245 books about People with Disabilities and 21
start with A
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Ableism in Academia: Theorising Experiences of Disabilities and Chronic Illnesses in Higher Education
Edited by Nicole Brown and Jennifer Leigh
University College London, 2020
Rather than embracing difference, academic ecosystems seek to normalize and homogenize ways of working and of being a researcher. As a consequence, ableism is an endemic experience in academia, though to date no attempt has been made to theorize those experiences. Ableism in Academia provides an interdisciplinary outlook on ableism that is currently missing. Through reporting of research data and exploring personal experiences, the contributors explore the concept of what it means to be and to work outside the so-called norm.
The volume brings together a range of perspectives, including feminism, post-structuralism, Derridean and Foucauldian theory, crip theory, and disability theory, and draws on a number of related disciplines. Contributors use various schools of theory to raise awareness and increase understanding of the marginalized. These theories are placed in the context of neoliberal academia, and used to interrogate aspects of identity and how disability is performed, and to argue that ableism is not just a disability issue. This timely collection will be of interest to researchers in disability studies, higher education studies, and sociology, as well as to those working across the social sciences.
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Accessibility & Publishing
Stephanie S. Rosen
Against the Grain, LLC, 2018
Accessibility is about equitable access to resources for all people, regardless of physical ability. Scholarly publishing is about quality and impact — quality of content and impact of research.
Accessibility & Publishing addresses the intersections between scholarly publishing and equitable access for users. This briefing explores how the practices that promote accessibility in publishing can also advance — and potentially transform — publishing itself.
This briefing traces the diversity of activities that currently go into making publications accessible to readers with print disabilities — from retroactive conversion of print into braille and recorded sound, to the more radical incorporation of accessibility standards directly into digital publishing platforms. As scholarly communication is transformed by the shift to digital publishing, building accessible practices directly into the flow of publishing has the potential to become the industry norm.
Accessibility & Publishing offers an essential orientation to a complex landscape for anyone interested in the scholarly publishing ecosystem.
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Accessible Citizenships: Disability, Nation, and the Cultural Politics of Greater Mexico
Julie Avril Minich
Temple University Press, 2013
Library of Congress PS153.M4M56 2014 | Dewey Decimal 810.986872
Accessible Citizenships examines Chicana/o cultural representations that conceptualize political community through images of disability. Working against the assumption that disability is a metaphor for social decay or political crisis, Julie Avril Minich analyzes literature, film, and visual art post-1980 in which representations of non-normative bodies work to expand our understanding of what it means to belong to a political community.
Minich shows how queer writers like Arturo Islas and Cherríe Moraga have reconceptualized Chicano nationalism through disability images. She further addresses how the U.S.-Mexico border and disabled bodies restrict freedom and movement. Finally, she confronts the changing role of the nation-state in the face of neoliberalism as depicted in novels by Ana Castillo and Cecile Pineda.
Accessible Citizenships illustrates how these works gesture towards less exclusionary forms of citizenship and nationalism. Minich boldly argues that the corporeal images used to depict national belonging have important consequences for how the rights and benefits of citizenship are understood and distributed.
A volume in the American Literatures Initiative
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The Accidental Teacher: Life Lessons from My Silent Son
Annie Lubliner Lehmann
University of Michigan Press, 2009
Library of Congress RC553.A88L445 2009 | Dewey Decimal 616.858820092
"Jonah Lehmann is an accidental teacher of others, including his family and friends. This personal and touching account of Jonah's life is enlightening, especially to those coming to terms with similar challenges with autism and other cognitive disabilities. It was written with love to support research on autism, and I recommend it to anyone and everyone touched by those of us who are different."
---Patricia E. Kefalas Dudek, Legal Advocate for People with Disabilities
"I have never read a book about a disabled person that caught me from page one. I could not put this one down. Lehmann offers a profound perspective on living with the reality of a severely disabled child. This book will be required reading for students who take my class in Special Education Administration."
