front cover of Gaillard in Deaf America
Gaillard in Deaf America
A Portrait of the Deaf Community, 1917, Henri Gaillard
Henri Gaillard
Gallaudet University Press, 2002

In 1917, Henri Gaillard led a delegation of deaf French men to the United States for the centennial celebration of the American School for the Deaf (ASD). The oldest school for deaf students in America, ASD had been cofounded by renowned deaf French teacher Laurent Clerc, thus inspiring Gaillard’s invitation. Gaillard visited deaf people everywhere he went and recorded his impressions in a detailed journal. His essays present a sharply focused portrait of the many facets of Deaf America during a pivotal year in its history.

       Gaillard crossed the Atlantic only a few weeks after the United States entered World War I. In his writings, he reports the efforts of American deaf leaders to secure employment for deaf workers to support the war effort. He also witnesses spirited speeches at the National Association of the Deaf convention decrying the replacement of sign language by oral education. Gaillard also depicts the many local institutions established by deaf Americans, such as Philadelphia’s All Souls Church, founded in 1888 by the country’s first ordained deaf pastor, and the many deaf clubs established by the first wave of deaf college graduates in their communities. His journal stands as a unique chronicle of the American Deaf community during a remarkable era of transition.

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front cover of Genetics, Disability, and Deafness
Genetics, Disability, and Deafness
John Vickrey Van Cleve
Gallaudet University Press, 2004

Pulitzer Prize-winning author Louis Menand begins this wide-ranging volume with an essay that extols diversity and warns of the dangers of modifying the human genome. Nora Groce reviews the ways that societies have defined disability and creates an interpretive framework for discussing the relationship between culture and disability.

     In essays devoted to historical perspective, Brian H. Greenwald comments upon the real “toll” taken by A. G. Bell’s insistence upon oralism, while Joseph J. Murray weighs the nineteenth-century debate over whether deaf-deaf marriages should be encouraged. John S. Schuchman’s chilling account of deafness and eugenics in the Nazi era adds wrenching reinforcement to the impetus to include disabled people in genetics debates.

     Mark Willis offers an intensely personal reflection on the complexities of genetic alteration, addressing both his heart condition and his blindness in surprisingly different ways. Anna Middleton extends Willis’s concepts in her discussion of couples currently considering the use of genetic knowledge and technology to select for or against a gene that causes deafness.

     In the part on the science of genetics, Orit Dagan, Karen B. Avraham, Kathleen S. Arnos, and Arti Pandya clarify the choices presented by genetic engineering, and geneticist Walter E. Nance emphasizes the importance of science in offering individuals knowledge from which they can fashion their own decisions. In the concluding section, Christopher Krentz raises moral questions about the ever-continuing search for human perfection, and Michael Bérubé argues that disability should be considered democratically to ensure full participation of disabled people in all decisions that might affect them.

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front cover of Get Your Elbow Off the Horn
Get Your Elbow Off the Horn
Stories through the Years
Jack R. Gannon
Gallaudet University Press, 2020
Get Your Elbow Off the Horn is a collection of interactions and observations written by Jack R. Gannon, a lifelong advocate for the Deaf community. Warm and amusing, Gannon’s stories begin with his rural childhood in the Ozarks and continue through his experiences as a student, educator, coach, husband, parent, and community leader. These vignettes reveal a down-to-earth family man who believed in making a difference one person at a time.

Many of his recollections are brief sketches that reveal much about being Deaf—and about being human. From reflecting on the difficult choices parents must make for their children, to recounting awkward communication exchanges, Gannon marries good humor with a poignant advocacy for sign language rights. His stories preserve and share Deaf American life and culture as he experienced it.
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front cover of The Girls and Boys of Belchertown
The Girls and Boys of Belchertown
A Social History of the Belchertown State School for the Feeble-Minded
Robert Hornick
University of Massachusetts Press, 2012
During much of the twentieth century, people labeled "feeble-minded," "mentally deficient," and "mentally retarded" were often confined in large, publicly funded, residential institutions located on the edges of small towns and villages some distance from major population centers. At the peak of their development in the late 1960s, these institutions—frequently called "schools" or "homes"—housed 190,000 men, women, and children in the United States.

