front cover of Edmund Booth
Edmund Booth
Deaf Pioneer
Harry G. Lang
Gallaudet University Press, 2004

Edmund Booth was born in 1810 and died in 1905, and during the 94 years of his life, he epitomized virtually everything that characterized an American legend of that century. In his prime, Booth stood 6 feet, 3 inches tall, weighed in at 210 pounds, and wore a long, full beard. He taught school in Hartford, CT, then followed his wife-to-be Mary Ann Walworth west to Anamosa, Iowa, where in 1840, he built the area’s first frame house. He pulled up stakes nine years later to travel the Overland Trail on his way to join the California Gold Rush. After he returned to Iowa in 1854, he became the editor of the Anamosa Eureka, the local newspaper. Edmund Booth fit perfectly the mold of the ingenious pioneer of 19th-century America, except for one unusual difference — he was deaf. 

Edmund Booth: Deaf Pioneer follows the amazing career of this American original and his equally amazing wife in fascinating detail. Author Harry G. Lang vividly portrays Booth and his wife by drawing from a remarkable array of original material. A prolific writer, Booth corresponded with his fiancé from the American School for the Deaf in Hartford, and he kept a journal during his days on the California trail, parts of which have been reproduced here. He also wrote an autobiographical essay when he was 75, and his many newspaper articles through the years bore first-hand witness to the history of his times, from the Civil War to the advent of the 20th century.

Edmund Booth depicts a larger-than-life man in larger-than-life times, but perhaps its greatest contribution derives from its narrative about pioneer days as seen through Deaf eyes. Booth became a respected senior statesman of the American Deaf community, and blended with his stories of the era’s events are anecdotes and issues vital to Deaf people and their families. His story proves again that extraordinary people vary in many ways, but they often possess a common motive in acting to enhance their own communities.

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Elements of French Deaf Heritage
Ulf Hedberg
Gallaudet University Press, 2019
French Deaf culture is regarded as a major influence on the formation of other Deaf cultures around the world, notably American Deaf culture. In Elements of French Deaf Heritage, Ulf Hedberg and Harlan Lane document the development of Deaf culture in France by way of Deaf schools, Deaf associations, private and professional networks, publishing, and the arts. This highly visual work captures these forces from the late 18th century through the end of the 19th century, when cultural formation began to shift to cultural maintenance. Encyclopedic in scope, this examination of the evolution of Deaf ethnicity in France aims to disseminate an extensive amount of archival information, now available for the first time in the English language.
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Elusive Kinship
Disability and Human Rights in Postcolonial Literature
Christopher Krentz
Temple University Press, 2022

Characters with disabilities are often overlooked in fiction, but many occupy central places in literature by celebrated authors like Chinua Achebe, Salman Rushdie, J. M. Coetzee, Anita Desai, Jhumpa Lahiri, Edwidge Danticat, and others. These authors deploy disability to do important cultural work, writes Christopher Krentz in his innovative study, Elusive Kinship.  Such representations not only relate to the millions of disabled people in the global South, but also make more vivid such issues as the effects of colonialism, global capitalism, racism and sexism, war, and environmental disaster. 

Krentz is the first to put the fields of postcolonial studies, studies of human rights and literature, and literary disability in conversation with each other in a book-length study. He enhances our appreciation of key texts of Anglophone postcolonial literature of the global South, including Things Fall Apart and Midnight’s Children. In addition, he uncovers the myriad ways fiction gains energy, vitality, and metaphoric force from characters with extraordinary bodies or minds. 

Depicting injustices faced by characters with disabilities is vital to raising awareness and achieving human rights.  Elusive Kinship nudges us toward a fuller understanding of disability worldwide.

