1415 books match the query 'Medical' and 46 start with r

cover of RSF: The Russell Sage Foundation Journal of the Social Sciences: The Social, Political, and Economic Effects of the Affordable Care Act

RSF

The Russell Sage Foundation Journal of the Social Sciences: The Social, Political, and Economic Effects of the Affordable Care Act

Andrea Campbell

Russell Sage Foundation, 2020

The Patient Protection and Affordable Care Act, often referred to as the ACA or Obamacare, was enacted in 2010 in the wake of the Great Recession. The law transformed the way that Americans access healthcare, nearly halving the ranks of the 49 million uninsured Americans. Edited by political scientist Andrea Louise Campbell and economist Lara Shore-Sheppard, this issue of RSF examines the social, political, and economic effects of this landmark legislation.
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This journal issue explores the political dimensions of the rollout of the ACA and the attendant backlash. Contributors Helen Levy, Andrew Ying, and Nicholas Bagley argue that despite repeated efforts at repeal, over 80 percent of the Act has been implemented as it was originally intended.  Julianna Pacheco, Jake Haselswerdt, and Jamila Michener show that when Republican governors support Medicaid expansion, Republican voters become more favorable toward the ACA, and polarization between Republican and Democrat voters decreases. Yet Charles Courtemanche, James Marton, and Aaron Yelowitz find little impact of the ACA on voter participation. Lisa Beauregard and Edward Miller examine states’ adoption of the ACA’s home and community-based care services for the elderly and people with disabilities, finding that states with more liberal elected officials and more fiscal capacity were more likely to adopt these provisions. Paul Shafer, David Anderson, Seciah Aquino, Laura Baum, Erika Franklin Fowler, and Sarah Gollust probe the role of different types of health insurance and political advertising on insurance enrollment.  Richard Fording and Dana Patton explain the emergence of contentious Medicaid work requirements and patient co-pays that limit access to Medicaid. 

Other contributors address how the ACA affects marginalized populations. Carrie Fry, Thomas McGuire, and Richard Frank link Medicaid expansion to lower rates of recidivism among the formerly incarcerated. Radhika Gore, Ritu Dhar, Sadia Mohaimin, Priscilla Lopez, Anna Divney, Jennifer Zanowiak, Lorna Thorpe, and Nadia Islam study primary care practices serving South Asian immigrants in New York City and highlight the importance of social context and organizational constraints in designing population health interventions. The issue also examines the economic effects of the ACA, especially on access to private and public health insurance. Both Mark Hall and Jean Abraham study instability in ACA health insurance markets, with Hall focusing on uncertainty arising from political factors and Abraham examining the factors that lead local markets to face high premiums and low insurer participation. Philip Rocco and Andrew Kelly explore the mechanisms included in the ACA to try to spur innovations in care delivery that both improve health and generate long-term cost savings.
As the COVID-19 pandemic affects healthcare in unprecedented ways, affordable healthcare access is critical. This RSF journal issue offers a timely, thoughtful consideration of one of the most pressing issues in American life. 
 
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cover of Race, Place, and Medicine: The Idea of the Tropics in Nineteenth-Century Brazil

Race, Place, and Medicine

The Idea of the Tropics in Nineteenth-Century Brazil

Julyan G. Peard

Duke University Press, 1999

Race, Place, and Medicine examines the impact of a group of nineteenth-century Brazilian physicians who became known posthumously as the Bahian Tropicalista School of Medicine. Julyan G. Peard explores how this group of obscure clinicians became participants in an international debate as they helped change the scientific framework and practices of doctors in Brazil.
Peard shows how the Tropicalistas adapted Western medicine and challenged the Brazilian medical status quo in order to find new answers to the old question of whether the diseases of warm climates were distinct from those of temperate Europe. They carried out innovative research on parasitology, herpetology, and tropical disorders, providing evidence that countered European assumptions about Brazilian racial and cultural inferiority. In the face of European fatalism about health care in the tropics, the Tropicalistas forged a distinctive medicine based on their beliefs that public health would improve only if large social issues—such as slavery and abolition—were addressed and that the delivery of health care should encompass groups hitherto outside the doctors’ sphere, especially women. But the Tropicalistas’ agenda, which included biting social critiques and broad demands for the extension of health measures to all of Brazil’s people, was not sustained. Race, Place, and Medicine shows how imported models of tropical medicine—constructed by colonial nations for their own needs—downplayed the connection between socioeconomic factors and tropical disorders.
This study of a neglected episode in Latin American history will interest Brazilianists, as well as scholars of Latin American, medical, and scientific history.


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cover of Racing Uphill: Confronting a Life with Epilepsy

Racing Uphill

Confronting a Life with Epilepsy

Stacia Kalinoski

University of Minnesota Press, 2025

The candid, inspiring story of a woman’s experience with a chronic, unpredictable neurological condition

When twenty-nine-year-old reporter Stacia Kalinoski regained consciousness on a couch at the  TV station where she worked, she assumed that she’d had another seizure. But the electrical storm that had just torn through her brain was more destructive than she could have imagined, and the broadcast journalism career she loved swiftly came to an end. Forced to confront the reality of her medical condition, Kalinoski made the risky decision to undergo brain surgery, targeting the epilepsy that was ravaging her life.

In Racing Uphill, Kalinoski describes the seizures that occurred while she was running, which led to her pursuit of an uncertain cure. Rallying the grit she developed as an athlete and engaging the research and reporting skills she acquired as a journalist, she gives us a rare inside look at the ways epilepsy can change a life. Moving beyond her own personal experience, Kalinoski interviews prominent epileptologists to understand how seizures can spread, steal memories, and create strange behaviors and mood disorders. She seamlessly joins what she learned from her research with her own story, offering valuable insight into the experience of grappling with a relentless neurological disease.

The vivid auras that preceded seizures and the damage that followed; the toll of her epilepsy on her family and loved ones; the extraordinary determination her reckoning required—these are all part of Kalinoski’s story of adversity, denial, acceptance, and resilience. In sharing the remarkable opportunity that epilepsy presented for her courage and growth, Stacia Kalinoski speaks to anyone facing an uphill battle and offers inspiration for taking control of one’s own health.

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cover of Racing to a Cure: A Cancer Victim Refuses Chemotherapy and Finds Tomorrow's Cures in Today's Scientific Laboratories

Racing to a Cure

A Cancer Victim Refuses Chemotherapy and Finds Tomorrow's Cures in Today's Scientific Laboratories

Neil Ruzic

University of Illinois Press, 2003

Racing to a Cure is not a cancer memoir. It is a cancer cure memoir. In 1998 Neil Ruzic was diagnosed with mantle-cell lymphoma, the deadliest cancer of the lymph system, whose spread is reaching epidemic levels in the U.S. and Europe. Instead of following recommended courses of chemotherapy and radiation, he took control of his treatment by investigating cures being developed in the nation's cancer-research laboratories.

Although chemotherapy harms the immune system and is increasingly demonstrated to be an ineffective long-term cure for the vast majority of cancers, it remains the standard treatment for most cancer patients. Ruzic, a former scientific magazine publisher and originator of a science center, refused to accept this status quo, and instead plunged into the world of cutting-edge treatments, exploring the frontiers of cancer science with revolutionary results.

Ruzic went on the offensive: visiting scores of laboratories, gathering information, talking to researchers, and effectively becoming his own patient-care advocate. This book presents his findings. A scathing critique of the chemotherapy culture as well as unscientific "alternative" therapies, the book endorses state-of-the-art molecularly based technologies, making it an illuminating and necessary read for anyone interested in cancer research, especially patients and their families and physicians.

Neil Ruzic was expected to die within two years of his initial diagnosis. Five years later he has been declared cancer-free and considers himself cured.

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cover of Raising the Living Dead: Rehabilitative Corrections in Puerto Rico and the Caribbean

Raising the Living Dead

Rehabilitative Corrections in Puerto Rico and the Caribbean

Alberto Ortiz Díaz

University of Chicago Press, 2023

An eye-opening look at how incarcerated people, health professionals, and others behind and beyond bars came together to problem-solve incarceration.
 
