front cover of Academic Ableism
Academic Ableism
Disability and Higher Education
Jay Timothy Dolmage
University of Michigan Press, 2017
Academic Ableism brings together disability studies and institutional critique to recognize the ways that disability is composed in and by higher education, and rewrites the spaces, times, and economies of disability in higher education to place disability front and center. For too long, argues Jay Timothy Dolmage, disability has been constructed as the antithesis of higher education, often positioned as a distraction, a drain, a problem to be solved. The ethic of higher education encourages students and teachers alike to accentuate ability, valorize perfection, and stigmatize anything that hints at intellectual, mental, or physical weakness, even as we gesture toward the value of diversity and innovation. Examining everything from campus accommodation processes, to architecture, to popular films about college life, Dolmage argues that disability is central to higher education, and that building more inclusive schools allows better education for all.
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front cover of Academic Ableism
Academic Ableism
Disability and Higher Education
Jay Timothy Dolmage
University of Michigan Press, 2017
Academic Ableism brings together disability studies and institutional critique to recognize the ways that disability is composed in and by higher education, and rewrites the spaces, times, and economies of disability in higher education to place disability front and center. For too long, argues Jay Timothy Dolmage, disability has been constructed as the antithesis of higher education, often positioned as a distraction, a drain, a problem to be solved. The ethic of higher education encourages students and teachers alike to accentuate ability, valorize perfection, and stigmatize anything that hints at intellectual, mental, or physical weakness, even as we gesture toward the value of diversity and innovation. Examining everything from campus accommodation processes, to architecture, to popular films about college life, Dolmage argues that disability is central to higher education, and that building more inclusive schools allows better education for all.
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front cover of Chronic Pain and the Family
Chronic Pain and the Family
A New Guide
Julie K. Silver M.D.
Harvard University Press, 2004

Chronic pain is the leading cause of disability in the United States, affecting as many as 48 million people in this country alone. It can demoralize and depress both patient and family, especially when there is no effective pain control and no hope for relief. Improperly managed, chronic pain can lead to substance abuse (usually painkillers) and to acute psychological and emotional distress. Pain begets stress and stress begets pain in a wretched downward spiral.

Silver reviews the causes and characteristics of chronic pain and explores its impact on individual family relationships and on the extended family, covering such issues as employment, parenting, childbearing and inheritance, and emotional health. Silver treats aspects of chronic pain not covered in a typical office visit: how men and women differ in their experience of chronic pain, the effect of chronic pain on a toddler's behavior or an older child's performance in school, the risks of dependence on and addiction to pain medications, and practical ways for relatives beyond the immediate family circle to offer help and support to the person in pain.

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front cover of Cultural Locations of Disability
Cultural Locations of Disability
Sharon L. Snyder and David T. Mitchell
University of Chicago Press, 2006
In Cultural Locations of Disability, Sharon L. Snyder and David T. Mitchell trace how disabled people came to be viewed as biologically deviant. The eugenics era pioneered techniques that managed "defectives" through the application of therapies, invasive case histories, and acute surveillance techniques, turning disabled persons into subjects for a readily available research pool. In its pursuit of normalization, eugenics implemented disability regulations that included charity systems, marriage laws, sterilization, institutionalization, and even extermination. Enacted in enclosed disability locations, these practices ultimately resulted in expectations of segregation from the mainstream, leaving today's disability politics to focus on reintegration, visibility, inclusion, and the right of meaningful public participation.

Snyder and Mitchell reveal cracks in the social production of human variation as aberrancy. From our modern obsessions with tidiness and cleanliness to our desire to attain perfect bodies, notions of disabilities as examples of human insufficiency proliferate. These disability practices infuse more general modes of social obedience at work today. Consequently, this important study explains how disabled people are instrumental to charting the passage from a disciplinary society to one based upon regulation of the self.
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front cover of Fatal Sequence
Fatal Sequence
The Killer Within
Kevin J. Tracey
Dana Press, 2006
Severe sepsis, a critical illness that most often afflicts victims of initially nonfatal illnesses or injuries, is the third-most-common killer in the United States. In Fatal Sequence, neurosurgeon, immunologist, and clinical investigator Kevin J. Tracey offers a chronicle both scientific and human, using cases he personally experienced to illustrate the clinical nightmare of organ failure that typifies the disease. 

In clear, accessible language, Tracey explains how the brain, which normally restrains the immune system and protects the patient, can fail during severe sepsis—allowing the immune system to indiscriminately kill normal cells along with foreign microbes. Fatal Sequence is a compelling documentation of an all-too-common situation: doctors fighting to prevent patients’ deaths at the hands of complications from injuries and illnesses that should never be fatal in the first place. 

