front cover of Facing It
Facing It
AIDS Diaries and the Death of the Author
Ross Chambers
University of Michigan Press, 2001
For a generation or more, literary theorists have used the metaphor of "the death of the author" in considering the observation that to write is to abdicate control over the meanings one's text is capable of generating. But in the case of AIDS diaries, the metaphor can be literal. Facing It examines the genre not in classificatory terms but pragmatically, as the site of a social interaction. Through a detailed study of three such diaries, originating respectively in France, the United States, and Australia, Ross Chambers demonstrates that issues concerning the politics of AIDS writing and the ethics of reading are linked by a common concern with the problematics of survivorhood. Two of the diaries chosen for special attention in this light are video diaries: La Pudeur ou l'impudeur by Hervé Guibert (author of To the Friend Who Did Not Save My Life), and Silverlake Life, by the American videomaker Tom Joslin (aided by his lover and friends, notably Peter Friedman). The third is a defiant but anxious text, Unbecoming, by an American anthropologist, Eric Michaels, who died in Brisbane, Australia, in 1988. Other authors more briefly examined include Pascal de Duve, Bertrand Duquénelle, Alain Emmanuel Dreuilhe, David Wojnarowicz, Gary Fisher, and the filmmaker (not a diarist) Laurie Lynd. Finally, Facing It takes on the issue of its own relevance, asking what contributions literary criticism can make in the midst of an epidemic.
"Groundbreaking in its approach and potentially wide in its appeal. . . . The rigor of the ideas, their dramatic nature, and the political drive of the rhetoric all should win Facing It a large readership that could extend far beyond students of narrative or queer theory." --David Bergman, Towson University, editor of Camp Grounds: Style and Homosexuality
Ross Chambers is Distinguished University Professor of French and Comparative Literature, University of Michigan, and author of Room for Maneuver: Reading (the) Oppositional (in) Narrative and Story and Situation: Narrative Seduction and the Power of Fiction.
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The Family Silver
A Memoir of Depression and Inheritance
Sharon O'Brien
University of Chicago Press, 2004
Finding herself struggling with depression ("like a rude houseguest, coming and going of its own accord"), Sharon O'Brien set out to understand its origins beyond the biochemical explanations and emotional narratives prevailing in contemporary American culture. Her quest for her inheritance took her straight into the pressures and possibilities of American culture, and then to the heart of her family—the generations who shaped and were shaped by one another and their moment in history. In The Family Silver, as O'Brien travels into her family's past, she goes beyond depression to discover courage, poetry, and grace.

A compassionate and engaging writer, O'Brien uses the biographer's methods to understand her family history, weaving the scattered pieces of the past—her mother's memo books, her father's reading journal, family photographs, tombstones, dance cards, hospital records, the family silver—into a compelling narrative. In the lives of her Irish-American relatives she finds that the American values of upward mobility, progress, and the pressure to achieve sparked both desire and depression, following her family through generations, across the sea, from the Irish famine of the 1840s to Harvard Yard in the late 1960s.

"Many people who write stories of depression or other chronic illnesses tell tales of recovery in the upward-mobility sense, the 'once I was ill, but now I am well' formula that we may find appealing, but doesn't match the messiness of our lives," she writes. "Mine is not such a tale. But it is a recovery tale in another sense—a story of salvage, of rescuing stories from silence." Told with humor and honesty, O'Brien's story will captivate all readers who want to know how they, and their families, have been shaped by the past.
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Fatal Sequence
The Killer Within
Kevin J. Tracey
Dana Press, 2006
Severe sepsis, a critical illness that most often afflicts victims of initially nonfatal illnesses or injuries, is the third-most-common killer in the United States. In Fatal Sequence, neurosurgeon, immunologist, and clinical investigator Kevin J. Tracey offers a chronicle both scientific and human, using cases he personally experienced to illustrate the clinical nightmare of organ failure that typifies the disease. 