---Frances LaPlante-Sosnowsky, Associate Professor of Education at Wayne State University
"A story of the astonishing power of human love and family triumph over hardship. Lehmann's story, engaging and at times both heartbreaking and joyful, offers an intimate view of one mother's journey as she works with professionals and a blur of caregivers to assist the ever-changing needs of her son. I highly recommend it to seasoned professionals in the field of autism and students preparing for careers in special education."
---Janet E. Graetz, Assistant Professor of Human Development and Child Studies at Oakland University
A child teaches without intending to . . .
Having severe autism does not stop Annie Lehmann's son Jonah from teaching her some of life's most valuable lessons. The Accidental Teacher, a heartfelt memoir about self-discovery rather than illness, uses insight and humor to weave a tale rich with kitchen-table wisdom. It explains the realities of life with a largely nonverbal son and explores the frustrations and triumphs of the Lehmann family as Jonah grew into a young adult. This book is a must-read for anyone who has been personally touched by a major life challenge.
Annie Lubliner Lehmann, a freelance writer for more than twenty-five years, has published articles in many newspapers and magazines, including the New York Times and Detroit Free Press. She resides in Michigan with her husband and two of her three children. Her eldest son, who inspired this memoir, is now a young adult with autism who lives in a supervised home.
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Acts of Conspicuous Compassion: Performance Culture and American Charity Practices
Sheila C. Moeschen
University of Michigan Press, 2016
Library of Congress PN2226.M56 2013 | Dewey Decimal 792.0973
Charity has been a pervasive and influential concept in American culture, and has also served an important ideological purpose, helping people articulate their sense of individual and national identity. But what, exactly, compels our benevolence? In a social moment when countless worthy causes and deserving groups clamor for attention, it is worth examining how our culture generates the exchange of sympathy commonly experienced as “charity.” Acts of Conspicuous Compassion investigates the historical and continuing relationship between performance culture and the cultivation of charitable sentiment, exploring the distinctive practices that have evolved to make the plea for charity legible and compelling. From the work of 19th-century melodramas to the televised drama of transformation and redemption in reality TV’s Extreme Makeover: Home Edition, the book charts the sophisticated strategies that various charity movements have employed to make organized benevolence seem attractive, exciting, and seemingly uncomplicated.
Sheila C. Moeschen sheds new light on the legacy and involvement of disabled people within charity—specifically, the articulation of performance culture as a vital theoretical framework for discussing issues of embodiment and identity, a framework that dislodges previously held notions of the disabled existing as passive “objects” of pity. This work gives rise to a more complicated and nuanced discussion of the participation of the disabled community in the charity industry, of the opportunities afforded by performance culture for disabled people to act as critical agents of charity, and of the new ethical and political issues that arise from employing performance methodology in a culture with increased appetites for voyeurism, display, and complex spectacle.
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Adventures of a Deaf-Mute and Other Short Pieces
William B. Swett
Gallaudet University Press, 2017
Library of Congress HV2534.S94S94 2017 | Dewey Decimal 362.41092
In Adventures of a Deaf-Mute, Deaf New Englander William B. Swett recounts his adventures in the White Mountains of New Hampshire in the late 1860s. Given to us in short, energetic episodes, Swett tells daring stories of narrow escapes from death and other perilous experiences during his time as a handyman and guide at the Profile House, a hotel named for the nearby Old Man of the Mountain rock formation. A popular destination, the hotel attracted myriad guests, and Swett’s tales of rugged endurance are accompanied by keen observations of the people he meets.
Confident in his identity as a Deaf “mute,” he notes with wry humor the varied perceptions of deafness that he encounters. As a signing Deaf person from a prominent multigenerational Deaf family, he counters negative stereotypes with generosity and a smart wit. He takes pride in his physical abilities, which he showcases through various stunts and arduous treks in the wilderness. However, Swett’s writing also reveals a deep awareness of the fragility and precariousness of life. This is a portrait of a man testing his physical and emotional limits, written from the vantage point of someone who is no longer a young man but is still very much in the prime of his life.
