436 books match the query 'Disability' and 17 start with f

cover of Familial Fitness: Disability, Adoption, and Family in Modern America

Familial Fitness

Disability, Adoption, and Family in Modern America

Sandra M. Sufian

University of Chicago Press, 2022

The first social history of disability and difference in American adoption, from the Progressive Era to the end of the twentieth century.

Disability and child welfare, together and apart, are major concerns in American society. Today, about 125,000 children in foster care are eligible and waiting for adoption, and while many children wait more than two years to be adopted, children with disabilities wait even longer. In Familial Fitness, Sandra M. Sufian uncovers how disability operates as a fundamental category in the making of the American family, tracing major shifts in policy, practice, and attitudes about the adoptability of disabled children over the course of the twentieth century. 

Chronicling the long, complex history of disability, Familial Fitness explores how notions and practices of adoption have—and haven’t—accommodated disability, and how the language of risk enters into that complicated relationship. We see how the field of adoption moved from widely excluding children with disabilities in the early twentieth century to partially including them at its close. As Sufian traces this historical process, she examines the forces that shaped, and continue to shape, access to the social institution of family and invites readers to rethink the meaning of family itself.
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cover of Families We Need: Disability, Abandonment, and  Foster Care’s Resistance in Contemporary China

Families We Need

Disability, Abandonment, and Foster Care’s Resistance in Contemporary China

Erin Raffety

Rutgers University Press, 2023

Set in the remote, mountainous Guangxi Autonomous Region and based on ethnographic fieldwork, Families We Need traces the movement of three Chinese foster children, Dengrong, Pei Pei, and Meili, from the state orphanage into the humble, foster homes of Auntie Li, Auntie Ma, and Auntie Huang. Traversing the geography of Guangxi, from the modern capital Nanning where Pei Pei and Meili reside, to the small farming village several hours away where Dengrong is placed, this ethnography details the hardships of social abandonment for disabled children and disenfranchised, older women in China, while also analyzing the state’s efforts to cope with such marginal populations and incorporate them into China’s modern future. The book argues that Chinese foster families perform necessary, invisible service to the Chinese state and intercountry adoption, yet the bonds they form also resist such forces, exposing the inequalities, privilege, and ableism at the heart of global family making.
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cover of Family Consequences of Children’s Disabilities

Family Consequences of Children’s Disabilities

Denis P. Hogan

Russell Sage Foundation, 2012

The Americans with Disabilities Act (ADA) and other national policies are designed to ensure the greatest possible inclusion of people with disabilities in all aspects of American life. But as a matter of national policy we still place the lion's share of responsibility for raising children with disabilities on their families. While this strategy largely works, sociologist Dennis Hogan maintains, the reality is that family financial security, the parents' relationship, and the needs of other children in the home all can be stretched to the limit. In Family Consequences of Children's Disabilities Hogan delves inside the experiences of these families and examines the financial and emotional costs of raising a child with a disability. The book examines the challenges families of children with disabilities encounter and how these challenges impact family life. The first comprehensive account of the families of children with disabilities, Family Consequences of Children's Disabilities employs data culled from seven national surveys and interviews with twenty-four mothers of children with disabilities, asking them questions about their family life, social supports, and how other children in the home were faring. Not surprisingly, Hogan finds that couples who are together when their child is born have a higher likelihood of divorcing than other parents do. The potential for financial insecurity contributes to this anxiety, especially as many parents must strike a careful balance between employment and caregiving. Mothers are less likely to have paid employment, and the financial burden on single parents can be devastating. One-third of children with disabilities live in single-parent households, and nearly 30 percent of families raising a child with a disability live in poverty. Because of the high levels of stress these families incur, support networks are crucial. Grandparents are often a source of support. Siblings can also assist with personal care and, consequently, tend to develop more helpful attitudes, be more inclusive of others, and be more tolerant. But these siblings are at risk for their own health problems: they are three times more likely to experience poor health than children in homes where there is no child with a disability. Yet this book also shows that raising a child with a disability includes unexpected rewards—the families tend to be closer, and they engage in more shared activities such as games, television, and meals. Family Consequences of Children's Disabilities offers access to a world many never see or prefer to ignore. The book provides vital information on effective treatment, rehabilitation, and enablement to medical professionals, educators, social workers, and lawmakers. This compelling book demonstrates that every mirror has two faces: raising a child with a disability can be difficult, but it can also offer expanded understanding. A Volume in the American Sociological Association's Rose Series in Sociology
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cover of Family Trouble: Middle-Class Parents, Children's Problems, and the Disruption of Everyday Life

