BiblioVault - Books about People with Disabilities

HandiLand

The Crippest Place on Earth

Elizabeth A. Wheeler

University of Michigan Press, 2019

HandiLand looks at young adult novels, fantasy series, graphic memoirs, and picture books of the last 25 years in which characters with disabilities take center stage for the first time. These books take what others regard as weaknesses—for instance, Harry Potter’s headaches or Hazel Lancaster’s oxygen tank—and redefine them as part of the hero’s journey. HandiLand places this movement from sidekick to hero in the political contexts of disability rights movements in the United States, the United Kingdom, and Ghana.

Elizabeth A. Wheeler invokes the fantasy of HandiLand, an ideal society ready for young people with disabilities before they get there, as a yardstick to measure how far we’ve come and how far we still need to go toward the goal of total inclusion. The book moves through the public spaces young people with disabilities have entered, including schools, nature, and online communities. As a disabled person and parent of children with disabilities, Wheeler offers an inside look into families who collude with their kids in shaping a better world. Moving, funny, and beautifully written, HandiLand: The Crippest Place on Earth is the definitive study of disability in contemporary literature for young readers.

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Having Epilepsy

The Experience and Control of Illness

Joseph W. Schneider and Peter Conrad

Temple University Press, 1985

"Well written and fascinating to read. This fine book takes a large step in...contributing to the only slowly dawning awareness of the general public, and the health workers too, of the significance of chronic illness." --Anselm Strauss, University of California, San Francisco Based on in-depth interviews with eighty people who have epilepsy, this book gives a first-hand account of what it is like to cope with a chronic illness, while working, playing, and building relationships. The authors recount how people discover they have epilepsy and what it means; how families respond to someone labeled "epileptic"; how seizures affect a person's sense of self and self-control. Epilepsy patients explain what they want from their doctors and why the medication practices they develop may not coincide with "doctor's orders." The variety of experiences of epilepsy is suggested both by the interviews and by the range of terms for seizures--Petit Mal, Grand Mal, auras, fits, absences. The principal difficulty for many people with epilepsy is not the medical condition but the social stigma. A person with epilepsy has to cope with discrimination in obtaining a job, insurance, or a driver's license, and he or she may be cautious about revealing this "disabling" condition to an employer or even a spouse. People with epilepsy may manage information about themselves and their "lapses" and look for "safe places" like restrooms where they can be alone should a seizure begin. Many of those interviewed complained of overreactions to seizures by colleagues or bystanders: epilepsy patients were embarrassed at having provoked a public crisis or were annoyed at waking up in a hospital emergency room. This is a book for people who have epilepsy, for their families and friends; for health care professionals who deal with chronic illnesses; and for students of medical sociology and the sociology of deviance. "For anyone who would like to 'get inside' the experience of having epilepsy, this book is probably as close as one can come." --Epilepsia "In dispelling the notion that 'the person is the illness,' these interviews with 80 individuals reveal that those suffering from epilepsy have learned to accept it as merely another facet of their lives. A valuable contribution for those with epilepsy, for their family and friends, for medical personnel, and for the general public." --Booklist "...carefully outlined and clearly written.... Those affected by chronic conditions may find the book most helpful.... Family and helping professionals may discover new insights.... Social scientists, especially those interested in chronic illnesses, will benefit from the research conclusions and suggestions for further research." --Medical Anthropology Quarterly "It represents an important advance in the medical sociology literature as well as a contribution to qualitative sociology. I think that the book should become a contemporary classic in medical sociology." --Qualitative Sociology "...an important contribution.... In focusing on what it is like to have epilepsy in this society, Schneider and Conrad have reversed an earlier concern for the medicalization of deviance, opting in this work for an understanding of the stigmatization of illness." --Contemporary Sociology

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Hearing Happiness

Deafness Cures in History

Jaipreet Virdi

University of Chicago Press, 2020

Weaving together lyrical history and personal memoir, Virdi powerfully examines society’s—and her own—perception of life as a deaf person in America.

At the age of four, Jaipreet Virdi’s world went silent. A severe case of meningitis left her alive but deaf, suddenly treated differently by everyone. Her deafness downplayed by society and doctors, she struggled to “pass” as hearing for most of her life. Countless cures, treatments, and technologies led to dead ends. Never quite deaf enough for the Deaf community or quite hearing enough for the “normal” majority, Virdi was stuck in aural limbo for years. It wasn’t until her thirties, exasperated by problems with new digital hearing aids, that she began to actively assert her deafness and reexamine society’s—and her own—perception of life as a deaf person in America.

Through lyrical history and personal memoir, Hearing Happiness raises pivotal questions about deafness in American society and the endless quest for a cure. Taking us from the 1860s up to the present, Virdi combs archives and museums in order to understand the long history of curious cures: ear trumpets, violet ray apparatuses, vibrating massagers, electrotherapy machines, airplane diving, bloodletting, skull hammering, and many more. Hundreds of procedures and products have promised grand miracles but always failed to deliver a universal cure—a harmful legacy that is still present in contemporary biomedicine.

