Melvin Juette has said that becoming paralyzed in a gang-related shooting was “both the worst and best thing that happened” to him. The incident, he believes, surely spared the then sixteen year-old African American from prison and/or an early death. It transformed him in other ways, too. He attended college and made wheelchair basketball his passion—ultimately becoming a star athlete and playing on the U.S. National Wheelchair Basketball Team.
In Wheelchair Warrior, Juette reconstructs the defining moments of his life with the assistance of sociologist Ronald Berger. His poignant memoir is bracketed by Berger’s thoughtful introduction and conclusion, which places this narrative of race, class, masculinity and identity into proper sociological context, showing how larger social structural forces defined his experiences. While Juette’s story never gives into despair, it does challenge the idea of the “supercrip.”
The Sixth Volume in the Gallaudet Classics in Deaf Studies Series
George M. Teegarden (1852-1936) taught at the Western Pennsylvania School for the Deaf for 48 years, established the printing department, and also served as the first editor of the school’s magazine. Despite these significant contributions, his greatest gift to deaf people was his skill as a writer and poet who was deaf, as readers will discover in When I Am Dead: The Writings of George M. Teegarden.
Editor Raymond Luczak selected Teegarden’s prose in When I Am Dead from several books, including Raindrop, and Stories, Old and New. Noting that these stories were never written for hearing readers, Luczak marvels at Teegarden’s ability to write English prose that the ASL-familiar reader would find incredibly easy to transliterate. By employing a rich blend of original stories and revisions of fables and myths, Teegarden taught his students the importance of improving their reading and writing skills to outfit them “for the battle of life.” He produced a body of work that Luczak characterizes as “a breath of fresh air: quick, painless, and usually told with a sense of wonder.”
Luczak’s choice of poems came from Teegarden’s self-published volume Vagrant Verses, a summation of his affection for Gallaudet College, the Deaf community, and all deaf people. The eponymous poem “When I Am Dead” articulates concisely the beliefs that directed Teegarden’s life of service:
“When I am dead, I hope to be
Remembered—this is true—
Not for my wit or vanities
But what I did for you.”
Born almost totally deaf, Philip Zazove has spent his entire life beating the odds first by excelling in public schools during an era when most deaf children went to special schools, then by aspiring to become a medical doctor. When the Phone Rings, My Bed Shakes is the remarkable story of his determination and achievement in realizing his dreams.
Despite his stellar record at Northwestern University, Zazove was rejected by a host of medical schools. This only caused him to press harder, which won him acceptance at Rutgers University. He transferred to Washington University in St. Louis where, again against all advice, he decided to specialize in family practice. In vignettes of his patients, some amusing, others moving, he reveals the dedication and humanity that have made him a respected and well-loved doctor. His story will inspire all who read it.
Women with disabilities are women first, sharing the dreams and disappointments common to women in a male-dominated society. But because society persists in viewing disability as an emblem of passivity and incompetence, disabled women occupy a devalued status in the social hierarchy. This book represents the intersection of the feminist and disability rights perspectives; it analyzes the forces that push disabled women towards the margins of social life, and it considers the resources that enable these women to resist the stereotype.
Drawing on law, social science, folklore, literature, psychoanalytic theory, and political activism, this book describes the experience of women with disabilities. The essays consider the impact of social class, race, the age at which disability occurs, and sexual orientation on the disabled woman's self esteem as well as on her life options. The contributors focus their inquiry on the self perceptions of disabled women and ask: From what sources do these women draw positive self images? How do they resist the culture's power to label them as deviant? The essays describe the ways in which disabled women face discrimination in the workplace and the failure of the mainstream women's movement to address their concerns.
During the Rubella Syndrome epidemic of the 1960s, many children were born deaf, blind, and mentally disabled. David Goode has devoted his life and career to understanding such people's world, a world without words, but not, the author confirms, one without communication. This book is the result of his studies of two children with congenital deaf-blindness and mental retardation.
Goode spent countless hours observing, teaching, and playing with Christina, who had been institutionalized since age six, and Bianca, who remained in the care of her parents. He also observed the girls' parents, school, and medical environments, exploring the unique communication practices—sometimes so subtle they are imperceptible to outsiders—that family and health care workers create to facilitate innumerable every day situations. A World Without Words presents moving and convincing evidence that human beings both with and without formal language can understand and communicate with each other in many ways.
Through various experiments in such unconventional forms of communication as playing guitar, mimicking, and body movements like jumping, swinging, and rocking, Goode established an understanding of these children on their own terms. He discovered a spectrum of non-formal language through which these children create their own set of symbols within their own reality, and accommodate and maximize the sensory resources they do have. Ultimately, he suggests, it is impractical to attempt to interpret these children's behaviors using ideas about normal behavior of the hearing and seeing world.
The improbable and powerful true story of a single mother with prosthetics for both legs who travels the globe with her young daughter in a Land Rover.
“A harrowing memoir. . . . Readers may not want to follow in [Shinn’s] footsteps, but they will never be bored with her as a companion.” —Kirkus Reviews
The Wounds That Bind Us is the improbable true story of Kelley Shinn, an orphan at birth who loses her legs at the age of sixteen to a rare bacterial pathogen. She becomes an avid off-road racer and, as a single mother, attempts to drive around the globe in a Land Rover with her three-year-old daughter in tow to bring light to the plight of land mine survivors. With unflinching honesty, exceptional lyricism, and biting humor, Shinn (“that’s two Ns and no shins”) takes readers on a wild journey—literal and emotional—filled with striking characters and landscapes, heartbreaks, and hard-won insights, ultimately arriving at a place of profound redemption.
Told with the energy and intensity of the adventure story it is, this terrifically rich and nuanced examination of a life is also a careful meditation on renewal—a remapping of the world. Guided by the narrator’s keen introspection and her ability to look resolutely at harrowing sorrows and still find hope, joy, and meaning, The Wounds That Bind Us will resonate deeply, long after the last page.
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