Family Trouble

Middle-Class Parents, Children's Problems, and the Disruption of Everyday Life

Francis, Ara

Rutgers University Press, 2015

Our children mean the world to us. They are so central to our hopes and dreams that we will do almost anything to keep them healthy, happy, and safe. What happens, then, when a child has serious problems? In Family Trouble, a compelling portrait of upheaval in family life, sociologist Ara Francis tells the stories of middle-class men and women whose children face significant medical, psychological, and social challenges. 
 
Francis interviewed the mothers and fathers of children with such problems as depression, bi-polar disorder, autism, learning disabilities, drug addiction, alcoholism, fetal alcohol syndrome, and cerebral palsy. Children’s problems, she finds, profoundly upset the foundations of parents’ everyday lives, overturning taken-for-granted expectations, daily routines, and personal relationships. Indeed, these problems initiated a chain of disruption that moved through parents’ lives in domino-like fashion, culminating in a crisis characterized by uncertainty, loneliness, guilt, grief, and anxiety. Francis looks at how mothers and fathers often differ in their interpretation of a child’s condition, discusses the gendered nature of child rearing, and describes how parents struggle to find effective treatments and to successfully navigate medical and educational bureaucracies. But above all, Family Trouble examines how children’s problems disrupt middle-class dreams of the “normal” family. It captures how children’s problems “radiate” and spill over into other areas of parents’ lives, wreaking havoc even on their identities, leading them to reevaluate deeply held assumptions about their own sense of self and what it means to achieve the good life.  

Engagingly written, Family Trouble offers insight to professionals and solace to parents. The book offers a clear message to anyone in the throes of family trouble: you are in good company, and you are not as different as you might feel...
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cover of Family and Disability Activism: Beyond Allies and Obstacles

Family and Disability Activism

Beyond Allies and Obstacles

Edited by Pamela Block, Allison C. Carey, and Richard K. Scotch

Temple University Press, 2025

In 2020, Pamela Block, Allison C. Carey, and Richard K. Scotch published Allies and Obstacles, which examined the tensions and connections between disability activism and parents of children with disabilities. In Family and Disability Activism, they continue to examine these issues with a focus on the path-breaking advocacy by marginalized activists with intersectional lived experiences.

Family and Disability Activism reveals how families and disabled people who identify as BIPOC and/or LGBTQIA2S+ understand issues of rights versus justice. Contributions by Deaf and disabled activists emphasize the frequent need for either care or independence. Other chapters show how members of the disabled community and their families must navigate systemic issues of segregation, institutionalization, and access to special education services differently depending on their ethnic and racial identities.

Expanding the conversation about disability, kinship, biological and chosen families, and activism, this volume amplifies important voices in the fight for disability rights.

Contributors: Erin Compton, Diane Compton, Jaclyn Ellis, Laura LeBrun Hatcher, Elena Hung, Bridget Liang, Jenelle Rouse, Cheryl Najarian Souza, Jeneva Stone, Roger A. Stone, Lisette E. Torres, Grace Tsao, and the editors
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cover of Fictions of Affliction: Physical Disability in Victorian Culture

Fictions of Affliction

Physical Disability in Victorian Culture

Martha Stoddard Holmes

University of Michigan Press, 2010

Tiny Tim, Clym Yeobright, Long John Silver---what underlies nineteenth-century British literature's fixation with disability? Melodramatic representations of disability pervaded not only novels by Dickens, but also doctors' treatises on blindness, educators' arguments for "special" education, and even the writing of disabled people themselves. Drawing on extensive primary research, Martha Stoddard Holmes introduces readers to popular literary and dramatic works that explored culturally risky questions like "can disabled men work?" and "should disabled women have babies?" and makes connections between literary plots and medical, social, and educational debates of the day. The first book of its kind, Fictions of Affliction contributes a new emphasis to Victorian literary and cultural studies and offers new readings of works by canonic and becoming-canonic writers like Dickens, Wilkie Collins, and others.
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cover of Fitter, Happier: The Eugenic Strain in Twentieth-Century Cancer Rhetoric

Fitter, Happier

The Eugenic Strain in Twentieth-Century Cancer Rhetoric

Lois Peters Agnew

University of Alabama Press, 0

A critical investigation into how eugenic logics quietly animated twentieth‑century cancer rhetoric, reshaping cultural narratives of health, risk, and human worth.

