BiblioVault - Books about People with Disabilities

Backlash Against the ADA

Reinterpreting Disability Rights

Linda Hamilton Krieger, Editor

University of Michigan Press, 2003

For civil rights lawyers who toiled through the 1980s in the increasingly barren fields of race and sex discrimination law, the approval of the Americans with Disabilities Act in 1990 by a nearly unanimous U.S. House and Senate and a Republican President seemed almost fantastic. Within five years of the Act's effective date, however, observers were warning of an unfolding assault on the ADA by federal judges, the media, and other national opinion-makers. A year after the Supreme Court issued a trio of decisions in the summer of 1999 sharply limiting the ADA's reach, another decision invalidated an entire title of the act as it applied to the states. By this time, disability activists and disability rights lawyers were speaking openly of a backlash against the ADA.
What happened, why did it happen, and what can we learn from the patterns of public, media, and judicial response to the ADA that emerged in the 1990s? In this book, a distinguished group of disability activists, disability rights lawyers, social scientists and humanities scholars grapple with these questions. Taken together, these essays construct and illustrate a new and powerful theoretical model of sociolegal change and retrenchment that can inform both the conceptual and theoretical work of scholars and the day-to-day practice of social justice activists.
Contributors include Lennard J. Davis, Matthew Diller, Harlan Hahn, Linda Hamilton Krieger, Vicki A. Laden, Stephen L. Percy, Marta Russell, and Gregory Schwartz.
Backlash Against the ADA will interest disability rights activists, lawyers, law students and legal scholars interested in social justice and social change movements, and students and scholars in disability studies, political science, media studies, American studies, social movement theory, and legal history.
Linda Hamilton Krieger is Professor of Law, University of California School of Law, Berkeley.

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The Backwards Hand

A Memoir

Matt Lee

Northwestern University Press, 2024

Fear. Disgust. Pity. The cripple evokes our basest human emotions—as does the monster.

Told in lyric fragments, The Backwards Hand traces Matt Lee’s experience living in the United States for more than thirty years with a rare congenital defect. Weaving in historical research and pop culture references, Lee dissects how the disabled body has been conflated with impurity, worthlessness, and evil. His voice swirls amid those of artists, criminals, activists, and philosophers. With a particular focus on horror films, Lee juxtaposes portrayals of fictitious monsters with the real-life atrocities of the Nazi regime and the American eugenics movement. Through examining his struggles with physical and mental health, Lee confronts his own beliefs about monstrosity and searches for atonement as he awaits the birth of his son.

The Backwards Hand interrogates what it means to be a cripple in a predominantly ableist society, deconstructing how perceptions of disability are—and are not—reflected in art and media.

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Barriers and Belonging

Personal Narratives of Disability

Michelle Jarman

Temple University Press, 2017

What is the direct impact that disability studies has on the lives of disabled people today? The editors and contributors to this essential anthology, Barriers and Belonging, provide thirty-seven personal narratives thatexplore what it means to be disabled and why the field of disability studies matters.

The editors frame the volume by introducing foundational themes of disability studies. They provide a context of how institutions—including the family, schools, government, and disability peer organizations—shape and transform ideas about disability. They explore how disability informs personal identity, interpersonal and community relationships, and political commitments. In addition, there are heartfelt reflections on living with mobility disabilities, blindness, deafness, pain, autism, psychological disabilities, and other issues. Other essays articulate activist and pride orientations toward disability, demonstrating the importance of reframing traditional narratives of sorrow and medicalization.

The critical, self-reflective essays in Barriers and Belonging provide unique insights into the range and complexity of disability experience.

