In July 2012, the 8th Deaf History International (DHI) Conference featured 27 presentations from members of Deaf communities around the world who related their own autobiographies as well as the biographies of historical Deaf individuals. The presenters came from 12 different countries, but their stories traverse many other locales. Thus, they created a transnational phenomenon of widespread interest in the collection, documentation, and dissemination of Deaf history by and for members of the deaf community. Telling Deaf Lives: Agents of Change brings together the best of the DHI Conference offerings in this volume.

     Due to the dearth of formal research on deaf people, Deaf community historians drove the preservation of the stories in this collection. Their diversity is remarkable: Melissa Anderson and Breda Carty describe the Cosmopolitan Correspondence Club, a group of Deaf individuals who corresponded in the early 20th century from Australia to Western Europe to the United States; Ulla-Bell Thorin recounts first-hand growing up deaf in Sweden and her process in authoring six memoirs; Harry Lang reflects on writing biographies of numerous Deaf Americans in the arts and science; Akio Suemori profiles the first Deaf president of a Japanese school for the Deaf; Tatiana Davidenko writes about her Deaf family’s experience during the World War II siege of Leningrad; Theara Yim and Julie Chateauvert look at the evolution of ASL poetry by analyzing works of prominent ASL poets Clayton Valli, Peter Cook, and Kenny Lerner. These and the other contributions here enshrine Deaf people in collective memory by virtue of disseminating and preserving their stories.

Author, advocacy journalist, disability rights activist, feminist, and founder of Mouth magazine, Lucy Gwin (1943—2014) made her mark by helping those in "handicaptivity" find their voice. Gwin produced over one hundred issues of the magazine—one of the most radical and significant disability rights publications—and masterminded its acerbic, sometimes funny, and often moving articles about people from throughout the disability community.

In this engrossing biography, James M. Odato provides an intimate portrait of Gwin, detailing how she forged her own path into activism. After an automobile accident left her with a brain injury, Gwin became a tireless advocate for the equal rights of people she termed "dislabled." More than just a publisher, she fought against corruption in the rehabilitation industry, organized for the group Not Dead Yet, and much more. With Gwin's story at the center, Odato introduces readers to other key disability rights activists and organizations, and supplies context on current contentious topics such as physician-assisted suicide. Gwin's impact on disability rights was monumental, and it is time her story is widely known.

The 2006 United Nations Convention on the Rights of Persons with Disabilities (UN CRPD) is the first human rights treaty to explicitly acknowledge the right to education for persons with disabilities. In order to realize this right, the convention’s Article 24 mandates state parties to ensure inclusive education systems that overcome outright exclusion as well as segregation in special education settings. Despite this major global policy change to tackle the discriminations persons with disabilities face in education, this has yet to take effect in most school systems worldwide.

Focusing on the factors undermining the realization of disability rights in education, Julia Biermann probes current meanings of inclusive education in two contrasting yet equally challenged state parties to the UN CRPD: Nigeria, whose school system overtly excludes disabled children, and Germany, where this group primarily learns in special schools. In both countries, policy actors aim to realize the right to inclusive education by segregating students with disabilities into special education settings. In Nigeria, this demand arises from the glaring lack of such a system. In Germany, conversely, from its extraordinary long-term institutionalization. This act of diverting from the principles embodied in Article 24 is based on the steadfast and shared belief that school systems, which place students into special education, have an innate advantage in realizing the right to education for persons with disabilities. Accordingly, inclusion emerges to be an evolutionary and linear process of educational expansion that depends on institutionalized special education, not a right of persons with disabilities to be realized in local schools on an equal basis with others. This book proposes a refined human rights model of disability in education that shifts the analytical focus toward the global politics of formal mass schooling as a space where discrimination is sustained.

The boom in trained service animal use and access has transformed the lives of travelers with disabilities. As a result, tens of thousands of people in the United States and Canada enjoy travel options that were difficult or impossible just a few years ago. Henry Kisor and Christine Goodier provide a narrative guidebook full of essential information and salted with personal, hands-on stories of life on the road with service dogs and miniature horses. As the travel-savvy human companions of Trooper (Kisor's miniature schnauzer/poodle cross) and Raylene (Goodier's black Labrador), the authors share experiences from packing for your animal partner to widely varying legal protections to the animal-friendly rides at Disneyland. Chapters cover the specifics of air, rail, road, and cruise ship travel, while appendixes offer checklists, primers on import regulations and corporate policies, advice for emergencies, and a route-by-route guide to finding relief walks during North American train trips. Practical and long overdue, Traveling with Service Animals provides any human-animal partnership with a horizon-to-horizon handbook for exploring the world.

