front cover of Illness Politics and Hashtag Activism
Illness Politics and Hashtag Activism
Lisa Diedrich
University of Minnesota Press, 2024

How illness on social media reveals the struggle for care and access against ableism and stigma

Illness Politics and Hashtag Activism explores illness and disability in action on social media, analyzing several popular hashtags as examples of how illness figures in recent U.S. politics. Lisa Diedrich shows how illness- and disability-oriented hashtags serve as portals into how and why illness and disability are sites of political struggle and how illness politics is informed by, intersects with, and sometimes stands in for sexual, racial, and class politics. She argues that illness politics is central—and profoundly important—to both mainstream and radical politics, and she investigates the dynamic intersection of media and health and health-activist practices to show the ways their confluence affects our perception and understanding of illness.

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The Impracticality of Practical Research
A History of Contemporary Sciences of Change That Conserve
Thomas S. Popkewitz
University of Michigan Press, 2020

There is an alluring desire that research should lead us to find the practical knowledge that enables people to live a good life in a just and equitable society. This desire haunted the 19th century emergence of the social sciences as a discipline, then became more pronounced in the postwar mobilizations of research. Today that desire lives on in the international assessments of national schools and in the structure of professional education, both of which influence government modernization of schools and also provide for people’s well-being. American policy thus reflects research in which reforms are verified by “scientific, empirical evidences” about “what works” in experiments, and “will work” therefore in society.

The book explores the idea that practical and useful knowledge changes over time, and shows how this knowledge has been (re)visioned in contemporary research on educational reform, instructional improvement, and professionalization. The study of science draws on a range of social and cultural theories and historical studies to understand the politics of science, as well as scientific knowledge that is concerned with social and educational change. Research hopes to change social conditions to create a better life, and to shape people whose conduct embodies these valued characteristics—the good citizen, parent, or worker. Yet this hope continually articulates the dangers that threaten this future. Thomas Popkewitz explores how the research to correct social wrongs is paradoxically entangled with the inscription of differences that ultimately hamper the efforts to include.

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Improvising Across Abilities
Pauline Oliveros and the Adaptive Use Musical Instrument
The AUMI Editorial Collective
University of Michigan Press, 2024
Improvising Across Abilities: Pauline Oliveros and the Adaptive Use Musical Instrument (AUMI) brings together scholars, musicians, and family members of people with disabilities to  collectively recount years of personal experiences, research, and perspectives on the societal and community impact of inclusive musical improvisation. One of the lesser-known projects of composer, improviser, and humanitarian, Pauline Oliveros (1932–2016), the AUMI was designed as a liberating and affordable alternative to the constraints of instruments created only for normative bodies, thus opening a doorway for people of all ages, genders, abilities, races, and socioeconomic backgrounds to access artistic practice with others. More than a book about AUMI, this book is an invitation to readers to use AUMI in their own communities. 