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Be Opened! The Catholic Church and Deaf Culture

Lana Portolano

Catholic University of America Press, 2021

Be Opened! The Catholic Church and Deaf Culture offers readers a people’s history of deafness and sign language in the Catholic Church. Paying ample attention to the vocation stories of deaf priests and pastoral workers, Portolano traces the transformation of the Deaf Catholic community from passive recipients of mercy to an active language minority making contributions in today’s globally diverse church. Background chapters familiarize readers with early misunderstandings about deaf people in the church and in broader society, along with social and religious issues facing deaf people throughout history. A series of connected narratives demonstrate the strong Catholic foundations of deaf education in sign language, including sixteenth-century monastic schools for deaf children and nineteenth-century French education in sign language as a missionary endeavor. The author explains how nineteenth-century schools for deaf children, especially those founded by orders of religious sisters, established small communities of Deaf Catholics around the globe. A series of portraits illustrates the work of pioneering missionaries in several different countries—“apostles to the Deaf”—who helped to establish and develop deaf culture in these communities through adult religious education and the sacraments in sign language. In several chapters focused on the twentieth century, the author describes key events that sparked a modern transformation in Deaf Catholic culture. As linguists began to recognize sign languages as true human languages, deaf people borrowed the practices of Civil Rights activists to gain equality both as citizens and as members of the church. At the same time, deaf people drew inspiration and cultural validation from key documents of Vatican II, and leadership of the Deaf Catholic community began to come from the deaf community rather than to it through missionaries. Many challenges remain, but this book clearly presents Deaf Catholic culture as an important and highly visible embodiment of Catholic heritage.

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Beep

Inside the Unseen World of Baseball for the Blind

David Wanczyk

Ohio University Press, 2018

In Beep, David Wanczyk illuminates the sport of blind baseball to show us a remarkable version of America’s pastime. With balls tricked out to squeal three times per second, and with bases that buzz, this game of baseball for the blind is both innovative and intense. And when the best beep baseball team in America, the Austin Blackhawks, takes on its international rival, Taiwan Homerun, no one’s thinking about disability. What we find are athletes playing their hearts out for a championship.

Wanczyk follows teams around the world and even joins them on the field to produce a riveting inside narrative about the game and its players. Can Ethan Johnston, kidnapped and intentionally blinded as a child in Ethiopia, find a new home in beep baseball, and a spot on the all-star team? Will Taiwan’s rookie MVP Ching-kai Chen—whose superhuman feats on the field have left some veterans suspicious—keep up his incredible play? And can Austin’s Lupe Perez harness his competitive fire and lead his team to a long-awaited victory in the beep baseball world series?

Beep is the first book about blind baseball.

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Beholding Disability in Renaissance England

Allison P. Hobgood

University of Michigan Press, 2021

Human variation has always existed, though it has been conceived of and responded to variably. Beholding Disability in Renaissance England interprets sixteenth- and seventeenth-century literature to explore the fraught distinctiveness of human bodyminds and the deliberate ways they were constructed in early modernity as able, and not. Hobgood examines early modern disability, ableism, and disability gain, purposefully employing these contemporary concepts to make clear how disability has historically been disavowed—and avowed too. Thus, this book models how modern ideas and terms make the weight of the past more visible as it marks the present, and cultivates dialogue in which early modern and contemporary theoretical models are mutually informative.

Beholding Disability also uncovers crucial counterdiscourses circulating in the English Renaissance that opposed cultural fantasies of ability and had a keen sensibility toward non-normative embodiments. Hobgood reads impairments as varied as epilepsy, stuttering, disfigurement, deafness, chronic pain, blindness, and castration in order to understand not just powerful fictions of ability present during the Renaissance but also the somewhat paradoxical, surprising ways these ableist ideals provided creative fodder for many Renaissance writers and thinkers. Ultimately, Beholding Disability asks us to reconsider what we think we know about being human both in early modernity, and today.

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Between Fitness and Death

Disability and Slavery in the Caribbean

Stefanie Hunt-Kennedy

University of Illinois Press, 2020

Long before the English became involved in the African slave trade, they imagined Africans as monstrous and deformed beings. The English drew on pre-existing European ideas about monstrosity and deformity to argue that Africans were a monstrous race, suspended between human and animal, and as such only fit for servitude. Joining blackness to disability transformed English ideas about defective bodies and minds. It also influenced understandings of race and ability even as it shaped the embodied reality of people enslaved in the British Caribbean.