In clear, accessible language, Tracey explains how the brain, which normally restrains the immune system and protects the patient, can fail during severe sepsis—allowing the immune system to indiscriminately kill normal cells along with foreign microbes. Fatal Sequence is a compelling documentation of an all-too-common situation: doctors fighting to prevent patients’ deaths at the hands of complications from injuries and illnesses that should never be fatal in the first place. 

“This book is a must for anyone interested in protecting the body from foreign organisms and, in many instances, itself.” —Jamie Talan, Newsday

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Fierce and Delicate
Essays on Dance and Illness
Renée K. Nicholson
West Virginia University Press, 2021
Memoir about ballet and illness from a creative writing teacher whose career as a ballerina was stopped by rheumatoid arthritis.

Renée Nicholson’s professional training in ballet had both moments of magnificence and moments of torment, from fittings of elaborate platter tutus to strange language barriers and unrealistic expectations of the body. In Fierce and Delicate, she looks back on the often confused and driven self she had been shaped into—always away from home, with friends who were also rivals, influenced by teachers in ways sometimes productive and at other times bordering on sadistic—and finds beauty in the small roles she performed. When, inevitably, Nicholson moved on from dancing, severed from her first love by illness, she discovered that she retained the lyricism and narrative of ballet itself as she negotiated life with rheumatoid arthritis.

An intentionally fractured memoir-in-essays, Fierce and Delicate navigates the traditional geographies of South Florida, northern Michigan, New York City, Milwaukee, West Virginia, and also geographies of the body—long, supple limbs; knee replacements; remembered bodies and actual. It is a book about the world of professional dance and also about living with chronic disease, about being shattered yet realizing the power to assemble oneself again, in a new way.
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Fighting For Our Lives
New York's AIDS Community and the Politics of Disease
Chambré, Susan M
Rutgers University Press, 2006

In the first decade of the AIDS epidemic, New York City was struck like no other. By the early nineties, it was struggling with more known cases than the next forty most infected cities, including San Francisco, combined.

Fighting for Our Lives is the first comprehensive social history of New York's AIDS community-a diverse array of people that included not only gay men, but also African Americans, Haitians, Latinos, intravenous drug users, substance abuse professionals, elite supporters, and researchers. Looking back over twenty-five years, Susan Chambré focuses on the ways that these disparate groups formed networks of people and organizations that-both together and separately-supported persons with AIDS, reduced transmission, funded research, and in the process, gave a face to an epidemic that for many years, whether because of indifference, homophobia, or inefficiency, received little attention from government or health care professionals.

Beyond the limits of New York City, and even AIDS, this case study also shows how any epidemic provides a context for observing how societies respond to events that expose the inadequacies of their existing social and institutional arrangements. By drawing attention to the major faults of New York's (and America's) response to a major social and health crisis at the end of the twentieth century, the book urges more effective and sensitive actions-both governmental and civil-in the future.

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Final Negotiations
A Story of Love, and Chronic Illness
Carolyn Ellis
Temple University Press, 1995

When Carolyn Ellis, a graduate student, and Gene Weinstein, her Professor, fell in love, he was experiencing the first stages of emphysema. As he became increasingly disabled and immobile, these two intensely connected partners fought to maintain their love and to live a meaningful life. They learned to negotiate their daily lives in a way that enabled each of them to feel sufficiently autonomous—him not always like a patient and her not always like a caretaker. Writing as a sociologist, Ellis protrays their life together as a way to understand the complexities of romance, of living with a progressive illness, and, in the final negotiation and reversal of positions, of coping with the loss of a loved one.

This rare memoir full of often raw details and emotions becomes an intimate conversation about the intricacies of feeling and relating in a relationship. What Ellis calls experimental ethnography is a finely crafted, forthright, and daring story framed by the author's reflections on writing about and analyzing one's own life. Casting off the safe distance of most social science inquiry, she surrenders the private shroud of a complex relationship to bring sociology closer to literature.