Raising the Living Dead is a history of Puerto Rico’s carceral rehabilitation system that brings to life the interactions of incarcerated people, their wider social networks, and health care professionals. Alberto Ortiz Díaz describes the ways that multiple communities of care came together both inside and outside of prisons to imagine and enact solution-oriented cultures of rehabilitation from the 1930s to the 1960s. Scientific and humanistic approaches to well-being were deliberately fused to raise the “living dead,” an expression that reemerged in the modern Caribbean to refer to prisoners. These reform groups sought to raise incarcerated people physically, mentally, socially, spiritually, and civically.
 
The book is based on deep, original archival research into the Oso Blanco (White Bear) penitentiary in Puerto Rico, yet it situates its study within Puerto Rico’s broader carceral archipelago and other Caribbean prisons. The agents of this history include not only physical health professionals, but also psychologists and psychiatrists, social workers, spiritual and religious practitioners, and, of course, the prisoners and their families. By following all these groups and emphasizing the interpersonal exercise of power, Ortiz Díaz tells a story that goes beyond debates about structural and social control.
 
The book addresses key issues in the history of prisons and the histories of medicine and belief, including how prisoners’ different racial, class, and cultural identities shaped their incarceration and how professionals living in a colonial society dealt with the challenge of rehabilitating prisoners for citizenship.
 
Raising the Living Dead is not just about convicts, their immediate interlocutors, and their contexts, however, but about how together these open a window into the history of social uplift projects within the (neo)colonial societies of the Caribbean. There is no book like this in Caribbean historiography; few examine these themes in the larger literature on the history of prisons.
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cover of Raw Material: Producing Pathology in Victorian Culture

Raw Material

Producing Pathology in Victorian Culture

Erin O'Connor

Duke University Press, 2000

Raw Material analyzes how Victorians used the pathology of disease to express deep-seated anxieties about a rapidly industrializing England’s relationship to the material world. Drawing on medicine, literature, political economy, sociology, anthropology, and popular advertising, Erin O’Connor explores “the industrial logic of disease,” the dynamic that coupled pathology and production in Victorian thinking about cultural processes in general, and about disease in particular.
O’Connor focuses on how four particularly troubling physical conditions were represented in a variety of literature. She begins by exploring how Asiatic cholera, which reached epidemic proportions on four separate occasions between 1832 and 1865, was thought to represent the dangers of cultural contamination and dissolution. The next two chapters concentrate on the problems breast cancer and amputation posed for understanding gender. After discussing how breast cancer was believed to be caused by the female body’s intolerance to urban life, O'Connor turns to men’s bodies, examining how new prosthetic technology allowed dismembered soldiers and industrial workers to reconstruct themselves as productive members of society. The final chapter explores how freak shows displayed gross deformity as the stuff of a new and improved individuality. Complicating an understanding of the Victorian body as both a stable and stabilizing structure, she elaborates how Victorians used disease as a messy, often strategically unintelligible way of articulating the uncertainties of chaotic change. Over the course of the century, O’Connor shows, the disfiguring process of disease became a way of symbolically transfiguring the self. While cholera, cancer, limb loss, and deformity incapacitated and even killed people, their dramatic symptoms provided opportunities for imaginatively adapting to a world where it was increasingly difficult to determine not only what it meant to be human but also what it meant to be alive.
Raw Material will interest an audience of students and scholars of Victorian literature, cultural history, and the history of medicine.
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cover of Reading for Health: Medical Narratives and the Nineteenth-Century Novel

Reading for Health

Medical Narratives and the Nineteenth-Century Novel

Erika Wright

Ohio University Press, 2016

In Reading for Health: Medical Narratives and the Nineteenth-Century Novel, Erika Wright argues that the emphasis in Victorian Studies on disease as the primary source of narrative conflict that must be resolved has obscured the complex reading practices that emerge around the concept of health. By shifting attention to the ways that prevention of illness and the preservation of well-being operate in fiction, both thematically and structurally, Wright offers a new approach to reading character and voice, order and temporality, setting and metaphor. As Wright reveals, while canonical works by Austen, Brontë, Dickens, Martineau, and Gaskell register the pervasiveness of a conventional “therapeutic” form of action and mode of reading, they demonstrate as well an equally powerful investment in the achievement and maintenance of “health”—what Wright refers to as a “hygienic” narrative—both in personal and domestic conduct and in social interaction of the individual within the community.

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cover of Readings In American Health Care: Current Issues In Socio-Historical Perspective

Readings In American Health Care

Current Issues In Socio-Historical Perspective

William G. Rothstein

University of Wisconsin Press, 1995

Readings in American Health Care is an introduction to the historical development and current status of a wide variety of health care topics. The readings, written by historians, sociologists, economists, physicians, nurses, and public health researchers, are organized in sections:
•    Basic Concepts: mortality trends, concepts of disease, changes in medical therapy
•    Public Health: AIDS, cigarette smoking, preventive medicine, fluoridation
•    Health Care Professions: cardiology, pathology, women in medicine, nursing, podiatry, midwives
•    Health Care Organizations: hospitals, HMOs
•    Mental Illness
•    Financing Health Care
•    Medical Education
•    Issues: abortion, ethical issues, cancer control, prenatal care, home care, the pharmaceutical industry
•    Background Readings: American medicine from 1920 to midcentury.

    The readings were chosen especially for course use in history, sociology, public health, and related fields, but can also provide useful background reading for anyone interested or involved in American health care. Each selection includes an introduction, questions for the reader, and a bibliography. Scholars and students alike will find the book an invaluable resource.
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cover of Rebirth of the Clinic: Places and Agents in Contemporary Health Care

Rebirth of the Clinic

Places and Agents in Contemporary Health Care

Cindy Patton

University of Minnesota Press, 2010

From physical location to payment processes to expectations of both patients and caregivers, nearly everything surrounding the contemporary medical clinic's central activity has changed since Michel Foucualt's Birth of the Clinic. Indebted to that work, but recognizing the gap between what the modern clinic hoped to be and what it has become, Rebirth of the Clinic explores medical practices that shed light on the fraught relationship between medical systems, practitioners, and patients.

Combining theory, history, and ethnography, the contributors to this volume ground today's clinic in a larger scheme of power relations, identifying the cultural, political, and economic pressures that frame clinical relationships, including the instrumentalist definition of health, actuarial-based medical practices, and patient self-help movements, which simultaneously hem in and create the conditions under which agents creatively change ideas of illness and treatment.

From threatened community health centers in poor African American locales to innovative nursing practices among the marginally housed citizens of Canada's poorest urban neighborhood, this volume addresses not just the who, what, where, and how of place-specific clinical practices, but also sets these local experiences against a theoretical backdrop that links them to the power of modern medicine in shaping fundamental life experiences.
 
Contributors: Christine Ceci, U of Alberta; Lisa Diedrich, Stony Brook U; Suzanne Fraser, Monash U; John Liesch, Simon Fraser U; Jenna Loyd, CUNY; Annemarie Mol, U of Amsterdam; Mary Ellen Purkis, U of Victoria.
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cover of Recipes and Everyday Knowledge: Medicine, Science, and the Household in Early Modern England

Recipes and Everyday Knowledge

Medicine, Science, and the Household in Early Modern England

Elaine Leong

University of Chicago Press, 2018

Across early modern Europe, men and women from all ranks gathered medical, culinary, and food preservation recipes from family and friends, experts and practitioners, and a wide array of printed materials. Recipes were tested, assessed, and modified by teams of householders, including masters and servants, husbands and wives, mothers and daughters, and fathers and sons. This much-sought know-how was written into notebooks of various shapes and sizes forming “treasuries for health,” each personalized to suit the whims and needs of individual communities.
 
