basic International Documents, Second Edition
Stephen P. Marks
Harvard University Press
This collection of texts is updated and expanded from the first edition to provide the practitioner, scholar, and advocate with access to the most basic instruments of international law and policy that express the values of human rights for advancing health. The topics covered include professional ethics; research and experimentation; treatment of prisoners and detainees; patients' rights; right to health; right to life; freedom from torture, war crimes, crimes against humanity, and genocide; the right to an adequate standard of living; women and reproductive health; children; persons with disabilities; rights of older persons; infectious diseases; business, trade, and intellectual property; occupational health and safety; biotechnology; and protection of the environment. This book will be an indispensable reference work.
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Health and Human Rights
Basic International Documents, Third Edition
Stephen P. Marks
Harvard University Press
The collection of materials in this latest edition of Health and Human Rights: Basic International Documents has been updated and expanded from the first two editions to provide the practitioner, scholar, and advocate with access to the most basic instruments of international law and policy that express the values of human rights for advancing health. The topics covered include professional ethics; research and experimentation; bioethics and biotechnology; the right to health; the right to life; freedom from torture, war crimes, crimes against humanity, and genocide; the right to an adequate standard of living; women and reproductive health; children; persons with disabilities; the rights of other vulnerable groups; infectious diseases; business, trade, and intellectual property; non-communicable diseases; the right to a clean environment; and sustainable development. This book will be an indispensable reference for everyone working at the intersection of health and human rights.
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Health and Hygiene in Chinese East Asia
Policies and Publics in the Long Twentieth Century
Angela Ki Che Leung and Charlotte Furth, eds.
Duke University Press, 2010
This collection expands the history of colonial medicine and public health by exploring efforts to overcome disease and improve human health in Chinese regions of East Asia from the late nineteenth century to the present. The contributors consider the science and politics of public health policymaking and implementation in Taiwan, Manchuria, Hong Kong, and the Yangzi River delta, focusing mostly on towns and villages rather than cities. Whether discussing the resistance of lay midwives in colonial Taiwan to the Japanese campaign to replace them with experts in “scientific motherhood” or the reaction of British colonists in Shanghai to Chinese diet and health regimes, they illuminate the effects of foreign interventions and influences on particular situations and localities. They discuss responses to epidemics from the plague in early-twentieth-century Manchuria to SARS in southern China, Singapore, and Taiwan, but they also emphasize that public health is not just about epidemic crises. As essays on marsh drainage in Taiwan, the enforcement of sanitary ordinances in Shanghai, and vaccination drives in Manchuria show, throughout the twentieth century public health bureaucracies have primarily been engaged in the mundane activities of education, prevention, and monitoring.

Contributors. Warwick Anderson, Charlotte Furth, Marta E. Hanson, Sean Hsiang-lin Lei, Angela Ki Che Leung, Shang-Jen Li, Yushang Li, Yi-Ping Lin, Shiyung Liu, Ruth Rogaski, Yen-Fen Tseng, Chia-ling Wu, Xinzhong Yu

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Health and Illness
Images of Difference
Sander L. Gilman
Reaktion Books, 2004
This timely study demonstrates how images of beauty and ugliness have constructed a visual history that records the artificial boundaries dividing "healthy" bodies from those that are "ill".

"Gilman tells an excellent tale."—Jewish Chronicle
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Health and Labor Force Participation over the Life Cycle
Evidence from the Past
Edited by Dora L. Costa
University of Chicago Press, 2003
The twentieth century saw significant increases in both life expectancy and retirement rates-changes that have had dramatic impacts on nearly every aspect of society and the economy. Forecasting future trends in health and retirement rates, as we must do now, requires investigation of such long-term trends and their causes.

