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Ableism in Academia
Theorising Experiences of Disabilities and Chronic Illnesses in Higher Education
Edited by Nicole Brown and Jennifer Leigh
University College London, 2020
Rather than embracing difference, academic ecosystems seek to normalize and homogenize ways of working and of being a researcher. As a consequence, ableism is an endemic experience in academia, though to date no attempt has been made to theorize those experiences. Ableism in Academia provides an interdisciplinary outlook on ableism that is currently missing. Through reporting of research data and exploring personal experiences, the contributors explore the concept of what it means to be and to work outside the so-called norm.
 
The volume brings together a range of perspectives, including feminism, post-structuralism, Derridean and Foucauldian theory, crip theory, and disability theory, and draws on a number of related disciplines. Contributors use various schools of theory to raise awareness and increase understanding of the marginalized. These theories are placed in the context of neoliberal academia, and used to interrogate aspects of identity and how disability is performed, and to argue that ableism is not just a disability issue. This timely collection will be of interest to researchers in disability studies, higher education studies, and sociology, as well as to those working across the social sciences.
 
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Academic Ableism
Disability and Higher Education
Jay Timothy Dolmage
University of Michigan Press, 2017
Academic Ableism brings together disability studies and institutional critique to recognize the ways that disability is composed in and by higher education, and rewrites the spaces, times, and economies of disability in higher education to place disability front and center. For too long, argues Jay Timothy Dolmage, disability has been constructed as the antithesis of higher education, often positioned as a distraction, a drain, a problem to be solved. The ethic of higher education encourages students and teachers alike to accentuate ability, valorize perfection, and stigmatize anything that hints at intellectual, mental, or physical weakness, even as we gesture toward the value of diversity and innovation. Examining everything from campus accommodation processes, to architecture, to popular films about college life, Dolmage argues that disability is central to higher education, and that building more inclusive schools allows better education for all.
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Academic Ableism
Disability and Higher Education
Jay Timothy Dolmage
University of Michigan Press, 2017
Academic Ableism brings together disability studies and institutional critique to recognize the ways that disability is composed in and by higher education, and rewrites the spaces, times, and economies of disability in higher education to place disability front and center. For too long, argues Jay Timothy Dolmage, disability has been constructed as the antithesis of higher education, often positioned as a distraction, a drain, a problem to be solved. The ethic of higher education encourages students and teachers alike to accentuate ability, valorize perfection, and stigmatize anything that hints at intellectual, mental, or physical weakness, even as we gesture toward the value of diversity and innovation. Examining everything from campus accommodation processes, to architecture, to popular films about college life, Dolmage argues that disability is central to higher education, and that building more inclusive schools allows better education for all.
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Accessibility & Publishing
Stephanie S. Rosen
Against the Grain, LLC, 2018

Accessibility is about equitable access to resources for all people, regardless of physical ability. Scholarly publishing is about quality and impact — quality of content and impact of research.

Accessibility & Publishing addresses the intersections between scholarly publishing and equitable access for users. This briefing explores how the practices that promote accessibility in publishing can also advance — and potentially transform — publishing itself.

This briefing traces the diversity of activities that currently go into making publications accessible to readers with print disabilities — from retroactive conversion of print into braille and recorded sound, to the more radical incorporation of accessibility standards directly into digital publishing platforms. As scholarly communication is transformed by the shift to digital publishing, building accessible practices directly into the flow of publishing has the potential to become the industry norm.

Accessibility & Publishing offers an essential orientation to a complex landscape for anyone interested in the scholarly publishing ecosystem.

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Accessible Citizenships
Disability, Nation, and the Cultural Politics of Greater Mexico
Julie Avril Minich
Temple University Press, 2013
Accessible Citizenships examines Chicana/o cultural representations that conceptualize political community through images of disability. Working against the assumption that disability is a metaphor for social decay or political crisis, Julie Avril Minich analyzes literature, film, and visual art post-1980 in which representations of non-normative bodies work to expand our understanding of what it means to belong to a political community.
 
Minich shows how queer writers like Arturo Islas and Cherríe Moraga have reconceptualized Chicano nationalism through disability images. She further addresses how the U.S.-Mexico border and disabled bodies restrict freedom and movement. Finally, she confronts the changing role of the nation-state in the face of neoliberalism as depicted in novels by Ana Castillo and Cecile Pineda. 
 
Accessible Citizenships illustrates how these works gesture towards less exclusionary forms of citizenship and nationalism. Minich boldly argues that the corporeal images used to depict national belonging have important consequences for how the rights and benefits of citizenship are understood and distributed.