Fitter, Happier: The Eugenic Strain in Twentieth-Century Cancer Rhetoric is a thought-provoking exploration of the relationship between cancer rhetoric, American ideals, and eugenic influences in the twentieth century. This groundbreaking work delves into the paradoxical interplay between acknowledging the genuine threat of cancer and the ingrained American ethos of confidence and control.

Agnew’s meticulous research traces the topic’s historical context, unveiling how cancer discourses evolved from a hushed personal concern to a public issue thanks to the rise of cancer research centers and advocacy organizations. However, she unearths a troubling dimension to these discussions—subtle yet persistent eugenic ideologies that taint cancer arguments and advocacy groups. By dissecting prevailing cancer narratives, Agnew brings into focus how ideals rooted in eliminating imperfections and embracing progress converge with concerns for safeguarding societal fitness.

Fitter, Happier scrutinizes the military origins and metaphors that permeate government policies and medical research, the transformation of cancer’s association with melancholy into a rallying cry for a positive outlook, and the nuanced implications of prevention-focused dialogues. Reflecting on the varied experiences of actual cancer patients, Agnew resists the neat assimilation of these stories into a eugenic framework. Agnew’s insights prompt readers to contemplate the societal meanings of disease and disability as well as how language constructs our shared reality.

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cover of Food Allergy Advocacy: Parenting and the Politics of Care

Food Allergy Advocacy

Parenting and the Politics of Care

Danya Glabau

University of Minnesota Press, 2022

A detailed exploration of parents’ fight for a safe environment for their kids, interrogating how race, class, and gender shape health advocacy 

The success of food allergy activism in highlighting the dangers of foodborne allergens shows how illness communities can effectively advocate for the needs of their members. In Food Allergy Advocacy, Danya Glabau follows parents and activists as they fight for allergen-free environments, accurate labeling, the fair application of disability law, and access to life-saving medications for food-allergic children in the United States. At the same time, she shows how this activism also reproduces the culturally dominant politics of personhood and responsibility, based on an idealized version of the American family, centered around white, middle-class, and heteronormative motherhood.

By holding up the threat of food allergens to the white nuclear family to galvanize political and scientific action, Glabau shows, the movement excludes many, including Black women and disabled adults, whose families and health have too often been marginalized from public health and social safety net programs. Further, its strategies are founded on the assumption that market-based solutions will address issues of social exclusion and equal access to healthcare. 

Sharing the personal experiences of a wide spectrum of people, including parents, support group leaders, physicians, entrepreneurs, and scientists, Food Allergy Advocacy raises important questions about who controls illness activism. Using critical, intersectional feminism to interrogate how race, class, and gender shape activist priorities and platforms, it shows the way to new, justice-focused models of advocacy.

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cover of For a Pragmatics of the Useless

For a Pragmatics of the Useless

Erin Manning

Duke University Press, 2020

What has a use in the future, unforeseeably, is radically useless now. What has an effect now is not necessarily useful if it falls through the gaps. In For a Pragmatics of the Useless Erin Manning examines what falls outside the purview of already-known functions and established standards of value, not for want of potential but for carrying an excess of it. The figures are various: the infrathin, the artful, proprioceptive tactility, neurodiversity, black life. It is around the latter two that a central refrain echoes: "All black life is neurodiverse life." This is not an equation, but an "approximation of proximity." Manning shows how neurotypicality and whiteness combine to form a normative baseline for existence. Blackness and neurodiversity "schizz" around the baseline, uselessly, pragmatically, figuring a more-than of life living. Manning, in dialogue with Félix Guattari and drawing on the black radical tradition's accounts of black life and the aesthetics of black sociality, proposes a "schizoanalysis" of the more-than, charting a panoply of techniques for other ways of living and learning.
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cover of Forget Burial: HIV Kinship, Disability, and Queer/Trans Narratives of Care

Forget Burial

HIV Kinship, Disability, and Queer/Trans Narratives of Care

Marty Fink

Rutgers University Press, 2021

Finalist for the LGBTQ Nonfiction Award from Lambda Literary

Queers and trans people in the 1980s and early ‘90s were dying of AIDS and the government failed to care. Lovers, strangers, artists, and community activists came together take care of each other in the face of state violence. In revisiting these histories alongside ongoing queer and trans movements, this book uncovers how early HIV care-giving narratives actually shape how we continue to understand our genders and our disabilities. The queer and trans care-giving kinships that formed in response to HIV continue to inspire how we have sex and build chosen families in the present. In unearthing HIV community newsletters, media, zines, porn, literature, and even vampires, Forget Burial bridges early HIV care-giving activisms with contemporary disability movements. In refusing to bury the legacies of long-term survivors and of those we have lost, this book brings early HIV kinships together with ongoing movements for queer and trans body self-determination.
 