Weaving Virdi’s own experiences together with her exploration into the fascinating history of deafness cures, Hearing Happiness is a powerful story that America needs to hear.

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Hearing Happiness

Deafness Cures in History

Jaipreet Virdi

University of Chicago Press, 2020

This is an auto-narrated audiobook edition of this book.

Weaving together lyrical history and personal memoir, Virdi powerfully examines society’s—and her own—perception of life as a deaf person in America.

At the age of four, Jaipreet Virdi’s world went silent. A severe case of meningitis left her alive but deaf, suddenly treated differently by everyone. Her deafness downplayed by society and doctors, she struggled to “pass” as hearing for most of her life. Countless cures, treatments, and technologies led to dead ends. Never quite deaf enough for the Deaf community or quite hearing enough for the “normal” majority, Virdi was stuck in aural limbo for years. It wasn’t until her thirties, exasperated by problems with new digital hearing aids, that she began to actively assert her deafness and reexamine society’s—and her own—perception of life as a deaf person in America.

Through lyrical history and personal memoir, Hearing Happiness raises pivotal questions about deafness in American society and the endless quest for a cure. Taking us from the 1860s up to the present, Virdi combs archives and museums in order to understand the long history of curious cures: ear trumpets, violet ray apparatuses, vibrating massagers, electrotherapy machines, airplane diving, bloodletting, skull hammering, and many more. Hundreds of procedures and products have promised grand miracles but always failed to deliver a universal cure—a harmful legacy that is still present in contemporary biomedicine.

Weaving Virdi’s own experiences together with her exploration into the fascinating history of deafness cures, Hearing Happiness is a powerful story that America needs to hear.

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The Hidden Inequities in Labor-Based Contract Grading

Ellen C. Carillo

Utah State University Press, 2021

Current Arguments in Composition Series

The Hidden Inequities in Labor-Based Contract Grading intervenes in the increasingly popular practice of labor-based grading by expanding the scope of this assessment practice to include students who are disabled and multiply marginalized. Through the lens of disability studies, the book critiques the assumption that labor is a neutral measure by which to assess students and explores how labor-based grading contracts put certain groups of students at a disadvantage. Ellen C. Carillo offers engagement-based grading contracts as an alternative that would provide a more equitable assessment model for students of color, those with disabilities, and students who are multiply marginalized.

This short book explores the history of labor-based grading contracts, reviews the scholarship on this assessment tool, highlights the ways in which it normalizes labor as an unbiased tool, and demonstrates how to extend the conversation in new and generative ways both in research and in classrooms. Carillo encourages instructors to reflect on their assessment practices by demonstrating how even assessment methods that are designed through a social-justice lens may unintentionally privilege some students over others.

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A Historical and Etymological Dictionary of American Sign Language

The Origin and Evolution of More Than 500 Signs

Emily Shaw

Gallaudet University Press, 2014

The story of how American Sign Language (ASL) came to be is almost mythic. In the early 19th century, a hearing American reverend, Thomas Hopkins Gallaudet, met a Deaf French educator, Laurent Clerc, who agreed to come to the United States and help establish the first school in America to use sign language to teach deaf children. The trail of ASL’s development meanders at this point. No documentation of early ASL was published until the late 19th century, almost seven decades after the school’s founding. While there are many missing pieces in the history of America’s sign language, plenty of data exist regarding ASL etymology. This book is the first to collect all known texts featuring illustrations of early ASL and historical images of French Sign Language—langue des signes française (LSF)—and link them with contemporary signs.

Through rigorous study of historical texts, field research in communities throughout France and the U.S., and an in-depth analysis of the cultural groups responsible for the lexicon, authors Emily Shaw and Yves Delaporte present a compelling and detailed account of the origins of over 500 ASL signs, including regional variations. Organized alphabetically by equivalent English glosses, each sign is accompanied by a succinct description of its origin and an LSF sign where appropriate. Featuring an introductory chapter on the history of the development of ASL and the etymological methodology used by the authors, this reference resource breaks new ground in the study of America’s sign language.

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A History of Disability

Henri-Jacques Stiker

University of Michigan Press, 2019

The first book to attempt to provide a framework for analyzing disability through the ages, Henri-Jacques Stiker's now classic A History of Disability traces the history of western cultural responses to disability, from ancient times to the present. The sweep of the volume is broad; from a rereading and reinterpretation of the Oedipus myth to legislation regarding disability, Stiker proposes an analytical history that demonstrates how societies reveal themselves through their attitudes towards disability in unexpected ways. Through this history, Stiker examines a fundamental issue in contemporary Western discourse on disability: the cultural assumption that equality/sameness/similarity is always desired by those in society. He highlights the consequences of such a mindset, illustrating the intolerance of diversity and individualism that arises from placing such importance on equality. Working against this thinking, Stiker argues that difference is not only acceptable, but that it is desirable, and necessary.

This new edition of the classic volume features a new foreword by David T. Mitchell and Sharon L. Snyder that assesses the impact of Stiker’s history on Disability Studies and beyond, twenty years after the book’s translation into English. The book will be of interest to scholars of disability, historians, social scientists, cultural anthropologists, and those who are intrigued by the role that culture plays in the development of language and thought surrounding people with disabilities.