A volume in the American Literatures Initiative
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The Accidental Teacher
Life Lessons from My Silent Son
Annie Lubliner Lehmann
University of Michigan Press, 2009

"Jonah Lehmann is an accidental teacher of others, including his family and friends. This personal and touching account of Jonah's life is enlightening, especially to those coming to terms with similar challenges with autism and other cognitive disabilities. It was written with love to support research on autism, and I recommend it to anyone and everyone touched by those of us who are different."
---Patricia E. Kefalas Dudek, Legal Advocate for People with Disabilities

"I have never read a book about a disabled person that caught me from page one. I could not put this one down. Lehmann offers a profound perspective on living with the reality of a severely disabled child. This book will be required reading for students who take my class in Special Education Administration."
---Frances LaPlante-Sosnowsky, Associate Professor of Education at Wayne State University

"A story of the astonishing power of human love and family triumph over hardship. Lehmann's story, engaging and at times both heartbreaking and joyful, offers an intimate view of one mother's journey as she works with professionals and a blur of caregivers to assist the ever-changing needs of her son. I highly recommend it to seasoned professionals in the field of autism and students preparing for careers in special education."
---Janet E. Graetz, Assistant Professor of Human Development and Child Studies at Oakland University

A child teaches without intending to . . .
Having severe autism does not stop Annie Lehmann's son Jonah from teaching her some of life's most valuable lessons. The Accidental Teacher, a heartfelt memoir about self-discovery rather than illness, uses insight and humor to weave a tale rich with kitchen-table wisdom. It explains the realities of life with a largely nonverbal son and explores the frustrations and triumphs of the Lehmann family as Jonah grew into a young adult. This book is a must-read for anyone who has been personally touched by a major life challenge.

Annie Lubliner Lehmann, a freelance writer for more than twenty-five years, has published articles in many newspapers and magazines, including the New York Times and Detroit Free Press. She resides in Michigan with her husband and two of her three children. Her eldest son, who inspired this memoir, is now a young adult with autism who lives in a supervised home.

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Activist Affordances
How Disabled People Improvise More Habitable Worlds
Arseli Dokumaci
Duke University Press, 2023
For people who are living with disability, including various forms of chronic diseases and chronic pain, daily tasks like lifting a glass of water or taking off clothes can be difficult if not impossible. In Activist Affordances, Arseli Dokumacı draws on ethnographic work with differently disabled people whose ingenuity, labor, and artfulness allow them to achieve these seemingly simple tasks. Dokumacı shows how they use improvisation to imagine and bring into being more habitable worlds through the smallest of actions and the most fleeting of movements---what she calls “activist affordances.” Even as an environment shrinks to a set of constraints rather than opportunities, the improvisatory space of performance opens up to allow disabled people to imagine that same environment otherwise. Dokumacı shows how disabled people’s activist affordances present the potential for a more liveable and accessible world for all of us.
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Acts of Conspicuous Compassion
Performance Culture and American Charity Practices
Sheila C. Moeschen
University of Michigan Press, 2016
Charity has been a pervasive and influential concept in American culture, and has also served an important ideological purpose, helping people articulate their sense of individual and national identity. But what, exactly, compels our benevolence? In a social moment when countless worthy causes and deserving groups clamor for attention, it is worth examining how our culture generates the exchange of sympathy commonly experienced as “charity.”  Acts of Conspicuous Compassion investigates the historical and continuing relationship between performance culture and the cultivation of charitable sentiment, exploring the distinctive practices that have evolved to make the plea for charity legible and compelling. From the work of 19th-century melodramas to the televised drama of transformation and redemption in reality TV’s Extreme Makeover: Home Edition, the book charts the sophisticated strategies that various charity movements have employed to make organized benevolence seem attractive, exciting, and seemingly uncomplicated.