Stefanie Hunt-Kennedy provides a three-pronged analysis of disability in the context of Atlantic slavery. First, she examines the connections of enslavement and representations of disability and the parallel development of English anti-black racism. From there, she moves from realms of representation to reality in order to illuminate the physical, emotional, and psychological impairments inflicted by slavery and endured by the enslaved. Finally, she looks at slave law as a system of enforced disablement.

Audacious and powerful, Between Fitness and Death is a groundbreaking journey into the entwined histories of racism and ableism.

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Between Two Worlds

My Life as a Child of Deaf Adults

David Sorensen

Gallaudet University Press, 2019

In his memoir, David Sorensen explores his identity as a coda, or a child of Deaf adults. He describes his experiences with the roles often placed on codas at a young age, such as interpreter, confidant, and decision-maker. His story reveals a person seeking acceptance and belonging while straddling the Deaf and hearing worlds, and shows how he found reconciliation within himself and with both worlds.

Sorensen relays the dynamics of his family life; he had a strained relationship with his father, who was an active leader and role model in the Deaf community and the Mormon Church, yet struggled to bond with his own son. Sorensen rebelled as a youth and left home as a teenager, completely detaching from the Deaf community. After struggling to establish himself as an independent adult, he discovered that he wanted to return to the Deaf world and use his ASL fluency and cultural understanding as a mental health therapist and community advocate. Now he considers himself an ambassador between the Deaf and hearing worlds, as well as between the older and younger generations of Deaf people. Between Two Worlds: My Life as a Child of Deaf Adults shares the unique experiences of a coda and passes on the rich cultural past shared by the American Deaf community.

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Beyond Productivity

Embodied, Situated, and (Un)Balanced Faculty Writing Processes

Kim Hensley Owens

Utah State University Press, 2023

In Beyond Productivity, a wide range of contributors share honest narratives of the sometimes-impossible conditions that scholars face when completing writing projects. The essays provide backstage views of the authors' varying approaches to moving forward when the desire to produce wanes, when deciding a project is not working, when working within and around and redefining academic productivity expectations, and when writing with ever-changing bodies that do not always function as expected.

This collection positions scholarly writers' ways of writing as a form of flexible, evolving knowledge. By exhibiting what is lost and gained through successive rounds of transformation and adaptation over time, the contributors offer a sustainable understanding and practice of process—one that looks beyond productivity as the primary measure of success. Each presents a fluid understanding of the writing process, illustrating its deeply personal nature and revealing how fragmented and disjointed methods and experiences can highlight what is precious about writing.

Beyond Productivity determines anew the use and value of scholarly writing and the processes that produce it, both within and beyond the context of the losses, constraints, and adaptations associated with the COVID-19 pandemic.

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The Biopolitics of Disability

Neoliberalism, Ablenationalism, and Peripheral Embodiment

David T. Mitchell with Sharon L. Snyder

University of Michigan Press, 2015

In the neoliberal era, when human worth is measured by its relative utility within global consumer culture, selected disabled people have been able to gain entrance into late capitalist culture. The Biopolitics of Disability terms this phenomenon “ablenationalism” and asserts that “inclusion” becomes meaningful only if disability is recognized as providing modes of living that are alternatives to governing norms of productivity and independence. Thus, the book pushes beyond questions of impairment to explore how disability subjectivities create new forms of embodied knowledge and collective consciousness. The focus is on the emergence of new crip/queer subjectivities at work in disability arts, disability studies pedagogy, independent and mainstream disability cinema (e.g., Midnight Cowboy), internet-based medical user groups, anti-normative novels of embodiment (e.g., Richard Powers’s The Echo-Maker) and, finally, the labor of living in “non-productive” bodies within late capitalism.

