137 books match the query 'Patients' and 11 start with p

cover of Patient Zero and the Making of the AIDS Epidemic

Patient Zero and the Making of the AIDS Epidemic

Richard A. McKay

University of Chicago Press, 2017

Now an award-winning documentary feature film

The search for a “patient zero”—popularly understood to be the first person infected in an epidemic—has been key to media coverage of major infectious disease outbreaks for more than three decades. Yet the term itself did not exist before the emergence of the HIV/AIDS epidemic in the 1980s. How did this idea so swiftly come to exert such a strong grip on the scientific, media, and popular consciousness? In Patient Zero, Richard A. McKay interprets a wealth of archival sources and interviews to demonstrate how this seemingly new concept drew upon centuries-old ideas—and fears—about contagion and social disorder.

McKay presents a carefully documented and sensitively written account of the life of Gaétan Dugas, a gay man whose skin cancer diagnosis in 1980 took on very different meanings as the HIV/AIDS epidemic developed—and who received widespread posthumous infamy when he was incorrectly identified as patient zero of the North American outbreak. McKay shows how investigators from the US Centers for Disease Control inadvertently created the term amid their early research into the emerging health crisis; how an ambitious journalist dramatically amplified the idea in his determination to reframe national debates about AIDS; and how many individuals grappled with the notion of patient zero—adopting, challenging and redirecting its powerful meanings—as they tried to make sense of and respond to the first fifteen years of an unfolding epidemic. With important insights for our interconnected age, Patient Zero untangles the complex process by which individuals and groups create meaning and allocate blame when faced with new disease threats. What McKay gives us here is myth-smashing revisionist history at its best.
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cover of Patients as Policy Actors

Patients as Policy Actors

Hoffman, Beatrix

Rutgers University Press, 2011

Patients as Policy Actors offers groundbreaking accounts of one of the health field's most important developments of the last fifty years--the rise of more consciously patient-centered care and policymaking. The authors in this volume illustrate, from multiple disciplinary perspectives, the unexpected ways that patients can matter as both agents and objects of health care policy yet nonetheless too often remain silent, silenced, misrepresented, or ignored. The volume concludes with a unique epilogue outlining principles for more effectively integrating patient perspectives into a pluralistic conception of policy-making. With the recent enactment of the Patient Protection and Affordable Care Act, patients' and consumers' roles in American health care require more than ever the careful analysis and attention exemplified by this innovative volume.
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cover of Patients of the State: The Politics of Waiting in Argentina

Patients of the State

The Politics of Waiting in Argentina

Javier Auyero

Duke University Press, 2012

Patients of the State is a sociological account of the extended waiting that poor people seeking state social and administrative services must endure. It is based on ethnographic research in the waiting area of the main welfare office in Buenos Aires, in the line leading into the Argentine registration office where legal aliens apply for identification cards, and among people who live in a polluted shantytown on the capital’s outskirts, while waiting to be allocated better housing. Scrutinizing the mundane interactions between the poor and the state, as well as underprivileged people’s confusion and uncertainty about the administrative processes that affect them, Javier Auyero argues that while waiting, the poor learn the opposite of citizenship. They learn to be patients of the state. They absorb the message that they should be patient and keep waiting, because there is nothing else that they can do. Drawing attention to a significant everyday dynamic that has received little scholarly attention until now, Auyero considers not only how the poor experience these lengthy waits but also how making poor people wait works as a strategy of state control.
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cover of Petty Tyranny and Soulless Discipline?: Patients, Policy and Practice in Public Mental Hospitals in England, 1918–1930

Petty Tyranny and Soulless Discipline?

Patients, Policy and Practice in Public Mental Hospitals in England, 1918–1930

Claire Hilton

University College London, 2025

The first dedicated book on public mental hospital services in England in the decade following World War I.