Sheila C. Moeschen sheds new light on the legacy and involvement of disabled people within charity—specifically, the articulation of performance culture as a vital theoretical framework for discussing issues of embodiment and identity, a framework that dislodges previously held notions of the disabled existing as passive “objects” of pity. This work gives rise to a more complicated and nuanced discussion of the participation of the disabled community in the charity industry, of the opportunities afforded by performance culture for disabled people to act as critical agents of charity, and of the new ethical and political issues that arise from employing performance methodology in a culture with increased appetites for voyeurism, display, and complex spectacle.
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Adventures of a Deaf-Mute and Other Short Pieces
William B. Swett
Gallaudet University Press, 2017
In Adventures of a Deaf-Mute, Deaf New Englander William B. Swett recounts his adventures in the White Mountains of New Hampshire in the late 1860s. Given to us in short, energetic episodes, Swett tells daring stories of narrow escapes from death and other perilous experiences during his time as a handyman and guide at the Profile House, a hotel named for the nearby Old Man of the Mountain rock formation. A popular destination, the hotel attracted myriad guests, and Swett’s tales of rugged endurance are accompanied by keen observations of the people he meets.
       Confident in his identity as a Deaf “mute,” he notes with wry humor the varied perceptions of deafness that he encounters. As a signing Deaf person from a prominent multigenerational Deaf family, he counters negative stereotypes with generosity and a smart wit. He takes pride in his physical abilities, which he showcases through various stunts and arduous treks in the wilderness. However, Swett’s writing also reveals a deep awareness of the fragility and precariousness of life. This is a portrait of a man testing his physical and emotional limits, written from the vantage point of someone who is no longer a young man but is still very much in the prime of his life.
       This collection also includes “Mr. Swett and His Diorama,” an article from 1859 in which Swett describes his miniature recreation of the Battle of Lexington, as well as Manual Alphabets, a pamphlet published in 1875 on the history of manual alphabets that includes short biographies of Thomas Hopkins Gallaudet and Laurent Clerc, two pioneers of Deaf education in the United States. The work is accompanied by a new introduction that offers a reflection on Swett’s life and the time in which he lived.
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After War
The Weight of Life at Walter Reed
Zoë H. Wool
Duke University Press, 2015
In After War Zoë H. Wool explores how the American soldiers most severely injured in the Iraq and Afghanistan wars struggle to build some kind of ordinary life while recovering at Walter Reed Army Medical Center from grievous injuries like lost limbs and traumatic brain injury. Between 2007 and 2008, Wool spent time with many of these mostly male soldiers and their families and loved ones in an effort to understand what it's like to be blown up and then pulled toward an ideal and ordinary civilian life in a place where the possibilities of such a life are called into question. Contextualizing these soldiers within a broader political and moral framework, Wool considers the soldier body as a historically, politically, and morally laden national icon of normative masculinity. She shows how injury, disability, and the reality of soldiers' experiences and lives unsettle this icon and disrupt the all-too-common narrative of the heroic wounded veteran as the embodiment of patriotic self-sacrifice. For these soldiers, the uncanny ordinariness of seemingly extraordinary everyday circumstances and practices at Walter Reed create a reality that will never be normal.
 
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Agatha Tiegel Hanson
Our Places in the Sun
Kathy Jankowski
Gallaudet University Press, 2023
Agatha Tiegel Hanson (1873-1959) is regarded as a seminal figure in Deaf history for her writing, advocacy, and leadership, though her accomplishments merit recognition within the larger context of American history as well. Barely fifteen years old in 1888, Tiegel Hanson became one of the first women to attend the nation's only college for Deaf students, the National Deaf-Mute College, now known as Gallaudet University. Amid the hostility and skepticism of male students and faculty, she achieved exemplary academic success and was the first woman to earn a Bachelor of Arts degree from the college. Upon facing stringent campus restrictions and exclusion from male-only organizations and activities, Tiegel Hanson cofounded a society for female students. Her prerequisite graduation presentation, "The Intellect of Woman," was a powerful oratory that urged women to “move on till all barriers crumble and fall.”

Throughout her life, Agatha Tiegel Hanson worked to advance the rights of Deaf people and women, and she was a passionate advocate of sign language rights. Her contributions include creative written works as well as influential treatises. She served in leadership positions at several Deaf organizations and, along with her husband, noted Deaf architect Olof Hanson, she played a vital role in the Deaf cultural life of the time. In Agatha Tiegel Hanson: Our Places in the Sun, author Kathy Jankowski presents a portrait of this trailblazer, and celebrates her impact on the Deaf community and beyond. This biography will be of interest to those already familiar with Tiegel Hanson’s legacy as well as to readers who are discovering her extraordinary life for the first time.
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The Agency of Access
Contemporary Disability Art & Institutional Critique
Amanda Cachia
Temple University Press, 2025
The Agency of Access examines how access can be employed as a methodology for curating art exhibitions using a multi-sensorial approach. Crip curator and art historian Amanda Cachia illustrates how bodies take in information and process stimuli, making the inequities in museums and galleries more transparent. She also argues that, as contemporary disabled artists move away from representations of disability, they create an art of access, or access aesthetics, through works that center translation, sensory expansion, touch, and movement for audiences and offer an experience of “being with” disability.

