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The Body Alone
A Lyrical Articulation of Chronic Pain
Nina Lohman
University of Iowa Press, 2024
The Body Alone is an inquiry into the experience, meaning, and articulation of pain. It is a personal hybrid account incorporating research, scholarship, and memoir to examine chronic pain through the multi-lens of medicine, theology, and philosophy. Broken bodies tell broken stories. Nina Lohman’s pain experience is portrayed through a cyclical narrative of primers, vocabulary lessons, prescription records, and hypothesized internal monologues—fractured not for the sake of experimentation but because the story itself demands it.

In both form and content, The Body Alone represents boundary-pressing work that subverts the traditional narrative by putting pressure on the medical, cultural, and political systems that impact women’s access to fair and equal healthcare. This is more than an illness narrative, it is a battle cry demanding change.
 
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Cannabis Consulting
Helping Patients, Parents, and Practitioners Understand Medical Marijuana
Ezra Parzybok
University Press of New England, 2018
As the movement for legalization of marijuana spreads across the country, it is important to weigh the possible benefits and pitfalls of cannabis use. Cannabis Consulting is both a handbook and a report from the front lines of medical marijuana use. Writing from the perspective of a parent and veteran schoolteacher turned professional cannabis consultant, Ezra Parzybok tells the often-inspiring stories of his practice, where he assists victims of chronic pain, terminal disease, and even conditions such as ADHD. This timely volume was written for patients and families, law enforcement and health professionals, who are trying to make decisions about cannabis during this critical era of transition. It is an honest, clear-eyed exploration of the marijuana debate that looks beyond the hype and disinformation on both sides to chart a new path toward rational and safe use of cannabis.
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Chronic Pain and the Family
A New Guide
Julie K. Silver M.D.
Harvard University Press, 2004

Chronic pain is the leading cause of disability in the United States, affecting as many as 48 million people in this country alone. It can demoralize and depress both patient and family, especially when there is no effective pain control and no hope for relief. Improperly managed, chronic pain can lead to substance abuse (usually painkillers) and to acute psychological and emotional distress. Pain begets stress and stress begets pain in a wretched downward spiral.

Silver reviews the causes and characteristics of chronic pain and explores its impact on individual family relationships and on the extended family, covering such issues as employment, parenting, childbearing and inheritance, and emotional health. Silver treats aspects of chronic pain not covered in a typical office visit: how men and women differ in their experience of chronic pain, the effect of chronic pain on a toddler's behavior or an older child's performance in school, the risks of dependence on and addiction to pain medications, and practical ways for relatives beyond the immediate family circle to offer help and support to the person in pain.

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The History of Pain
Roselyne Rey
Harvard University Press

Feared by most, sought out by others, pain may manifest itself as a benevolent messenger warning of imminent danger or a repellent nemesis that undermines and incapacitates us. Throughout the ages pain has intrigued those who focus on the soul and the sacred in equal measure to those who specialize in the body and medicine.

In The History of Pain, Roselyne Rey draws on multidisciplinary sources to explore this universally shared experience. From classical antiquity to the twentieth century, she contrasts the different cultural perceptions of pain in each period, as well as the medical theories advanced to explain its mechanisms, and the various therapeutic remedies formulated to relieve those suffering from it.

This broad historical perspective, both accurate and remarkably erudite, highlights the extraordinary transformation in humanity's relationship to pain, chronicles the considerable progress made in its understanding and treatment, and explores the shadowy areas of mystery which remain to this day.

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Meaning in Suffering
Caring Practices in the Health Professions
Edited by Nancy Johnston and Alwilda Scholler-Jaquish
University of Wisconsin Press, 2007
     Compelling, timely, and essential reading for healthcare providers, Meaning in Suffering addresses the multiplicity of meanings suffering brings to all it touches: patients, families, health workers, and human science professionals. Examining suffering in writing that is both methodologically rigorous and accessible, the contributors preserve first-hand experiences using narrative ethnography, existential hermeneutics, hermeneutic phenomenology, and traditional ethnography. They offer nuanced insights into suffering as a human condition experienced by persons deserving of dignity, empathy, and understanding. Collectively, these essays demonstrate that understanding the suffering of the "other" reveals something vital about the moral courage required to heal—and stay humane—in the face of suffering.
 
 
Winner, Nursing Research Category, American Journal of Nursing
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Needless Suffering
How Society Fails Those with Chronic Pain
David Nagel
University Press of New England, 2016
Needless Suffering offers a sociological examination of a complex medical problem: chronic pain and the inability of doctors and other health professionals to understand and manage it in their patients. People in pain, writes Dr. David Nagel, are the poor of the medical world. Like the poor, they are stigmatized and left at the mercy of powerful social actors who tend to work in their own self-interest, frequently at the expense of those they propose to serve. This leaves those who suffer with little control over their own destinies and creates a dysfunctional status quo that harms instead of helps. Drawing on his own experience witnessing his mother’s chronic pain and numerous clinical stories from over thirty years’ expertise as a pain management specialist, Nagel looks first at patients, their families, and their doctors (usually not trained in pain management), and then broadens his canvas to elaborate a pain power structure that includes the entire healthcare community, insurers, lawyers, government regulators, employers, politicians, law enforcement agencies, and painkilling drugs. Concluding with concrete reforms to create more effective and compassionate pain care, this book is designed for pain patients and their families, healthcare providers, legislators and other public policymakers, judges, personal injury and other attorneys, insurers, government regulators, law enforcement personnel, and health care businesspeople.
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Not Tonight
Migraine and the Politics of Gender and Health
Joanna Kempner
University of Chicago Press, 2014
Pain. Vomiting. Hours and days spent lying in the dark. Migraine is an extraordinarily common, disabling, and painful disorder that affects over 36 million Americans and costs the US economy at least $32 billion per year. Nevertheless, it is frequently dismissed, ignored, and delegitimized.