In Recipes and Everyday Knowledge, Elaine Leong situates recipe knowledge and practices among larger questions of gender and cultural history, the history of the printed word, and the history of science, medicine, and technology. The production of recipes and recipe books, she argues, were at the heart of quotidian investigations of the natural world or “household science”. She shows how English homes acted as vibrant spaces for knowledge making and transmission, and explores how recipe trials allowed householders to gain deeper understandings of sickness and health, of the human body, and of natural and human-built processes. By recovering this story, Leong extends the parameters of natural inquiry and productively widens the cast of historical characters participating in and contributing to early modern science.
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cover of Recollecting Freud

Recollecting Freud

Isidor Sadger; Edited and introduced by Alan Dundes; Translated by Johanna Micaela Jacobsen and Alan Dundes

University of Wisconsin Press, 2005

    Available here for the first time in English, this eyewitness account by one of Freud's earliest students has been rediscovered for twenty-first century readers. Isidor Sadger's recollections provide a unique window into the early days of the psychoanalytic movement—the internecine and ideological conflicts of Freud's disciples. They also illuminate Freud's own struggles: his delight in wit, his attitudes toward Judaism, and his strong opinions concerning lay, non-medical analysts.
    As a student, Sadger attended Freud's lectures from 1895 through 1904. Two years later Freud nominated Sadger to his Wednesday Psychological Society (later called the Viennese Psychoanalytic Society).  Sadger, however, was not part of Freud's inner circle, but more a participant observer of the early years of the psychoanalytic movement and of Freud as teacher, therapist, and clinician.
    Sadger was considered one of the most devoted followers of Freud and hoped to become one of Freud's "favorite sons."  At the First Psychoanalytic Congress held in Salzburg in 1908, Sadger was chosen to be one of the principal speakers along with Freud, Jones, Alder, Jung, Prince, Rifkin, Abraham, and Stekel, an honor that bespeaks Sadger's early role in the movement.  But Freud and many of his disciples were also openly critical of Sadger's work, calling it at various times overly simplistic, unimaginative, reductionist, orthodox, and rigid.
    In 1930 Sadger published his memoir, Sigmund Freud: Persönliche Erinnerungen.  With the rise of Nazism and World War II, the book became lost to the world of psychoanalytic history.  Recently, Alan Dundes learned of its existence and mounted a search that led him around the world to one of the few extant copies—in a research library in Japan. The result of his fascinating quest is Recollecting Freud, a long-lost personal account that provides invaluable insights into Freud and his social, cultural, and intellectual context.
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cover of Recovering Bodies: Illness, Disability, and Life Writing

Recovering Bodies

Illness, Disability, and Life Writing

G. Thomas Couser

University of Wisconsin Press, 1997

    This is a provocative look at writing by and about people with illness or disability—in particular HIV/AIDS, breast cancer, deafness, and paralysis—who challenge the stigmas attached to their conditions by telling their lives in their own ways and on their own terms. Discussing  memoirs, diaries, collaborative narratives, photo documentaries, essays, and other forms of life writing, G. Thomas Couser shows that these books are not primarily records of medical conditions; they are a means for individuals to recover their bodies (or those of loved ones) from marginalization and impersonal medical discourse.
    Responding to the recent growth of illness and disability narratives in the United States—such works as Juliet Wittman’s Breast Cancer Journal, John Hockenberry’s Moving Violations, Paul Monette’s Borrowed Time: An AIDS Memoir, and Lou Ann Walker’s A Loss for Words: The Story of Deafness in a Family—Couser addresses questions of both poetics and politics. He examines why and under what circumstances individuals choose to write about illness or disability; what role plot plays in such narratives; how and whether closure is achieved; who assumes the prerogative of narration; which conditions are most often represented; and which literary conventions lend themselves to representing particular conditions. By tracing the development of new subgenres of personal narrative in our time, this book explores how explicit consideration of illness and disability has enriched the repertoire of life writing. In addition, Couser’s discussion of medical discourse joins the current debate about whether the biomedical model is entirely conducive to humane care for ill and disabled people.
    With its sympathetic critique of the testimony of those most affected by these conditions, Recovering Bodies contributes to an understanding of the relations among bodily dysfunction, cultural conventions, and identity in contemporary America.
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cover of Recovery's Edge: An Ethnography of Mental Health Care and Moral Agency

Recovery's Edge

An Ethnography of Mental Health Care and Moral Agency

Neely Laurenzo Myers

Vanderbilt University Press, 2015

In 2003 the Bush Administration's New Freedom Commission asked mental health service providers to begin promoting "recovery" rather than churning out long-term, "chronic" mental health service users. Recovery's Edge sends us to urban America to view the inner workings of a mental health clinic run, in part, by people who are themselves "in recovery" from mental illness.

In this provocative narrative, Neely Myers sweeps us up in her own journey through three years of ethnographic research at this unusual site, providing a nuanced account of different approaches to mental health care. Recovery's Edge critically examines the high bar we set for people in recovery through intimate stories of people struggling to find meaningful work, satisfying relationships, and independent living.

This book is a recipient of the Norman L. and Roselea J. Goldberg Prize from Vanderbilt University Press for the best book in the area of medicine.
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cover of Redesigning the Medicare Contract: Politics, Markets, and Agency

Redesigning the Medicare Contract

Politics, Markets, and Agency

Edward F. Lawlor

University of Chicago Press, 2003

Recent debates on Medicare reform focus on prescription drug coverage, expanding managed-care choices, or technical issues of payment policy. Despite all the heat generated by these issues, Edward F. Lawlor's new book, Redesigning the Medicare Contract, demonstrates that fundamental questions of purpose and policy design for Medicare have been largely ignored.

Challenging conventional ideas, Lawlor suggests that we look at Medicare as a contract between the federal government, the program's beneficiaries, and health care providers. Medicare reform, then, would involve rewriting this contract so that it more successfully serves the interests of both beneficiaries and taxpayers. To do this, Lawlor argues that we must improve the agency of the program—the informational, organizational, and incentive elements that assure Medicare program carries out beneficiary and taxpayer interests in providing the most appropriate, high-quality care possible. The book includes a chapter devoted solely to concepts and applications that give definition to this brand of agency theory. Lawlor's innovative agency approach is matched with lucid explanation of the more comprehensive groundwork in the history and politics of the Medicare program.

Lawlor's important and timely book reframes the Medicare debate in a productive manner and effectively analyzes alternatives for reform. Lawlor argues that effective policy design for Medicare requires greater appreciation of the vulnerability of beneficiaries, the complexity of the program itself, its wide geographical variations in services and financing, and the realistic possibilities for government and private sector roles. Tackling difficult problems like end-of-life and high-tech care—and offering sensible solutions—Redesigning the Medicare Contract will interest political scientists, economists, policy analysts, and health care professionals alike.
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cover of Reducing Firearm Injury and Death: A Public Health Sourcebook on Guns

Reducing Firearm Injury and Death

A Public Health Sourcebook on Guns

Trudy A. Karlson

Rutgers University Press, 1997

There are few issues more explosive than guns. "Guns don't kill people, people kill people," is an often-heard response to calls for firearm control. But are there ways to make guns safer without placing further restrictions on gun owners? Can guns be engineered to reduce the number and severity of injuries?

This book is about guns and new solutions for addressing problems they create. Trudy Karlson and Stephen Hargarten, two experts in public health and injury control, show readers how guns are products, designed to injure and kill, and how changes in the design, technology, and marketing of firearms can lead to reductions in the number of injuries and fatalities.

Just as innovations in the design and technology of motor vehicles succeeded in creating safer cars, Karlson and Hargarten describe how responsible changes to gun products can reduce the number of serious injuries and fatalities. The injury control perspective illustrates how the characteristics of guns and ammunition are associated with their ability to cause injury and death. It also provides options for how guns can be re-engineered to ensure a greater degree of safety and protection. Reducing Firearm Injury and Death teaches basic facts about guns and gun injuries, and by reframing the problem of firearms as a public health issue, offers hope for saving lives.