Showcasing artwork by contemporary disabled artists Corban Walker, Christine Sun Kim, and Carmen Papalia, among others, The Agency of Access inscribes contemporary disability art in the broad canon of contemporary art, where the artistic past is regarded differently.

Cachia is an outspoken advocate for artists living with sensory disabilities. She understands disabled artists’ experiences in both the world and the gallery. The artists she has curated make bold, astonishing, and compelling statements about interdependency, care, and the ways in which our environment affects disabled, ill, and immunocompromised bodies.
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Allies and Obstacles
Disability Activism and Parents of Children with Disabilities
Allison C. Carey, Pamela Block, and Richard K. Scotch
Temple University Press, 2020

Parents of children with disabilities often situate their activism as a means of improving the world for their child. However, some disabled activists perceive parental activism as working against the independence and dignity of people with disabilities. This thorny relationship is at the heart of the groundbreaking Allies and Obstacles.

The authors chronicle parents’ path-breaking advocacy in arenas such as the right to education and to liberty via deinstitutionalization as well as how they engaged in legal and political advocacy. Allies and Obstacles provides a macro analysis of parent activism using a social movement perspective to reveal and analyze the complex—and often tense—relationship of parents to disability rights organizations and activism. 

The authors look at organizational and individual narratives using four case studies that focus on intellectual disability, psychiatric diagnoses, autism, and a broad range of physical disabilities including cerebral palsy and muscular dystrophy. These cases explore the specific ways in which activism developed among parents and people with disabilities, as well as the points of alliance and the key points of contestation. Ultimately, Allies and Obstacles develops new insights into disability activism, policy, and the family.

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Alone in the Mainstream
A Deaf Woman Remembers Public School
Gina A. Oliva
Gallaudet University Press, 2004

When Gina Oliva first went to school in 1955, she didn’t know that she was “different.” If the kindergarten teacher played a tune on the piano to signal the next exercise, Oliva didn’t react because she couldn’t hear the music. So began her journey as a “solitary,” her term for being the only deaf child in the entire school. Gina felt alone because she couldn’t communicate easily with her classmates, but also because none of them had a hearing loss like hers. It wasn’t until years later at Gallaudet University that she discovered that she wasn’t alone and that her experience was common among mainstreamed deaf students. Alone in the Mainstream recounts Oliva’s story, as well as those of many other solitaries.

In writing this important book, Oliva combined her personal experiences with responses from the Solitary Mainstream Project, a survey that she conducted of deaf and hard of hearing adults who attended public school. Oliva matched her findings with current research on deaf students in public schools and confirmed that hearing teachers are ill-prepared to teach deaf pupils, they don’t know much about hearing loss, and they frequently underestimate deaf children. The collected memories in Alone in the Mainstream add emotional weight to the conviction that students need to be able to communicate freely, and they also need peers to know they are not alone.

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Alone in the Mainstream
Looking Back on Public School as a Deaf or Hard of Hearing Child
Gina A. Oliva
Gallaudet University Press, 2024
In 1975, federal legislation initiated drastic changes in the education of deaf and hard of hearing children. Public Law 94-142, later known as IDEA, proposed to provide the “Least Restrictive Environment” for all such children. In the years since, advocates for deaf and hard of hearing children have raised the alarm that mainstream educational settings can cause language and social deprivation for these children.

In Alone in the Mainstream, author Gina A. Oliva documents her experience as a “solitaire,” the only deaf or hard of hearing student in her school. Oliva felt alone because she couldn’t communicate easily with her classmates and because she had no peers who shared a similar experience. As an adult, when she began her career at Gallaudet University, she realized that she wasn’t alone and that her experience was widely shared with other mainstreamed students.  She decided to write about this commonality and invited other solitaires to reflect on their own experiences in emails and essays. Collective themes of isolation, low expectations, and low self-esteem emerged. Alone in the Mainstream blends Oliva’s personal narrative with the reflections of sixty other solitaires and makes the case that deaf and hard of hearing children need each other.