To that end, this book draws on new data-an extensive longitudinal survey of Union Army veterans born between 1820 and 1850-to examine the factors that affected health and labor force participation in nineteenth-century America. Contributors consider the impacts of a variety of conditions-including social class, wealth, occupation, family, and community-on the morbidity and mortality of the group. The papers investigate and address a number of special topics, including the influence of previous exposure to infectious disease, migration, and community factors such as lead in water mains. They also analyze the roles of income, health, and social class in retirement decisions, paying particular attention to the social context of disability.

Economists and historians who specialize in demography or labor, as well as those who study public health, will welcome the unique contributions offered by this book, which offers a clearer view than ever before of the workings and complexities of life, death, and labor during the nineteenth century.
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Health and Social Change in International Perspective
Lincoln C. Chen
Harvard University Press, 1994

Health and Social Change in International Perspective brings together an unprecedented interdisciplinary series of approaches to understanding the social dimensions of health change around the world. The seventeen contributors—demographers, epidemiologists, economists, anthropologists, public health scientists—are among the intellectual leaders of efforts to respond to the world’s health challenges.

Moving beyond the limits of established theories about demographic and epidemiologic transition, this book offers broad explorations of the social causes and consequences of health change. Consensus is reached on some matters, but critical debate and controversy predominate in others. The authors address several critical questions: What are the forms and structures of health transitions? Do these changes assume universally consistent patterns, or are health transitions particularistic, reflecting space, time, and community? What are the methodological issues in definition and measurement? And how can understanding improve health policy, interventions, and the research agenda?

Exploring new frontiers of a vital topic, Health and Social Change in International Perspective is an invaluable resource for social and health scientists working to understand world health change.

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Health and Society in Early Modern Sweden
Mari Eyice
Amsterdam University Press, 2024
The understanding of what health is and how it can be maintained has changed through history. Questions like who can perform healing? and what sort of bodies are considered healthy? have elicited widely divergent responses in different societies. This volume explores how health was understood and practiced in the early modern Nordic region, with a focus on Sweden, including Finland. The chapters examine topics such as the dyslexia of Charles XI, lay perceptions of bodily and mental variability, and the health benefits attributed to using the sauna. Together, the essays give a holistic view of how practices of health evolved in close symmetry with societal institutions and localised worldviews. As such, the volume is a timely intervention into the social history of medicine, contributing to the historicisation of health as a concept and shedding light on developments in the Nordic world.
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Health and the Rhetoric of Medicine
Judy Z. Segal
Southern Illinois University Press, 2005

Assessing rhetorical principles of contemporary health issues

Hypochondriacs are vulnerable to media hype, anorexics are susceptible to public scrutiny, and mi­graine sufferers are tainted with the history of the “migraine personality,” maintains rhetorical theorist Judy Z. Segal. All are influenced by the power of per­suasion.

Health and the Rhetoric of Medicine explores per­sistent health conditions that resist conventional medical solutions. Using a range of rhetorical prin­ciples, Segal analyzes how patients and their illnesses are formed within the physician/patient relationship. The intractable problem of a patient’s rejection of a doctor’s advice, says Segal, can be considered a rhe­torical failure—a failure of persuasion.

Examining the discourse of medicine through case studies, applications, and analyses, Segal illus­trates how illnesses are described in ways that limit

patients’ choices and satisfaction. She also illuminates psychiatric conditions, infectious diseases, genetic testing, and cosmetic surgeries through the lens of rhetorical theory.

Health and the Rhetoric of Medicine bridges criti­cal analysis for scholarly, professional, and lay audi­ences. Segal highlights the persuasive element in di­agnosis, health policy, illness experience, and illness narratives. She also addresses questions of direct-to-consumer advertising of prescription drugs, the role of health information in creating the “worried well” and problems of trust and expertise in physician/patient relationships. A useful resource for critical common sense in everyday life, the text provides an effective examination of a society increasingly influ­enced by the rhetoric of health and medicine.