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Final Negotiations
A Story of Love, Loss, and Chronic Illness
Carolyn Ellis
Temple University Press, 2018
In this revised and expanded edition of Final Negotiations—a personal account of caring for her partner, Gene Weinstein, and then coping with losing him to chronic emphysema— Ellis reflects back on her experiences as a caregiver, focusing on identity, vulnerability, emotions, and the aging process of an engaged academic. Now, decades later, she reconsiders who she was then, and how she has continued to be affected both by these events and by writing about them. She contemplates how she might act, think, and feel if she were going through the caregiving process again, now.

Taking an autoethnographic perspective, Ellis focuses on her feeling and thinking self in relationships, narrating particular lived experiences that offer a gateway into understanding interpersonal and cultural life. In her new epilogue, “From New Endings to New Beginnings,” Ellis describes her changed identity and how Final Negotiations informs her life and her understanding of how she and her current partner grow older together. She hopes her book provides companionship and comfort to readers who also will suffer loss in their lives.
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The Final Season
The Perseverance of Pat Summitt
Maria Cornelius
University of Tennessee Press, 2016
With 1,098 wins and eight national championships, Lady Vol Coach Pat Summitt has left a remarkable legacy of perseverance, leadership, and passion for the game—but her victories on the court aren’t the only legacy she has left in her wake.

Since the beginning of her career as Lady Vol head coach at twenty-two years old, Pat Head Summitt effectively established the University of Tennessee Lady Vols as the top women’s athletics program in the nation. The winningest coach in the history of NCAA basketball, Summitt overcame one obstacle after another on the road to every victory, but it is the lives she has impacted along the way that tell the story of her true legacy. Forever a role model for young women, expecting nothing but the best from her players and from those around her, her legacy has never faltered—not even during her final season as head coach, when she faced her fiercest adversary yet: the diagnosis of early-onset Alzheimer’s disease.

In The Final Season: The Perseverance of Pat Summitt, Maria M. Cornelius tells the story of her final coaching season through the eyes of those who know her best, from players to support staff to Summitt’s closest friends and advisors. Beginning with the diagnosis that shook the Tennessee community in the summer of 2011 and continuing through to the final game of the 2011–12 season, The Final Season presents readers with a behind-the-scenes look at the conclusion of Summitt’s coaching career, detailing from the perspective of a sports writer how her diagnosis impacted her players and her staff as well as her fans.

With forewords by former Lady Vol Candace Parker and Swish Appeal editor Mike Robinson, The Final Season reveals how Summitt’s remarkable story of perseverance not only united a team of young women but also brought an entire sports following together, revealing an incredible support system that spanned far beyond Summitt’s Tennessee community. The coach’s determined spirit, selfless love, and sense of humor shine through the pages of Cornelius’s book, painting for readers the picture of a beloved leader and detailing the personal moments of defeat and triumph that make Summitt a true champion.
 
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First, Do No Harm
Power, Oppression, and Violence in Healthcare
Edited by Nancy L. Diekelmann
University of Wisconsin Press, 2002

    First, Do No Harm shows how health care professionals, with the best intentions of providing excellent, holistic health care, can nonetheless perpetuate violence against vulnerable patients. The essays investigate the need to rethink contemporary healthcare practices in ways that can bring the art and science of medicine back into sorely needed balance.
    These ground-breaking studies by noted scholars question commonly held assumptions in contemporary healthcare that underlie oppressive power dynamics and even violence for patients and their families. The contributors discuss such topics as women and violence, life-support technologies, and healthcare professionals’ own experiences as patients. First, Do No Harm opens the discourse for reaching new understandings, from reassessing the meaning of "quality of life" to questioning the appropriateness of the very language used by healthcare professionals. It will be welcomed by healthcare workers and by scholars in nursing, medicine, and the allied health sciences.