“This book is a must for anyone interested in protecting the body from foreign organisms and, in many instances, itself.” —Jamie Talan, Newsday

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front cover of Loneliness and Its Opposite
Loneliness and Its Opposite
Sex, Disability, and the Ethics of Engagement
Don Kulick and Jens Rydström
Duke University Press, 2015
Few people these days would oppose making the public realm of space, social services and jobs accessible to women and men with disabilities. But what about access to the private realm of desire and sexuality? How can one also facilitate access to that, in ways that respect the integrity of disabled adults, and also of those people who work with and care for them?

Loneliness and Its Opposite documents how two countries generally imagined to be progressive engage with these questions in very different ways. Denmark and Sweden are both liberal welfare states, but they diverge dramatically when it comes to sexuality and disability. In Denmark, the erotic lives of people with disabilities are acknowledged and facilitated. In Sweden, they are denied and blocked. Why do these differences exist, and how do both facilitation and hindrance play out in practice?

Loneliness and Its Opposite charts complex boundaries between private and public, love and sex, work and intimacy, and affection and abuse. It shows how providing disabled adults with access to sexual lives is not just crucial for a life with dignity. It is an issue of fundamental social justice with far reaching consequences for everyone.
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front cover of Negotiating Disability
Negotiating Disability
Disclosure and Higher Education
Stephanie L. Kerschbaum, Laura T. Eisenman, and James M. Jones, Editors
University of Michigan Press, 2017
Disability is not always central to claims about diversity and inclusion in higher education, but should be. This collection reveals the pervasiveness of disability issues and considerations within many higher education populations and settings, from classrooms to physical environments to policy impacts on students, faculty, administrators, and staff.  While disclosing one’s disability and identifying shared experiences can engender moments of solidarity, the situation is always complicated by the intersecting factors of race and ethnicity, gender, sexuality, and class. With disability disclosure as a central point of departure, this collection of essays builds on scholarship that highlights the deeply rhetorical nature of disclosure and embodied movement, emphasizing disability disclosure as a complex calculus in which degrees of perceptibility are dependent on contexts, types of interactions that are unfolding, interlocutors’ long- and short-term goals, disabilities, and disability experiences, and many other contingencies.

 
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front cover of Spinal Cord Injury and the Family
Spinal Cord Injury and the Family
A New Guide
Michelle J. Alpert M.D.
Harvard University Press, 2008

Spinal cord injury, or SCI, is frequently sudden and unexpected—through accident, disease, or violence, patients temporarily lose control of their bodies and, it seems, their lives. With rehabilitation, they can learn to navigate their world once more, retraining muscles and mind to compensate for paralyzed limbs and diminished strength. But as Dr. Michelle Alpert shows here, there is far more to recapturing full, independent lives than regaining movement. Central to long-term success is mending the family unit.

Combining Dr. Alpert’s clinical experience with patients’ own stories, Spinal Cord Injury and the Family is for individuals and their families who must climb back from injury: for the young quad couple, both quadriplegic, who wish to conceive and raise a child; for the paraplegic dad who wants to teach his daughter to drive; for the couple wondering how they can regain the sexual spark in their relationship.

The authors cover the causes of and prognosis for SCI through case studies, review common courses of rehabilitation, and answer the “what now?” questions—from daily routines to larger issues concerning sex, education and employment, childbearing, and parenting with SCI. Rich in clinical information and practical advice, the book shows how real patients and their families are living full lives after spinal cord injury.

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front cover of Stroke and the Family
Stroke and the Family
A New Guide
Joel Stein M.D.
Harvard University Press, 2004

A young woman suffers a stroke; she rebuilds her career and personal life, but not before her marriage falls apart. An eighty-year-old man dies unexpectedly of stroke, leaving his grown sons to wonder whether they are genetically predisposed to stroke. A recently retired woman confronts her future with a husband suddenly disabled by stroke. How can she help her husband? Will he ever recover? How will she cope with her own emotional stress?

In Stroke and the Family: A New Guide, Joel Stein shows the many faces of stroke and the people it strikes. To the family just beginning to cope with the aftermath of a stroke, the diagnostic tests, drug regimens, rehabilitation strategies, and varied prognoses can be completely bewildering. Because stroke can affect memory, speech, and movement, the impact on everyday routines and close relationships can be especially intense. Stein has produced a book that allows general readers and nonphysicians working with stroke survivors to make sense of the confusing variety of diagnoses and treatment options, and goes on to explore challenges the recovering stroke patient and the recovering family will face during a long recuperation with an uncertain outcome. Stroke and the Family offers up-to-date information and places the current research findings in context.

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