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cover of Regenerating Japan: Organicism, Modernism and National Destiny in Oka Asajiro's Evolution and Human Life

Regenerating Japan

Organicism, Modernism and National Destiny in Oka Asajiro's Evolution and Human Life

Gregory Sullivan

Central European University Press, 2018

As the first step toward a comprehensive reinterpretation of the role of evolutionary science and biomedicine in pre-1945 Japan, this book addresses the early writings of that era’s most influential exponent of shinkaron (evolutionism), the German-educated research zoologist and popularizer of biomedicine, Oka Asajirō (1868–1944). Concentrating on essays that Oka published in the years during and after the Russo-Japanese War (1904–5), the author describes the process by which Oka came to articulate a programmatic modernist vision of national regeneration that would prove integral to the ideological climate in Japan during the first half of the twentieth century. In contrast to other scholars who insist that Oka was merely a rationalist enlightener bent on undermining state Shinto orthodoxy, Gregory Sullivan maintains that Oka used notions from evolutionary biology of organic individuality—especially that of the nation as a super-organism—to underwrite the social and geopolitical aims of the Meiji state.

The author suggests that this generative scientism gained wide currency among early twentieth-century political and intellectual elites, including Emperor Hirohito himself, who had personal connections to Oka. The wartime ideology may represent an unfinished attempt to synthesize Shinto fundamentalism and the eugenically-oriented modernism that Oka was among the first to articulate.

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cover of Regulating Romance: Youth Love Letters, Moral Anxiety, and Intervention in Uganda’s Time of AIDS

Regulating Romance

Youth Love Letters, Moral Anxiety, and Intervention in Uganda’s Time of AIDS

Shanti Parikh

Vanderbilt University Press, 2016

Drawing on ten years of ethnographic research, two hundred fifty interviews, and over three hundred youth love letters, author Shanti Parikh uses lively vignettes to provide a rare window into young people's heterosexual desires and practices in Uganda. In chapters entitled "Unbreak my heart," "I miss you like a desert missing rain," and "You're just playing with my head," she invites readers into the world of secret longings, disappointments, and anxieties of young Ugandans as they grapple with everyday difficulties while creatively imagining romantic futures and possibilities.

Parikh also examines the unintended consequences of Uganda's aggressive HIV campaigns that thrust sexuality and anxieties about it into the public sphere. In a context of economic precarity and generational tension that constantly complicates young people's notions of consumption-based romance, communities experience the dilemmas of protecting and policing young people from reputational and health dangers of sexual activity. "They arrested me for loving a school girl" is the title of a chapter on controlling delinquent daughters and punishing defiant boyfriends for attempting to undermine patriarchal authority by asserting their adolescent romantic agency. Sex education programs struggle between risk and pleasure amidst morally charged debates among international donors and community elders, transforming the youthful female body into a platform for public critique and concern. The many sides of this research constitute an eloquently executed critical anthropology of intervention.
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cover of Reimagining Social Medicine from the South

Reimagining Social Medicine from the South

Abigail H. Neely

Duke University Press, 2021

In Reimagining Social Medicine from the South, Abigail H. Neely explores social medicine's possibilities and limitations at one of its most important origin sites: the Pholela Community Health Centre (PCHC) in South Africa. The PCHC's focus on medical and social factors of health yielded remarkable success. And yet South Africa's systemic racial inequality hindered health center work, and witchcraft illnesses challenged a program rooted in the sciences. To understand Pholela's successes and failures, Neely interrogates the “social” in social medicine. She makes clear that the social sciences the PCHC used failed to account for the roles that Pholela's residents and their environment played in the development and success of its program. At the same time, the PCHC's reliance on biomedicine prevented it from recognizing the impact on health of witchcraft illnesses and the social relationships from which they emerged. By rewriting the story of social medicine from Pholela, Neely challenges global health practitioners to recognize the multiple worlds and actors that shape health and healing in Africa and beyond.
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cover of Reinsuring Health: Why More Middle-Class People Are Uninsured and What Government Can Do

Reinsuring Health

Why More Middle-Class People Are Uninsured and What Government Can Do

Katherine Swartz

Russell Sage Foundation, 2006

America's current system of health insurance, which relies almost exclusively on employer-sponsored coverage, is in danger of collapse, and this problem is not limited to the poor and working class. An increasing number of middle class Americans do not have employer-provided insurance and—due to skyrocketing premiums—cannot afford to purchase coverage for themselves. Reinsuring Health, by economist Katherine Swartz, examines this growing national crisis and outlines a concrete plan to make health insurance accessible and affordable for all Americans. Reinsuring Health documents why the number of uninsured Americans—now 45.5 million people—has grown in the last twenty-five years. Swartz focuses on how labor market changes—such as the decline of domestic manufacturing, decreased unionization, and the growth of non-standard work arrangements—have led U.S. employers to retreat from providing health insurance for their workers. These trends, combined with the increasing costs of medical care, have led to an explosion in health insurance premiums and a decline in coverage, particularly among the middle-class. Since those who seek insurance as individuals are generally most likely to need health care, private insurers charge higher premiums in the individual (non-group) markets than to people who obtain group insurance. This makes individual health insurance less attractive to the young and increasingly unaffordable for middle-class Americans. Similarly, insurers charge higher per person (or per family) premiums to small firms than to large companies, so many small firms do not sponsor coverage for their employees. Reinsuring Health shows how these problems can be overcome if the federal government provides a new reinsurance program which would protect insurance companies that provide small group and individual health insurance against the possibility that their policy-holders will incur very high medical expenses. By assuming some of the risk that people will face extremely costly medical bills, the government will make insurers less hesitant to offer coverage to high-risk individuals, and will help drive down premiums for others. Reinsuring Health demonstrates that this form of government reinsurance has worked in the past, helping to establish smooth running private markets for catastrophe insurance and secondary mortgages. Today, growing numbers of middle class Americans lack health insurance. Protection against the possibility of falling ill or getting hurt and having to pay extraordinary health care bills should not be a luxury available only to the very rich and the very poor. Reinsuring Health proposes a straightforward solution that would bring health insurance back within the reach of the increasing ranks of the uninsured, particularly those who are in the middle class.
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cover of Reinventing Care: Assisted Living in New York City

Reinventing Care

Assisted Living in New York City

David Barton Smith

Vanderbilt University Press, 2003

TThe recent growth of "assisted living" facilities and programs has shaken the foundations of the system of long-term care for the elderly in the United States. Fueled by consumer frustrations with the available options, notably nursing homes, the assisted living model emerged during the 1990s to promise shelter, health care, control of one's own life, less government involvement, and a "real home." But how well have the advocates and developers of assisted living delivered on such promises? And what are the model's implications for public policy and the future of caregiving?

In Reinventing Care, David Barton Smith offers brilliant insights into those questions by examining the realities of assisted living in New York City. Encompassing the largest, most concentrated population of elderly in the United States, New York spends more per person caring for its seniors than any other urban center. Yet, while the size of the city's care system boggles the mind, it nevertheless contains the same elements that exist in other metropolitan areas and thus provides valuable lessons for the nation as a whole.

Smith's study draws on twenty-five years of research, including hundreds of interviews and visits to representative facilities. He provides a succinct overview of how care is presently organized for New York's aging population and traces the history of the system up to the present. Among the key issues he addresses are the role of market forces and government regulation, the impact of class differences on access to quality care, and the ways in which perceptions of community affect the creation and management of assisted living programs. At the heart of the book are ten fascinating case studies, half of them focused on private-pay facilities and the other half on public-pay institutions.

While finding that the actualities of assisted living rarely match the rhetoric of its proponents, Smith sees much to admire in its goals. He suggests tactics and strategies--such as promoting family- and community-based models of assisted living and adopting a standard of licensure for certain facilities--that could point the way to a better future.

