BiblioVault - Books about Nervous System (incl. Brain)

Alive with Alzheimer's

Cathy Stein Greenblat

University of Chicago Press, 2004

The confusion, losses, and devastation of Alzheimer's disease are familiar to the millions of Americans suffering from the disease and to their family members. Understandably, declining abilities and changing personal characteristics shape our picture of the disease, leading some to refer to the "double death" of Alzheimer's in which the sufferer drifts away long before his or her eventual physical end.

This small, tender volume of 85 photographs and accompanying discussion powerfully shows the limitations of this view. Cathy Stein Greenblat, an internationally respected sociologist and photographer, demonstrates in Alive with Alzheimer's that, while the ravages of the disease are real, Alzheimer's sufferers can do more than survive, they can thrive. Her images, interviews, and observations attest to the possibility of their being "alive" with Alzheimer's far beyond the expectations of the general public and even of many physicians with long experience with the disease.

Greenblat offers a new vision, taking us into a world of life-enhancing institutional care. Nursing homes and similar facilities don't have to be a last resort; as Greenblat shows, with a dedicated and experienced staff and an enriched environment (that includes respect, choices, pets, and music), extraordinary changes can be effected in Alzheimer's patients. Alive with Alzheimer's, the first photographic book on the disease, offers hope and inspiration. Moreover, its vivid, impressive evidence that ongoing stimulation in a good institutional setting can sustain Alzheimer's patients at a far higher level than is generally believed has significant implications for personal and policy decisions.

The new standard of care chronicled in Alive with Alzheimer's will provide hope and inspiration to those touched by the disease. As Dr. Enid Rockwell writes in her Afterword to Greenblat's moving book, "These photographs are extraordinary for practitioners, for family members, for everyone to see what's going on with these people. The stimulation pictured in this book is more powerful than any medication that we will have in our lifetime. . . . They so vividly show us that there are people inside these bodies, people with personalities, who experience emotion, and they show that there is life after Alzheimer's."

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Hijacked Brains

The Experience and Science of Chronic Addiction

Henrietta Robin Barnes

Dartmouth College Press, 2015

This book, written from the perspective of a practicing primary care physician, interweaves patients’ stories with fascinating new brain research to show how addictive drugs overtake basic brain functions and transform them to create a chronic illness that is very difficult to treat. The idea that drug and alcohol addiction are chronic illnesses and not character flaws is not news—this notion has been around for many years. What Hijacked Brains offers is context and personal stories that demonstrate this point in a very accessible package. Dr. Barnes explores how the healthy brain works, how addictive drugs flood basic reward pathways, and what it feels like to grapple with addiction. She discusses how, for individuals, the combination of genetic and environmental factors determines both vulnerability for addiction and the resilience necessary for recovery. Finally, she shows how American culture, with its emphasis on freewill and individualism, tends to blame the addict for bad choices and personal weakness, thereby impeding political and/or health-related efforts to get the addict what she needs to recover.

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The Ice Bucket Challenge

Pete Frates and the Fight against ALS

Casey Sherman and Dave Wedge

University Press of New England, 2017

While everyone knows of the Ice Bucket Challenge, the viral craze that swept the nation in summer 2014, too few know the truly inspirational story behind it. Pete Frates was a man at war with his own body. A man whose love for others was unshakable. A man who refused to fight alone, and in so doing mobilized a global army to combat one of the most devastating diseases on earth: ALS, or Lou Gehrig’s disease. When disease crippled Frates, the former Boston College baseball star turned tragedy into inspiration. Pete’s story is a testament to the power of love, the steadfastness of family, the generosity of strangers, and the compassion of crowds. Half of the authors’ proceeds will go to the Frates family.

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Mary Lincoln's Insanity Case

A Documentary History

Jason Emerson

University of Illinois Press, 2012

In 1875 Mary Lincoln, the widow of a revered president, was committed to an insane asylum by her son, Robert. The trial that preceded her internment was a subject of keen national interest. The focus of public attention since Abraham Lincoln's election in 1860, Mary Lincoln had attracted plentiful criticism and visible scorn from much of the public, who perceived her as spoiled, a spendthrift, and even too much of a Southern sympathizer. Widespread scrutiny only increased following her husband's assassination in 1865 and her son Tad's death six years later, after which her overwhelming grief led to the increasingly erratic behavior that led to her being committed to a sanitarium. A second trial a year later resulted in her release, but the stigma of insanity stuck. In the years since, questions emerged with new force, as the populace and historians debated whether she had been truly insane and subsequently cured, or if she was the victim of family maneuvering.

In this volume, noted Lincoln scholar Jason Emerson provides a documentary history of Mary Lincoln's mental illness and insanity case, evenhandedly presenting every possible primary source on the subject to enable a clearer view of the facts. Beginning with documents from the immediate aftermath of her husband's assassination and ending with reminiscences by friends and family in the mid-twentieth century, Mary Lincoln's Insanity Case: A Documentary History compiles more than one hundred letters, dozens of newspaper articles, editorials, and legal documents, and the daily patient progress reports from Bellevue Place Sanitarium during Mary Lincoln's incarceration. Including many materials that have never been previously published, Emerson also collects multiple reminiscences, interviews, and diaries of people who knew Mary Lincoln or were involved in the case, including the first-hand recollection of one of the jurors in the 1875 insanity trial.