This twentieth anniversary edition is a reminder that little has changed for deaf and hard of hearing students in public school settings. Oliva brings this new edition up to date with observations, resources, and discussion questions that accompany her appeal for all deaf and hard of hearing children and their families to have access to sign language, to develop a deaf identity, and to be part of a deaf community.
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American Lobotomy
A Rhetorical History
Jenell Johnson
University of Michigan Press, 2014
American Lobotomy studies a wide variety of representations of lobotomy to offer a rhetorical history of one of the most infamous procedures in the history of medicine. The development of lobotomy in 1935 was heralded as a “miracle cure” that would empty the nation’s perennially blighted asylums. However, only twenty years later, lobotomists initially praised for their “therapeutic courage” were condemned for their barbarity, an image that has only soured in subsequent decades.  Johnson employs previously abandoned texts like science fiction, horror film, political polemics, and conspiracy theory to show how lobotomy’s entanglement with social and political narratives contributed to a powerful image of the operation that persists to this day. The book provocatively challenges the history of medicine, arguing that rhetorical history is crucial to understanding medical history. It offers a case study of how medicine accumulates meaning as it circulates in public culture and argues for the need to understand biomedicine as a culturally situated practice.

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American Sign Language and Early Literacy
A Model Parent-Child Program
Kristin Snoddon
Gallaudet University Press, 2012

The usual definition of the term “literacy” generally corresponds with mastering the reading and writing of a spoken language. This narrow scope often engenders unsubstantiated claims that print literacy alone leads to, among other so-called higher-order thinking skills, logical and rational thinking and the abstract use of language. Thus, the importance of literacy for deaf children in American Sign Language (ASL) is marginalized, asserts author Kristin Snoddon in her new book American Sign Language and Early Literacy: A Model Parent-Child Program. As a contrast, Snoddon describes conducting an ethnographic, action study of the ASL Parent-Child Mother Goose program, provided by a Deaf service agency in Ontario, Canada to teach ASL literacy to deaf children.

       According to current scholarship, literacy is achieved through primary discourse shared with parents and other intimates, which establishes a child’s initial sense of identity, culture, and vernacular language. Secondary discourse derives from outside agents and interaction, such as expanding an individual’s literacy to other languages. Snoddon writes that the focus of the ASL Parent-Child Mother Goose program is on teaching ASL through rhymes and stories and some facets of the culture of Deaf ASL users. This focus enabled hearing parents to impart first-language acquisition and socialization to their deaf children in a more natural primary discourse as if the parents were Deaf themselves. At the same time, hearing parents experience secondary discourses through their exposure to ASL and Deaf culture.

       Snoddon also comments on current infant hearing screening and early intervention and the gaps in these services. She discusses gatekeeper individuals and institutions that restrict access to ASL for young Deaf children and their families. Finally, she reports on public resources for supporting ASL literacy and the implications of her findings regarding the benefits of early ASL literacy programming for Deaf children and their families.

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Amy Signs
A Mother, Her Deaf Daughter, and Their Stories
Rebecca Willman Gernon
Gallaudet University Press, 2012

“Thirty-seven years ago, I vowed to write a truthful book about raising a deaf child.” Rebecca Willman Gernon followed through on her promise with her deaf daughter Amy Willman in this extraordinary new narrative. Many stories have been told about a parent’s struggle to help her deaf child succeed in a mostly hearing world. Amy Signs marks a signature departure in that both Rebecca and Amy relate their perspectives on their journey together.

       When she learns of 11-month-old Amy’s deafness in 1969, Rebecca fully expresses her anguish, and traces all of the difficulties she endured in trying to find the right educational environment for Amy. The sacrifices of the rest of her family weighed heavily on her, also. Though she resolved to place four-year-old Amy in Nebraska’s residential school for deaf students, the emotional toll seemed too much to bear.

       Amy’s view acts as the perfect counterpoint. Interwoven with her mother’s story, Amy’s account confirms that signing served her best. She summarizes life in boarding school as “laughter and homesickness.” She laughed with all of her deaf friends, though felt homesick at times. Amy thanks her mother for the gift of sign, asserting that a mainstream education would never have led her to earn a master’s degree and later teach American Sign Language at the University of Nebraska. Amy Signs is a positive albeit cautionary tale for parents of deaf children today whose only choice is a mainstreamed education.

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And No Birds Sing
Pauline Leader
Gallaudet University Press, 2016
Originally published in 1931, this memoir offers an unflinching look at the life of a deaf woman struggling with poverty and isolation in the bohemian enclave of Greenwich Village. In harrowing yet lyrical prose, Pauline Leader recounts her experience growing up as the daughter of Jewish immigrants in a small New England mill town. Born in 1908, Leader was exposed to frequent verbal and physical abuse. She became deaf at the age of 12, following a long illness. As a teenager, she ran away to New York City, where she found work in factories and sweatshops, and spent time in a home for “wayward girls.” As she sought community among the artists and eccentrics of the Village, Leader’s strong will and fierce independence were often thwarted by hardship and self-doubt. But through it all she found solace in her writing.