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cover of Remembering to Live: Illness at the Intersection of Anxiety and Knowledge in Rural Indonesia

Remembering to Live

Illness at the Intersection of Anxiety and Knowledge in Rural Indonesia

M. Cameron Hay

University of Michigan Press, 2004


Sasaks, a people of the Indonesian archipelago, cope with one of the country's worst health records by employing various medical traditions, including their own secret ethnomedical knowledge. But anxiety, in the presence and absence of illness, profoundly shapes the ways Sasaks use healing and knowledge. Hay addresses complex questions regarding cultural models, agency, and other relationships to conclude that the ethnomedical knowledge they use to cope with their illnesses ironically inhibits improvements in their health care.
M. Cameron Hay is a NSF Advance Fellow and an Assistant Adjunct Professor at the UCLA Center for Culture and Health.
[more]
cover of Remission Quest: A Medical Sociologist Navigates Cancer

Remission Quest

A Medical Sociologist Navigates Cancer

Virginia Adams O’Connell

Temple University Press, 2025

As a medical sociologist, Virginia Adams O’Connell long studied the healthcare system and people navigating illness. Then, in 2019, she confronted her own reality of being diagnosed with primary bone lymphoma. “Since my diagnosis, I joined a club of current and past patients that I never wanted or intended to join,” she writes with both candor and poignancy, adding, “But we can collectively work to make it the best club it can be.”

In the course of diagnosis, treatment, and recovery, Adams O’Connell lived through theories she had researched and applied her sociological ideas to help make sense of her personal experiences. Remission Quest chronicles how the reality of living with cancer changed her perspective on what she had studied. Adams O’Connell found her knowledge illustrated and enriched her sociological analysis of our medical institutions and that her own illness narrative shone new light on her theories.

With moving prose, Remission Quest captures the emotions of having cancer and dealing with elaborate medical systems, learning how to be a “good patient” while also managing indescribable fear and fatigue, and confronting questions about the meaning of life. Adams O’Connell’s experiences are both personal and universal. They provide inspiration, compassion, and understanding.
[more]
cover of Reproducing Inequities: Poverty and the Politics of Population in Haiti

Reproducing Inequities

Poverty and the Politics of Population in Haiti

Maternowska, M. Catherine

Rutgers University Press, 2006

Residents of Haiti-one of the poorest and most unstable countries in the world-face a grim reality of starvation, violence, lack of economic opportunity, and minimal health care. For years, aid organizations have sought to alleviate the problems by creating health and family planning clinics, including one modern (and, by local standards, luxurious) center in the heart of Cit Soleil. During its height of service in the 1980s and 1990s, the clinic boasted nineteen staff members, an array of modern contraceptives, an accessible location, and convenient hours-but very few clients.

Why did this initiative fail so spectacularly despite surveys finding that residents would like to have fewer children? Why don't poor women heed the message of family planning, when smaller families seem to be in their best interest? In Reproducing Inequities, M. Catherine Maternowska argues that we too easily overlook the political dynamics that shape choices about family planning. Through a detailed study of the attempt to provide modern contraception in the community of Cit Soleil, Maternowska demonstrates the complex interplay between local and global politics that so often thwarts well-intended policy initiatives.

Medical anthropologists, she argues, have an important role to play in developing new action plans for better policy implementation. Ethnographic studies in desperate, dangerous locations provide essential data that can point the way to solutions for the dilemmas of contraception in poor communities worldwide.

 

[more]
[more]
cover of Reproductive Justice: The Politics of Health Care for Native American Women

Reproductive Justice

The Politics of Health Care for Native American Women

Gurr, Barbara

Rutgers University Press, 2015

In Reproductive Justice, sociologist Barbara Gurr provides the first analysis of Native American women’s reproductive healthcare and offers a sustained consideration of the movement for reproductive justice in the United States.

The book examines the reproductive healthcare experiences on Pine Ridge Reservation, home of the Oglala Lakota Nation in South Dakota—where Gurr herself lived for more than a year. Gurr paints an insightful portrait of the Indian Health Service (IHS)—the federal agency tasked with providing culturally appropriate, adequate healthcare to Native Americans—shedding much-needed light on Native American women’s efforts to obtain prenatal care, access to contraception, abortion services, and access to care after sexual assault. Reproductive Justice goes beyond this local story to look more broadly at how race, gender, sex, sexuality, class, and nation inform the ways in which the government understands reproductive healthcare and organizes the delivery of this care. It reveals why the basic experience of reproductive healthcare for most Americans is so different—and better—than for Native American women in general, and women in reservation communities particularly. Finally, Gurr outlines the strengths that these communities can bring to the creation of their own reproductive justice, and considers the role of IHS in fostering these strengths as it moves forward in partnership with Native nations. 

Reproductive Justice offers a respectful and informed analysis of the stories Native American women have to tell about their bodies, their lives, and their communities. 
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cover of Reproductive Rights in a Global Context: South Africa, Uganda, Peru, Denmark, United States, Vietnam, Jordan

Reproductive Rights in a Global Context

South Africa, Uganda, Peru, Denmark, United States, Vietnam, Jordan

Lara M. Knudsen

Vanderbilt University Press, 2006

A Choice Outstanding Academic Book of 2006

Traveling alone when she was between 17 and 22, with no institutional affiliation and no financial assistance, the author visited five developing countries and two developed ones on five continents. Her goal was to extend her own experience in an abortion clinic in Portland, Oregon. Lara Knudsen interviewed over 90 women's rights activists, health professionals, NGO workers, and government officials, gaining a sense of both official policies and the actual delivery of services in local clinics. The book places the experiences of women within the global context of how international population control agendas have influenced women's reproductive rights in the past, and how the changing international discourse on reproductive health continues to influence those rights today.
[more]
cover of Research on Human Subjects: Problems of Social Control in Medical Experimentation

Research on Human Subjects

Problems of Social Control in Medical Experimentation

Bernard Barber

Russell Sage Foundation, 1973

How are human subjects treated in biomedical research? What are the expressed standards and self-reported behavior of biomedical researchers in regard to what has sometimes been called their "animal of necessity"? What are some of the determinants of the "strict" and "permissive" patterns which describe the standards and behavior of biomedical researchers? These are the important questions asked and answered in Research on Human Subjects. It is a book based on four years of intensive research. Two studies were completed, one on a nationally representative sample of biomedical research institutions, a second on a sample of 350 researchers who actually use human subjects. In their chapters on "the dilemma of science and therapy," the authors look at the tension between the values of humane therapy and discovery in science. They show that the significant minority of researchers who are "permissive" on the issues of informed consent and a favorable risk-benefit ratio are more likely to be those who are "relative failures" in pursuing the science value. Research on Human Subjects also documents the inadequate training that biomedical researchers get in the ethics of research on human subjects not only in medical schools but in their postgraduate training as well. The medical schools pay relatively more attention to the scientific training of their students than they do to the ethical training that should be its essential complement. The local peer review groups that screen research on human subjects in the institutions where it is carried on are another central focus of attention of the research and analysis reported in this book. The peer review groups do a fairly good job but, the authors show, there are various conditions of their relative efficacy which are not met by review groups in many important research institutions. The medical school review groups, for example, have not been outstanding performers with respect to the several conditions of relative efficacy. In the concluding chapter, the authors discuss the general problem of the social responsibilities of powerful professions and make very specific suggestions for policy change and reform for the biomedical research profession and its use of human subjects.
[more]
cover of Respecting Patient Autonomy

Respecting Patient Autonomy

Benjamin H. Levi

University of Illinois Press, 1999

Against a backdrop of real clinical situations, Benjamin H. Levi examines the dynamics that shape relations between patient and health care provider, addressing fundamental questions about how medical decisions should be reached and compelling the reader to think about health care issues and decisions in terms of the values and goals they promote.
 
Presenting bioethics as a practical, educational activity rather than an abstract intellectual exercise, this important volume shows how dialogue between patients and health care providers can clarify both medical and ethical issues, promoting patient autonomy and advancing health care.
 
