In the first decade of the AIDS epidemic, New York City was struck like no other. By the early nineties, it was struggling with more known cases than the next forty most infected cities, including San Francisco, combined.
Fighting for Our Lives is the first comprehensive social history of New York's AIDS community-a diverse array of people that included not only gay men, but also African Americans, Haitians, Latinos, intravenous drug users, substance abuse professionals, elite supporters, and researchers. Looking back over twenty-five years, Susan Chambré focuses on the ways that these disparate groups formed networks of people and organizations that-both together and separately-supported persons with AIDS, reduced transmission, funded research, and in the process, gave a face to an epidemic that for many years, whether because of indifference, homophobia, or inefficiency, received little attention from government or health care professionals.
Beyond the limits of New York City, and even AIDS, this case study also shows how any epidemic provides a context for observing how societies respond to events that expose the inadequacies of their existing social and institutional arrangements. By drawing attention to the major faults of New York's (and America's) response to a major social and health crisis at the end of the twentieth century, the book urges more effective and sensitive actions-both governmental and civil-in the future.
When Carolyn Ellis, a graduate student, and Gene Weinstein, her Professor, fell in love, he was experiencing the first stages of emphysema. As he became increasingly disabled and immobile, these two intensely connected partners fought to maintain their love and to live a meaningful life. They learned to negotiate their daily lives in a way that enabled each of them to feel sufficiently autonomous—him not always like a patient and her not always like a caretaker. Writing as a sociologist, Ellis protrays their life together as a way to understand the complexities of romance, of living with a progressive illness, and, in the final negotiation and reversal of positions, of coping with the loss of a loved one.
This rare memoir full of often raw details and emotions becomes an intimate conversation about the intricacies of feeling and relating in a relationship. What Ellis calls experimental ethnography is a finely crafted, forthright, and daring story framed by the author's reflections on writing about and analyzing one's own life. Casting off the safe distance of most social science inquiry, she surrenders the private shroud of a complex relationship to bring sociology closer to literature.
First, Do No Harm shows how health care professionals, with the best intentions of providing excellent, holistic health care, can nonetheless perpetuate violence against vulnerable patients. The essays investigate the need to rethink contemporary healthcare practices in ways that can bring the art and science of medicine back into sorely needed balance.
These ground-breaking studies by noted scholars question commonly held assumptions in contemporary healthcare that underlie oppressive power dynamics and even violence for patients and their families. The contributors discuss such topics as women and violence, life-support technologies, and healthcare professionals’ own experiences as patients. First, Do No Harm opens the discourse for reaching new understandings, from reassessing the meaning of "quality of life" to questioning the appropriateness of the very language used by healthcare professionals. It will be welcomed by healthcare workers and by scholars in nursing, medicine, and the allied health sciences.
Freddie Steinmark tells the story of a legendary University of Texas football player whose courage on the field and in battling cancer still inspires the Longhorn nation.
Freddie Steinmark started at safety for the undefeated University of Texas Longhorns in 1969. In the thrilling “Game of the Century,” a come-from-behind victory against Arkansas that ensured Texas the national championship, Steinmark played with pain in his left leg. Two days later, X-rays revealed a bone tumor so large that it seemed a miracle Steinmark could walk, let alone play football. Within a week of the Arkansas game, his leg was amputated.
A gritty, undersized player, Steinmark had quickly become a fan favorite at Texas. What he endured during the Longhorns’ memorable 1969 season, and what he encountered afterward, captivated not only Texans but the country at large. Americans watched closely as Steinmark confronted life’s ultimate challenge, and his openness during his battle against savage odds helped reframe the national conversation surrounding cancer and the ongoing race for a cure.
Written with unfettered access to the Steinmark family and archives, Freddie Steinmark: Faith, Family, Football is the exploration of a brief but full life, one that began humbly but ended on a grand stage. It is a fitting tribute to a legendary Longhorn whose photograph, emblazoned with the word “Heart,” flashes on the Freddie Steinmark Scoreboard’s Jumbotron prior to each home football game in UT’s Darrell K Royal–Texas Memorial Stadium at Joe Jamail Field.
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