Petty Tyranny and Soulless Discipline? examines England’s public mental hospitals for the working class after World War I. Claire Hilton combines narratives of patients’ difficult daily lives with an analysis of competing agendas from campaigners, the government, and new medical knowledge to build a complex picture of mental health provision. Patient experiences, including their admission, care, treatment, discharge, and sometimes death, are illuminated in previously unexplored primary sources and situated within the broader context of reform and change (or lack thereof). While offering a comprehensive history of psychiatric care in early twentieth-century England, the book also draws on historical insights to reflect on contemporary mental health practices, making it relevant to historians, mental health professionals, and patients alike.
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cover of Physician Communication with Patients: Research Findings and Challenges

Physician Communication with Patients

Research Findings and Challenges

Jon B. Christianson, PhD, Louise H. Warrick, DrPH, Michael Finch, PhD, and Wayne Jonas, MD

University of Michigan Press, 2012

We all have a good idea of how we want things to go when we visit a physician. We expect to be able to explain why we are there, and we hope the physician will listen and possibly ask questions that help us clarify our thoughts. Most of us hope that the physician will provide some expression of empathy, offer a clear, nontechnical assessment of our problem, and describe "next steps" in a way that is easy to understand. Ideally, we would like to be asked about our ability to follow treatment recommendations. Some experts say that these expectations are not only reasonable but even necessary if patients are to get the care they need. Yet there is a growing body of research that suggests the reality of physician communication with patients often falls short of this ideal in many respects.

A careful analysis of the findings of this research can provide guidance to physician educators, health care administrators, and health policy makers interested in understanding the role that improved physician communication can play in improving quality of care and patient outcomes. Physician Communication with Patients summarizes findings from the academic literature pertaining to various aspects of this question, discussing those findings in the context of current pressures for change in the organization and delivery of medical services.

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cover of Places in the Bone: A Memoir

Places in the Bone

A Memoir

Dine, Carol

Rutgers University Press, 2005

In a series of unflinching vignettes laced with heartbreak and often with humor, Places in the Bone gives an unforgettable account of loss and survival, childhood secrets banished from memory, and the power of language to retrieve the missing parts of oneself and one’s past. Woven together with unmistakable lyricism, Carol Dine’s narrative moves back and forth in time and place—from the childhood bedroom that fills her with fear, to a hospital room after her surgery for breast cancer, to an adobe hut in a New Mexico artists’ colony where she escapes and finds her voice.

This voice, it turns out, is a chorus—a harmony of cries, both anguished and triumphant. Among them we hear a young girl speak about the abuse by her father; we hear the tormented reflections of a mother who, for several years after a divorce, loses contact with her young son; and we hear the testimony of a cancer survivor. Through it all, we feel the determination, courage, and creativity of a woman who has spent more than two decades confronting her past, her body, and her identity. Despite her struggles, Dine finds positive influences in her life, including her mentor, Anne Sexton, who recognizes the fire in her words, and Stanley Kunitz, whose indomitable spirit provides enduring inspiration.  

More than a story of personal loss, the memoir moves us with its humanity, its unnerving wit, and its defiant faith. As the fragments come together, we experience Dine’s joy in living and her reconciliation with the past that allow her to renew bonds with her son, her sister, and her mother. In page after page, we witness the power of art to refigure a body, to transform suffering, and ultimately, to redeem.  

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cover of Prescription TV: Therapeutic Discourse in the Hospital and at Home

Prescription TV

Therapeutic Discourse in the Hospital and at Home

Joy V. Fuqua

Duke University Press, 2012

Tracing the history of television as a therapeutic device, Joy V. Fuqua describes how TVs came to make hospitals seem more like home and, later, "medicalized" the modern home. She examines the introduction of television into the private hospital room in the late 1940s and 1950s and then moves forward several decades to consider the direct-to-consumer prescription drug commercials legalized in 1997. Fuqua explains how, as hospital administrators and designers sought ways of making the hospital a more inviting, personalized space, TV sets came to figure in the architecture and layout of health care facilities. Television manufacturers seized on the idea of therapeutic TV, specifying in their promotional materials how TVs should be used in the hospital and positioned in relation to the viewer. With the debut of direct-to-consumer prescription drug advertising in the late 1990s, television assumed a much larger role in the medical marketplace. Taking a case-study approach, Fuqua uses her analysis of an ad campaign promoting Pfizer's Viagra to illustrate how television, and later the Internet, turned the modern home into a clearinghouse for medical information, redefined and redistributed medical expertise and authority, and, in the process, created the contemporary consumer-patient.
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cover of Prisoner of Her Past: A Son's Memoir

Prisoner of Her Past

A Son's Memoir

Howard Reich

Northwestern University Press, 2011

Until February 15, 2001, Howard Reich’s mother, Sonia, had managed to keep almost everything about her experience of the Holocaust from her son. That night, she packed some clothes and fled her house in Skokie, Illinois, convinced that someone was trying to kill her. This was the first indication that she was suffering from late-onset post traumatic stress disorder, a little-known condition that can emerge decades after the initial trauma. For Howard, it was also the opening of a window onto his mother’s past. 