[more]
cover of Rest Uneasy: Sudden Infant Death Syndrome in Twentieth-­Century America

Rest Uneasy

Sudden Infant Death Syndrome in Twentieth-­Century America

Cowgill, Brittany

Rutgers University Press, 2018

Tracing the Sudden Infant Death Syndrome (SIDS) diagnosis from its mid-century origins through the late 1900s, Rest Uneasy investigates the processes by which SIDS became both a discrete medical enigma and a source of social anxiety construed differently over time and according to varying perspectives. American medicine reinterpreted and reconceived of the problem of sudden infant death multiple times over the course of the twentieth century. Its various approaches linked sudden infant deaths to all kinds of different causes—biological, anatomical, environmental, and social. In the context of a nation increasingly skeptical, yet increasingly expectant, of medicine, Americans struggled to cope with the paradoxes of sudden infant death; they worked to admit their powerlessness to prevent SIDS even while they tried to overcome it. Brittany Cowgill chronicles and assesses Americans’ fraught but consequential efforts to explain and conquer SIDS, illuminating how and why SIDS has continued to cast a shadow over doctors and parents.
[more]
cover of Restoring the Healer: Spiritual Self-Care for Health Care Professionals

Restoring the Healer

Spiritual Self-Care for Health Care Professionals

William Dorman

Templeton Press, 2015

Burn out. Two words that haunt those in high stress jobs, especially in the medical profession. Long hours and the literal life-and-death nature of the field creates expectations to not only be on call at all hours, but to be at one’s best, even at 3:00 AM after a twenty-hour shift. So much energy is devoted to the care of others that self-care is forgotten.
Yet, more are noticing and research confirms that self-care is needed, not only for personal sanity but also for quality of work. Unwell medical professionals are not the best at treating others. And this self-care includes not just rest, food, and water, but a deeper care, one that tends the spiritual side as well.
To both the spiritually active and the spiritually resistant, hospital chaplain William Dorman offers a guide to understand a more comprehensive, full-bodied self-care. Each chapter begins with case studies, concrete experiences that help unpack abstract concepts which bring much needed peace to stressed individuals. Dorman also structures each chapter to end with prayers and action steps, which offer more concrete ways to care for the self.
From working as a hospital chaplain for over 18 years, and serving as the director of chaplaincy services for the largest integrated health care system in New Mexico, Rev. Dorman recognizes the stresses that come to those who have made it their profession to heal others. Healers need healing too—and this guide is the first step.
[more]
cover of Rethinking Hypothyroidism: Why Treatment Must Change and What Patients Can Do

Rethinking Hypothyroidism

Why Treatment Must Change and What Patients Can Do

Antonio C. Bianco, MD

University of Chicago Press, 2022

In this primer for patients, their families, and their doctors, a leading physician and scientist explains why the standard treatment for hypothyroidism fails many—and offers an empowering call for change.
 
Hypothyroidism, also commonly referred to as Hashimoto’s disease, affects millions in the United States alone. It occurs when the thyroid—the butterfly-shaped gland that sits in your neck right above the front of your shirt collar—malfunctions or after thyroid surgery, causing thyroid hormone levels in circulation to drop below normal. Thus, treatment is aimed at bringing these hormone levels back to normal. This is done with daily tablets of thyroxine or T4. Because hypothyroidism is so common, we likely know someone who is on this type of medication. While most patients respond well to this standard treatment, about ten to twenty percent (some two to three million individuals in the United States) are far from living a typical life. They exhibit “foggy brain”—low energy, confusion, and poor memory. Many doctors have shrugged off their complaints, believing these symptoms to be unrelated to the thyroid disease. In Rethinking Hypothyroidism, Dr. Antonio C. Bianco, a physician and a scientist who has studied hypothyroidism and thyroid hormones for decades, offers an accessible overview of the disease’s treatment and the role of big pharma in shaping it, making the case that the current approach is failing many patients. But more than this, Bianco calls for alternatives to improve lives, and he equips patients and their families with the tools to advocate for other treatments.
[more]
cover of Rethinking Hypothyroidism: Why Treatment Must Change and What Patients Can Do

Rethinking Hypothyroidism

Why Treatment Must Change and What Patients Can Do

Antonio C. Bianco, MD

University of Chicago Press, 2022

This is an auto-narrated audiobook edition of this book.

In this primer for patients, their families, and their doctors, a leading physician and scientist explains why the standard treatment for hypothyroidism fails many—and offers an empowering call for change.
 
Hypothyroidism, also commonly referred to as Hashimoto’s disease, affects millions in the United States alone. It occurs when the thyroid—the butterfly-shaped gland that sits in your neck right above the front of your shirt collar—malfunctions or after thyroid surgery, causing thyroid hormone levels in circulation to drop below normal. Thus, treatment is aimed at bringing these hormone levels back to normal. This is done with daily tablets of thyroxine or T4. Because hypothyroidism is so common, we likely know someone who is on this type of medication. While most patients respond well to this standard treatment, about ten to twenty percent (some two to three million individuals in the United States) are far from living a typical life. They exhibit “foggy brain”—low energy, confusion, and poor memory. Many doctors have shrugged off their complaints, believing these symptoms to be unrelated to the thyroid disease. In Rethinking Hypothyroidism, Dr. Antonio C. Bianco, a physician and a scientist who has studied hypothyroidism and thyroid hormones for decades, offers an accessible overview of the disease’s treatment and the role of big pharma in shaping it, making the case that the current approach is failing many patients. But more than this, Bianco calls for alternatives to improve lives, and he equips patients and their families with the tools to advocate for other treatments.
[more]
cover of Revertigo: An Off-Kilter Memoir

Revertigo

An Off-Kilter Memoir

Floyd Skloot

University of Wisconsin Press, 2014

One March morning, writer Floyd Skloot was inexplicably struck by an attack of unrelenting vertigo that ended 138 days later as suddenly as it had begun. With body and world askew, everything familiar had transformed. Nothing was ever still. Revertigo is Skloot’s account of that unceasingly vertiginous period, told in an inspired and appropriately off-kilter form.
            This intimate memoir—tenuous, shifting, sometimes humorous—demonstrates Skloot’s considerable literary skill honed as an award-winning essayist, memoirist, novelist, and poet. His recollections of a strange, spinning world prompt further musings on the forces of uncertainty, change, and displacement that have shaped him from childhood to late middle age, repeatedly knocking him awry, realigning his hopes and plans, even his perceptions. From the volatile forces of his mercurial, shape-shifting early years to his obsession with reading, acting, and writing, from the attack of vertigo to a trio of postvertigo (but nevertheless dizzying) journeys to Spain and England, and even to a place known only in his mother’s unhinged fantasies, Skloot makes sense of a life’s phantasmagoric unpredictability.

Finalist, Sarah Winnemucca Award for Creative Nonfiction, Oregon Book Awards
[more]
cover of Revolutionizing Women's Healthcare: The Feminist Self-Help Movement in America

Revolutionizing Women's Healthcare

The Feminist Self-Help Movement in America

Hannah Dudley-Shotwell

Rutgers University Press, 2020

Winner of the 2021 Frances Richardson Keller-Sierra Prize from the Western Association of Women Historians (WAWH)​

Revolutionizing Women’s Healthcare is the story of a feminist experiment: the self-help movement. This movement arose out of women’s frustration, anger, and fear for their health. Tired of visiting doctors who saw them as silly little girls, suffering shame when they asked for birth control, seeking abortions in back alleys, and holding little control over their own reproductive lives, women took action. Feminists created “self-help groups” where they examined each other’s bodies and read medical literature. They founded and ran clinics, wrote books, made movies, undertook nationwide tours, and raided and picketed offending medical institutions. Some performed their own abortions. Others swore off pharmaceuticals during menopause. Lesbian women found “at home” ways to get pregnant. Black women used self-help to talk about how systemic racism affected their health. Hannah Dudley-Shotwell engagingly chronicles these stories and more to showcase the creative ways women came together to do for themselves what the mainstream healthcare system refused to do.
[more]
cover of Rhetoric of a Global Epidemic: Transcultural Communication about SARS

Rhetoric of a Global Epidemic

Transcultural Communication about SARS

Huiling Ding

Southern Illinois University Press, 2014

2016 CCCC Best Book Award in Technical and Scientific Communication

In the past ten years, we have seen great changes in the ways government organizations and media respond to and report on emerging global epidemics. The first outbreak to garner such attention was SARS (severe acute respiratory syndrome). In Rhetoric of a Global Epidemic, Huiling Ding uses SARS to explore how various cultures and communities made sense of the epidemic and communicated about it. She also investigates the way knowledge production and legitimation operate in global epidemics, the roles that professionals and professional communicators, as well as individual citizens, play in the communication process, points of contention within these processes, and possible entry points for ethical and civic intervention.

