This literally "refreshing" collection is based on the notion that the future of bioethics is inseparable from its past. Seminal works provide a unique and relatively unexplored vehicle for investigating not only where bioethics began, but where it may be going as well. In this volume, a number of the pioneers in bioethics—Tom Beauchamp, Lisa Sowle Cahill, James Childress, Charles E. Curran, Patricia King, H. Tristram Engelhardt, William F. May, Edmund D. Pellegrino, Warren Reich, Robert Veatch and LeRoy Walters—reflect on their early work and how they fit into the past and future of bioethics. Coming from many disciplines, generations, and perspectives, these trailblazing authors provide a broad overview of the history and current state of the field. Invaluable to anyone with a serious interest in the development and future of bioethics, at a time when new paths into medical questions are made almost daily, The Story of Bioethics is a Baedeker beyond compare.
Gabriel Farrell tells the story of blindness historically and from a social point of view. He describes the achievements of sightless persons, and he emphasizes the responsibility of society toward the blind. Blindness may befall anyone, through accident at any age or through the normal degeneration of sight in old age. Farrell stresses the economic provision that must be made for the blind and he tells how the blind have been helped to overcome their deficiencies in various ways.
The author offers a comprehensive record of the work for the blind, including the deaf-blind, through the centuries, and in many countries. He approaches his subject both analytically and historically. Many interesting points are raised for their connection with the subject—such as the fact that the typewriter was invented as the result of searching for a writing machine for the blind. Of course the full story of braille is covered, as are many other educational matters that have been prepared and developed for use by the blind.
What do we mean when we refer to our “identity,” and how do we represent it in the stories we tell about our lives? Is “identity” a sustained private core, or does it change as circumstances and relationships shift? In this thoughtful and learned book, a recognized master of research interviewing explores these questions through analyses of in-depth interviews with five craftartists, who reflect on their lives and their efforts to sustain their form of work as committed artists in a world of mass production and standardization.
The artists describe their families of origin and the families they have created, and the conscious decisions, chance events, and life experiences that entered into the ways they achieved their adult artistic identities. Exploring these continuities, discontinuities, and unresolvable tensions in an analysis that brings new sophistication to a much-used term, Elliot Mishler suggests that “identity” is always dialogic and relational, a complex of partial subidentities rather than a unitary monad. More a verb than a noun, it reflects an individual’s modes of adaptation, appropriation, and resistance to sociocultural plots and roles.
With its critical review of narrative research methods, model of analysis for the systematic study of life stories and identity, and vision of how narrative studies may contribute to theory and research in the social sciences, Storylines is an eloquent and important book for narrative psychology and lifespan development.
Stuttering in Children and Adults was first published in 1955. Minnesota Archive Editions uses digital technology to make long-unavailable books once again accessible, and are published unaltered from the original University of Minnesota Press editions.
One of the largest groups of handicapped people in the world today is made up of the estimated fifteen million persons who stutter. Their predicament has been one of man's most baffling problems ever since it was first recorded by the ancients, but not until the present century has the mystery of stuttering showed any signs of lifting.
The studies collected in this volume represent a substantial step toward the solving of the mystery. The University of Iowa, a pioneer in research on the causes and treatment of stuttering, has carried on its work for many years. This book presents all previously unpublished papers and dissertations (a total of forty-three) that have resulted from this research program.
Much of the work centers on the onset of stuttering in children and underlies the theory that stuttering begins with the hearer rather than the speaker. Interrelationships between personality and stuttering have been investigated, a search has been made for a possible physical basis for stuttering, conditions affecting severity of stuttering have been studied, and research on therapy has been attempted.
This is an important book for psychologists, educators, social workers, physicians, parents, and others concerned with speech disorders. For those who devote their full effort to the problems discussed—the specialists in speech pathology and therapy—the book is essential.
The history of medicine is much more than the story of doctors, nurses, and hospitals. Seeking to understand the patient’s perspective, historians scour the archives, searching for rare personal accounts. Bringing together a trove of more than 400 family letters by Charles Dwight Willard, Suffering in the Land of Sunshine provides a unique window into the experience of sickness.
A Los Angeles civic leader at the turn of the twentieth century, Willard is well known to historians of the West, but exclusively for his public life as a booster and reformer. Willard’s evocative story offers fresh insights into several critical issues, including how concepts of gender, class, and race shape patients’ representations of their illness, how expectations of cure affect the illness experience, how different cultures constrain the coping strategies of the sick, and why robust health is such an exalted value in certain societies.