In Prisoner of Her Past, Howard Reich has written a moving memoir about growing up as the child of Holocaust survivors and finding refuge from silence and fear in the world of jazz. It is only when Sonia’s memories overwhelm her and Howard begins to piece together her story that he comes to understand how his parents’ lives shaped his own. The paperback edition includes an epilogue by the author that relates developments since the publication of the cloth edition.

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cover of Probably Someday Cancer: Genetic Risk and Preventative Mastectomy

Probably Someday Cancer

Genetic Risk and Preventative Mastectomy

Kim Horner

University of North Texas Press, 2019

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cover of Protecting American Health Care Consumers

Protecting American Health Care Consumers

Eleanor DeArman Kinney

Duke University Press, 2002

Despite the attention to the problem of protecting the health care interests of Americans, there is little consensus on what should be done politically or otherwise to address this problem. In Protecting American Health Care Consumers Eleanor DeArman Kinney, a nationally regarded expert on health policy and law, tackles the serious and ongoing debate among state and federal policymakers, health care providers, third-party payers, and consumers about how to provide procedural justice to patients in the present health care climate.
To promote and ensure consumer protection in an increasingly adversarial and complicated health-care culture, Kinney first analyzes the procedures by which consumer concerns are presently discerned and resolved and then explains why these systems are unsatisfactory. She also discusses problematic procedures for making coverage policy and quality standards and proposes reforms in a variety of processes that would enable all consumers, including the uninsured, to influence key policies and standards and also to raise concerns and obtain appropriate remedies.
As the first comprehensive treatment of administrative procedures in American health plans and other such institutions, Protecting American Health Care Consumers will be welcomed by state and federal policymakers, managed care executives, and lawyers charged with designing and implementing protections for consumers in public and private health plans.
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cover of Psychiatric Malpractice: Stories of Patients, Psychiatrists, and the Law

Psychiatric Malpractice

Stories of Patients, Psychiatrists, and the Law

Kelley, James L

Rutgers University Press, 1996

• Two weeks after Johnny Moore was discharged from a psychiatric hospital, the deeply troubled teenager took a lethal overdose of the antidepressant prescribed by his psychiatrist.

• Dennis Gould suffered from paranoid schizophrenia. He let a streetcar cut off his right arm rather than carry out his divine mission to kill his ex-girlfriend, Shelley Rotman; three years later––while under psychiatric care and after several hospitalizations––Gould stabbed the young woman to death with his left arm. 

• After seven months of psychotherapy as his only treatment in a private psychiatric hospital, Raphael Osheroff’s symptoms of the agitated depression that had destroyed his medical practice and personal life were more severe than ever. At a second hospital, Osheroff was given the antidepressant drugs he had been asking for––and he rapidly improved.

• Joan Barkley went to Dr. Jonathan Fox for help in overcoming her addiction to Darvon. After a year of therapy, the twice-weekly  sessions turned into intense sexual encounters, which continued for two years.

James Kelley tells the true stories of people who sought help from psychiatrists and ended up suing them for malpractice. These tales are compelling, tragic, and sometimes bizarre. They offer a unique view into a relationship that is normally confidential and caring––but can be catastrophic when it goes wrong. Kelley discusses several cases that received national attention: former Reagan administration press secretary James Brady's suit against the psychiatrist who had been treating John Hinckley; the Tarasoff decision that established the psychiatrist’s duty to warn potential victims of a patient’s threats; and the disciplinary proceedings against Dr. Margaret Bean-Bayog for her unusual “mothering” treatment of Paul Lozano.

Kelley accompanies detailed accounts of courtroom clashes––based on court records––with clear, even-handed treatments of four kinds of psychiatric malpractice cases: a patient’s suicide, a patient’s violence against other people, a psychotherapist's sexual misconduct, and the use of unconventional treatments. With a wealth of examples, he explains the role of psychiatrists as expert witnesses against each other, the difficulties of predicting the outcomes of these suits, and the balances psychiatrists and judges have to strike between the duties owed to patients, on the one hand, and to society on the other. 

Whether you identify with the patients or the psychiatrists, you will find these tales unforgettable. Kelley writes in nontechnical language for the general reader, stressing the human elements. His lucid analyses of key, current issues make his book essential reading for professionals in mental health or law––and for anyone contemplating a malpractice suit.

 

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