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Folding Paper Cranes
An Atomic Memoir
Leonard Bird
University of Utah Press, 2005
 Between 1951 and 1962 the Atomic Energy Commission triggered some one hundred atmospheric detonations of nuclear weapons at the Nevada Test Site. U.S. military troops who participated in these tests were exposed to high doses of radiation. Among them was a young Marine named Leonard Bird. In Folding Paper Cranes Bird juxtaposes his devastating experience of those atomic exercises with three visits over his lifetime—one in the 1950s before his Nevada assignment, one in 1981, and one in the early 1990s—to the International Park for World Peace in Hiroshima.

Among the monuments to tragedy and hope in Hiroshima’s Peace Park stands a statue of Sadako Sasaki holding a crane in her outstretched arms. Sadako was two years old when the atomic bomb was dropped on her city; she was diagnosed with leukemia ten years later. According to popular Japanese belief, folding a thousand paper cranes brings good fortune. Sadako spent the last months of her young life folding hundreds of paper cranes. She folded 644 before she died.

As he journeys from the Geiger counters, radioactive dust, and mushroom clouds of the Nevada desert to the bronze and ivory memorials for the dead in Japan, Bird—himself a survivor of radiation-induced cancer—seeks to make peace with his past and with a future shadowed by nuclear proliferation. His paper cranes are the poetry and prose of this haunting memoir.
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Fractured Borders
Reading Women's Cancer Literature
Mary K. DeShazer
University of Michigan Press, 2005
Women have been writing about cancer for decades, but since the early 1990s, the body of literature on cancer has increased exponentially as growing numbers of women face the searing realities of the disease and give testimony to its ravages and revelations.

Fractured Borders: Reading Women's Cancer Literature surveys a wide range of contemporary writing about breast, uterine, and ovarian cancer, including works by Marilyn Hacker, Margaret Edson, Carole Maso, Audre Lorde, Eve Sedgwick, Mahasweta Devi, Lucille Clifton, Alicia Ostriker, Jayne Anne Phillips, Terry Tempest Williams, and Jeanette Winterson, among many others. DeShazer's readings bring insights from body theory, performance theory, feminist literary criticism, French feminisms, and disability studies to bear on these works, shining new light on a literary subject that is engaging more and more writers.

"An important and useful book that will appeal to people in a variety of fields and walks of life, including scholars, teachers, and anyone interested in this subject."
--Suzanne Poirier, University of Illinois at Chicago

"A book on a timely and important topic, wisely written beyond scholarly boundaries and crossing many theoretical and disciplinary lines."
--Patricia Moran, University of California, Davis
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Freddie Steinmark
Faith, Family, Football
By Bower Yousse and Thomas J. Cryan
University of Texas Press, 2015

Freddie Steinmark tells the story of a legendary University of Texas football player whose courage on the field and in battling cancer still inspires the Longhorn nation.

Freddie Steinmark started at safety for the undefeated University of Texas Longhorns in 1969. In the thrilling “Game of the Century,” a come-from-behind victory against Arkansas that ensured Texas the national championship, Steinmark played with pain in his left leg. Two days later, X-rays revealed a bone tumor so large that it seemed a miracle Steinmark could walk, let alone play football. Within a week of the Arkansas game, his leg was amputated.

A gritty, undersized player, Steinmark had quickly become a fan favorite at Texas. What he endured during the Longhorns’ memorable 1969 season, and what he encountered afterward, captivated not only Texans but the country at large. Americans watched closely as Steinmark confronted life’s ultimate challenge, and his openness during his battle against savage odds helped reframe the national conversation surrounding cancer and the ongoing race for a cure.

Written with unfettered access to the Steinmark family and archives, Freddie Steinmark: Faith, Family, Football is the exploration of a brief but full life, one that began humbly but ended on a grand stage. It is a fitting tribute to a legendary Longhorn whose photograph, emblazoned with the word “Heart,” flashes on the Freddie Steinmark Scoreboard’s Jumbotron prior to each home football game in UT’s Darrell K Royal–Texas Memorial Stadium at Joe Jamail Field.

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