In this bitingly funny and often surprising memoir, award-winning author and groundbreaking comedian Bob Smith offers a meditation on the vitality of the natural world—and an intimate portrait of his own darkly humorous and profoundly authentic response to a life-changing illness.
            In Treehab—named after a retreat cabin in rural Ontario—Smith muses how he has “always sought the path less traveled.” He rebuffs his diagnosis of ALS as only an unflappable stand-up comic could (“Lou Gehrig’s Disease?  But I don’t even like baseball!”) and explores his complex, fulfilling experience of fatherhood, both before and after the onset of the disease.
          Stories of his writing and performing life—punctuated by hilariously cutting jokes that comedians tell only to each other—are interspersed with tales of Smith’s enduring relationship with nature: boyhood sojourns in the woods of upstate New York and adult explorations of the remote Alaskan wilderness; snakes and turtles, rocks and minerals; open sky and forest canopy; God and friendship—all recurring touchstones that inspire him to fight for his survival and for the future of his two children.
          Aiming his potent, unflinching wit at global warming, equal rights, sex, dogs, Thoreau, and more, Smith demonstrates here the inimitable insight that has made him a beloved voice of a generation. He reminds us that life is perplexing, beautiful, strange, and entirely worth celebrating.

Both Gina A. Oliva and Linda Risser Lytle know what it is like to be the only deaf student in a mainstream school. Though they became successful educators, they recognize the need to research the same isolation experienced by other deaf and hard of hearing persons. In this way, they hope to improve education for current and future deaf students. Their efforts have culminated in Turning the Tide: Making Life Better for Deaf and Hard of Hearing Schoolchildren.
 
       Turning the Tide presents a qualitative study of deaf and hard of hearing students who attended mainstream schools. The authors conducted three focus groups in different regions in the country, enlisting six to eight participants with diverse backgrounds for each session. They also gathered information from 113 online respondents who answered the same questions used in the focus groups. The respondents discussed many issues, including the difficulties of finding friends and social access, the struggle to establish an identity, the challenges of K-12 interpreting and class placement, and the vast potential of summer and weekend programs for deaf students. Their empowering stories clearly demonstrate that no deaf or hard of hearing student should be educated alone. The authors also elicited comments on other changes that parents, advocates, and other allies could work toward to improve further the educational environment of deaf children.

The remarkable memoir of a Touretter’s journey of self-discovery—now back in print!

Lowell Handler has Tourette’s syndrome, a disorder characterized by exaggerated facial tics, sudden jerking movements of the body and limbs, and explosive public outbursts, usually in the form of expletives and racial epithets. Although he is a successful and acclaimed photojournalist, Handler has often seen himself as an outsider—a social outcast.  With courage and candor, he recalls the difficulties he suffered growing up, the confusion he experienced when doctors misdiagnosed his bizarre behavior as a psychological aberration, and finally how, restless and despairing, he embarked on a quest for answers.  

In Twitch and Shout, Handler sets out, camera in hand, on a journey through less than savory parts of America.  From a transvestite bar in Tampa to a flophouse in New Orleans to a community health center in New York, he meets a variety of people who, like himself, don’t conform to the standards of conventional society. With a keen eye for detail and an acute sense of humor, this memoir perfectly captures the unique and unforgettable life of a Touretter.
 

When Rod Michalko's sight finally became so limited that he no longer felt safe on busy city streets or traveling alone, he began a search for a guide. The Two-in-One is his account of how his search ended with Smokie, a guide dog, and a dramatically different sense of blindness.

Few people who regularly encountered Michalko in his  neighborhood shops and cafes realized that he was technically blind; like many people with physical disabilities, he had found ways of compensating for his impairment. Those who knew about his condition thought of him as a fully realized person who just happened to be blind. He thought so himself. Until Smokie changed all that.

In this often moving, always compelling meditations on his relationship with Smokie, Michalko  probes into what  it means  to be at home with blindness. Smokie makes no judgment  about Michalko's lack of sight; it simply is the condition within which they work together. Their partnership thus allows Michalko to step outside of the conventional -- and even "enlightened" -- understanding of blindness; he becomes not simply resigned to it but able to embrace it as an essential part of his being in the world. Drawing on his training as a sociologist and his experience as a disabled person, Michalko joins a still small circle of scholars who examine disability from the inside.

More rare still -- and what will resonate with most readers -- is Michalko's remarkable portrayal of Smokie; avoiding sentimentality and pathos, it is a deeply affectionate yet restrained and nuanced appreciation of his behavior and personality. From their first meeting at the dog guide training school, Smokie springs to life in these pages as a highly competent, sure-footed, take-charge, full-speed-ahead, indispensable partner. "Sighties" are always in awe watching them work; Michalko has even persuaded some of them that the Smokester can locate street addresses -- but has a little difficulty with the odd numbers! Readers of The Two-in-One can easily imagine Rod and Smokie sharing the joke as they continue on their way.