At the edge of mortality there is a place where the seriously ill or dying wait—a place where they may often feel vulnerable or alone. For over forty years, bioethicist cum philosopher Richard Zaner has been at the side of many of those people offering his incalculable gift of listening, and helping to lighten their burdens—not only with his considerable skills, but with his humanity as well.

The narratives Richard Zaner shares in Conversations on the Edge are informed by his depth of knowledge in medicine and bioethics, but are never "clinical." A genuine and caring heart beats underneath his compassionate words. Zaner has written several books in which he tells poignant stories of patients and families he has encountered; there is no question that this is his finest.

In Conversations on the Edge, Zaner reveals an authentic empathy that never borders on the sentimental. Among others, he discusses Tom, a dialysis patient who finally reveals that his inability to work—encouraged by his overprotective mother—is the source of his hostility to treatment; Jim and Sue, young parents who must face the nightmare of letting go of their premature twins, one after the other; Mrs. Oland, whose family refuses to recognize her calm acceptance of her own death; and, in the final chapter, the author's mother, whose slow demise continues to haunt Zaner's professional and personal life.

These stories are filled with pain and joy, loneliness and hope. They are about life and death, about what happens in hospital rooms—and that place at the edge—when we confront mortality. It is the rarest of glimpses into the world of patients, their families, healers, and those who struggle, like Zaner, to understand.

Susan Sontag once described illness as “the night-side of life.” When we or our loved ones fall ill, our world is thrown into darkness and disarray, our routines are interrupted, our deepest beliefs shaken. The modern regime of hyper-logical biomedicine offers little solace when it comes to the effects of ill health on our inner lives. By exploring the role of desire in illness, Eros and Illness offers an alternative: an unconventional, deeply human exploration of what it means to live with, and live through, disease.

When we face down illness, something beyond biomedicine’s extremely valuable advances in treatment and prevention is sorely needed. Desire in its many guises plays a crucial part in illness, David Morris shows. Emotions, dreams, and stories—even romance and eroticism—shape our experiences as patients and as caregivers. Our perception of the world we enter through illness—including too often a world of pain—is shaped by desire.

Writing from his own heartbreaking experience as a caretaker for his wife, Morris relates how desire can worsen or, with care, mitigate the heavy weight of disease. He looks to myths, memoirs, paintings, performances, and narratives to understand how illness is intertwined with the things we value most dearly. Drawing on cultural resources from many centuries and media, Eros and Illness reaches out a hand to guide us through the long night of illness, showing us how to find productive desire where we expected only despair and defeat.

Most discussions of health care center on medical advances, cost, and the roles of insurers and government agencies. With The Grey Zone of Health and Illness, Alan Blum offers a new perspective, outlining a highly nuanced theoretical approach to health and health care alike. Drawing on a range of thinkers, Blum explains how our current understanding of health care tends to posit it as a sort of state of permanent emergency, like the nuclear standoff of the Cold War. To move beyond that, he argues, will require a complete rethinking of health and sickness, self-governance and negligence. A heady, cutting-edge intervention in a critical area of society, The Grey Zone of Health and Illness will have wide ramifications in the academy and beyond.

