How illness on social media reveals the struggle for care and access against ableism and stigma
Illness Politics and Hashtag Activism explores illness and disability in action on social media, analyzing several popular hashtags as examples of how illness figures in recent U.S. politics. Lisa Diedrich shows how illness- and disability-oriented hashtags serve as portals into how and why illness and disability are sites of political struggle and how illness politics is informed by, intersects with, and sometimes stands in for sexual, racial, and class politics. She argues that illness politics is central—and profoundly important—to both mainstream and radical politics, and she investigates the dynamic intersection of media and health and health-activist practices to show the ways their confluence affects our perception and understanding of illness.
There is an alluring desire that research should lead us to find the practical knowledge that enables people to live a good life in a just and equitable society. This desire haunted the 19th century emergence of the social sciences as a discipline, then became more pronounced in the postwar mobilizations of research. Today that desire lives on in the international assessments of national schools and in the structure of professional education, both of which influence government modernization of schools and also provide for people’s well-being. American policy thus reflects research in which reforms are verified by “scientific, empirical evidences” about “what works” in experiments, and “will work” therefore in society.
The book explores the idea that practical and useful knowledge changes over time, and shows how this knowledge has been (re)visioned in contemporary research on educational reform, instructional improvement, and professionalization. The study of science draws on a range of social and cultural theories and historical studies to understand the politics of science, as well as scientific knowledge that is concerned with social and educational change. Research hopes to change social conditions to create a better life, and to shape people whose conduct embodies these valued characteristics—the good citizen, parent, or worker. Yet this hope continually articulates the dangers that threaten this future. Thomas Popkewitz explores how the research to correct social wrongs is paradoxically entangled with the inscription of differences that ultimately hamper the efforts to include.
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