       This edition is accompanied by a new introduction and afterword that provide a scholarly framework for understanding Leader and her times. She persevered and became a published poet and novelist, often drawing on the experiences offered up here. Compelling and evocative, And No Birds Sing deftly reveals a complex, intelligent spirit toiling in a brutal world.
 
From the book:
 
I insisted to myself that I could still hear. I heard in my mind the sounds of streams as I passed them. I knew the sound the river made, that river that I had known always, the river by the marble house. In my mind the river washed with a low intimate sound. I had no need to hear as the people heard. True intimacy needs no ears. I knew the sound of birds; I heard them as they hopped about. I knew the sound of words also. It was words that I most intensely heard. I had not always the river and the birds—they appeared far away at times. I did not always want river and birds, but I always wanted words, and I always had them. I would have been terribly lonely without them. With them always in my mind, I could not be truly lonely. I played with them; I set them to music; I achieved endless variations with them. They were never weary, as other things could sometimes be weary.
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Aquamarine Blue 5
Personal Stories of College Students with Autism
Dawn Prince-Hughes
Ohio University Press, 2002

Rated Outstanding by the American Association of School Libraries

This is the first book to be written by autistic college students about the challenges they face. Aquamarine Blue 5 details the struggle of these highly sensitive students and shows that there are gifts specific to autistic students that enrich the university system, scholarship, and the world as a whole.

Dawn Prince-Hughes presents an array of writings by students who have been diagnosed with Asperger’s Syndrome or High-Functioning Autism, showing their unique ways of looking at and solving problems. In their own words, they portray how their divergent thinking skills could be put to great use if they were given an opportunity. Many such students never get the chance because the same sensitivity that gives them these insights makes the flicker of fluorescent lights and the sound of chalk on the board unbearable For simple—and easily remedied—reasons, we lose these students, who are as gifted as they are challenged.

Aquamarine Blue 5 is a showcase of the strength and resilient character of individuals with Asperger’s Syndrome. It will be an invaluable resource for those touched by this syndrome, their friends and families, and school administrators.

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The Architecture of Disability
Buildings, Cities, and Landscapes beyond Access
David Gissen
University of Minnesota Press, 2022

A radical critique of architecture that places disability at the heart of the built environment

Disability critiques of architecture usually emphasize the need for modification and increased access, but The Architecture of Disability calls for a radical reorientation of this perspective by situating experiences of impairment as a new foundation for the built environment. With its provocative proposal for “the construction of disability,” this book fundamentally reconsiders how we conceive of and experience disability in our world.

Stressing the connection between architectural form and the capacities of the human body, David Gissen demonstrates how disability haunts the history and practice of architecture. Examining various historic sites, landscape designs, and urban spaces, he deconstructs the prevailing functionalist approach to accommodating disabled people in architecture and instead asserts that physical capacity is essential to the conception of all designed space.

By recontextualizing the history of architecture through the discourse of disability, The Architecture of Disability presents a unique challenge to current modes of architectural practice, theory, and education. Envisioning an architectural design that fully integrates disabled persons into its production, it advocates for looking beyond traditional notions of accessibility and shows how certain incapacities can offer us the means to positively reimagine the roots of architecture.

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Are You Two Sisters?
The Journey of a Lesbian Couple
Susan Krieger
Temple University Press, 2022

Authored by one of the most respected figures in the field of personal ethnographic narrative, this book serves as both a memoir and a sociological study, telling the story of one lesbian couple’s lifelong journey together.

Are You Two Sisters? is Susan Krieger’s candid, revealing, and engrossing memoir about the intimacies of a lesbian couple. Krieger explores how she and her partner confront both the inner challenges of their relationship and the invisibility of lesbian identity in the larger world. 

Using a lively novelistic and autoethnographic approach that toggles back and forth in time, Krieger reflects on the evolution of her forty-year relationship. She describes building a life together, from sharing pets and travels to getting married. Are You Two Sisters? addresses not only questions of gender and sexuality, but also of disability, as Krieger explores how the couple adapts to her increasing blindness.