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Health and Welfare during Industrialization
Edited by Richard H. Steckel and Roderick Floud
University of Chicago Press, 1997
In this unique anthology, Steckel and Floud coordinate ten essays that bring a new perspective to inquiry about standard of living in modern times. These papers are arranged for international comparison, and they individually examine evidence of health and welfare during and after industrialization in eight countries: the United States, Britain, Sweden, the Netherlands, France, Germany, Japan, and Australia.
The essays incorporate several indicators of quality of life, especially real per capita income and health, but also real wages, education, and inequality. And while the authors use traditional measures of health such as life expectancy and mortality rates, this volume stands alone in its extensive use of new "anthropometric" data—information about height, weight and body mass index that indicates changes in nations' well-being. Consequently, Health and Welfare during Industrialization signals a new direction in economic history, a broader and more thorough understanding of what constitutes standard of living.
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Health and Work Productivity
Making the Business Case for Quality Health Care
Edited by Ronald C. Kessler and Paul E. Stang
University of Chicago Press, 2006
A recent study of productivity in the workplace revealed that workers spend on average eight percent of their workday doing nothing. This statistic takes on greater significance when we find that health problems impact employee productivity loss by an even greater percentage. In light of this discovery, a group of leading experts from the emerging field of health and productivity research argues that the expansion of health care benefits represents a substantial investment opportunity for employers.
 
Health and Work Productivity presents state-of-the-art health and productivity research that suggests interventions aimed at prevention, early detection, and best-practice treatment of workers along with an informed allocation strategy can produce significant cost-benefits for employers. Contributors cover all the major aspects of this new area of research: approaches to studying the effects of health on productivity, ways for employers to estimate the costs of productivity loss, concrete suggestions for future research developments in the area, and the implications of this research for public policy.
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Health, Culture, and Community
Benjamin D. Paul
Russell Sage Foundation, 1955
This casebook documents public reactions to health programs and health situations in sixteen widely differing communities of the world. Some of the studies record successes, others failures. Of interest to anyone concerned with preventive medicine, public health, community betterment, or cultural problems involving peoples of different backgrounds and beliefs.
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Health, Disease, and Illness
Concepts in Medicine
Arthur L. Caplan, James J. McCartney, and Dominic A. Sisti, Editors
Georgetown University Press, 2004

In the 1850s, "Drapetomania" was the medical term for a disease found among black slaves in the United States. The main symptom was a strange desire to run away from their masters. In earlier centuries gout was understood as a metabolic disease of the affluent, so much so that it became a badge of uppercrust honor—and a medical excuse to avoid hard work. Today, is there such a thing as mental illness, or is mental illness just a myth? Is Alzheimer's really a disease? What is menopause—a biological or a social construction?

Historically one can see that health, disease, and illness are concepts that have been ever fluid. Modern science, sociology, philosophy, even society—among other factors—constantly have these issues under microscopes, learning more, defining and redefining ever more exactly. Yet often that scrutiny, instead of leading toward hard answers, only leads to more questions. Health, Disease, and Illness brings together a sterling list of classic and contemporary thinkers to examine the history, state, and future of ever-changing "concepts" in medicine.

Divided into four parts—Historical Discussions; Characterizing Health, Disease, and Illness; Clinical Applications of Health and Disease; and Normalcy, Genetic Disease, and Enhancement: The Future of the Concepts of Health and Disease—the reader can see the evolutionary arc of medical concepts from the Greek physician Galen of Pergamum (ca. 150 ce) who proposed that "the best doctor is also a philosopher," to contemporary discussions of the genome and morality. The editors have recognized a crucial need for a deeper integration of medicine and philosophy with each other, particularly in an age of dynamically changing medical science—and what it means, medically, philosophically, to be human.