Antibiotics are powerful drugs that can prevent and treat infections, but they are becoming less effective as a result of drug resistance. Resistance develops because the bacteria that antibiotics target can evolve ways to defend themselves against these drugs. When antibiotics fail, there is very little else to prevent an infection from spreading.
Unnecessary use of antibiotics in both humans and animals accelerates the evolution of drug-resistant bacteria, with potentially catastrophic personal and global consequences. Our best defenses against infectious disease could cease to work, surgical procedures would become deadly, and we might return to a world where even small cuts are life-threatening. The problem of drug resistance already kills over one million people across the world every year and has huge economic costs. Without action, this problem will become significantly worse.
Following from their work on the Review on Antimicrobial Resistance, William Hall, Anthony McDonnell, and Jim O’Neill outline the major systematic failures that have led to this growing crisis. They also provide a set of solutions to tackle these global issues that governments, industry, and public health specialists can adopt. In addition to personal behavioral modifications, such as better handwashing regimens, Superbugs argues for mounting an offense against this threat through agricultural policy changes, an industrial research stimulus, and other broad-scale economic and social incentives.
Theobald Smith (1859–1934) is widely considered to be America’s first significant medical scientist and the world’s leading comparative pathologist. Entering the new field of infectious diseases as a young medical graduate, his research in bacteriology, immunology, and parasitology produced many important and basic discoveries. His most significant accomplishment was proving for the first time that an infectious disease could be transmitted by an arthropod agent. He also made significant discoveries on anaphylaxis, vaccine production, bacterial variation, and a host of other methods and diseases. His work on hog cholera led to the selection of the paratyphoid species causing enteric fever as the prototype of the eponymous Salmonella genus, mistakenly named for his chief at the U.S. Department of Agriculture, Daniel Salmon, who first reported the discovery in 1886, although the work was undertaken by Smith alone.
In 1895, Smith began a twenty-year career as teacher and researcher at the Harvard Medical School and director of the biological laboratory at the Massachusetts State Board of Health. In 1902, when the Rockefeller Institute for Medical Research was founded, he was offered but declined its directorship; however, in 1914, when the Institute established a division of animal pathology, he became director of its research division. Suppressing the Diseases of Animals and Man, the first book-length biography of Smith to appear in print, is based primarily on personal papers and correspondence that have remained in the possession of his family until now.
Surgical Anatomy of the Head and Neck was immediately hailed as indispensable when it was first published in 2001. In demand ever since, this classic surgical atlas—packed with more than 700 exceptional drawings, 537 of them in full color, by an internationally noted medical illustrator—is now available again, with an extensive new index, after years of being out of print.
Here is a surgeon’s-eye view of all anatomic details, from the upper thorax to the crown. Ideal for both surgery and test preparation, this volume features special boxed sections that focus on the surgical significance of each anatomical structure. Every illustration is clearly labeled with key anatomic landmarks, and a user-friendly design allows quick reference. This volume is an invaluable resource for surgeons, residents, and medical students.
With the rate of cochlear implantation reaching 80% to 90% of all deaf children, some as young as five months old, Surgical Consent: Bioethics and Cochlear Implantation arrives at a critical juncture. This comprehensive collection features essays by Priscilla Alderson, Inger Lise Skog Hansen, Hilde Haualand, volume editor Linda Komesaroff, Paddy Ladd, Harlan Lane, Karen Lloyd, Eithne Mills, Paal Richard Peterson, Gunilla Preisler, Kristina Svartholm, and Michael Uniacke. These worldwide renowned ethicists, educators, and Deaf leaders express their diverse perspectives on the bioethics of childhood cochlear implantation according to their discipline and a number of themes of inquiry: human rights, medical and social ethics, psychology, education, globalization, identity, life pathways, democracy, media, law, and biotechnology.
Drawing on current research, this volume presents the varying reactions around the globe to the high rate of implantation. These views contrast sharply with the medical perspective of deafness overwhelmingly promoted through the media and by the cochlear implantation industry. At the same time, the contributors aim to disrupt the binaries that have long dominated the field of deafness — speech versus sign, instruction through speech and sign systems versus bilingual education, and medical intervention versus cultural membership in the Deaf community.
Surgical Consent begins and ends with the voices of Deaf people. Their articulate and, at times, raw insights clearly delineate the issues of power, positioning, and minority-majority group relations that are inherent in the dominant hearing culture’s understanding of diversity and globalization.