Krieger’s title comes from a question asked by a stranger outside a remote desert bar as she and her partner traveled in the Southwest. Her apprehension about answering that question suggests how, even after the legalization of gay marriage, lesbianism often remains hidden—an observation that makes Krieger’s poignant narrative all the more moving.

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The Art of Being Deaf
A Memoir
Donna McDonald
Gallaudet University Press, 2014
Concerned about aspects of her romantic relationships, Donna McDonald consulted with a psychologist who asked, “Your hearing loss must have had a big impact on you?” At age 45, with a successful career in social work policy, McDonald took umbrage at the question. Then, she realized that she never had addressed the personal barrier she had constructed between her deaf-self and her hearing persona. In The Art of Being Deaf, she describes her long, arduous pursuit of finding out exactly who she was.
 
       Born in 1950s Australia, McDonald was placed in an oral deaf school when she was five. There, she was trained to communicate only in spoken English. Afterwards, she attended mainstream schools where she excelled with speechreading and hard work. Her determination led to achievements that proved her to be “the deaf girl that had made good.” Yet, despite her constant focus on fitting in the hearing world, McDonald soon realized that she missed her deaf schoolmates and desired to explore her closed-off feelings about being deaf.
 
       When she reconnected with her friends, one urged her to write about her experiences to tell all about “the Forgotten Generation, the orally-raised deaf kids that no one wants to talk about.” In writing her memoir, McDonald did learn to reconcile her deaf-self with her “hearing-deaf” persona, and she realized that the art of being deaf is the art of life, the art of love.
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Assessing Deaf Adults
Critical Issues in Testing and Evaluation
Judith L. Mounty
Gallaudet University Press, 2005
Historically, deaf and hard of hearing people have demonstrated various levels of competence in a multitude of professions, but they also have experienced discrimination and oppression. In five critical sections, this volume responds to the tidal wave of high-stakes testing that has come to dominate educational policy and qualification for various occupations. It provides a digest of relevant research to meet the testing challenge, including work done by educational researchers, legal experts, test developers, and others.

Section I frames the contexts facing deaf and hard of hearing individuals and those who test them, including a telling historical perspective. In Section II, chapters explore how deaf and hard of hearing candidates can meet the rigors of test-taking, how to level the playing field with a new approach to assessment, and what to consider to develop fully accessible licensing tests. The final chapter in this part examines the psychometric properties of intellectual assessments when used with deaf and hard of hearing people. Administrative Issues constitute Section III, beginning with legal considerations related to equity testing for deaf adults. An exploration of the potential of sign language interpretation in the testing environment follows.

Section IV provides case studies of deaf and hard of hearing adults from a variety of professions, including certification testing for therapeutic recreation, preparation strategies for university students, and ways to maximize access to licensure for social workers. A separate chapter addresses the impact of recent federal mandates on assessment of deaf and hard of hearing teachers and teaching candidates. The final section summarizes the current situation and presents recommendations to manage it, concluding with an epilogue on directions for the future.
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Attachments to War
Biomedical Logics and Violence in Twenty-First-Century America
Jennifer Terry
Duke University Press, 2017
In Attachments to War Jennifer Terry traces how biomedical logics entangle Americans in a perpetual state of war. Focusing on the Afghanistan and Iraq wars between 2002 and 2014, Terry identifies the presence of a biomedicine-war nexus in which new forms of wounding provoke the continual development of complex treatment, rehabilitation, and prosthetic technologies. At the same time, the U.S. military rationalizes violence and military occupation as necessary conditions for advancing medical knowledge and saving lives. Terry examines the treatment of war-generated polytrauma, postinjury bionic prosthetics design, and the development of defenses against infectious pathogens, showing how the interdependence between war and biomedicine is interwoven with neoliberal ideals of freedom, democracy, and prosperity. She also outlines the ways in which military-sponsored biomedicine relies on racialized logics that devalue the lives of Afghan and Iraqi citizens and U.S. veterans of color. Uncovering the mechanisms that attach all Americans to war and highlighting their embeddedness and institutionalization in everyday life via the government, media, biotechnology, finance, and higher education, Terry helps lay the foundation for a more meaningful opposition to war.
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Authoring Autism
On Rhetoric and Neurological Queerness
M. Remi Yergeau
Duke University Press, 2018
In Authoring Autism M. Remi Yergeau defines neurodivergence as an identity—neuroqueerness—rather than an impairment. Using a queer theory framework, Yergeau notes the stereotypes that deny autistic people their humanity and the chance to define themselves while also challenging cognitive studies scholarship and its reification of the neurological passivity of autistics. They also critique early intensive behavioral interventions—which have much in common with gay conversion therapy—and questions the ableist privileging of intentionality and diplomacy in rhetorical traditions. Using storying as their method, they present an alternative view of autistic rhetoricity by foregrounding the cunning rhetorical abilities of autistics and by framing autism as a narrative condition wherein autistics are the best-equipped people to define their experience. Contending that autism represents a queer way of being that simultaneously embraces and rejects the rhetorical, Yergeau shows how autistic people queer the lines of rhetoric, humanity, and agency. In so doing, they demonstrate how an autistic rhetoric requires the reconceptualization of rhetoric’s very essence.
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Autism in Film and Television
On the Island
Edited by Murray Pomerance and R. Barton Palmer
University of Texas Press, 2022

