Engaging in sex, becoming parents, raising children: these are among the most personal decisions we make, and for people with mental retardation, these decisions are consistently challenged, regulated, and outlawed. This book is a comprehensive study of the American legal doctrines and social policies, past and present, that have governed procreation and parenting by persons with mental retardation. It argues persuasively that people with retardation should have legal authority to make their own decisions.

Despite the progress of the normalization movement, which has moved so many people with mental retardation into the mainstream since the 1960s, negative myths about reproduction and child rearing among this population persist. Martha Field and Valerie Sanchez trace these prejudices to the eugenics movement of the late nineteenth and early twentieth centuries. They show how misperceptions have led to inconsistent and discriminatory outcomes when third parties seek to make birth control or parenting decisions for people with mental retardation. They also explore the effect of these decisions on those they purport to protect. Detailed, thorough, and just, their book is a sustained argument for reform of the legal practices and social policies it describes.

The economic cost of retardation measures in the billions each year and the human cost is incalculable. However, many forms of retardation can now be prevented medically and much is now known about how to help the retarded lead more normal and satisfactory lives. In Mental Retardation, Dr. Robert Edgerton provides an extraordinarily useful and humane guide to this new knowledge in the brief and readable format that has become a trademark of the Developing Child series.

The book begins with a clear review of what is known about the causes of retardation, ranging from genetic abnormalities to prenatal infection, malnutrition in early childhood, environmental toxins (such as lead paint), and poverty. Edgerton shows how many of these problems can be avoided by genetic counseling, improved prenatal care, and the elimination of environmental hazards. But he also goes on to consider the questions that inevitably arise when prevention fails and family and society must cope with a retarded child: What is the impact of the child on the family? Is care within the family preferable to institutionalization? How can schools best educate the retarded? Is "mainstreaming" sensible? And how far can the retarded adult go towards normal patterns of work and social life within the community?

Mental Retardation makes it clear that many of the problems of retardation are caused by the misunderstanding and intolerance of a society like our own, which places extraordinary emphasis on mental ability and its measurable manifestations: school achievement and IQ. It is just this sort of intolerance and misunderstanding that this book does so much to dispel.

Twenty-Two Years presents the results of a unique longitudinal study of the first 22 years in the lives of more than 200 young people with varying degrees of mental retardation. By following their paths through available services, job histories, leisure activities, friendships, and marriages, the authors provide objective information about the quality of life of young people with mental retardation.

The book makes a unique contribution by determining what factors in childhood predict who will and who will not require mental retardation services and, for those who disappear from services, why some fare better than others. Most important, the results help answer a question that haunts parents: "What will happen when my child grows up?"

This study expands on an internationally acclaimed clinical and epidemiological study of children with mental retardation published in 1970. It provides prevalence rates by severity of mental retardation, gender, social class, and family stability, and shows how these change over time.

The authors confirm the central role of biomedical factors in the etiology of severe mental retardation. For the etiology of mild mental retardation, the book examines the relative contributions of biomedical and intergenerational genetic factors as well as psychosocial adversity. The book should be of interest to a broad range of clinicians, researchers, and students, as well as the families of people with mental retardation, and it will serve as a model for future epidemiological and follow-up research.