Results by title
13 books match the query 'HIV'
'You're the First One I've Told'
New Faces of HIV in the SouthWhetten-Goldstein, Kathryn
Rutgers University Press, 2002
In the second wave of the HIV epidemic, those with the disease are more likely to be female, young, heterosexual, a racial minority, and rural-living than in the past. An understanding of the vastly different lives of this second wave of HIV-infected persons is vital to the development of user-friendly health care systems.
"You're the First One I've Told" offers a view into the lives of men and women infected with HIV. The experiences of twenty-five people living with this disease in rural eastern North Carolina serve as the foundation of this book, which also draws upon unique HIV/AIDS survey data collected by the authors and statistics from the Southeastern United States. This combination of qualitative and quantitative information provides readers with a vivid description of how people live with HIV/AIDS in the midst of their often traumatic lives, and why they manage their illness in ways that seem to contradict mainstream medical and social wisdom. The people interviewed represent a variety of races, genders, professions, family lives, and medical and social service access and utilization.
Children as Caregivers
The Global Fight against Tuberculosis and HIV in ZambiaHunleth, Jean
Rutgers University Press, 2017
In Zambia, due to the rise of tuberculosis and the closely connected HIV epidemic, a large number of children have experienced the illness or death of at least one parent. Children as Caregivers examines how well intentioned practitioners fail to realize that children take on active caregiving roles when their guardians become seriously ill and demonstrates why understanding children’s care is crucial for global health policy.
Using ethnographic methods, and listening to the voices of the young as well as adults, Jean Hunleth makes the caregiving work of children visible. She shows how children actively seek to “get closer” to ill guardians by providing good care. Both children and ill adults define good care as attentiveness of the young to adults’ physical needs, the ability to carry out treatment and medication programs in the home, and above all, the need to maintain physical closeness and proximity. Children understand that losing their guardians will not only be emotionally devastating, but that such loss is likely to set them adrift in Zambian society, where education and advancement depend on maintaining familial, reciprocal relationships.
View a gallery of images from the book (https://www.flickr.com/photos/childrenascaregivers)
Download the open access ebook.
Criminalized Lives
HIV and Legal ViolenceAlexander McClelland
Rutgers University Press, 2024
Canada has been known as a hot spot for HIV criminalization where the act of not disclosing one’s HIV-positive status to sex partners has historically been regarded as a serious criminal offence. Criminalized Lives describes how this approach has disproportionately harmed the poor, Black and Indigenous people, gay men, and women in Canada. In this book, people who have been criminally accused of not disclosing their HIV-positive status, detail the many complexities of disclosure, and the violence that results from being criminalized.
Accompanied by portraits from artist Eric Kostiuk Williams, the profiles examine whether the criminal legal system is really prepared to handle the nuances and ethical dilemmas faced everyday by people living with HIV. By offering personal stories of people who have faced criminalization first-hand, Alexander McClelland questions common assumptions about HIV, the role of punishment, and the violence that results from the criminal legal system’s legacy of categorizing people as either victims or perpetrators.
Note: A regrettable error appears on page 22. The number 240 should be 206 when referring to the number of people prosecuted in relation to allegations of HIV nondisclosure. This will be fixed in future reprints.
Crying for Our Elders
African Orphanhood in the Age of HIV and AIDSKristen E. Cheney
University of Chicago Press, 2017
Through ethnographic fieldwork and collaborative research with children in Uganda, Cheney traces how the “best interest” principle that governs children’s’ rights can stigmatize orphans and leave children in the post-antiretroviral era even more vulnerable to exploitation. She details the dramatic effects this has on traditional family support and child protection and stresses child empowerment over pity. Crying for Our Elders advances current discussions on humanitarianism, children’s studies, orphanhood, and kinship. By exploring the unique experience of AIDS orphanhood through the eyes of children, caregivers, and policymakers, Cheney shows that despite the extreme challenges of growing up in the era of HIV/AIDS, the post-ARV generation still holds out hope for the future.