This book, which contains wisdom from many who have been affected by their work with the instrument and the people who use it, is a representation of how music and extemporized performance have touched the lives and minds of scholars and families alike. Not only has AUMI provided the opportunity to grow in listening to others who may speak differently (or not at all), but it has been used as an avenue for a diverse set of people to build friendships with others whom they may have never otherwise even glanced at in the street. By providing a space for every person who comes across AUMI to perform, listen, improvise, and collaborate, the continuing development of this instrument contributes to a world in which every person is heard, welcomed, and celebrated.
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In the Province of the Gods
Kenny Fries
University of Wisconsin Press, 2021
Kenny Fries embarks on a journey of profound self-discovery as a disabled foreigner in Japan, a society historically hostile to difference. As he visits gardens, experiences Noh and butoh, and meets artists and scholars, he also discovers disabled gods, one-eyed samurai, blind chanting priests, and A-bomb survivors. When he is diagnosed as HIV positive, all his assumptions about Japan, the body, and mortality are shaken, and he must find a way to reenter life on new terms.
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Inaccessible Access
Rethinking Disability Inclusion in Academic Knowledge Creation
Kelly Fagan Robinson
Rutgers University Press
Inaccessible Access ethnographically addresses barriers to inclusion within knowledge-making. It focuses on the social, environmental, communicative, and epistemological barriers that people with disabilities confront and embody throughout the course of their learning, living and in the specific context of their Higher Education Institutions and in research. It is presented by a neurodiverse, disabled, and non-cis cohort of authors, all of whom acknowledge a continuum of (in)access which is available to each contributor contingent on their inherent intersectionalities and alterities. The authors and editors of this book foreground the work that has yet to be done on recognising the value of non-normative ways of approaching, being in and knowing research and higher education, particularly in cases where disablity-centred epistemologies are side-lined in confrontation with institutional norms, even within existing discourses concerning equality and alterity. 
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Intoxicated
Race, Disability, and Chemical Intimacy across Empire
Mel Y. Chen
Duke University Press, 2023
In Intoxicated Mel Y. Chen explores the ongoing imperial relationship between race, sexuality, and disability. They focus on nineteenth-century biopolitical archives in England and Australia to show how mutual entanglements of race and disability take form through toxicity. Examining English scientist John Langdon Down’s characterization of white intellectual disability as Asian interiority and Queensland’s racialization and targeting of Aboriginal peoples through its ostensible concern with black opium, Chen explores how the colonial administration of race and disability gives rise to “intoxicated” subjects often shadowed by slowness. Chen charts the ongoing reverberations of these chemical entanglements in art and contemporary moments of political and economic conflict or agitation. Although intoxicated subjects may be affected by ongoing pollution or discredited as agents of failure, Chen affirmatively identifies queer/crip forms of unlearning and worldmaking under imperialism. Exemplifying an undisciplined thinking that resists linear or accretive methods of inquiry, Chen unsettles conventional understandings of slowness and agitation, intellectual method, and the toxic ordinary.
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An Invincible Spirit
The Story of Don Fulk
Don Fulk, as signed to Janet Allen
Gallaudet University Press, 2019
“Don taught us how to be a real independent living center. Nothing was easy; every issue that came up on the road to Don’s independence was a challenge and a struggle, but the experience pushed us and we learned from it. We were not going to let Don down; all of us were committed to Don’s freedom and independence.”
—Kathleen Kleinman, Executive Director, TRPIL (Transitional Paths to Independent Living)
 
Profoundly deafened as an infant, Don Fulk didn’t learn his name or go to school until the age of ten. When he was eighteen years old and a budding superstar on his football and basketball teams, he broke his neck in a swimming accident, and became paralyzed. After his injury, he was confined to a bed in his parents’ home for eight years, unable to move and barely able to communicate. After his family could no longer care for him, he spent nine years in a nursing home where he suffered from abuse and neglect.

       Yet through a life marred by isolation and frustration, Fulk endured with strength, humor, and grace. He never gave up pursuing his dreams for independence and self-worth, and improving the lives of others. He fought a system that was unfair and discriminatory, and helped pave the way for people with disabilities to live independently. Don Fulk signed his story to author Janet Allen, describing his difficult home life, the incredible friends who changed his life, and his dramatic escape from an abusive nursing home. An Invincible Spirit is a story of hope, empowerment, and the battles people with disabilities have fought—and continue to fight—to improve the quality of their lives.
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It's a Small World
International Deaf Spaces and Encounters
Michele Friedner
Gallaudet University Press, 2015
It’s a Small World explores the fascinating and, at times, controversial concept of DEAF-SAME (“I am deaf, you are deaf, and so we are the same”) and its influence on deaf spaces locally and globally. The editors and contributors focus on national and international encounters (e.g., conferences, sporting events, arts festivals, camps) and the role of political/economic power structures on deaf lives and the creation of deaf worlds. They also consider important questions about how deaf people negotiate DEAF-SAME and deaf difference, with particular attention to relations between deaf people in the global South (countries in Africa, Asia, and Latin America, with access to fewer resources than other countries) and the global North (countries in Europe, along with Canada, the US, Australia, and several other nations with access to and often control of resources). 
 
       Editors Michele Friedner and Annelies Kusters and their contributors represent a variety of academic and professional fields, from anthropology and linguistics to cultural and religious studies. Each chapter in this original volume highlights a new perspective on the multiple intersections that occur between nationalities, cultures, languages, religions, races, genders, and identities. The text is organized into five sections—Gatherings, Language, Projects, Networks, and Visions. Taken all together, the 23 chapters in this book provide an understanding of how sameness and difference are powerful yet contested categories in deaf worlds.
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