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Black Disability Politics

Sami Schalk

Duke University Press, 2022

In Black Disability Politics Sami Schalk explores how issues of disability have been and continue to be central to Black activism from the 1970s to the present. Schalk shows how Black people have long engaged with disability as a political issue deeply tied to race and racism. She points out that this work has not been recognized as part of the legacy of disability justice and liberation because Black disability politics differ in language and approach from the mainstream white-dominant disability rights movement. Drawing on the archives of the Black Panther Party and the National Black Women’s Health Project alongside interviews with contemporary Black disabled cultural workers, Schalk identifies common qualities of Black disability politics, including the need to ground public health initiatives in the experience and expertise of marginalized disabled people so that they can work in antiracist, feminist, and anti-ableist ways. Prioritizing an understanding of disability within the context of white supremacy, Schalk demonstrates that the work of Black disability politics not only exists but is essential to the future of Black liberation movements.

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Black Madness

: Mad Blackness

Therí Alyce Pickens

Duke University Press, 2019

In Black Madness :: Mad Blackness Therí Alyce Pickens rethinks the relationship between Blackness and disability, unsettling the common theorization that they are mutually constitutive. Pickens shows how Black speculative and science fiction authors such as Octavia Butler, Nalo Hopkinson, and Tananarive Due craft new worlds that reimagine the intersection of Blackness and madness. These creative writer-theorists formulate new parameters for thinking through Blackness and madness. Pickens considers Butler's Fledgling as an archive of Black madness that demonstrates how race and ability shape subjectivity while constructing the building blocks for antiracist and anti-ableist futures. She examines how Hopkinson's Midnight Robber theorizes mad Blackness and how Due's African Immortals series contests dominant definitions of the human. The theorizations of race and disability that emerge from these works, Pickens demonstrates, challenge the paradigms of subjectivity that white supremacy and ableism enforce, thereby pointing to the potential for new forms of radical politics.

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Blackness and Disability

Critical Examinations and Cultural Interventions

Christopher M. Bell

Michigan State University Press, 2012

Disability Studies diverge from the medical model of disability (which argues that disabled subjects can and should be “fixed”) to view disability as socially constructed, much in the same way other identities are. The work of reading black and disabled bodies is not only recovery work, but work that requires a willingness to deconstruct the systems that would keep those bodies in separate spheres. This pivotal volume uncovers the misrepresentations of black disabled bodies and demonstrates how those bodies transform systems and culture. Drawing on key themes in Disability Studies and African American Studies, these collected essays complement one another in interesting and dynamic ways, to forge connections across genres and chronotopes, an invitation to keep blackness and disability in conversation. With an analysis of disability as a result of war, studies of cognitive impairment and slavery in fiction, representations of slavery and violence in photography, deconstructions of illness (cancer and AIDS) narratives, comparative analyses of black and Latina/o and black and African subjects, analysis of treatments of disability in hip-hop, and commentary on disability, blackness, and war, this volume shows that the historical lines of demarcation in this field are permeable and should be challenged.

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Blind in Early Modern Japan

Disability, Medicine, and Identity

Wei Yu Wayne Tan

University of Michigan Press, 2022

While the loss of sight—whether in early modern Japan or now—may be understood as a disability, blind people in the Tokugawa period (1600–1868) could thrive because of disability. The blind of the era were prominent across a wide range of professions, and through a strong guild structure were able to exert contractual monopolies over certain trades. Blind in Early Modern Japan illustrates the breadth and depth of those occupations, the power and respect that accrued to the guild members, and the lasting legacy of the Tokugawa guilds into the current moment.

The book illustrates why disability must be assessed within a particular society’s social, political, and medical context, and also the importance of bringing medical history into conversation with cultural history. A Euro-American-centric disability studies perspective that focuses on disability and oppression, the author contends, risks overlooking the unique situation in a non-Western society like Japan in which disability was constructed to enhance blind people’s power. He explores what it meant to be blind in Japan at that time, and what it says about current frameworks for understanding disability.