This collection also includes “Mr. Swett and His Diorama,” an article from 1859 in which Swett describes his miniature recreation of the Battle of Lexington, as well as Manual Alphabets, a pamphlet published in 1875 on the history of manual alphabets that includes short biographies of Thomas Hopkins Gallaudet and Laurent Clerc, two pioneers of Deaf education in the United States. The work is accompanied by a new introduction that offers a reflection on Swett’s life and the time in which he lived.
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After War: The Weight of Life at Walter Reed
Zoë H. Wool
Duke University Press, 2015
Library of Congress UH463.W84 2015
In After War Zoë H. Wool explores how the American soldiers most severely injured in the Iraq and Afghanistan wars struggle to build some kind of ordinary life while recovering at Walter Reed Army Medical Center from grievous injuries like lost limbs and traumatic brain injury. Between 2007 and 2008, Wool spent time with many of these mostly male soldiers and their families and loved ones in an effort to understand what it's like to be blown up and then pulled toward an ideal and ordinary civilian life in a place where the possibilities of such a life are called into question. Contextualizing these soldiers within a broader political and moral framework, Wool considers the soldier body as a historically, politically, and morally laden national icon of normative masculinity. She shows how injury, disability, and the reality of soldiers' experiences and lives unsettle this icon and disrupt the all-too-common narrative of the heroic wounded veteran as the embodiment of patriotic self-sacrifice. For these soldiers, the uncanny ordinariness of seemingly extraordinary everyday circumstances and practices at Walter Reed create a reality that will never be normal.
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Allies and Obstacles: Disability Activism and Parents of Children with Disabilities
Allison C. Carey, Pamela Block, and Richard K. Scotch
Temple University Press, 2020
Library of Congress HQ759.913 | Dewey Decimal 649.15
Parents of children with disabilities often situate their activism as a means of improving the world for their child. However, some disabled activists perceive parental activism as working against the independence and dignity of people with disabilities. This thorny relationship is at the heart of the groundbreaking Allies and Obstacles.
The authors chronicle parents’ path-breaking advocacy in arenas such as the right to education and to liberty via deinstitutionalization as well as how they engaged in legal and political advocacy. Allies and Obstacles provides a macro analysis of parent activism using a social movement perspective to reveal and analyze the complex—and often tense—relationship of parents to disability rights organizations and activism.
The authors look at organizational and individual narratives using four case studies that focus on intellectual disability, psychiatric diagnoses, autism, and a broad range of physical disabilities including cerebral palsy and muscular dystrophy. These cases explore the specific ways in which activism developed among parents and people with disabilities, as well as the points of alliance and the key points of contestation. Ultimately, Allies and Obstacles develops new insights into disability activism, policy, and the family.
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Alone in the Mainstream: A Deaf Woman Remembers Public School
Gina A. Oliva
Gallaudet University Press, 2004
Library of Congress HV2534.O55A3 2004 | Dewey Decimal 371.912092
When Gina Oliva first went to school in 1955, she didn’t know that she was “different.” If the kindergarten teacher played a tune on the piano to signal the next exercise, Oliva didn’t react because she couldn’t hear the music. So began her journey as a “solitary,” her term for being the only deaf child in the entire school. Gina felt alone because she couldn’t communicate easily with her classmates, but also because none of them had a hearing loss like hers. It wasn’t until years later at Gallaudet University that she discovered that she wasn’t alone and that her experience was common among mainstreamed deaf students. Alone in the Mainstream recounts Oliva’s story, as well as those of many other solitaries.