Focusing on the rhetorical interactions among the World Health Organization, the United States, China, and Canada, Rhetoric of a Global Epidemic investigates official communication and community grassroots risk tactics employed during the SARS outbreak. It consists of four historical cases, which examine the transcultural risk communication about SARS in different geopolitical regions at different stages. The first two cases deal with risk communication practices at the early stage of the SARS epidemic when it originated in southern China. The last two cases move to transcultural rhetorical networks surrounding SARS.

With such threats as SARS, avian flu, and swine flu capturing the public imagination and prompting transnational public health preparedness efforts, the need for a rhetoric of global epidemics has never been greater. Government leaders, public health officials, health care professionals, journalists, and activists can learn how to more effectively craft and manage transcultural risk communication from Ding’s examination of the complex and varied modes of communication around SARS. In addition to offering a detailed case study, Rhetoric of a Global Epidemic provides a critical methodology that professional communicators can use in their investigations of epidemics and details approaches to facilitating more open, participatory risk communication at all levels.

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cover of Rhetorics of Refusal: Medical Dissent and the US-Somali Diaspora

Rhetorics of Refusal

Medical Dissent and the US-Somali Diaspora

Kari Campeau

The Ohio State University Press, 2025

Rhetorics of Refusal focuses on a recent public health crisis—Minnesota’s 2017 measles outbreak—to recast vaccine refusals less as products of poor health literacy or disinformation and more as strategic and generative acts of noncompliance. The outbreak, which primarily affected unvaccinated Somali children, occurred at the nexus of declining vaccination rates, spiking autism concerns, antivaccination predation, and a fraying public health infrastructure. However, during a year-long ethnographic study at a Somali health center, Kari Campeau found that personal stories from parents offered a much different picture of vaccine refusal than the one painted by news media. Tracking refusals across four sites, Campeau argues for the importance of approaching refusals as rhetorical and participatory strategies that hold institutions accountable, press for change, and practice care within emergent biosocial communities. Moreover, she views refusal as necessary and potentially transformative in situations where refusers have little access to power or platform. By contextualizing refusals in longer cultural and political histories, Campeau unsettles traditional narratives of medical dissent while offering new entry points into discussions on racialized biopolitics, care, disability, and public health.

[more]
cover of Rheumatic Fever in America and Britain: A Biological, Epidemiological, and Medical History

Rheumatic Fever in America and Britain

A Biological, Epidemiological, and Medical History

Peter C. English

Rutgers University Press, 1999

Rheumatic Fever in America and Britain is the first book to examine comprehensively a disease that has been a moving target for physicians and health care workers. A disease of skin, brain, heart, connective tissue, blood, tonsils, and joints bound to a member of the streptococcus family of bacteria, this illness has practically disappeared from the present-day scene. Yet in 1940 more than one million Americans suffered from the heart disease that followed the ravages of rheumatic fever. It struck nearly 2 percent of all school-aged children, filling hospitals, convalescent homes, and special schools.

Rheumatic fever rose in prevalence throughout the nineteenth century, reaching its peak in that century's last decades, and then steadily declined-both in occurrence and severity-throughout the twentieth century. In the nineteenth century, acute rheumatic fever was largely a disease of children and young adults. Another remarkable epidemiological change occurred during the twentieth century; rheumatic fever shifted its character, became milder, and in doing so allowed its victims to live longer, if disabled lives. As this disease so altered, adults increasingly became its victims.

Dr. Peter C. English explores both the shifting biological nature of this disease and the experiences of physicians and patients who fought its ravages. Using insights from biology, epidemiology, and social history, Dr. English-both a physician and medical historian-is uniquely suited to unravel this disease's epidemiological and cultural complexities.

[more]
cover of Richard Selzer and the Rhetoric of Surgery

Richard Selzer and the Rhetoric of Surgery

Charles M. Anderson

Southern Illinois University Press, 1989

Anderson provides the context from which Selzer’s writing grows and a concept of language adequate to his purposes and accomplishments. He takes a careful look at Selzer’s writing to demonstrate that these abstract considerations do tell us why a surgeon would write. The works Anderson examines are "Jonah and the Whale" (an important early short story) and the first three essays in Mortal Lessons. These examples show the reader exactly how the symbols of literature interact directly with the world and the everyday communications of both writer and reader. According to Anderson, Mortal Lessons is also Selzer’s most artistic statement of his own sense of why and how he became a writer.

Selzer’s books include Rituals of Surgery, Mortal Lessons, Confessions of a Knife, Letters to a Young Doctor, and Taking the World in for Repairs.

[more]
cover of Riotous Flesh: Women, Physiology, and the Solitary Vice in Nineteenth-Century America

Riotous Flesh

Women, Physiology, and the Solitary Vice in Nineteenth-Century America

April R. Haynes

University of Chicago Press, 2015

Nineteenth-century America saw numerous campaigns against masturbation, which was said to cause illness, insanity, and even death. Riotous Flesh explores women’s leadership of those movements, with a specific focus on their rhetorical, social, and political effects, showing how a desire to transform the politics of sex created unexpected alliances between groups that otherwise had very different goals.

As April R. Haynes shows, the crusade against female masturbation was rooted in a generally shared agreement on some major points: that girls and women were as susceptible to masturbation as boys and men; that “self-abuse” was rooted in a lack of sexual information; and that sex education could empower women and girls to master their own bodies. Yet the groups who made this education their goal ranged widely, from “ultra” utopians and nascent feminists to black abolitionists. Riotous Flesh explains how and why diverse women came together to popularize, then institutionalize, the condemnation of masturbation, well before the advent of sexology or the professionalization of medicine.
[more]
cover of Risk and Adaptation in a Cancer Cluster Town

Risk and Adaptation in a Cancer Cluster Town

Laura Hart

Rutgers University Press, 2023

In disease cluster communities across the country, environmental contamination from local industries is often suspected as a source of disease. But civic action is notoriously hampered by the slow response from government agencies to investigate the cause of disease and the complexities of risk assessment. 

In Risk and Adaptation in a Cancer Cluster Town, Laura Hart examines another understudied dimension of community inaction: the role of emotion and its relationship to community experiences of social belonging and inequality. Using a cancer cluster community in Northwest Ohio as a case study, Hart advances an approach to risk that grapples with the complexities of community belonging, disconnect, and disruption in the wake of suspected industrial pollution. Her research points to a fear driven not only by economic anxiety, but also by a fear of losing security within the community—a sort of pride that is not only about status, but connectedness. Hart reveals the importance of this social form of risk—the desire for belonging and the risk of not belonging—ultimately arguing that this is consequential to how people make judgements and respond to issues. Within this context where the imperative for self-protection is elusive, affected families experience psychosocial and practical conflicts as they adapt to cancer as a way of life. Considering a future where debates about risk and science will inevitably increase, Hart considers possibilities for the democratization of risk management and the need for transformative approaches to environmental justice.
[more]
cover of Risky Medicine: Our Quest to Cure Fear and Uncertainty

Risky Medicine

Our Quest to Cure Fear and Uncertainty

Robert Aronowitz

University of Chicago Press, 2015

Will ever-more sensitive screening tests for cancer lead to longer, better lives?  Will anticipating and trying to prevent the future complications of chronic disease lead to better health?  Not always, says Robert Aronowitz in Risky Medicine. In fact, it often is hurting us.  