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Health in a Fragile State
Science, Sorcery, and Spirit in the Lower Congo
John M. Janzen
University of Wisconsin Press, 2019
Based on extensive field research in the Manianga region of the Lower Congo, Health in a Fragile State is an anthropological account of public health and health care after the collapse of the Congolese state in the 1980s and 1990s. This work brings into focus John M. Janzen's earlier books on African health and healing, revealing the collaborative effort by local, national, and international agencies to create viable alternative institutions to those that represented the centralized state. This book documents and analyzes the realignment of existing institutions and the creation of new ones that shape health and healing.
Janzen explores the manner in which power and information, including science, are legitimized in the preservation and improvement of health. Institutional validity and knowledge empower citizens and health practitioners to gain the upper hand over the region's principal diseases, including malaria, tuberculosis, typhoid, and HIV/AIDS.
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Health in Ruins
The Capitalist Destruction of Medical Care at a Colombian Maternity Hospital
César Ernesto Abadía-Barrero
Duke University Press, 2022
In Health in Ruins César Ernesto Abadía-Barrero chronicles the story of El Materno—Colombia’s oldest maternity and neonatal health center and teaching hospital—over several decades as it faced constant threats of government shutdown. Using team-based and collaborative ethnography to analyze the social life of neoliberal health policy, Abadía-Barrero details the everyday dynamics around teaching, learning, and working in health care before, during, and after privatization. He argues that health care privatization is not only about defunding public hospitals; it also ruins rich traditions of medical care by denying or destroying ways of practicing medicine that challenge Western medicine. Despite radical cuts in funding and a corrupt and malfunctioning privatized system, El Materno’s professors, staff, and students continued to find ways to provide innovative, high-quality, and noncommodified health care. By tracking the violences, conflicts, hopes, and uncertainties that characterized the struggles to keep El Materno open, Abadía-Barrero demonstrates that any study of medical care needs to be embedded in larger political histories.
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The Health of the Commonwealth
A Brief History of Medicine, Public Health, and Disease in Pennsylvania
James E. Higgins
Temple University Press, 2020

“The history of medicine in Pennsylvania is no less vital to understanding the state’s past than is its political or industrial history,” writes James Higgins in The Health of the Commonwealth, his overview of medicine and public health in the state. Covering the outbreak of yellow fever in 1793 through the 1976 Legionnaire’s Disease epidemic, and the challenges of the present day, he shows how Pennsylvania has played a central role in humanity’s understanding of—and progress against—disease.

Higgins provides close readings of specific medical advances—for instance, scientists at the University of Pittsburgh discovered the polio vaccine—and of disease outbreaks, like AIDS. He examines sanitation and water purification efforts, allopathic medicine and alternative therapies, and the building of the state’s tuberculosis sanitaria. Higgins also describes Native American and pre-modern European folk medicine, the rise of public health in the state, and women’s roles in both folk and scientific medicine. 

The Health of the Commonwealth places Pennsylvania’s unique contribution to the history of public health and medicine in a larger narrative of health and disease throughout the United States and the world.

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The Health Of The Republic
Epidemics, Medicine, and Moralism as Challenges to Democracy
Dan Beauchamp
Temple University Press, 1990

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Hearing Beethoven
A Story of Musical Loss and Discovery
Robin Wallace
University of Chicago Press, 2018
Wallace demystifies the narratives of Beethoven’s approach to his hearing loss and instead explores how Beethoven did not "conquer" his deafness; he adapted to life with it.

We’re all familiar with the image of a fierce and scowling Beethoven, struggling doggedly to overcome his rapidly progressing deafness. That Beethoven continued to play and compose for more than a decade after he lost his hearing is often seen as an act of superhuman heroism. But the truth is that Beethoven’s response to his deafness was entirely human. And by demystifying what he did, we can learn a great deal about Beethoven’s music. Perhaps no one is better positioned to help us do so than Robin Wallace, who not only has dedicated his life to the music of Beethoven but also has close personal experience with deafness. One day, Wallace’s late wife, Barbara, found she couldn’t hear out of her right ear—the result of radiation administered to treat a brain tumor early in life. Three years later, she lost hearing in her left ear as well. Over the eight and a half years that remained of her life, despite receiving a cochlear implant, Barbara didn’t overcome her deafness or ever function again like a hearing person.

