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137 books match the query 'Patients' and 10 start with d

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Day In Day Out Alzheimers

Karen Lyman

Temple University Press, 1993

"...an insightful and constructive view of persons with dementia and their caregivers." --Carroll L. Estes, Institute for Health & Aging, University of California, San Francisco Stress for care providers and distress for clients with varying degrees of dementia--these are the dynamics Karen A. Lyman discovered in her study of eight Alzheimer's day care centers in California. Speaking as an advocate for both day care providers and people with Alzheimer's disease, the author presents a model of "what works" in Alzheimer's care. Many strategies developed by caregivers are self-defeating, Lyman found. Drawing on personal reflections, interviews, and anecdotes, she demonstrates how caregivers' struggle to maintain order through often unnecessary control contributed to patients' increased sense of self-doubt, anxiety, and incompetence. Negative expectations by caregivers brought on depression and rapid intellectual decline in patients, a "sense of hopelessness" that has been called "therapeutic nihilism." Lyman identifies unsupportive institutional policies, restrictive environments, and poorly organized programs as chronic sources of stress. The alternatives she offers meet caregivers' needs and permit clients a degree of self-determination and identity. Her model for care will be of great interest to gerontological professionals, policy makers, and family members dealing with victims of Alzheimer's disease. "[A]n insightful, comprehensive analysis of the unique reciprocal relationship between people with Alzheimer's disease and people who care for them. The author's compassionate concern emphasizes the need for innovative methods of care which alleviate stress for the care-giver and distress for the patients...an important book for policy makers, health care administrators, medical and nursing students, and all others who care." --Maggie Kuhn, Founder and National Convener of the Gray Panthers

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Deep

Real Life with Spinal Cord Injury

Marcy Epstein and Travar Pettway, Editors

University of Michigan Press, 2010

"This project fits into the larger picture of excellence that we wish to accomplish in all dimensions of our health system: groundbreaking and dedicated research, compassionate clinical care, progressive education, and a welcoming environment that includes community with people with disabilities. In Deep, the writers and editors of this book realize this mission with accuracy and clarity."
---Denise G. Tate, Director of Research at the University of Michigan Model Spinal Cord Injury Care System

People with spinal cord injuries experience life beyond their medical and rehabilitative journeys, but these stories are rarely told. Deep: Real Life with Spinal Cord Injury includes the stories of ten men and women whose lives have been transformed by spinal cord injury. Each essay challenges the stereotypes and misconceptions about SCI---with topics ranging from faith to humility to sex and manhood---offering a multitude of voices that weave together to create a better understanding of the diversity of disability and the uniqueness of those individuals whose lives are changed but not defined by their injuries. Life with SCI can be traumatic and ecstatic, uncharted and thrilling, but it always entails a journey beyond previous expectations. This volume captures this sea change, exploring the profound depths of SCI experience.

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Dementia Caregivers Share Their Stories

A Support Group in a Book

Lynda A. Markut

Vanderbilt University Press, 2005

Replete with the powerful words of experienced caregivers, Dementia Caregivers Share Their Stories is an essential guidebook for anyone who must attend to the needs of a loved one suffering from Alzheimer's disease or another form of dementia. In these pages, members of caregivers' support groups - representing twenty-six families and a variety of professions and income levels - speak candidly about the challenges they have faced at every step in the caregiving process, from recognizing early symptoms of dementia to dealing with its advanced stages.

Highlighting the ingenuity and resourcefulness of caregivers, the book brims with inspirational stories, practical advice, and creative approaches to problem-solving. Among the issues addressed are:

Becoming a caregiver, whether for a spouse or parent
Dealing with the personality changes caused by dementia, from anxiety and paranoia to hallucinations and impulsive behavior
Keeping dementia sufferers meaningfully involved in life
Handling the emotions and stresses of caregiving
Seeking help through support groups and other sources, including medical professionals, clergy, and other family members The authors, who have both been caregivers themselves, augment their interviewees' stories with connective commentary and their own personal stories. A useful resource section is included to refer readers to associations and help-lines.

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Diary of Our Fatal Illness

Charles Bardes

University of Chicago Press, 2017

This moving prose poem tells the story of an aged man who suffers a prolonged and ultimately fatal illness. From initial diagnosis to remission to relapse to death, the experience is narrated by the man’s son, a practicing doctor. Charles Bardes, a physician and poet, draws on years of experience with patients and sickness to construct a narrative that links myth, diverse metamorphoses, and the modern mechanics of death. We stand with the doctors, the family, and, above all, a sick man and his disease as their voices are artfully crafted into a new and powerful language of illness.

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Diary of a Detour

Lesley Stern

Duke University Press, 2020

Diary of a Detour is film scholar and author Lesley Stern's memoir of living with chronic lymphocytic leukemia. She chronicles the fears and daily experience of coming to grips with an incurable form of cancer by describing the dramas and delving into the science. Stern also nudges cancer off center stage by turning to alternative obsessions and pleasures. In seductive writing she describes her life in the garden and kitchen, the hospital and the library, and her travels—down the street to her meditation center, across the border to Mexico, and across the world to Australia. Her immediate world is inhabited with books, movies, politics, and medical reports that provoke essayistic reflections. As her environment is shared with friends, chickens, a cat called Elvis, mountain goats, whales, lions, and microbes the book opens onto a larger than human world. Intimate and meditative, engrossing and singular, Diary of a Detour offers new ideas about what it might mean to live and think with cancer, and with chronic illness more broadly.