In Not Tonight, Joanna Kempner argues that this general dismissal of migraine can be traced back to the gendered social values embedded in the way we talk about, understand, and make policies for people in pain. Because the symptoms that accompany headache disorders—like head pain, visual auras, and sensitivity to sound—lack an objective marker of distress that can confirm their existence, doctors rely on the perceived moral character of their patients to gauge how serious their complaints are. Kempner shows how this problem plays out in the history of migraine, from nineteenth-century formulations of migraine as a disorder of upper-class intellectual men and hysterical women to the influential concept of “migraine personality” in the 1940s, in which women with migraine were described as uptight neurotics who withheld sex, to contemporary depictions of people with highly sensitive “migraine brains.” Not Tonight casts new light on how cultural beliefs about gender, pain, and the distinction between mind and body influence not only whose suffering we legitimate, but which remedies are marketed, how medicine is practiced, and how knowledge about disease is produced.
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Pain and Its Transformations
The Interface of Biology and Culture
Sarah Coakley
Harvard University Press, 2008

Pain is immediate and searing but remains a deep mystery for sufferers, their physicians, and researchers. As neuroscientific research shows, even the immediate sensation of pain is shaped by psychological state and interpretation. At the same time, many individuals and cultures find meaning, particularly religious meaning, even in chronic and inexplicable pain.

This ambitious interdisciplinary book includes not only essays but also discussions among a wide range of specialists. Neuroscientists, psychiatrists, anthropologists, musicologists, and scholars of religion examine the ways that meditation, music, prayer, and ritual can mediate pain, offer a narrative that transcends the sufferer, and give public dignity to private agony. They discuss topics as disparate as the molecular basis of pain, the controversial status of gate control theory, the possible links between the relaxation response and meditative practices in Christianity and Buddhism, and the mediation of pain and intense emotion in music, dance, and ritual. The authors conclude by pondering the place of pain in understanding--or the human failure to understand--good and evil in history.

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The Politics of Pain Medicine
A Rhetorical-Ontological Inquiry
S. Scott Graham
University of Chicago Press, 2015
Chronic pain is a medical mystery, debilitating to patients and a source of frustration for practitioners. It often eludes both cause and cure and serves as a reminder of how much further we have to go in unlocking the secrets of the body. A new field of pain medicine has evolved from this landscape, one that intersects with dozens of disciplines and subspecialties ranging from psychology and physiology to anesthesia and chiropractic medicine. Over the past three decades, researchers, policy makers, and practitioners have struggled to define this complex and often contentious field as they work to establish standards while navigating some of the most challenging philosophical issues of Western science.

In The Politics of Pain Medicine: A Rhetorical-Ontological Inquiry, S. Scott Graham offers a rich and detailed exploration of the medical rhetoric surrounding pain medicine. Graham chronicles the work of interdisciplinary pain management specialists to found a new science of pain and a new approach to pain medicine grounded in a more comprehensive biospychosocial model. His insightful analysis demonstrates how these materials ultimately shape the healthcare community’s understanding of what pain medicine is, how the medicine should be practiced and regulated, and how practitioner-patient relationships are best managed. It is a fascinating, novel examination of one of the most vexing issues in contemporary medicine.
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Spinal Cord Injury and the Family
A New Guide
Michelle J. Alpert M.D.
Harvard University Press, 2008

Spinal cord injury, or SCI, is frequently sudden and unexpected—through accident, disease, or violence, patients temporarily lose control of their bodies and, it seems, their lives. With rehabilitation, they can learn to navigate their world once more, retraining muscles and mind to compensate for paralyzed limbs and diminished strength. But as Dr. Michelle Alpert shows here, there is far more to recapturing full, independent lives than regaining movement. Central to long-term success is mending the family unit.

Combining Dr. Alpert’s clinical experience with patients’ own stories, Spinal Cord Injury and the Family is for individuals and their families who must climb back from injury: for the young quad couple, both quadriplegic, who wish to conceive and raise a child; for the paraplegic dad who wants to teach his daughter to drive; for the couple wondering how they can regain the sexual spark in their relationship.

The authors cover the causes of and prognosis for SCI through case studies, review common courses of rehabilitation, and answer the “what now?” questions—from daily routines to larger issues concerning sex, education and employment, childbearing, and parenting with SCI. Rich in clinical information and practical advice, the book shows how real patients and their families are living full lives after spinal cord injury.

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