The Girls and Boys of Belchertown offers the first detailed history of an American public institution for intellectually disabled persons. Robert Hornick recounts the story of the Belchertown State School in Belchertown, Massachusetts, from its beginnings in the 1920s to its closure in the 1990s following a scandalous exposé and unprecedented court case that put the institution under direct supervision of a federal judge. He draws on personal interviews, private letters, and other unpublished sources as well as local newspapers, long out-of-print materials, and government reports to re-create what it was like to live and work at the school. More broadly, he gauges the impact of changing social attitudes toward intellectual disability and examines the relationship that developed over time between the school and the town where it was located.

What emerges is a candid and complex portrait of the Belchertown State School that neither vilifies those in charge nor excuses the injustices perpetrated on its residents, but makes clear that despite the court-ordered reforms of its final decades, the institution needed to be closed.
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front cover of Globalization
Globalization
Millennial Quartet II, Volume 12
Arjun Appadurai, ed.
Duke University Press
This second installment of Public Culture’s Millennial Quartet seeks to intervene in the increasingly heated debates surrounding the cultural dimensions of globalization, which includes debates about what globalization is and whether it is a meaningful term. The volume focuses in particular on the way that changing sites—local, regional, diasporic—are the scenes of emergent forms of sovereignty in which matters of style, sensibility, and ethos articulate new legalities and new kinds of violence.
Seeking an alternative to the dead-end debate between those who see globalization as a phenomenon wholly without precedent and those who see it simply as modernization, imperialism, or global capitalism with a new face, the contributors seek to illuminate how space and time are transforming each other in special ways in the present era. They examine how this complex transformation involves changes in the situation of the nation, the state, and the city. While exploring distinct regions—China, Africa, South America, Europe—and representing different disciplines and genres—anthropology, literature, political science, sociology, music, cinema, photography—the contributors are concerned with both the political economy of location and the locations in which political economies are produced and transformed. A special strength of the collection is its concern with emergent styles of subjectivity, citizenship, and mobilization and with the transformations of state power through which market rationalities are distributed and embodied locally.

Contributors. Arjun Appadurai, Jérome Bindé, Néstor García Canclini, Leo Ching, Steven Feld, Ralf D. Hotchkiss, Wu Hung, Andreas Huyssen, Boubacar Touré Mandémory, Achille Mbembe, Saskia Sassen, Fatu Kande Senghor, Seteney Shami, Anna Tsing, Zhang Zhen

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front cover of Going Stealth
Going Stealth
Transgender Politics and U.S. Surveillance Practices
Toby Beauchamp
Duke University Press, 2018
In Going Stealth Toby Beauchamp demonstrates how the enforcement of gender conformity is linked to state surveillance practices that identify threats based on racial, gender, national, and ableist categories of difference. Positioning surveillance as central to our understanding of transgender politics, Beauchamp examines a range of issues, from bathroom bills and TSA screening practices to Chelsea Manning's trial, to show how security practices extend into the everyday aspects of our gendered lives. He brings the fields of disability, science and technology, and surveillance studies into conversation with transgender studies to show how the scrutinizing of gender nonconformity is motivated less by explicit transgender identities than by the perceived threat that gender nonconformity poses to the U.S. racial and security state. Beauchamp uses instances of gender surveillance to demonstrate how disciplinary power attempts to produce conformist citizens and regulate difference through discourses of security. At the same time, he contends that greater visibility and recognition for gender nonconformity, while sometimes beneficial, might actually enable the surveillance state to more effectively track, measure, and control trans bodies and identities.
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front cover of A Grotesque Animal
A Grotesque Animal
Amy Lee Lillard
University of Iowa Press, 2024
At the age of forty-three, Amy Lee Lillard learned she was autistic. She learned she was part of a community of unseen women who fell through the gaps due to medical bias and social stereotypes.

A Grotesque Animal explores the making, unmaking, and making again of a woman with an undiagnosed disorder. How did a working-­ class background and a deep-rooted Midwest culture of silence lead to hiding in plain sight for decades? How did sexuality and anger hide the roots of trauma among the women in her family? And what does it mean to be a queer, disabled, aging woman, a descendent of wild but tamed mothers and a survivor of the things patriarchy inflicts?

Through wide-ranging styles and a combination of personal storytelling and cultural analysis, Lillard dissects anger, sexuality, autistic masking, bodies, punk, and female annihilation to create a new picture of modern women.
 
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