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cover of Form, Meaning, and Focus in American Sign Language

Form, Meaning, and Focus in American Sign Language

Miako N. P. Rankin

Gallaudet University Press, 2013

The meaning of any linguistic expression resides not only in the words, but also in the ways that those words are conveyed. In her new study, Miako N. P. Rankin highlights the crucial interrelatedness of form and meaning at all levels in order to consider specific types of American Sign Language (ASL) expression. In particular, Form, Meaning, and Focus in American Sign Language considers how ASL expresses non-agent focus, similar to the meaning of passive voice in English.

       Rankin’s analyses of the form-meaning correspondences of ASL expressions of non-agent focus reveals an underlying pattern that can be traced across sentence and verb types. This pattern produces meanings with various levels of focus on the agent. Rankin has determined in her meticulous study that the pattern of form-meaning characteristic of non-agent focus in ASL is used prolifically in day-to-day language. The recognition of the frequency of this pattern holds implications regarding the acquisition of ASL, the development of curricula for teaching ASL, and the analysis of ASL discourse in effective interpretation.

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cover of Foucault and Feminist Philosophy of Disability

Foucault and Feminist Philosophy of Disability

Shelley L. Tremain

University of Michigan Press, 2017

Foucault and Feminist Philosophy of Disability is a distinctive contribution to growing discussions about how power operates within the academic field of philosophy. By combining the work of Michel Foucault, the insights of philosophy of disability and feminist philosophy, and data derived from empirical research, Shelley L. Tremain compellingly argues that the conception of disability that currently predominates in the discipline of philosophy, according to which disability is a natural disadvantage or personal misfortune, is inextricably intertwined with the underrepresentation of disabled philosophers in the profession of philosophy. Against the understanding of disability that prevails in subfields of philosophy such as bioethics, cognitive science, ethics, and political philosophy, Tremain elaborates a new conception of disability as a historically specifi c and culturally relative apparatus of power. Although the book zeros in on the demographics of and biases embedded in academic philosophy, it will be invaluable to everyone who is concerned about the social, economic, institutional, and political subordination of disabled people.
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cover of Foucault and the Government of Disability

Foucault and the Government of Disability

Shelley Tremain, Editor

University of Michigan Press, 2005


Foucault and the Government of Disability is the first book-length investigation of the relevance and importance of the ideas of Michel Foucault to the field of disability studies-and vice versa. Over the last thirty years, politicized conceptions of disability have precipitated significant social change, including the landmark Americans with Disabilities Act in 1990, the redesign of urban landscapes, the appearance of closed-captioning on televisions, and the growing recognition that disabled people constitute a marginalized and disenfranchised constituency.

The provocative essays in this volume respond to Foucault's call to question what is regarded as natural, inevitable, ethical, and liberating, while they challenge established understandings of Foucault's analyses and offer fresh approaches to his work. The book's roster of distinguished international contributors represents a broad range of disciplines and perspectives, making this a timely and necessary addition to the burgeoning field of disability studies.

 
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cover of Foucault and the Government of Disability

Foucault and the Government of Disability

Shelley Tremain, Editor

University of Michigan Press, 2005

Foucault and the Government of Disability considers the continued relevance of Foucault to disability studies, as well as the growing significance of disability studies to understandings of Foucault. A decade ago, this international collection provocatively responded to Foucault’s call to question what is regarded as natural, inevitable, ethical, and liberating. The book’s contributors draw on Foucault to scrutinize a range of widely endorsed practices and ideas surrounding disability, including rehabilitation, community care, impairment, normality and abnormality, inclusion, prevention, accommodation, and special education. In this revised and expanded edition, four new essays extend and elaborate the lines of inquiry by problematizing (to use Foucault’s term) the epistemological, political, and ethical character of the supercrip, the racialized war on autism, the performativity of intellectual disability, and the potent mixture of neoliberalism and biopolitics in the context of physician-assisted suicide.