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Blind Rage

Letters to Helen Keller

Georgina Kleege

Gallaudet University Press, 2006

As a young blind girl, Georgina Kleege repeatedly heard the refrain, “Why can’t you be more like Helen Keller?” Kleege’s resentment culminates in her book Blind Rage: Letters to Helen Keller, an ingenious examination of the life of this renowned international figure using 21st-century sensibilities. Kleege’s absorption with Keller originated as an angry response to the ideal of a secular saint, which no real blind or deaf person could ever emulate. However, her investigation into the genuine person revealed that a much more complex set of characters and circumstances shaped Keller’s life.

Blind Rage employs an adroit form of creative nonfiction to review the critical junctures in Keller’s life. The simple facts about Helen Keller are well-known: how Anne Sullivan taught her deaf-blind pupil to communicate and learn; her impressive career as a Radcliffe graduate and author; her countless public appearances in various venues, from cinema to vaudeville, to campaigns for the American Foundation for the Blind. But Kleege delves below the surface to question the perfection of this image. Through the device of her letters, she challenges Keller to reveal her actual emotions, the real nature of her long relationship with Sullivan, with Sullivan’s husband, and her brief engagement to Peter Fagan. Kleege’s imaginative dramatization, distinguished by her depiction of Keller’s command of abstract sensations, gradually shifts in perspective from anger to admiration. Blind Rage criticizes the Helen Keller myth for prolonging an unrealistic model for blind people, yet it appreciates the individual who found a practical way to live despite the restrictions of her myth.

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Blindness Through the Looking Glass

The Performance of Blindness, Gender, and the Sensory Body

Gili Hammer

University of Michigan Press, 2019

Modern Western culture is saturated with images, imprinting visual standards of concepts such as beauty and femininity onto our collective consciousness. Blindness Through the Looking Glass examines how gender and femininity are performed and experienced in everyday life by women who do not rely on sight as their dominant mode of perception, identifying the multiple senses involved in the formation of gender identity within social interactions. Challenging visuality as the dominant mode to understand gender, social performance, and visual culture, the book offers an ethnographic investigation of blindness (and sight) as a human condition, putting both blindness and vision “on display” by discussing people’s auditory, tactile, and olfactory experiences as well as vision and sight, and by exploring ways that individuals perform blindness and “sightedness” in their everyday lives. Based on in-depth interviews with 40 blind women in Israel and anthropological fieldwork, the book investigates the social construction and daily experience of blindness in a range of domains. Uniquely, the book brings together blind symbolism with the everyday experiences of blind and sighted individuals, joining in mutual conversation the fields of disability studies, visual culture, anthropology of the senses, and gender studies.

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Bodies of Knowledge

Embodied Rhetorics in Theory and Practice

A. Abby Knoblauch

Utah State University Press, 2021

Bodies of Knowledge challenges homogenizing (mis)understandings of knowledge construction and provides a complex discussion of what happens when we do not attend to embodied rhetorical theories and practices. Because language is always a reflection of culture, to attempt to erase language and knowledge practices that reflect minoritized and historically excluded cultural experiences obscures the legitimacy of such experiences both within and outside the academy.

The pieces in Bodies of Knowledge draw explicit attention to the impact of the body on text, the impact of the body in text, the impact of the body as text, and the impact of the body upon textual production. The contributors investigate embodied rhetorics through the lenses of race and ethnicity, gender and sexuality, disability and pain, technologies and ecologies, clothing and performance, and scent, silence, and touch. In doing so, they challenge the (false) notion that academic knowledge—that is, “real” knowledge—is disembodied and therefore presumed white, middle class, cis-het, able-bodied, and male. This collection lays bare how myriad bodies invent, construct, deliver, and experience the processes of knowledge building.