In writing this important book, Oliva combined her personal experiences with responses from the Solitary Mainstream Project, a survey that she conducted of deaf and hard of hearing adults who attended public school. Oliva matched her findings with current research on deaf students in public schools and confirmed that hearing teachers are ill-prepared to teach deaf pupils, they don’t know much about hearing loss, and they frequently underestimate deaf children. The collected memories in Alone in the Mainstream add emotional weight to the conviction that students need to be able to communicate freely, and they also need peers to know they are not alone.
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American Lobotomy: A Rhetorical History
Jenell Johnson
University of Michigan Press, 2016
Library of Congress RD594 | Dewey Decimal 617.481
American Lobotomy studies a wide variety of representations of lobotomy to offer a rhetorical history of one of the most infamous procedures in the history of medicine. The development of lobotomy in 1935 was heralded as a “miracle cure” that would empty the nation’s perennially blighted asylums. However, only twenty years later, lobotomists initially praised for their “therapeutic courage” were condemned for their barbarity, an image that has only soured in subsequent decades. Johnson employs previously abandoned texts like science fiction, horror film, political polemics, and conspiracy theory to show how lobotomy’s entanglement with social and political narratives contributed to a powerful image of the operation that persists to this day. The book provocatively challenges the history of medicine, arguing that rhetorical history is crucial to understanding medical history. It offers a case study of how medicine accumulates meaning as it circulates in public culture and argues for the need to understand biomedicine as a culturally situated practice.
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American Sign Language and Early Literacy: A Model Parent-Child Program
Kristin Snoddon
Gallaudet University Press, 2012
Library of Congress HV2476.4.S66 2012 | Dewey Decimal 371.91246
The usual definition of the term “literacy” generally corresponds with mastering the reading and writing of a spoken language. This narrow scope often engenders unsubstantiated claims that print literacy alone leads to, among other so-called higher-order thinking skills, logical and rational thinking and the abstract use of language. Thus, the importance of literacy for deaf children in American Sign Language (ASL) is marginalized, asserts author Kristin Snoddon in her new book American Sign Language and Early Literacy: A Model Parent-Child Program. As a contrast, Snoddon describes conducting an ethnographic, action study of the ASL Parent-Child Mother Goose program, provided by a Deaf service agency in Ontario, Canada to teach ASL literacy to deaf children.
According to current scholarship, literacy is achieved through primary discourse shared with parents and other intimates, which establishes a child’s initial sense of identity, culture, and vernacular language. Secondary discourse derives from outside agents and interaction, such as expanding an individual’s literacy to other languages. Snoddon writes that the focus of the ASL Parent-Child Mother Goose program is on teaching ASL through rhymes and stories and some facets of the culture of Deaf ASL users. This focus enabled hearing parents to impart first-language acquisition and socialization to their deaf children in a more natural primary discourse as if the parents were Deaf themselves. At the same time, hearing parents experience secondary discourses through their exposure to ASL and Deaf culture.
Snoddon also comments on current infant hearing screening and early intervention and the gaps in these services. She discusses gatekeeper individuals and institutions that restrict access to ASL for young Deaf children and their families. Finally, she reports on public resources for supporting ASL literacy and the implications of her findings regarding the benefits of early ASL literacy programming for Deaf children and their families.
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Amy Signs: A Mother, Her Deaf Daughter, and Their Stories
Rebecca Willman Gernon
Gallaudet University Press, 2012
Library of Congress HV2391.G47 2012 | Dewey Decimal 362.420922
“Thirty-seven years ago, I vowed to write a truthful book about raising a deaf child.” Rebecca Willman Gernon followed through on her promise with her deaf daughter Amy Willman in this extraordinary new narrative. Many stories have been told about a parent’s struggle to help her deaf child succeed in a mostly hearing world. Amy Signs marks a signature departure in that both Rebecca and Amy relate their perspectives on their journey together.
When she learns of 11-month-old Amy’s deafness in 1969, Rebecca fully expresses her anguish, and traces all of the difficulties she endured in trying to find the right educational environment for Amy. The sacrifices of the rest of her family weighed heavily on her, also. Though she resolved to place four-year-old Amy in Nebraska’s residential school for deaf students, the emotional toll seemed too much to bear.