"Well written and fascinating to read. This fine book takes a large step in...contributing to the only slowly dawning awareness of the general public, and the health workers too, of the significance of chronic illness." --Anselm Strauss, University of California, San Francisco Based on in-depth interviews with eighty people who have epilepsy, this book gives a first-hand account of what it is like to cope with a chronic illness, while working, playing, and building relationships. The authors recount how people discover they have epilepsy and what it means; how families respond to someone labeled "epileptic"; how seizures affect a person's sense of self and self-control. Epilepsy patients explain what they want from their doctors and why the medication practices they develop may not coincide with "doctor's orders." The variety of experiences of epilepsy is suggested both by the interviews and by the range of terms for seizures--Petit Mal, Grand Mal, auras, fits, absences. The principal difficulty for many people with epilepsy is not the medical condition but the social stigma. A person with epilepsy has to cope with discrimination in obtaining a job, insurance, or a driver's license, and he or she may be cautious about revealing this "disabling" condition to an employer or even a spouse. People with epilepsy may manage information about themselves and their "lapses" and look for "safe places" like restrooms where they can be alone should a seizure begin. Many of those interviewed complained of overreactions to seizures by colleagues or bystanders: epilepsy patients were embarrassed at having provoked a public crisis or were annoyed at waking up in a hospital emergency room. This is a book for people who have epilepsy, for their families and friends; for health care professionals who deal with chronic illnesses; and for students of medical sociology and the sociology of deviance. "For anyone who would like to 'get inside' the experience of having epilepsy, this book is probably as close as one can come." --Epilepsia "In dispelling the notion that 'the person is the illness,' these interviews with 80 individuals reveal that those suffering from epilepsy have learned to accept it as merely another facet of their lives. A valuable contribution for those with epilepsy, for their family and friends, for medical personnel, and for the general public." --Booklist "...carefully outlined and clearly written.... Those affected by chronic conditions may find the book most helpful.... Family and helping professionals may discover new insights.... Social scientists, especially those interested in chronic illnesses, will benefit from the research conclusions and suggestions for further research." --Medical Anthropology Quarterly "It represents an important advance in the medical sociology literature as well as a contribution to qualitative sociology. I think that the book should become a contemporary classic in medical sociology." --Qualitative Sociology "...an important contribution.... In focusing on what it is like to have epilepsy in this society, Schneider and Conrad have reversed an earlier concern for the medicalization of deviance, opting in this work for an understanding of the stigmatization of illness." --Contemporary Sociology

In the 1850s, "Drapetomania" was the medical term for a disease found among black slaves in the United States. The main symptom was a strange desire to run away from their masters. In earlier centuries gout was understood as a metabolic disease of the affluent, so much so that it became a badge of uppercrust honor—and a medical excuse to avoid hard work. Today, is there such a thing as mental illness, or is mental illness just a myth? Is Alzheimer's really a disease? What is menopause—a biological or a social construction?

Historically one can see that health, disease, and illness are concepts that have been ever fluid. Modern science, sociology, philosophy, even society—among other factors—constantly have these issues under microscopes, learning more, defining and redefining ever more exactly. Yet often that scrutiny, instead of leading toward hard answers, only leads to more questions. Health, Disease, and Illness brings together a sterling list of classic and contemporary thinkers to examine the history, state, and future of ever-changing "concepts" in medicine.

Divided into four parts—Historical Discussions; Characterizing Health, Disease, and Illness; Clinical Applications of Health and Disease; and Normalcy, Genetic Disease, and Enhancement: The Future of the Concepts of Health and Disease—the reader can see the evolutionary arc of medical concepts from the Greek physician Galen of Pergamum (ca. 150 ce) who proposed that "the best doctor is also a philosopher," to contemporary discussions of the genome and morality. The editors have recognized a crucial need for a deeper integration of medicine and philosophy with each other, particularly in an age of dynamically changing medical science—and what it means, medically, philosophically, to be human.

The sixteenth-century encounter between Mesoamericans and Europeans resulted in a tremendous loss of life in indigenous communities and significantly impacted their health and healing strategies. Contributors to this special issue of Ethnohistory address how indigenous people experienced bodily health in the wake of this encounter. By exploring archival indigenous and Spanish-language documents, contributors address how bodily health was experienced in the wake of the European encounter and uncover transformations of health discourses and experiences of illness. They investigate eclectic healing practices and medical chants; changing notions of the causes of illnesses; and the language of cleansing ceremonies, bone-setting, midwifery, and maternal medicine.

Contributors. Sabina Cruz de la Cruz, Rebecca Dufendach, Servando Hinojosa, Timothy W. Knowlton, Gabrielle Vail, Edber Dzidz Yam

The pressures Asian Americans feel to be socially and economically exceptional include an unspoken mandate to always be healthy. Nowhere is this more evident than in the expectation for Asian Americans to enter the field of medicine, principally as providers of care rather than those who require care. Pedagogies of Woundedness explores what happens when those considered model minorities critically engage with illness and medicine whether as patients or physicians. 