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A History of Disability

Henri-Jacques Stiker

University of Michigan Press, 2000

The increasing numbers of scholars, policy-makers, and political activists who are concerned with questions of physical and cognitive disability will warmly welcome Henri-Jacques Stiker's book, the first to attempt to provide a framework for analyzing disability through the ages. Published in 1997 in France as Corps infirmes et sociétés and available now in an excellent English translation, the book traces the history of western cultural responses to disability, from ancient times to the present.

In this volume, Stiker examines a fundamental issue in contemporary Western discourse on disability: the cultural assumption that equality/sameness/similarity is always desired by those in society. He highlights the consequences of such a mindset, illustrating the intolerance of diversity and individualism that arises from placing such importance on equality. Importantly, Stiker does not hesitate to assert his own stance on the issues he discusses: that difference is not only acceptable, but that it is desirable, that it is necessary.

The author goes beyond anecdotal history to traverse a little known history, penetrating to the heart of collective attitudes and reflecting on elements of policy. The sweep is broad; from a rereading and reinterpretation of the Oedipus myth to current legislation regarding disablity, he proposes an analytical history that demonstrates how societies reveal themselves through their attitudes towards disability, at times in unexpected ways, since the study of detail is often the best entry into the whole of a culture. The book will be of interest to scholars of disability, historians, social scientists, cultural anthropologists, and those who are intrigued by the role that culture plays in the development of language and thought surrounding the disabled.

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The History of Gallaudet University

150 Years of a Deaf American Institution

David F. Armstrong

Gallaudet University Press, 2014

On April 8, 1864, President Abraham Lincoln and the United States Congress put into effect legislation authorizing the granting of collegiate degrees by the Columbia Institution for the Instruction of the Deaf and Dumb and the Blind. At this moment, what became Gallaudet University began a century and a half of offering a collegiate liberal arts education to deaf and hard of hearing students. Featuring more than 250 photographs and illustrations, David F. Armstrong’s The History of Gallaudet University: 150 Years of a Deaf American Institution chronicles its development into a modern, comprehensive American university.

At first a tiny college of fewer than 200 students, Gallaudet’s growth paralleled the emergence of the American Deaf Community and the history of the nation in general. In the same way that the country’s land-grant universities brought higher education to more American students than ever before, Gallaudet offered the same opportunities to deaf students for the first time. Gallaudet mirrored other institutions in addressing major issues of the time, from legislated segregation to the Civil Rights movement that inspired the struggle by deaf people to gain control of the governance of their university. Most critically, this volume details poignantly the evolution of American Sign Language as a language of scholarship at Gallaudet during a time when its use in educational institutions was largely discouraged or prohibited. Through story and image, it traces the historic path that Gallaudet traveled to be recognized as the finest institution of higher education for deaf people in the world.

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Home Signs

An Ethnography of Life beyond and beside Language

Joshua O. Reno

University of Chicago Press, 2024

An intimate account of an anthropologist’s relationship with his non-verbal son and how it has shaped and transformed his understanding of closeness and communication.

Home Signs grew out of the anthropologist Joshua Reno’s experience of caring for and trying to communicate with his teenage son, Charlie, who cannot speak. To manage interactions with others, Charlie uses what are known as “home signs,” gestures developed to meet his need for expression, ranging from the wiggle of a finger to a subtle sideways glance. Though he is nonverbal, he is far from silent: in fact, he is in constant communication with others.

In this intimate reflection on language, disability, and togetherness, the author invites us into his and Charlie’s shared world. Combining portraits of family life and interviews with other caregivers, Reno upends several assumptions, especially the idea that people who seem not to be able to speak for themselves need others to speak on their behalf. With its broad exploration of nonverbal communication in both human and nonhuman contexts, Home Signs challenges us to think harder about what it means to lead a “normal” life and to connect with another person.

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Hush

Media and Sonic Self-Control

Mack Hagood

Duke University Press, 2019

For almost sixty years, media technologies have promised users the ability to create sonic safe spaces for themselves—from bedside white noise machines to Beats by Dre's “Hear What You Want” ad campaign, in which Colin Kaepernick's headphones protect him from taunting crowds. In Hush, Mack Hagood draws evidence from noise-canceling headphones, tinnitus maskers, LPs that play ocean sounds, nature-sound mobile apps, and in-ear smart technologies to argue the true purpose of media is not information transmission, but rather the control of how we engage our environment. These devices, which Hagood calls orphic media, give users the freedom to remain unaffected in the changeable and distracting spaces of contemporary capitalism and reveal how racial, gendered, ableist, and class ideologies shape our desire to block unwanted sounds. In a noisy world of haters, trolls, and information overload, guarded listening can be a necessity for self-care, but Hagood argues our efforts to shield ourselves can also decrease our tolerance for sonic and social difference. Challenging our self-defeating attempts to be free of one another, he rethinks media theory, sound studies, and the very definition of media.

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