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“The hardest thing is dealing with the rest of the world. And we kind of accommodate our lives around that. But the rest of the world doesn’t.” These poignant words were spoken by Charlotte, a mother and primary caregiver of a five-year-old autistic boy, and her words reference the structural arrangements of our world that shape autism carework today. This book features the voices of fifty primary caregivers of autistic and neurodivergent children who illuminate the process through which laywomen become expert caregivers to provide the best care for their children. Expert caregiving captures an intensification of traditional family carework – meeting dependents’ financial, emotional, and physical needs – that transcends the walls of one’s private home and family and challenges the strict boundaries between many worlds: lay and professional, family and work, private and public, medical and social, and individual and society. The process of becoming an expert caregiver spotlights several interesting paradoxes in sociological literature, particularly regarding gender, family, and medicalization, and often forgotten structural flaws in “the rest of the world.”
 
Throughout the chapters in this book, the expert caregiver is one person who faces unbelievably daunting tasks of filling or reforming persistent institutional gaps, primarily in education and health care, and subverting ableist cultural norms. Without institutional support, answers to their questions, or pragmatic avenues to access resources, lay caregivers become the experts. Their trials and tribulations, especially when navigating the boundaries of professional/lay and private/public worlds, illuminate a type of carework that is increasingly relevant to a growing number of young families caring for neurodivergent, disabled, medically fragile, and/or chronically ill children. These stories offer a vivid picture of the often invisible complex challenges and structural forces that drive individuals to become expert caregivers in the first place. 
 
 

In contemporary China, people diagnosed with serious mental illnesses have long been placed under the guardianship of close relatives who decide on their hospitalization and treatment. Despite attempts at reforms to ensure patient rights, the 2013 Mental Health Law reinforced the family’s rights and responsibilities. In Between Families and Institutions, Zhiying Ma examines how ideological, institutional, and technological processes shape families’ complicated involvement in psychiatric care. Drawing on extensive ethnographic fieldwork in psychiatric hospitals, community mental health teams, social work centers, and family support groups as well as interviews with policymakers and activists, Ma maps the workings of what she calls “biopolitical paternalism”—a mode of governance that sees vulnerable individuals as sources of risk, frames risk management as the state’s paternalistic intervention, and shifts responsibilities for care and management onto families. Ma outlines the ethical tensions, intimate vulnerabilities in households, and health disparities across the population that biopolitical paternalism produces. By exploring these implications, Ma demonstrates the myriad ways biopower enables, inhibits, and transforms medical care in China.

A powerful look at the changing cultural understanding of postpartum depression in America.
 
New motherhood is often seen as a joyful moment in a woman’s life; for some women, it is also their lowest moment. For much of the twentieth century, popular and medical voices blamed women who had emotional and mental distress after childbirth for their own suffering. By the end of the century, though, women with postpartum mental illnesses sought to take charge of this narrative. In Blue: A History of Postpartum Depression in America, Rachel Louise Moran explores the history of the naming and mainstreaming of postpartum depression. Coalitions of maverick psychiatrists, psychologists, and women who themselves had survived substantial postpartum distress fought to legitimize and normalize women’s experiences. They argued that postpartum depression is an objective and real illness and fought to avoid it being politicized alongside other fraught medical and political battles over women’s health.

Based on insightful oral histories and in-depth archival research, Blue reveals a secret history of American motherhood, women’s political activism, and the rise of postpartum depression advocacy amid an often-censorious conservative culture. By breaking new ground with the first book-length history of postpartum mental illness in the twentieth century, Moran brings mothers’ battles with postpartum depression out of the shadows and into the light.