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Dirty Details

Marion Deutsche Cohen, foreword by Marty Wyngaarden Krauss

Temple University Press, 1996

In 1977, at the age of 36, Jeffrey Cohen, a physicist at the University of Pennsylvania, was diagnosed with multiple sclerosis. But it wasn't until 10 years later that the "dirty details" began, when the disease had progressed to the point where he could not transfer himself out of his wheelchair. That point is where his wife Marion begins her memoir of caregiving: "If I had to explain it in three words, those words would be 'nights,' 'lifting,' and 'toilet.' And then, if I were permitted to elaborate further, I would continue, 'nights' does not mean lying awake in fear listening for his breathing. 'Lifting' does not mean dragging him by the feet along the floor. And 'toilet' does not mean changing catheters."

But "dirty details," Marion Cohen teaches us, involves more than "nights," "lifting," and "toilet." There is the loss, anger, fear, and desperation that envelops the family. She reveals what it felt like to be consistently in "dire straits" with no real help or understanding, what she characterizes as society's "conspiracy of silence." Chronicling their lives in the context of her husband's progressing disease, she discusses the raging emotions, the celebrations, the day-to-day routine, the arguments, the disappointments, and the moments of closeness. During the 15 years she cared for him at home, both continued to work on various projects, share in the rearing of their four children, and be very much in love. This powerful, honest narrative also delves into the process of making the "nursing-home decision" and those decisions Cohen made to put her and her family's life together again.

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Diva

Rafael Campo

Duke University Press, 1999

A major new work from one of America's most acclaimed younger poets, Rafael Campo's Diva appears at the intersection of confession and confinement, hyperbole and humility. In his masterful third collection, Campo explores further the epic themes of his Cuban heritage and America's newness, his work as a doctor caring for AIDS patients and his identity as a gay man.
At once relishing and resisting the poetic traditions of formal English verse, Diva showcases Campo moving deftly between received forms and free verse. In each poem the sound of words is transformed into the highest of arts, the act of performance into the exercise of power, and the most profound abjection into the sweet promise of divinity. Culminating with his new and daring translations of Federico García Lorca's sonetos—the great Spanish poet's most homoerotically explicit and formally accomplished poems—Campo's music instills in the reader an exalted understanding of beauty, suffering, and, ultimately, the human capacity for empathy.

From reviews of Campo's previous poetry:
“Extraordinary meditations on illness and the healing power of words.”—Lambda Literary Foundation

“Read Campo to enter the bloodstream of a man who, with a haunting clarity of vision, shares his memories, his anguish, his healing love.”—Cortney Davis, Literature and Medicine

“Riveting, provocative, and refreshing—[this volume] is a gift to the clinician who is trying to re-invoke in his or her students the humility, compassion, and deep caring that brought us all into medicine in the first place.”—Dr. Sandra L. Bertman, Annals of Internal Medicine

“[Campo] listens to the sounds the body makes, but what he hears is poetry.”—Zoë Ingalls, Chronicle of Higher Education

“Powerful and accessible.”—Jonathan Jackson, Washington Blade

“Bemused, indelible, and heartbreaking.”—Marilyn Hacker, Out

“[Campo’s] private corral of disparate words twist, torque, collide with gorgeous creative imperative.”—Nomi Eve, Independent Weekly

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Divided Bodies

Lyme Disease, Contested Illness, and Evidence-Based Medicine

Abigail A. Dumes

Duke University Press, 2020

While many doctors claim that Lyme disease—a tick-borne bacterial infection—is easily diagnosed and treated, other doctors and the patients they care for argue that it can persist beyond standard antibiotic treatment in the form of chronic Lyme disease. In Divided Bodies, Abigail A. Dumes offers an ethnographic exploration of the Lyme disease controversy that sheds light on the relationship between contested illness and evidence-based medicine in the United States. Drawing on fieldwork among Lyme patients, doctors, and scientists, Dumes formulates the notion of divided bodies: she argues that contested illnesses are disorders characterized by the division of bodies of thought in which the patient's experience is often in conflict with how it is perceived. Dumes also shows how evidence-based medicine has paradoxically amplified differences in practice and opinion by providing a platform of legitimacy on which interested parties—patients, doctors, scientists, politicians—can make claims to medical truth.

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Dizzy

A Memoir

Rachel Weaver

West Virginia University Press, 2026

Gold Medal Winner, Living Now Book Awards, Inspirational Memoir (Female)

“An arresting new memoir….”
– Maureen Corrigan, NPR’s Fresh Air

Beverly Donofrio, author of Riding in Cars with Boys, says “Dizzy is a testament to the power of hope. Weaver’s courage and strength are so inspiring they encourage the same in the reader. If all of that isn’t enough, the beauty and agility of the prose may make you regret reaching the last page.”

In her early thirties, Rachel Weaver woke up dizzy and unable to function. She spent the next ten years seeing more than thirty medical practitioners before receiving a diagnosis, and then another eight years before finding relief from her condition. Dizzy is amedical mystery and a cautionary tale about our broken healthcare system. It is a story about learning to live with life's uncertainty, persevering in the pursuit of answers, and striving to find joy in an imperfect yet beautiful world.

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