James Kyung-Jin Lee considers how popular culture often positions Asian Americans as medical authorities and what that racial characterization means. Addressing the recent trend of writing about sickness, disability, and death, Lee shows how this investment in Asian American health via the model minority is itself a response to older racial forms that characterize Asian American bodies as diseased. Moreover, he pays attention to what happens when academics get sick and how illness becomes both methodology and an archive for scholars. 

Pedagogies of Woundedness also explores the limits of biomedical “care,” the rise of physician chaplaincy, and the impact of COVID. Throughout his book and these case studies, Lee shows the social, ethical, and political consequences of these common (mis)conceptions that often define Asian Americans in regard to health and illness.

In The Province of Affliction, Ben Mutschler explores the surprising roles that illness played in shaping the foundations of New England society and government from the late seventeenth century through the early nineteenth century. Considered healthier than people in many other regions of early America, and yet still riddled with disease, New Englanders grappled steadily with what could be expected of the sick and what allowances were made to them and their providers. Mutschler integrates the history of disease into the narrative of early American social and political development, illuminating the fragility of autonomy, individualism, and advancement . Each sickness in early New England created its own web of interdependent social relations that could both enable survival and set off a long bureaucratic struggle to determine responsibility for the misfortune. From families and households to townships, colonies, and states, illness both defined and strained the institutions of the day, bringing people together in the face of calamity, yet also driving them apart when the cost of persevering grew overwhelming. In the process, domestic turmoil circulated through the social and political world to permeate the very bedrock of early American civic life.

    This is a provocative look at writing by and about people with illness or disability—in particular HIV/AIDS, breast cancer, deafness, and paralysis—who challenge the stigmas attached to their conditions by telling their lives in their own ways and on their own terms. Discussing  memoirs, diaries, collaborative narratives, photo documentaries, essays, and other forms of life writing, G. Thomas Couser shows that these books are not primarily records of medical conditions; they are a means for individuals to recover their bodies (or those of loved ones) from marginalization and impersonal medical discourse.
    Responding to the recent growth of illness and disability narratives in the United States—such works as Juliet Wittman’s Breast Cancer Journal, John Hockenberry’s Moving Violations, Paul Monette’s Borrowed Time: An AIDS Memoir, and Lou Ann Walker’s A Loss for Words: The Story of Deafness in a Family—Couser addresses questions of both poetics and politics. He examines why and under what circumstances individuals choose to write about illness or disability; what role plot plays in such narratives; how and whether closure is achieved; who assumes the prerogative of narration; which conditions are most often represented; and which literary conventions lend themselves to representing particular conditions. By tracing the development of new subgenres of personal narrative in our time, this book explores how explicit consideration of illness and disability has enriched the repertoire of life writing. In addition, Couser’s discussion of medical discourse joins the current debate about whether the biomedical model is entirely conducive to humane care for ill and disabled people.
    With its sympathetic critique of the testimony of those most affected by these conditions, Recovering Bodies contributes to an understanding of the relations among bodily dysfunction, cultural conventions, and identity in contemporary America.

Wisdom Won from Illness brings into conversation two fields of humane inquiry—psychoanalysis and moral philosophy—that seem to have little to say to each other but which, taken together, form a basis for engaged ethical thought about how to live.

Jonathan Lear begins by looking to the ancient Greek philosophers for insight into what constitutes the life well lived. Socrates said the human psyche should be ruled by reason, and much philosophy as well as psychology hangs on what he meant. For Aristotle, reason organized and presided over the harmonious soul; a wise person is someone capable of a full, happy, and healthy existence. Freud, plumbing the depths of unconscious desires and pre-linguistic thoughts, revealed just how unharmonious the psyche could be. Attuned to the stresses of modern existence, he investigated the myriad ways people fall ill and fail to thrive. Yet he inherited from Plato and Aristotle a key insight: that the irrational part of the soul is not simply opposed to reason. It is a different manner of thinking: a creative intelligence that distorts what it seeks to understand.

Can reason absorb the psyche’s nonrational elements into a whole conception of the flourishing, fully realized human being? Without a good answer to that question, Lear says, philosophy is cut from its moorings in human life. Wisdom Won from Illness illuminates the role of literature in shaping ethical thought about nonrational aspects of the mind, offering rich readings of Shakespeare, Kierkegaard, J. M. Coetzee, Marilynne Robinson, and others.