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Embodied Archive
Disability in Post-Revolutionary Mexican Cultural Production
Susan Antebi
University of Michigan Press, 2021

Embodied Archive focuses on perceptions of disability and racial difference in Mexico’s early post-revolutionary period, from the 1920s to the 1940s. In this period, Mexican state-sponsored institutions charged with the education and health of the population sought to strengthen and improve the future of the nation, and to forge a more racially homogeneous sense of collective identity and history. Influenced by regional and global movements in eugenics and hygiene, Mexican educators, writers, physicians, and statesmen argued for the widespread physical and cognitive testing and categorization of schoolchildren, so as to produce an accurate and complete picture of “the Mexican child,” and to carefully monitor and control forms of unwanted difference, including disability and racialized characteristics. Differences were not generally marked for eradication—as would be the case in eugenics movements in the US, Canada, and parts of Europe—but instead represented possible influences from a historically distant or immediate reproductive past, or served as warnings of potential danger haunting individual or collective futures.

Weaving between the historical context of Mexico’s post-revolutionary period and our present-day world, Embodied Archive approaches literary and archival documents that include anti-alcohol and hygiene campaigns; projects in school architecture and psychopedagogy; biotypological studies of urban schoolchildren and indigenous populations; and literary approaches to futuristic utopias or violent pasts.  It focuses in particular on the way disability is represented indirectly through factors that may have caused it in the past or may cause it in the future, or through perceptions and measurements that cannot fully capture it. In engaging with these narratives, the book proposes an archival encounter, a witnessing of past injustices and their implications for the disability of our present and future.

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front cover of The Emergence of the Deaf Community in Nicaragua
The Emergence of the Deaf Community in Nicaragua
“With Sign Language You Can Learn So Much”
Laura Polich
Gallaudet University Press, 2005

The sudden discovery of Nicaraguan Sign Language (NSL) enthralled scholars worldwide who hoped to witness the evolution of a new language. But controversy erupted regarding the validity of NSL as a genuinely spontaneous language created by young children. Laura Polich’s fascinating book recounts her nine-year study of the Deaf community in Nicaragua and her findings about its formation and that of NSL in its wake.

     Polich crafted The Emergence of the Deaf Community in Nicaragua from her copious research in Nicaragua’s National Archives, field observations of deaf pupils in 20 special education schools, polls of the teachers for deaf children about their education and knowledge of deafness, a survey of 225 deaf individuals about their backgrounds and living conditions, and interviews with the oldest members of the National Nicaraguan Association of the Deaf.

     Polich found that the use of a “standardized” sign language in Nicaragua did not emerge until there was a community of users meeting on a regular basis, especially beyond childhood. The adoption of NSL did not happen suddenly, but took many years and was fed by multiple influences. She also discovered the process that deaf adolescents used to attain their social agency, which gained them recognition by the larger Nicaraguan hearing society. Her book illustrates tremendous changes during the past 60 years, and the truth in one deaf Nicaraguan’s declaration, “With sign language you can learn so much.”

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Encountering Pain
Hearing, Seeing, Speaking
Edited by Deborah Padfield and Joanna M. Zakrzewska
University College London, 2020
A unique compilation of voices that speak to the phenomenon of persistent pain and how it can be better communicated. 

What is pain—and how do we communicate it? Persistent pain changes the brain and nervous system so that it can no longer warn of danger. However, despite being a major cause of disability globally, pain remains difficult to communicate. As language struggles to bridge the gap between those who suffer from pain and those who are trying to help, this book shares leading research into the potential value of visual images and non-verbal forms of communication as means of improving interactions between clinicians and their patients. Accompanied by vivid photographs co-created with those who live with pain, the volume integrates the voices of leading scientists, academics, and contemporary artists to provide a manual for understanding the meanings of pain for healthcare professionals, pain patients, students, academics, and artists.
 
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The End of Normal
Identity in a Biocultural Era
Lennard J. Davis
University of Michigan Press, 2014

In an era when human lives are increasingly measured and weighed in relation to the medical and scientific, notions of what is “normal” have changed drastically. While it is no longer useful to think of a person’s particular race, gender, sexual orientation, or choice as “normal,” the concept continues to haunt us in other ways. In The End of Normal, Lennard J. Davis explores changing perceptions of body and mind in social, cultural, and political life as the twenty-first century unfolds. The book’s provocative essays mine the worlds of advertising, film, literature, and the visual arts as they consider issues of disability, depression, physician-assisted suicide, medical diagnosis, transgender, and other identities.