Experts in the field of writing studies provide the necessary theoretical frameworks to better understand productive (and unproductive) uses of embodied rhetorics within the academy and in the larger social realm. To help meet the theoretical and pedagogical needs of the discipline, Bodies of Knowledge addresses embodied rhetorics and embodied writing more broadly though a rich, varied, and intersectional approach. These authors address larger questions around embodiment while considering the various impacts of the body on theories and practices of rhetoric and composition.

Contributors: Scot Barnett, Margaret Booker, Katherine Bridgman, Sara DiCaglio, Kristie S. Fleckenstein, Vyshali Manivannan, Temptaous Mckoy, Julie Myatt, Julie Nelson, Ruth Osorio, Kate Pantelides, Caleb Pendygraft, Nadya Pittendrigh, Kellie Sharp-Hoskins, Anthony Stagliano, Megan Strom

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Bodies of Modernism

Physical Disability in Transatlantic Modernist Literature

Maren Tova Linett

University of Michigan Press, 2017

Bodies of Modernism brings a new and exciting analytical lens to modernist literature, that of critical disability studies. The book offers new readings of canonical and noncanonical writers from both sides of the Atlantic including Flannery O’Connor, Eudora Welty, H. G. Wells, D. H. Lawrence, Elizabeth Bowen, Henry Green, Olive Moore, Carson McCullers, Tennessee Williams, J. M. Synge, Florence Barclay, Virginia Woolf, and James Joyce. Through readings of this wide range of texts and with chapters focusing on mobility impairments, deafness, blindness, and deformity, the study reveals both modernism’s skepticism about and dependence on fantasies of whole, “normal” bodies.

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Bodyminds Reimagined

(Dis)ability, Race, and Gender in Black Women's Speculative Fiction

Sami Schalk

Duke University Press, 2018

In Bodyminds Reimagined Sami Schalk traces how black women's speculative fiction complicates the understanding of bodyminds—the intertwinement of the mental and the physical—in the context of race, gender, and (dis)ability. Bridging black feminist theory with disability studies, Schalk demonstrates that this genre's political potential lies in the authors' creation of bodyminds that transcend reality's limitations. She reads (dis)ability in neo-slave narratives by Octavia Butler (Kindred) and Phyllis Alesia Perry (Stigmata) not only as representing the literal injuries suffered under slavery, but also as a metaphor for the legacy of racial violence. The fantasy worlds in works by N. K. Jemisin, Shawntelle Madison, and Nalo Hopkinson—where werewolves have obsessive-compulsive-disorder and blind demons can see magic—destabilize social categories and definitions of the human, calling into question the very nature of identity. In these texts, as well as in Butler’s Parable series, able-mindedness and able-bodiedness are socially constructed and upheld through racial and gendered norms. Outlining (dis)ability's centrality to speculative fiction, Schalk shows how these works open new social possibilities while changing conceptualizations of identity and oppression through nonrealist contexts.

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Brilliant Imperfection

Grappling with Cure

Eli Clare

Duke University Press, 2017

In Brilliant Imperfection Eli Clare uses memoir, history, and critical analysis to explore cure—the deeply held belief that body-minds considered broken need to be fixed. Cure serves many purposes. It saves lives, manipulates lives, and prioritizes some lives over others. It provides comfort, makes profits, justifies violence, and promises resolution to body-mind loss. Clare grapples with this knot of contradictions, maintaining that neither an anti-cure politics nor a pro-cure worldview can account for the messy, complex relationships we have with our body-minds. The stories he tells range widely, stretching from disability stereotypes to weight loss surgery, gender transition to skin lightening creams. At each turn, Clare weaves race, disability, sexuality, class, and gender together, insisting on the nonnegotiable value of body-mind difference. Into this mix, he adds environmental politics, thinking about ecosystem loss and restoration as a way of delving more deeply into cure. Ultimately Brilliant Imperfection reveals cure to be an ideology grounded in the twin notions of normal and natural, slippery and powerful, necessary and damaging all at the same time.

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