“[A]n important, prescient, and necessary contribution…a kind of litmus test for the efficacy of Foucault’s concepts in the study of disability, concepts that lead to a refusal of the biological essentialism implied in the disability/impairment binary.”
—Foucault Studies

“Tremain has done an exceptional job at organizing and procuring important, rigorously argued, and entertaining essays…. This book should be a mandatory read for anyone interested in contemporary philosophical debates surrounding the experience of disability."
—Essays in Philosophy

“A beautiful exploration of how Foucault’s analytics of power and genealogies of discursive knowledges can open up new avenues for thinking critically about phenomena that many of us take to be inevitable and thus new ways of resisting and possibly at times redirecting the forces that shape our lives. Every scholar, every person with an interest in Foucault or in political theory generally, needs to read this book.”
—Ladelle McWhorter, University of Richmond  


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cover of Freak Performances: Dissidence in Latin American Theater

Freak Performances

Dissidence in Latin American Theater

Analola Santana

University of Michigan Press, 2018

The figure of the freak as perceived by the Western gaze has always been a part of the Latin American imaginary, from the letters that Columbus wrote about his encounters with dog-faced people to Shakespeare's Caliban. The freak acquires greater significance in a globalized, neoliberal world that defines the "abnormal" as one who does not conform mentally, physically, or emotionally and is unable or unwilling to follow the economic and cultural norms of the institutions in power. Freak Performances examines the continuing effects of colonialism on modern Latin American identities, with a particular focus on the way it has constructed the body of the other through performance. Theater questions the representations of these bodies, as it enables the empowerment of the silenced other; the freak as a spectacle of otherness finds in performance an opportunity for re-appropriation by artists resisting the dominant authority. Through an analysis of experimental theater, dance theater, performance art, and gallery-based installation art across eight countries, Analola Santana explores the theoretical issues shaped by the encounters and negotiations between different bodies in the current Latin American landscape.
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cover of From Good Will To Civil Rights: Transforming Federal Disability Policy

From Good Will To Civil Rights

Transforming Federal Disability Policy

Richard K. Scotch

Temple University Press, 2001

Now that curb cuts, braille elevator buttons, and closed caption television are commonplace, many people assume that disabled people are now full participants in American society. This book tells a rather different story. It tells how America's disabled mobilized to effect sweeping changes in public policy, not once but twice, and it suggests that the struggle is not yet over.

The first edition of From Good Will to Civil Rights traced the changes in federal disability policy, focusing on the development and implementation of Section 504 of the Rehabilitation Act of 1973. Richard K. Scotch's extensive interviews with policymakers, leaders of the disability rights movement, and other advocates, supplemented the sketchy official history of the legislation with the detailed, behind-the-scenes story, illuminating the role of the disability rights movement in shaping Section 504. Charting the shifts in policy and activist agendas through the 1990's, this new edition surveys the effects and disappointments associated with the Americans with Disabilities Act, passed in 1990, in the context of the continuing movement to secure civil rights for disabled people.
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cover of From Pity to Pride: Growing Up Deaf in the Old South

From Pity to Pride

Growing Up Deaf in the Old South

Hannah Joyner

Gallaudet University Press, 2004

The antebellum South’s economic dependence on slavery engendered a rigid social order in which a small number of privileged white men dominated African Americans, poor whites, women, and many people with disabilities. From Pity to Pride examines the experiences of a group of wealthy young men raised in the old South who also would have ruled over this closely regimented world had they not been deaf. Instead, the promise of status was gone, replaced by pity, as described by one deaf scion, “I sometimes fancy some people to treat me as they would a child to whom they were kind.”

In this unique and fascinating history, Hannah Joyner depicts in striking detail the circumstances of these so-called victims of a terrible “misfortune.” Joyner makes clear that Deaf people in the North also endured prejudice. She also explains how the cultural rhetoric of paternalism and dependency in the South codified a stringent system of oppression and hierarchy that left little room for self-determination for Deaf southerners. From Pity to Pride reveals how some of these elite Deaf people rejected their family’s and society’s belief that being deaf was a permanent liability. Rather, they viewed themselves as competent and complete. As they came to adulthood, they joined together with other Deaf Americans, both southern and northern, to form communities of understanding, self-worth, and independence.

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