Wallace shows here that Beethoven didn’t do those things, either. Rather than heroically overcoming his deafness, Beethoven accomplished something even more challenging: he adapted to his hearing loss and changed the way he interacted with music, revealing important aspects of its very nature in the process. Wallace tells the story of Beethoven’s creative life, interweaving it with his and Barbara’s experience to reveal aspects that only living with deafness could open up. The resulting insights make Beethoven and his music more accessible and help us see how a disability can enhance human wholeness and flourishing.
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Home Bound
Growing Up With A Disability
Cass Irvin
Temple University Press, 2003
"When I was growing up, I learned that if you were a girl you went to school and college, then you married, became a wife and had a family. . . . When I became disabled, my journey, I was pretty sure, was not going to take me in those directions. What was I supposed to be? What kind of life was I supposed to have?"Once polio had made her a quadriplegic, Cass Irvin didn't know where she fit in or what would become of her. Neither did her parents, teachers, counselors, or rehabilitation therapists. And so began her search for a place to call home.In this memoir, Cass Irvin tells of the remarkable journey that transformed her from a young girl too timid to ask for help to a community activist and writer who speaks forcefully about the needs of people with disabilities. As a young girl she was taken to Warm Springs, Georgia, where she learned about living as a disabled person and found a hero in Franklin Delano Roosevelt, the famously if silently disabled president. Bright and inquisitive, Cass soon began to question the prevailing assumptions of a society that had no place for her and to question her own meekness.In time, her keen sense of injustice gave her the courage to fight for a college education. That personal victory emboldened her to find the means to live independently, but it also persuaded her that political work is the key to enabling all people with disabilities to live fulfilling lives. This book, then, is testimony to the importance of community building and organizing as well as the story of one woman's struggle for independence.
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Hospital Time
Amy Hoffman
Duke University Press, 1997
Hospital Time is a memoir about friendship, family, and caregiving in the age of AIDS. Amy Hoffman, a writer, lesbian activist, and former editor of Gay Community News, chronicles with fury and unflinching honesty her experience serving as primary caretaker for her friend and colleague, Mike Riegle, who died from AIDS-related complications in 1992. Hoffman neither idealizes nor deifies Riegle, whom she portrays as a brilliant man, devoted prison rights activist, and very difficult friend.
Hoffman became central to Riegle’s caregiving when he asked her to be his health-care proxy, and although she willingly chose to do this, she explores her conflicting feelings about herself in this role and about her involvement with Riegle and his grueling struggle with hospitalization, illness, and, finally, death. She tells of the waves of grief that echoed throughout her life, awakening memories of other losses, entering her dreams and fantasies, and altering her relationships with friends, family, and even total strangers.
Hoffman’s memoir gives voice to the psychological and emotional havoc AIDS creates for those in the difficult role of caring for the terminally ill and it gives recognition to the role that lesbians continue to play in the AIDS emergency. A foreword by Urvashi Vaid, former executive director of the National Gay and Lesbian Task Force, offers a meditation on the politics of AIDS and the role of family in the lives of lesbians and gay men.
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How I Became a Human Being
A Disabled Man’s Quest for Independence
Mark O’Brien, with Gillian Kendall
University of Wisconsin Press, 2003
In September 1955 six-year-old Mark O’Brien moved his arms and legs for the last time. He came out of a coma to find himself enclosed from the neck down in an iron lung, the machine in which he would live for much of the rest of his life.
    For the first time in paperback, How I Became a Human Being is O’Brien’s account of his struggles to lead an independent life despite a lifelong disability. In 1955 he contracted polio and became permanently paralyzed from the neck down. O’Brien describes growing up without the use of his limbs, his adolescence struggling with physical rehabilitation and suffering the bureaucracy of hospitals and institutions, and his adult life as an independent student and writer. Despite his physical limitations, O’Brien crafts a narrative that is as rich and vivid as the life he led.
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