Amy’s view acts as the perfect counterpoint. Interwoven with her mother’s story, Amy’s account confirms that signing served her best. She summarizes life in boarding school as “laughter and homesickness.” She laughed with all of her deaf friends, though felt homesick at times. Amy thanks her mother for the gift of sign, asserting that a mainstream education would never have led her to earn a master’s degree and later teach American Sign Language at the University of Nebraska. Amy Signs is a positive albeit cautionary tale for parents of deaf children today whose only choice is a mainstreamed education.
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And No Birds Sing
Pauline Leader
Gallaudet University Press, 2016
Library of Congress PS3523.E124Z46 2016 | Dewey Decimal 813.52
Originally published in 1931, this memoir offers an unflinching look at the life of a deaf woman struggling with poverty and isolation in the bohemian enclave of Greenwich Village. In harrowing yet lyrical prose, Pauline Leader recounts her experience growing up as the daughter of Jewish immigrants in a small New England mill town. Born in 1908, Leader was exposed to frequent verbal and physical abuse. She became deaf at the age of 12, following a long illness. As a teenager, she ran away to New York City, where she found work in factories and sweatshops, and spent time in a home for “wayward girls.” As she sought community among the artists and eccentrics of the Village, Leader’s strong will and fierce independence were often thwarted by hardship and self-doubt. But through it all she found solace in her writing.
This edition is accompanied by a new introduction and afterword that provide a scholarly framework for understanding Leader and her times. She persevered and became a published poet and novelist, often drawing on the experiences offered up here. Compelling and evocative, And No Birds Sing deftly reveals a complex, intelligent spirit toiling in a brutal world.
From the book:
I insisted to myself that I could still hear. I heard in my mind the sounds of streams as I passed them. I knew the sound the river made, that river that I had known always, the river by the marble house. In my mind the river washed with a low intimate sound. I had no need to hear as the people heard. True intimacy needs no ears. I knew the sound of birds; I heard them as they hopped about. I knew the sound of words also. It was words that I most intensely heard. I had not always the river and the birds—they appeared far away at times. I did not always want river and birds, but I always wanted words, and I always had them. I would have been terribly lonely without them. With them always in my mind, I could not be truly lonely. I played with them; I set them to music; I achieved endless variations with them. They were never weary, as other things could sometimes be weary.
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Aquamarine Blue 5: Personal Stories of College Students with Autism
Dawn Prince-Hughes
Ohio University Press, 2002
Library of Congress LC4717.5.A7 2002 | Dewey Decimal 371.94
Rated Outstanding by the American Association of School Libraries
This is the first book to be written by autistic college students about the challenges they face. Aquamarine Blue 5 details the struggle of these highly sensitive students and shows that there are gifts specific to autistic students that enrich the university system, scholarship, and the world as a whole.
Dawn Prince-Hughes presents an array of writings by students who have been diagnosed with Asperger’s Syndrome or High-Functioning Autism, showing their unique ways of looking at and solving problems. In their own words, they portray how their divergent thinking skills could be put to great use if they were given an opportunity. Many such students never get the chance because the same sensitivity that gives them these insights makes the flicker of fluorescent lights and the sound of chalk on the board unbearable For simple—and easily remedied—reasons, we lose these students, who are as gifted as they are challenged.
Aquamarine Blue 5 is a showcase of the strength and resilient character of individuals with Asperger’s Syndrome. It will be an invaluable resource for those touched by this syndrome, their friends and families, and school administrators.
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Are You Two Sisters?