Global awareness of autism has skyrocketed since the 1980s, and popular culture has caught on, with film and television producers developing ever more material featuring autistic characters. Autism in Film and Television brings together more than a dozen essays on depictions of autism, exploring how autistic characters are signified in media and how the reception of these characters informs societal understandings of autism.

Editors Murray Pomerance and R. Barton Palmer have assembled a pioneering examination of autism’s portrayal in film and television. Contributors consider the various means by which autism has been expressed in films such as Phantom Thread, Mercury Rising, and Life Animated and in television and streaming programs including Atypical, Stranger Things, Star Trek: The Next Generation, and Community. Across media, the figure of the brilliant, accomplished, and “quirky” autist has proven especially appealing. Film and television have thus staked out a progressive position on neurodiversity by insisting on screen time for autism but have done so while frequently ignoring the true diversity of autistic experience. As a result, this volume is a welcome celebration of nonjudgmental approaches to disability, albeit one that is still freighted with stereotypes and elisions.

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Autistic Disturbances
Theorizing Autism Poetics from the DSM to Robinson Crusoe
Julia Miele Rodas
University of Michigan Press, 2018
While research on autism has sometimes focused on special talents or abilities, autism is typically characterized as impoverished or defective when it comes to language. Autistic Disturbances reveals the ways interpreters have failed to register the real creative valence of autistic language and offers a theoretical framework for understanding the distinctive aesthetics of autistic rhetoric and semiotics. Reinterpreting characteristic autistic verbal practices such as repetition in the context of a more widely respected literary canon, Julia Miele Rodas argues that autistic language is actually an essential part of mainstream literary aesthetics, visible in poetry by Walt Whitman and Gertrude Stein, in novels by Charlotte Brontë and Daniel Defoe, in life writing by Andy Warhol, and even in writing by figures from popular culture.

Autistic Disturbances pursues these resonances and explores the tensions of language and culture that lead to the classification of some verbal expression as disordered while other, similar expression enjoys prized status as literature. It identifies the most characteristic patterns of autistic expression-repetition, monologue, ejaculation, verbal ordering or list-making, and neologism-and adopts new language to describe and reimagine these categories in aesthetically productive terms. In so doing, the book seeks to redress the place of verbal autistic language, to argue for the value and complexity of autistic ways of speaking, and to invite recognition of an obscured tradition of literary autism at the very center of Anglo-American text culture.
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Autistic Intelligence
Interaction, Individuality, and the Challenges of Diagnosis
Douglas W. Maynard and Jason Turowetz
University of Chicago Press, 2022
An examination of diagnostic processes that questions how we can better understand autism as a category and the unique forms of intelligence it glosses.
 
As autism has grown in prevalence, so too have our attempts to make sense of it. From placing unfounded blame on vaccines to seeking a genetic cause, Americans have struggled to understand what autism is and where it comes from. Amidst these efforts, however, a key aspect of autism has been largely overlooked: the diagnostic process itself. That process is the central focus of Autistic Intelligence. The authors ask us to question the norms by which we measure autistic behavior, to probe how that behavior can be considered sensible rather than disordered, and to explore how we can better appreciate the individuality of those who receive the diagnosis.
 
Drawing on hundreds of hours of video recordings and ethnographic observations at a clinic where professionals evaluated children for autism, the authors’ analysis of interactions among clinicians, parents, and children demystifies the categories, tools, and practices involved in the diagnostic process. Autistic Intelligence shows that autism is not a stable category; it is the outcome of complex interactional processes involving professionals, children, families, and facets of the social and clinical environments they inhabit. The authors suggest that diagnosis, in addition to carefully classifying children, also can highlight or include unique and particular contributions those with autism potentially can make to the world around us.
 
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