Suggesting neither accusation nor exoneration of the embattled First Lady, Mary Lincoln's Insanity Case: A Documentary History gives scholars and history enthusiasts incomparable access to the documents and information crucial to understanding this vexing chapter in American history.

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The Memory Sessions

Suzanne Farrell Smith

Bucknell University Press, 2019

Suzanne Farrell Smith’s father was killed by a drunk driver when she was six, and a devastating fire nearly destroyed her house when she was eight. She remembers those two—and only those two—events from her first nearly twelve years of life. While her three older sisters hold on to rich and rewarding memories of their father, Smith recalls nothing of him. Her entire childhood was, seemingly, erased. In The Memory Sessions, Smith attempts to excavate lost childhood memories. She puts herself through multiple therapies and exercises, including psychotherapy, hypnotherapy, somatic experiencing, and acupuncture. She digs for clues in her mother’s long-stored boxes. She creates—with objects, photographs, and captions—a physical timeline to compensate for the one that’s missing in her memory. She travels to San Diego, where her family vacationed with her father right before he died. She researches, interviews, and meditates, all while facing down the two traumatic memories that defined her early life. The result is an experimental memoir that upends our understanding of the genre. Rather than recount a childhood, The Memory Sessions attempts to create one from research, archives, imagination, and the memories of others.

Published by Bucknell University Press. Distributed worldwide by Rutgers University Press.

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Periphery

How Your Nervous System Predicts and Protects against Disease

Moses V. Chao

Harvard University Press, 2023

A leading neuroscientist argues that the peripheral nervous system, long understood to play a key role in regulating basic bodily functions, also signals the onset of illness.

The central nervous system, consisting of the brain and the spinal cord, has long been considered the command center of the body. Yet outside the central nervous system, an elaborate network of nerve cells and fibers extends throughout our bodies, transmitting messages between the brain and other organs. The peripheral nervous system, as it’s known, regulates such vital functions as heart rate, digestion, and perspiration and enables us to experience the barrage of sounds, tastes, smells, and other sensory information that surrounds us. But beyond these crucial roles, the peripheral nervous system might do even more: it might warn us of diseases in our future.

As Moses Chao argues in Periphery, from Parkinson’s disease to autism to dementia, many neurological conditions emerge not in the brain but rather within the peripheral nervous system, in the dense network of nerves that wrap around the gastrointestinal tract. What’s more, dysfunctions of the peripheral nervous system can signal the onset of disease decades before symptoms like tremor or memory loss occur. Fortunately, unlike nerves in the brain and spinal cord, peripheral nerves can heal and regenerate in response to injury and aging. The therapeutic implications are remarkable. Chao shows how, with a better understanding of the peripheral nervous system, we could not only predict and treat neurological diseases long before their onset, but possibly prevent them altogether.

Full of new ideas and bold interpretations of the latest data, Periphery opens exciting avenues for medical research while deepening our understanding of a crucial yet underappreciated biological system.

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Shaken Brain

The Science, Care, and Treatment of Concussion

Elizabeth Sandel, MD

Harvard University Press, 2020

A physician with thirty-five years of experience treating people with brain injuries shares the latest research on concussions and best practices for care.

The explosion of attention to sports concussions has many of us thinking about the addled brains of our football and hockey heroes. But concussions happen to everyone, not just elite athletes. Children fall from high chairs, drivers and cyclists get into accidents, and workers encounter unexpected obstacles on the job. Concussions are prevalent, occurring even during everyday activities. In fact, in less time than it takes to read this sentence, three Americans will experience a concussion. The global statistics are no less staggering.

Shaken Brain offers expert advice and urgently needed answers. Elizabeth Sandel, MD, is a board-certified physician who has spent more than three decades treating patients with traumatic brain injuries, training clinicians, and conducting research. Here she explains the scientific evidence for what happens to the brain and body after a concussion. And she shares stories from a diverse group of patients, educating readers on prevention, diagnosis, and treatment. Few people understand that what they do in the aftermath of their injury will make a dramatic difference to their future well-being; patient experiences testify to the best practices for concussion sufferers and their caregivers. Dr. Sandel also shows how to evaluate risks before participating in activities and how to use proven safety strategies to mitigate these risks.

Today concussions aren’t just injuries—they’re big news. And, like anything in the news, they’re the subject of much misinformation. Shaken Brain is the resource patients and their families, friends, and caregivers need to understand how concussions occur, what to expect from healthcare providers, and what the long-term consequences may be.

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Unmentionable Madness

Gender, Disability, and Shame in the Malaria Treatment of Neurosyphilis

Christin L. Hancock

University of Illinois Press, 2025

In 1930, neurosyphilis struck an unsuspecting Mabel Smith. Doctors at the Central State Hospital for the Insane in Indianapolis turned to malaria therapy--a radical treatment that relied on the belief that infection with malaria might save Smith’s life by attacking the bacterium that causes syphilis.

Christin L. Hancock looks through the lens of feminist disability to examine the popular but ethically suspect treatment and its consequences. As Hancock shows, the treatment’s purported success rate relied on the disabled minds and bodies of people incarcerated in mental hospitals. The backgrounds and identities of these patients reflected and perpetuated attitudes around poverty, gender, race, and disability while betraying authorities’ desire to protect the public from women and men perceived as abnormal, sexually tainted, and unworthy of community life.

Paying special attention to the patients’ voices and experiences, Unmentionable Madness offers a disability history that confronts the ethics of experimentation.

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