Susan Krieger
Temple University Press, 2022
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The Art of Being Deaf: A Memoir
Donna McDonald
Gallaudet University Press, 2014
Library of Congress HV2943.M33A3 2014 | Dewey Decimal 362.42092
Concerned about aspects of her romantic relationships, Donna McDonald consulted with a psychologist who asked, “Your hearing loss must have had a big impact on you?” At age 45, with a successful career in social work policy, McDonald took umbrage at the question. Then, she realized that she never had addressed the personal barrier she had constructed between her deaf-self and her hearing persona. In The Art of Being Deaf, she describes her long, arduous pursuit of finding out exactly who she was.
Born in 1950s Australia, McDonald was placed in an oral deaf school when she was five. There, she was trained to communicate only in spoken English. Afterwards, she attended mainstream schools where she excelled with speechreading and hard work. Her determination led to achievements that proved her to be “the deaf girl that had made good.” Yet, despite her constant focus on fitting in the hearing world, McDonald soon realized that she missed her deaf schoolmates and desired to explore her closed-off feelings about being deaf.
When she reconnected with her friends, one urged her to write about her experiences to tell all about “the Forgotten Generation, the orally-raised deaf kids that no one wants to talk about.” In writing her memoir, McDonald did learn to reconcile her deaf-self with her “hearing-deaf” persona, and she realized that the art of being deaf is the art of life, the art of love.
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Assessing Deaf Adults: Critical Issues in Testing and Evaluation
Judith L. Mounty
Gallaudet University Press, 2005
Library of Congress HV2395.A77 2005 | Dewey Decimal 153.930872
Historically, deaf and hard of hearing people have demonstrated various levels of competence in a multitude of professions, but they also have experienced discrimination and oppression. In five critical sections, this volume responds to the tidal wave of high-stakes testing that has come to dominate educational policy and qualification for various occupations. It provides a digest of relevant research to meet the testing challenge, including work done by educational researchers, legal experts, test developers, and others.
Section I frames the contexts facing deaf and hard of hearing individuals and those who test them, including a telling historical perspective. In Section II, chapters explore how deaf and hard of hearing candidates can meet the rigors of test-taking, how to level the playing field with a new approach to assessment, and what to consider to develop fully accessible licensing tests. The final chapter in this part examines the psychometric properties of intellectual assessments when used with deaf and hard of hearing people. Administrative Issues constitute Section III, beginning with legal considerations related to equity testing for deaf adults. An exploration of the potential of sign language interpretation in the testing environment follows.
Section IV provides case studies of deaf and hard of hearing adults from a variety of professions, including certification testing for therapeutic recreation, preparation strategies for university students, and ways to maximize access to licensure for social workers. A separate chapter addresses the impact of recent federal mandates on assessment of deaf and hard of hearing teachers and teaching candidates. The final section summarizes the current situation and presents recommendations to manage it, concluding with an epilogue on directions for the future.
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Attachments to War: Biomedical Logics and Violence in Twenty-First-Century America
Jennifer Terry
Duke University Press, 2017
Library of Congress E897.T47 2017
In Attachments to War Jennifer Terry traces how biomedical logics entangle Americans in a perpetual state of war. Focusing on the Afghanistan and Iraq wars between 2002 and 2014, Terry identifies the presence of a biomedicine-war nexus in which new forms of wounding provoke the continual development of complex treatment, rehabilitation, and prosthetic technologies. At the same time, the U.S. military rationalizes violence and military occupation as necessary conditions for advancing medical knowledge and saving lives. Terry examines the treatment of war-generated polytrauma, postinjury bionic prosthetics design, and the development of defenses against infectious pathogens, showing how the interdependence between war and biomedicine is interwoven with neoliberal ideals of freedom, democracy, and prosperity. She also outlines the ways in which military-sponsored biomedicine relies on racialized logics that devalue the lives of Afghan and Iraqi citizens and U.S. veterans of color. Uncovering the mechanisms that attach all Americans to war and highlighting their embeddedness and institutionalization in everyday life via the government, media, biotechnology, finance, and higher education, Terry helps lay the foundation for a more meaningful opposition to war.