Developments in new reproductive technologies have confounded public policy and created legal and ethical quandaries for professionals and ordinary citizens alike. Drawing from the most current medical, psychiatric, legal, and bioethical literature, Ruth Macklin, noted author and philosopher, presents the arguments surrounding these advances through the voices of fictional characters. The episodes she narrates are based on real-life situations, both from her personal experience as a hospital ethicist and from the public arena, where such controversial court cases as that of Baby M have sparked a multitude of disparate opinions on surrogacy, in vitro fertilization, and egg and sperm donor program.
Macklin's hypoethical tale centers on Bonnie and Larry, an infertile couple longing for a child. As the couple's quest to become parents begins, they discover that Bonnie is physically incapable of carrying a pregnancy to term. Desperate to explore their options, Bonnie and Larry attempt adoption but are rejected by the agency without explanation. Finally, they contemplate surrogacy as their last chance to have a child. Seeking advice and answers, they consult health professionals, lawyers, pastoral counselors, and a bioethicist. In the course of this complicated and often painful decision-making process, they attend meetings of a government task force on reproduction where they hear both radical and liberal feminist positions.
Their experiences with friends, family members, two surrogates, hospital ethics committees, and special interest groups underscore the difficulty of coming to a consensus on such issues as AIDS, the right to privacy, premenstrual syndrome, the violation of surrogate contracts, and the responsibilities of therapists and physicians to their patients and to the community at large.
Betty Berzon, renowned psychotherapist and author of the bestselling book Permanent Partners, tells her own incredible story here. Berzon’s journey from psychiatric patient on suicide watch—her wrists tethered to the bed rails in a locked hospital ward—to her present role as a groundbreaking therapist and gay pioneer makes for purely compelling reading.
Berzon is recognized today as a trailblazing co-founder of a number of important lesbian and gay organizations and one of the first therapists to focus on means of developing healthy gay relationships and overcoming homophobia. Her sometimes bumpy road to success never fails to fascinate. Along the way she encounters such luminaries as Anaïs Nin, Eleanor Roosevelt, the Sitwells, Evelyn Hooker, and Paul Monette. Her recollections here provide a collective portrait of her fellow pioneers and a stirring lesson in twentieth-century history.
It is, however, the intimate story of Berzon’s own private passage toward self-discovery—from mental breakdown and suicide attempts, through hospitalization, eventual triumphant recovery, and her own coming out as an open lesbian at the age of forty—that makes this memoir an urgent, insightful, and deeply emotional testament to human survival.
Complementary and alternative healing encompass a wide range of practices that share a common ground: the belief that our physical well-being is inextricably linked to an unseen world beyond our physical senses. Our view of that world can be traced to two key thinkers: Emanuel Swedenborg and Franz Anton Mesmer.
Who were these men, and what shaped their thought? How did their ideas capture the public imagination? How did they speak to movements as diverse as utopianism, Spiritualism, psychic healing, and homeopathy? Historian John S. Haller traces the threads of Swedenborg’s and Mesmer’s influence through the history of nineteenth-century medicine, illuminating the lasting impact these men have had on concepts of alternative healing.
A bold new indictment of the racialization of science
Decades of data cannot be ignored: African American adults are far more likely to develop Type 2 diabetes than white adults. But has science gone so far in racializing diabetes as to undermine the search for solutions? In a rousing indictment of the idea that notions of biological race should drive scientific inquiry, Sweetness in the Blood provides an ethnographic picture of biotechnology’s framings of Type 2 diabetes risk and race and, importantly, offers a critical examination of the assumptions behind the recruitment of African American and African-descent populations for Type 2 diabetes research.
James Doucet-Battle begins with a historical overview of how diabetes has been researched and framed racially over the past century, chronicling one company’s efforts to recruit African Americans to test their new diabetes risk-score algorithm with the aim of increasing the clinical and market value of the firm’s technology. He considers African American reticence about participation in biomedical research and examines race and health disparities in light of advances in genomic sequencing technology. Doucet-Battle concludes by emphasizing that genomic research into sub-Saharan ancestry in fact underlines the importance of analyzing gender before attempting to understand the notion of race. No disease reveals this more than Type 2 diabetes.
Sweetness in the Blood challenges the notion that the best approach to understanding, managing, and curing Type 2 diabetes is through the lens of race. It also transforms how we think about sugar, filling a neglected gap between the sugar- and molasses-sweetened past of the enslaved African laborer and the high-fructose corn syrup- and corporate-fed body of the contemporary consumer-laborer.
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