Exploring the transformation of health care over the last several decades that has led doctors to become more attentive to treating risk than treating symptoms or curing disease, Aronowitz shows how many aspects of the health system and clinical practice are now aimed at risk reduction and risk control. He argues that this transformation has been driven in part by the pharmaceutical industry, which benefits by promoting its products to the larger percentage of the population at risk for a particular illness, rather than the smaller percentage who are actually affected by it. Meanwhile, for those suffering from chronic illness, the experience of risk and disease has been conflated by medical practitioners who focus on anticipatory treatment as much if not more than on relieving suffering caused by disease. Drawing on such controversial examples as HPV vaccines, cancer screening programs, and the cancer survivorship movement, Aronowitz argues that patients and their doctors have come to believe, perilously, that far too many medical interventions are worthwhile because they promise to control our fears and reduce uncertainty.   
 
Risky Medicine is a timely call for a skeptical response to medicine’s obsession with risk, as well as for higher standards of evidence for risk-reducing interventions and a rebalancing of health care to restore an emphasis on the actual curing of and caring for people suffering from disease.      
[more]
cover of Risky Rhetoric: AIDS and the Cultural Practices of HIV Testing

Risky Rhetoric

AIDS and the Cultural Practices of HIV Testing

J. Blake Scott

Southern Illinois University Press, 2003

Risky Rhetoric: AIDS and the Cultural Practices of HIV Testing is the first book-length study of the rhetoric inherent in and surrounding HIV testing. In addition to providing a history of HIV testing in the United States from 1985 to the present, J. Blake Scott explains how faulty arguments about testing’s power and effects have promoted unresponsive and even dangerous testing practices for so-called healthy subjects as well as those deemed risky.A new afterword to the paperback edition discusses changes in testing technology, treatments, and public health responses in the last ten years. The ultimate goal of Risky Rhetoric is to offer strategies to policy makers, HIV educators and test counselors, and other rhetors for developing more responsive and egalitarian testing-related rhetorics and practices.

[more]
cover of Ritual Medical Lore of Sephardic Women: Sweetening the Spirits, Healing the Sick

Ritual Medical Lore of Sephardic Women

Sweetening the Spirits, Healing the Sick

Isaac Jack Lévy and Rosemary Lévy Zumwalt

University of Illinois Press, 2002

Winner of the Ellii Kongas-Maranda Prize from the Women's Section of the American Folklore Society, 2003.

Ritual Medical Lore of Sephardic Women preserves the precious remnants of a rich culture on the verge of extinction while affirming women's pivotal role in the health of their communities. Centered around extensive interviews with elders of the Sephardic communities of the former Ottoman Empire, this volume illuminates a fascinating complex of preventive and curative rituals conducted by women at home--rituals that ensured the physical and spiritual well-being of the community and functioned as a vital counterpart to the public rites conducted by men in the synagogues.

Isaac Jack Lévy and Rosemary Lévy Zumwalt take us into the homes and families of Sephardim in Turkey, Israel, Greece, the former Yugoslavia, and the United States to unravel the ancient practices of domestic healing: the network of blessings and curses tailored to every occasion of daily life; the beliefs and customs surrounding mal ojo (evil eye), espanto (fright), and echizo (witchcraft); and cures involving everything from herbs, oil, and sugar to the powerful mumia (mummy) made from dried bones of corpses.

For the Sephardim, curing an illness required discovering its spiritual cause, which might be unintentional thought or speech, accident, or magical incantation.  The healing rituals of domesticated medicine provided a way of making sense of illness and a way of shaping behavior to fit the narrow constraints of a tightly structured community. Tapping a rich and irreplaceable vein of oral testimony, Ritual Medical Lore of Sephardic Women offers fascinating insight into a culture where profound spirituality permeated every aspect of daily life.

[more]
cover of Romancing the Sperm: Shifting Biopolitics and the Making of Modern Families

Romancing the Sperm

Shifting Biopolitics and the Making of Modern Families

Diane Tober

Rutgers University Press, 2019

The 1990s marked a new era in family formation. Increased access to donor sperm enabled single women and lesbian couples to create their families on their own terms, outside the bounds of heterosexual married relationships. However, emerging “alternative” families were not without social and political controversy. Women who chose to have children without male partners faced many challenges in their quest to have children. Despite current wider social acceptance of single people and same sex couples becoming parents, many of these challenges continue.
 
In Romancing the Sperm, Diane Tober explores the intersections between sperm donation and the broader social and political environment in which “modern families” are created and regulated. Through tangible and intimate stories, this book provides a captivating read for anyone interested in family and kinship, genetics and eugenics, and how ever-expanding assisted reproductive technologies continue to redefine what it means to be human.  
[more]
cover of Rum Maniacs: Alcoholic Insanity in the Early American Republic

Rum Maniacs

Alcoholic Insanity in the Early American Republic

Matthew Warner Osborn

University of Chicago Press, 2014

A cultural history that reveals how and why pathological drinking became a subject of medical interest, social controversy, and lurid fascination in the early American republic.
 
Edgar Allan Poe vividly recalls standing in a prison cell, fearing for his life, as he watched men mutilate and dismember the body of his mother. That memory, however graphic and horrifying, was not real. It was a hallucination, one of many suffered by the writer, caused by his addiction to alcohol.

In Rum Maniacs, Matthew Warner Osborn reveals how and why pathological drinking became a subject of medical interest, social controversy, and lurid fascination in the early American republic. At the heart of that story is the disease that Poe suffered: delirium tremens. First described in 1813, delirium tremens and its characteristic hallucinations inspired sweeping changes in how the medical profession saw and treated the problems of alcohol abuse. Based on new theories of pathological anatomy, human physiology, and mental illness, the new diagnosis founded the medical conviction and popular belief that habitual drinking could become a psychological and physiological disease. By midcentury, delirium tremens had inspired a wide range of popular theater, poetry, fiction, and illustration. This romantic fascination endured into the twentieth century, most notably in the classic Disney cartoon Dumbo, in which a pink pachyderm marching band haunts a drunken young elephant. Rum Maniacs reveals just how delirium tremens shaped the modern experience of alcohol addiction as a psychic struggle with inner demons.
[more]
cover of Rural Pain, Republican Gain: How the Republican Party Is Killing Rural America and Why Democrats Are Blamed

Rural Pain, Republican Gain

How the Republican Party Is Killing Rural America and Why Democrats Are Blamed

Michael E. Shepherd

University of Chicago Press, 2026

An eye-opening look at how Republican policies have affected health outcomes in rural communities and why poor, rural white voters are turning to the Republican Party—not despite this harm, but because of it.

Over the last four decades, the health of rural Americans has been in free fall. Just as opioid and gun deaths have ripped apart rural communities, hospitals have closed at alarming rates, leaving millions desperately far from care. At the same time, voters in struggling rural communities have increasingly come to vote for the Republican Party.

In Rural Pain, Republican Gain, Michael E. Shepherd demonstrates that these two trends are closely connected. At both the federal and state levels, the Republican Party has increasingly enacted policies that worsen rural health. Rural voters are not indifferent to this development (quite the contrary), but they misassign blame, in part, because the Democratic Party is more commonly associated with health-related policy initiatives and has ownership of health as an issue area. Republican politicians can reap rewards from their own destructive policies by appealing to the shared grievances of rural people.

Shepherd draws on new, wide-ranging data, including in-depth studies of the opioid epidemic, hospital closures, and COVID-19. In so doing, he quantifies the harm of Republican policymaking and its disproportionate effect on rural communities, recasting how readers understand growing Republican support among less healthy, lower-income rural white Americans.

[more]