A leading bioethicist offers critical insights into the scientific, ethical, and political implications of human genome editing.
Designer babies, once found only in science fiction, have become a reality. We are entering a new era of human evolution with the advent of a technology called CRISPR, which allows scientists to modify our genes. Although CRISPR shows great promise for therapeutic use, it raises thorny ethical, legal, political, and societal concerns because it can be used to make permanent changes to future generations. What if changes intended for the good turn out to have unforeseen negative effects? What if the divide between the haves and have-nots widens as a result? Who decides whether we genetically modify human beings and, if so, how?
Françoise Baylis insists that we must all have a role in determining our future as a species. The scientists who develop and use genome-editing tools should not be the only ones making decisions about future uses of the technology. Such decisions must be the fruit of a broad societal consensus. Baylis argues that it is in our collective interest to assess and steer the development and implementation of biomedical technologies. Members of the public with different interests and diverse perspectives must be among the decision makers; only in this way can we ensure that societal concerns are taken into account and that responsible decisions are made. We must be engaged and informed, think critically, and raise our voices as we create our future together.
Sharp, rousing, timely, and thought-provoking, Altered Inheritance is essential reading. The future of humanity is in our hands.
As Hurricane Katrina vividly revealed, disaster policy in the United States is broken and needs reform. What can we learn from past disasters—storms, floods, earthquakes, tsunamis, landslides, and wildfires—about preparing for and responding to future catastrophes? How can these lessons be applied in a future threatened by climate change?
In this bold contribution to environmental law, Robert Verchick argues for a new perspective on disaster law that is based on the principles of environmental protection. His prescription boils down to three simple commands: Go Green, Be Fair, and Keep Safe. “Going green” means minimizing exposure to hazards by preserving natural buffers and integrating those buffers into artificial systems like levees or seawalls. “Being fair” means looking after public health, safety, and the environment without increasing personal and social vulnerabilities. “Keeping safe” means a more cautionary approach when confronting disaster risks.
Verchick argues that government must assume a stronger regulatory role in managing natural infrastructure, distributional fairness, and public risk. He proposes changes to the federal statutes governing environmental impact assessments, wetlands development, air emissions, and flood control, among others. Making a strong case for more transparent governmental decision-making, Verchick offers a new vision of disaster law for the next generation.
When an activity raises threats of harm to human health or the environment, precautionary measures should be taken even if some cause and effect relationships are not fully established scientifically. This idea, known as the "Precautionary Principle," is seen by environmentalists and public health experts as the key to protecting ecological and human health.
In January 1998, the Science and Environmmental Health Network convened an international group of scientists, researchers, environmentalists, academics, and labor representatives to discuss ways of incorporating the precautionary approach into environmental and public health decision-making. Known as the Wingspread Conference on Implementing the Precautionary Principle, the workshop focused on understanding the contexts under which the principle developed, its basis, and how it could be implemented. Protecting Public Health and the Environment is an outgrowth of that conference. The book:
Public health professionals and academics, policymakers, environmental lawyers, sustainable agriculture proponents, economists, and environmental activists will find the book an enlightening and thought-provoking guide to a new way of thinking about ecosystem and public health protection.
It is an unenviable task, but one that all state governments face: finding a final “resting place” for low-level nuclear waste from power plants, hospitals, university laboratories, and other industries. John Weingart was the official in New Jersey who for many years led this onerous charge. This book is the story of how he and a commission appointed by the governor, instead of imposing a top-down solution, designed an approach that would confront public fears by seeking a community that would volunteer to host a disposal facility. Initially, this novel approach was surprisingly successful, as leaders in a dozen municipalities stepped forward to say they might be interested. Once their interest became known, however, the process in each town derailed. Residents demanded assurances of zero-percent risk and expressed profound distrust of government assertions and promises.
Waste Is a Terrible Thing to Mind is a compelling, suspenseful, and amusing insider’s account of New Jersey policy and politics, but it is also a larger saga of the challenges facing society in the post–9/11 era when the public’s distrust of government is increasing at the same time that its sensitivity to health and safety threats is heightened.
For more information, see: http://wasteisaterriblethingtomind.com/
"Written with a wry sense of humor, it is a pleasure to read and could provide the blueprint for future efforts to find locations for controversial land uses."
- Marie Curtis, Executive Director, New Jersey Environmental Lobby
"A penetrating look at one state's struggle with radioactive waste ... offering some tantalizing reflections on the public understanding of science and how we, in a democratic society, deal with complexity and uncertainty."
- Jay Kaufman, State Senator, Massachusetts State Legislature
"A provocative story, laced with humor, demonstrates how public distrust of government can make it impotent. It should be read by anyone working on public policy issues, especially planning, growth, and the environment."
- Harriet Keyserling, Former Energy Committee Chair, South Carolina State Legislature
"Readers interested in environmental policy, land use and how governments make decisions will learn much from this fine reflective insider's account. It's also a primer on how to survive and thrive in state government."
- David N. Kinsey, Visiting Professor, Woodrow Wilson School Princeton University
"... a fascinating case study of how a government agency creatively tried to solve an intractable public issue. Although the agency failed in its quest to recruit a town to host a low-level radioactive waste site, Weingart's detailed and often humorous narrative of the agency's efforts is a clear winner."
- Jack Sabatino, Judge, New Jersey Superior Court
"... a very engaging and sometimes discouraging case study about the pitfalls and perils of trying to site a controversial facility the right way."
- Gregg Larson, Administrator, Center for Biometric Research, University of Minnesota
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