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At the age of forty-three, Amy Lee Lillard learned she was autistic. She learned she was part of a community of unseen women who fell through the gaps due to medical bias and social stereotypes.

A Grotesque Animal explores the making, unmaking, and making again of a woman with an undiagnosed disorder. How did a working-­ class background and a deep-rooted Midwest culture of silence lead to hiding in plain sight for decades? How did sexuality and anger hide the roots of trauma among the women in her family? And what does it mean to be a queer, disabled, aging woman, a descendent of wild but tamed mothers and a survivor of the things patriarchy inflicts?

Through wide-ranging styles and a combination of personal storytelling and cultural analysis, Lillard dissects anger, sexuality, autistic masking, bodies, punk, and female annihilation to create a new picture of modern women.
 

Global awareness of autism has skyrocketed since the 1980s, and popular culture has caught on, with film and television producers developing ever more material featuring autistic characters. Autism in Film and Television brings together more than a dozen essays on depictions of autism, exploring how autistic characters are signified in media and how the reception of these characters informs societal understandings of autism.

Editors Murray Pomerance and R. Barton Palmer have assembled a pioneering examination of autism’s portrayal in film and television. Contributors consider the various means by which autism has been expressed in films such as Phantom Thread, Mercury Rising, and Life Animated and in television and streaming programs including Atypical, The Bridge, Stranger Things, Star Trek: The Next Generation, and Community. Across media, the figure of the brilliant, accomplished, and “quirky” autist has proven especially appealing. Film and television have thus staked out a progressive position on neurodiversity by insisting on screen time for autism but have done so while frequently ignoring the true diversity of autistic experience. As a result, this volume is a welcome celebration of nonjudgmental approaches to disability, albeit one that is still freighted with stereotypes and elisions.

Winner 2024 Outstanding Recent Contribution in Social Psychology Award, Social Psychology Section, American Sociological Association

Winner 2024 Melvin Pollner Prize, Ethnomethodology and Conversation Analysis Section, American Sociological Association

As autism has grown in prevalence, so too have our attempts to make sense of it. From placing unfounded blame on vaccines to seeking a genetic cause, Americans have struggled to understand what autism is and where it comes from. Amidst these efforts, however, a key aspect of autism has been largely overlooked: the diagnostic process itself. That process is the central focus of Autistic Intelligence. The authors ask us to question the norms by which we measure autistic behavior, to probe how that behavior can be considered sensible rather than disordered, and to explore how we can better appreciate the individuality of those who receive the diagnosis.
 
Drawing on hundreds of hours of video recordings and ethnographic observations at a clinic where professionals evaluated children for autism, the authors’ analysis of interactions among clinicians, parents, and children demystifies the categories, tools, and practices involved in the diagnostic process. Autistic Intelligence shows that autism is not a stable category; it is the outcome of complex interactional processes involving professionals, children, families, and facets of the social and clinical environments they inhabit. The authors suggest that diagnosis, in addition to carefully classifying children, also can highlight or include unique and particular contributions those with autism potentially can make to the world around us.
 

“The hardest thing is dealing with the rest of the world. And we kind of accommodate our lives around that. But the rest of the world doesn’t.” These poignant words were spoken by Charlotte, a mother and primary caregiver of a five-year-old autistic boy, and her words reference the structural arrangements of our world that shape autism carework today. This book features the voices of fifty primary caregivers of autistic and neurodivergent children who illuminate the process through which laywomen become expert caregivers to provide the best care for their children. Expert caregiving captures an intensification of traditional family carework – meeting dependents’ financial, emotional, and physical needs – that transcends the walls of one’s private home and family and challenges the strict boundaries between many worlds: lay and professional, family and work, private and public, medical and social, and individual and society. The process of becoming an expert caregiver spotlights several interesting paradoxes in sociological literature, particularly regarding gender, family, and medicalization, and often forgotten structural flaws in “the rest of the world.”
 
Throughout the chapters in this book, the expert caregiver is one person who faces unbelievably daunting tasks of filling or reforming persistent institutional gaps, primarily in education and health care, and subverting ableist cultural norms. Without institutional support, answers to their questions, or pragmatic avenues to access resources, lay caregivers become the experts. Their trials and tribulations, especially when navigating the boundaries of professional/lay and private/public worlds, illuminate a type of carework that is increasingly relevant to a growing number of young families caring for neurodivergent, disabled, medically fragile, and/or chronically ill children. These stories offer a vivid picture of the often invisible complex challenges and structural forces that drive individuals to become expert caregivers in the first place. 
 
 

How to remake the world with neurodivergence at its heart

What if we embraced neurodivergent ways of being not as deviations to be corrected but as vital ways of inhabiting the world? What new realities might emerge? Bringing a much-needed humanistic perspective to the study of autism and other forms of neurodivergence, Counter-cartographies offers a bold reimagining of neurological difference, moving beyond rigid diagnostic frameworks to uncover more expansive, generative modes of existence.

 

Engaging the work of Fernand Deligny to trace how modern taxonomies of neurodivergence have hardened over time, Leon J. Hilton questions how these categories might instead serve as tools for remapping the world with neurodivergence at its center. At the heart of Counter-cartographies is an exploration of performance and performativity that reveals how the norm of neurotypical reality is continually reinforced through acts of doing, redoing, and undoing.

 

Charting the historical shift away from “mind” and toward “brain” and moving fluidly across disciplines—from digital art and documentary cinema to cybernetics and radical mental health movements—Hilton illuminates the deep interconnections between performance, perception, and the historical construction of the “neurotypical.” Through close readings of works by William Pope.L, Mel Baggs, Wu Tsang, and others, Hilton also examines how neurodivergence has been represented, embodied, and materialized in contemporary art and media. Restless, engrossing, and persistently attuned to moments of rupture when the neurotypical order falters, Counter-cartographies charts a path toward a more capacious, imaginative world.

 

 

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In the fall of 2009, Amy Lutz and her husband, Andy, struggled with one of the worst decisions parents could possibly face: whether they could safely keep their autistic ten-year-old son, Jonah, at home any longer. Multiple medication trials, a long procession of behavior modification strategies, and even an almost year-long hospitalization had all failed to control his violent rages. Desperate to stop the attacks that endangered family members, caregivers, and even Jonah himself, Amy and Andy decided to try the controversial procedure of electroconvulsive therapy or ECT. Over the last three years, Jonah has received 136 treatments. His aggression has greatly diminished, and for the first time Jonah, now fourteen, is moving to a less restricted school.

Each Day I Like It Better recounts the journeys of Jonah and seven other children and their families (interviewed by the author) in their quests for appropriate educational placements and therapeutic interventions. The author describes their varied, but mostly successful, experiences with ECT.

A survey of research on pediatric ECT is incorporated into the narrative, and a foreword by child psychiatrist Dirk Dhossche and ECT researcher and practitioner Charles Kellner explains how ECT works, the side effects patients may experience, and its current use in the treatment of autism, catatonia, and violent behavior in children.