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Authoring Autism: On Rhetoric and Neurological Queerness
Melanie Yergeau
Duke University Press, 2018
Library of Congress RC553.A88Y474 2017
In Authoring Autism Melanie Yergeau defines neurodivergence as an identity—neuroqueerness—rather than an impairment. Using a queer theory framework, Yergeau notes the stereotypes that deny autistic people their humanity and the chance to define themselves while also challenging cognitive studies scholarship and its reification of the neurological passivity of autistics. She also critiques early intensive behavioral interventions—which have much in common with gay conversion therapy—and questions the ableist privileging of intentionality and diplomacy in rhetorical traditions. Using storying as her method, she presents an alternative view of autistic rhetoricity by foregrounding the cunning rhetorical abilities of autistics and by framing autism as a narrative condition wherein autistics are the best-equipped people to define their experience. Contending that autism represents a queer way of being that simultaneously embraces and rejects the rhetorical, Yergeau shows how autistic people queer the lines of rhetoric, humanity, and agency. In so doing, she demonstrates how an autistic rhetoric requires the reconceptualization of rhetoric’s very essence.
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Autistic Disturbances: Theorizing Autism Poetics from the DSM to Robinson Crusoe
Julia Miele Rodas
University of Michigan Press, 2018
Library of Congress PR756.A7R63 2018 | Dewey Decimal 820.93561
While research on autism has sometimes focused on special talents or abilities, autism is typically characterized as impoverished or defective when it comes to language. Autistic Disturbances reveals the ways interpreters have failed to register the real creative valence of autistic language and offers a theoretical framework for understanding the distinctive aesthetics of autistic rhetoric and semiotics. Reinterpreting characteristic autistic verbal practices such as repetition in the context of a more widely respected literary canon, Julia Miele Rodas argues that autistic language is actually an essential part of mainstream literary aesthetics, visible in poetry by Walt Whitman and Gertrude Stein, in novels by Charlotte Brontë and Daniel Defoe, in life writing by Andy Warhol, and even in writing by figures from popular culture.
Autistic Disturbances pursues these resonances and explores the tensions of language and culture that lead to the classification of some verbal expression as disordered while other, similar expression enjoys prized status as literature. It identifies the most characteristic patterns of autistic expression-repetition, monologue, ejaculation, verbal ordering or list-making, and neologism-and adopts new language to describe and reimagine these categories in aesthetically productive terms. In so doing, the book seeks to redress the place of verbal autistic language, to argue for the value and complexity of autistic ways of speaking, and to invite recognition of an obscured tradition of literary autism at the very center of Anglo-American text culture.
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Autistic Intelligence: Interaction, Individuality, and the Challenges of Diagnosis
Douglas W. Maynard and Jason Turowetz
University of Chicago Press
Examines the diagnostic process to question how we understand autism as a category and to better recognize its intelligence and uncommon sense.
As autism has become a widely prevalent diagnosis, we have grown increasingly desperate to understand it. Whether by placing baseless blame on vaccinations or seeking a genetic cause, Americans have struggled to understand what autism is and where it comes from. In Autistic Intelligence, Douglas W. Maynard and Jason Turowetz focus on a different origin of autism: the diagnostic process. By looking at how autism is diagnosed, they ask us to question the norms we use to measure autistic behavior against, why we understand autistic behavior as disordered, and how we go about assigning that disorder to particular people.
To do so, the authors take a close look at a clinic in which children are assessed for and diagnosed with autism. Their research draws on hours observing assessment evaluations among psychologists, pediatricians, parents, and children in order to make plain the systems, language, and categories that clinicians rely upon when making their assessments. Those diagnostic tools determine the kind of information doctors can gather about children, and indeed, those assessments affect how children act. Autistic Intelligence shows that autism is not a stable category, but the result of an interpretive act, and in the process of diagnosing children with autism, we often miss all of the unique contributions they make to the world around them.
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