Using contemporary discussions of biopower and biopolitics, Davis focuses on social and cultural production—particularly on issues around the different body and mind. The End of Normal seeks an analysis that works comfortably in the intersection between science, medicine, technology, and culture, and will appeal to those interested in cultural studies, bodily practices, disability, science and medical studies, feminist materialism, psychiatry, and psychology.

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Enhancing Diversity
Educators with Disabilities
Ronald J. Anderson
Gallaudet University Press, 1998
The 43 million people with disabilities form this country’s largest minority group, yet they are markedly under-employed as educators. Enhancing Diversity: Educators with Disabilities paves the way for correcting this costly omission. Editors Anderson, Karp, and Keller have called upon the knowledge of 19 other renowned contributors to address the important issues raised in Enhancing Diversity, including the place of disability in discussions of diversity in education, research on educators with disabilities that validates their capabilities, and information on the qualifications desired in and the demands made of education professionals. Legal precedents are cited and explained, and examples of efforts to place disabled educators are presented, along with recommendations on how disabled individuals and school administrators can work toward increased opportunities. Interviews with 25 disabled educators discussing how they satisfactorily fulfill their professional requirements completes this thoughtful-provoking book.
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Every Last Breath
A Memoir of Two Illnesses
Joanne Jacobson
University of Utah Press, 2020
When Joanne Jacobson’s writing about her mother’s respiratory illness was interrupted by her own diagnosis with a rare blood disorder, she found her perspective profoundly altered. Every Last Breath follows these two chronic illnesses as they grow unexpectedly intertwined. Rejecting a fixed, retrospective point of view and the forward-moving trajectory of conventional memoir, Jacobson brings the reader to the emotionally raw present—where potentially fatal illness and “end of life” both remain, emphatically, life. As chronic illness blurs the distinction between illness and wellness, she discovers how a lifetime of relapse and remission can invite transformation. Written at the fluid, unsettling boundary between prose and poetry, these essays offer a narrative diagnosis of ongoing revision.
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front cover of Everyone Here Spoke Sign Language
Everyone Here Spoke Sign Language
Hereditary Deafness on Martha’s Vineyard
Nora Ellen Groce
Harvard University Press, 1985

From the seventeenth century to the early years of the twentieth, the population of Martha’s Vineyard manifested an extremely high rate of profound hereditary deafness. In stark contrast to the experience of most Deaf people in our own society, the Vineyarders who were born Deaf were so thoroughly integrated into the daily life of the community that they were not seen—and did not see themselves—as handicapped or as a group apart. Deaf people were included in all aspects of life, such as town politics, jobs, church affairs, and social life. How was this possible?

On the Vineyard, hearing and Deaf islanders alike grew up speaking sign language. This unique sociolinguistic adaptation meant that the usual barriers to communication between the hearing and the Deaf, which so isolate many Deaf people today, did not exist.

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Exile and Pride
Disability, Queerness, and Liberation
Eli Clare
Duke University Press, 2015
First published in 1999, the groundbreaking Exile and Pride is essential to the history and future of disability politics. Eli Clare's revelatory writing about his experiences as a white disabled genderqueer activist/writer established him as one of the leading writers on the intersections of queerness and disability and permanently changed the landscape of disability politics and queer liberation. With a poet's devotion to truth and an activist's demand for justice, Clare deftly unspools the multiple histories from which our ever-evolving sense of self unfolds. His essays weave together memoir, history, and political thinking to explore meanings and experiences of home: home as place, community, bodies, identity, and activism. Here readers will find an intersectional framework for understanding how we actually live with the daily hydraulics of oppression, power, and resistance. At the root of Clare's exploration of environmental destruction and capitalism, sexuality and institutional violence, gender and the body politic, is a call for social justice movements that are truly accessible to everyone. With heart and hammer, Exile and Pride pries open a window onto a world where our whole selves, in all their complexity, can be realized, loved, and embraced.
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