Results by title

“The hardest thing is dealing with the rest of the world. And we kind of accommodate our lives around that. But the rest of the world doesn’t.” These poignant words were spoken by Charlotte, a mother and primary caregiver of a five-year-old autistic boy, and her words reference the structural arrangements of our world that shape autism carework today. This book features the voices of fifty primary caregivers of autistic and neurodivergent children who illuminate the process through which laywomen become expert caregivers to provide the best care for their children. Expert caregiving captures an intensification of traditional family carework – meeting dependents’ financial, emotional, and physical needs – that transcends the walls of one’s private home and family and challenges the strict boundaries between many worlds: lay and professional, family and work, private and public, medical and social, and individual and society. The process of becoming an expert caregiver spotlights several interesting paradoxes in sociological literature, particularly regarding gender, family, and medicalization, and often forgotten structural flaws in “the rest of the world.”
 
Throughout the chapters in this book, the expert caregiver is one person who faces unbelievably daunting tasks of filling or reforming persistent institutional gaps, primarily in education and health care, and subverting ableist cultural norms. Without institutional support, answers to their questions, or pragmatic avenues to access resources, lay caregivers become the experts. Their trials and tribulations, especially when navigating the boundaries of professional/lay and private/public worlds, illuminate a type of carework that is increasingly relevant to a growing number of young families caring for neurodivergent, disabled, medically fragile, and/or chronically ill children. These stories offer a vivid picture of the often invisible complex challenges and structural forces that drive individuals to become expert caregivers in the first place. 
 
 

Between Self and Community investigates the early childhood socialization process in a rapidly changing, globalizing South Korea. Based on long-term ethnographic fieldwork in a South Korean preschool, it shows how both children and teachers interactively navigate, construct, and reconstruct their own multifaceted and sometimes conflicting models of what makes “a good child” amid Korea’s shifting educational and social contexts. Junehui Ahn details the conflicting and competing ways in which the ideologies of new personhood are enacted in actual everyday socialization contexts and reveals the confusions, dilemmas, and ruptures that occur when globally dominant ideals of childhood development are superimposed onto local experiences. Between Self and Community pays special attention to the way children, as active agents of socialization, create, construe, and sustain their own meanings of their personhood, thereby highlighting the dynamism children and their culturally rich peer world create in South Korea’s shifting socialization terrain.  

Through extensive neighborhood interviews and a compelling assessment of the problems of unraveling communities in urban America, Harold McDougall reveals how, in sections of Baltimore, a "New Community" is developing. Relying more on vernacular culture, personal networking, and mutual support than on private wealth or public subsidy, the communities of black Baltimore provide an example of self-help and civic action that could and should be occurring in other inner-city areas. In this political history of Old West Baltimore, McDougall describes how "base communities"—small peer groups that share similar views, circumstances, and objectives—have helped neighborhoods respond to the failure of both government and the market to create conditions for a decent quality of life for all.

Arguing for the primacy of church leadership within the black community, the author describes how these small, flexible groups are creating the foundation of what he calls a New Community, where community-spirited organizers, clergy, public interest advocates, business people, and government workers interact and build relationships through which Baltimore's urban agenda is being developed.

A richly illustrated book focused on Black designers, how they shaped the history of modern design, and how their designs in turn influenced modern Black life.
 
In twentieth-century Chicago, generations of Black artisans, craftspeople, art educators, clothing makers, commercial illustrators, sign painters, furniture makers, beauticians, graphic designers, art directors, and screen printers made and remade the city into an energetic center for modern design. Ambitious, enterprising, and resolutely modern, these Black designers were workers and intellectuals, activists and entrepreneurs. They created works for commercial and everyday use and helped to build community institutions such as the South Side Community Art Center and businesses like the Johnson Publishing Company. Their works ranged from branding and housewares for major corporations to pamphlets and posters made in the name of civil rights and Black Power. Together, they made Black Chicago into a dynamic design scene, working against racism in their professions while embracing the possibilities of design as a medium of social change.
 
This book is the first to chronicle their collective history while also celebrating their influence on design as well as African American culture more broadly. Based on extensive archival research and building on a major 2018 exhibition, Black Designers in Chicago presents essays by experts in African American history and design. The book features illustrations of a stunning variety of works—from graphic design to screenprints to textiles and household wares—placing African Americans at the center of modern design history, while highlighting the role of design in the cultural history of Black Chicago.
 

Rooted in the ways Black women understand their lives, this collection archives practices of healing, mothering, and advocacy during the COVID-19 pandemic.

Recognizing that Black women have been living in pandemics as far back as colonialism and enslavement, this volume acknowledges that records of the past—from the 1918 flu pandemic to the onset of the HIV/AIDS epidemic—often erase the existence and experiences of Black women as a whole. Writing against this archival erasure, this collection consciously recenters the real-time experiences and perspectives of care, policy concerns, grief, and joy of Black women throughout the COVID-19 pandemic.

Nineteen contributors from interdisciplinary fields and diverse backgrounds explore Black feminine community, consciousness, ethics of care, spirituality, and social critique. They situate Black women’s multidimensional experiences with COVID-19 and other violences that affect their lives. The stories they tell are connected and interwoven, bound together by anti-Black gendered COVID necropolitics and commitments to creating new spaces for breathing, healing, and wellness.

Ultimately, this time-warping analysis shows how Black women imagine a more just society, rapidly adapt to changing experiences, and innovate ethics of care even in the midst of physical distancing, which can be instructive for thinking of new ways of living both during and beyond the era of COVID-19.

Contributors
Shamara Wyllie Alhassan
Sharnnia Artis
Keisha L. Bentley-Edwards
Candace S. Brown
Jenny Douglas
Kaja Dunn
Onisha Etkins
Rhonda M. Gonzales
Endia Hayes
Ashley E. Hollingshead
Kendra Jason
Julia S. Jordan-Zachery
Stacie LeSure
Janaka B. Lewis
Michelle Meggs
Nitya Mehrotra
Sherine Andreine Powerful
Marjorie Shavers
Breauna Marie Spencer
Tehia Starker Glass
Amber Walker

Near Tijuana, Baja California, the autonomous community of Maclovio Rojas demonstrates what is possible for urban place-based political movements. More than a community, Maclovio Rojas is a women-led social movement that works for economic and political autonomy to address issues of health, education, housing, nutrition, and security.

Border Women and the Community of Maclovio Rojas tells the story of the community’s struggle to carve out space for survival and thriving in the shadows of the U.S.-Mexico geopolitical border. This ethnography by Michelle Téllez demonstrates the state’s neglect in providing social services and local infrastructure. This neglect exacerbates the structural violence endemic to the border region—a continuation of colonial systems of power on the urban, rural, and racialized poor. Téllez shows that in creating the community of Maclovio Rojas, residents have challenged prescriptive notions of nation and belonging. Through women’s active participation and leadership, a women’s political subjectivity has emerged—Maclovianas. These border women both contest and invoke their citizenship as they struggle to have their land rights recognized, and they transform traditional political roles into that of agency and responsibility.

This book highlights the U.S.-Mexico borderlands as a space of resistance, conviviality, agency, and creative community building where transformative politics can take place. It shows hope, struggle, and possibility in the context of gendered violences of racial capitalism on the Mexican side of the U.S.-Mexico border.