Fault Lines of Care
Gender, HIV, and Global Health in BoliviaHeckert, Carina
Rutgers University Press, 2018
The HIV epidemic in Bolivia has received little attention on a global scale in light of the country’s low HIV prevalence rate. However, by profiling the largest city in this land-locked Latin American country, Carina Heckert shows how global health-funded HIV care programs at times clash with local realities, which can have catastrophic effects for people living with HIV who must rely on global health resources to survive. These ethnographic insights, as a result, can be applied to AIDS programs across the globe.
In Fault Lines of Care, Heckert provides a detailed examination of the effects of global health and governmental policy decisions on the everyday lives of people living with HIV in Santa Cruz. She focuses on the gendered dynamics that play a role in the development and implementation of HIV care programs and shows how decisions made from above impact what happens on the ground.
Governing the Global Clinic
HIV and the Legal Transformation of MedicineCarol A. Heimer
University of Chicago Press, 2025
A deep examination of how new, legalistic norms affected the trajectory of global HIV care and altered the practice of medicine.
HIV emerged in the world at a time when medicine and healthcare were undergoing two major transformations: globalization and a turn toward legally inflected, rule-based ways of doing things. It accelerated both trends. While pestilence and disease are generally considered the domain of biological sciences and medicine, social arrangements—and law in particular—are also crucial.
Drawing on years of research in HIV clinics in the United States, Thailand, South Africa, and Uganda, Governing the Global Clinic examines how growing norms of legalized accountability have altered the work of healthcare systems and how the effects of legalization vary across different national contexts. A key feature of legalism is universalistic language, but, in practice, rules are usually imported from richer countries (especially the United States) to poorer ones that have less adequate infrastructure and fewer resources with which to implement them. Challenging readers to reconsider the impulse to use law to organize and govern social life, Governing the Global Clinic poses difficult questions: When do rules solve problems, and when do they create new problems? When do rules become decoupled from ethics, and when do they lead to deeper moral commitments? When do rules reduce inequality? And when do they reflect, reproduce, and even amplify inequality?
Hiv and Aids in Africa
Douglas Webb
Pluto Press, 1997
Islands of Love, Islands of Risk
Culture and HIV in the TrobriandsKatherine Lepani
Vanderbilt University Press, 2012
Written by an anthropologist who has direct ties to the Trobriands through marriage and who has been involved in Papua New Guinea's national response to the HIV epidemic since the mid-1990s, Islands of Love, Islands of Risk is an unusual insider ethnography. Katherine Lepani describes in vivid detail the cultural practices of regeneration, from the traditional dance called Wosimwaya to the elaborate exchanges that are part of the mortuary feasts called sagali. Focusing on the sexual freedom of young people, the author reveals the social value of sexual practice. By bringing cultural context and lived experience to the fore, the book addresses the failure of standardized public health programs to bridge the persistent gap between HIV awareness and prevention. The book offers insights on the interplay between global and local understandings of gender, sexuality, and disease and suggests the possibility of viewing sexuality in terms other than risk.
Islands of Love, Islands of Risk illustrates the contribution of ethnographic research methodology in facilitating dialogue between different ways of knowing. As a contemporary perspective on Malinowski's classic accounts of Trobriand sexuality, the book reaffirms the Trobriands' central place in the study of anthropology.
This book is the recipient of the annual Norman L. and Roselea J. Goldberg Prize for the best project in the area of medicine.
Landscapes of Activism
Civil Society, HIV and AIDS Care in Northern MozambiqueReed, Joel Christian
Rutgers University Press, 2018
The Political Economy of Stigma
HIV, Memoir, Medicine, and Crip PositionalitiesAlly Day
The Ohio State University Press, 2021
In The Political Economy of Stigma, Ally Day offers a compelling critique of neoliberal medical practices in the US by coupling an analysis of HIV memoir with a critical examination of narrative medicine practice. Using insights from feminist disability studies and crip theory, Day argues that stories of illness and disability—such as HIV memoirs—operate within a political economy of stigma, which she defines as the formal and informal circulation of personal illness and disability narratives that benefits some while hindering others. On the one hand, this system decreases access to appropriate medical care for those with chronic conditions by producing narratives of personal illness that frame one’s relationship to structural inequality as a result of personal failure. On the other hand, the political economy of stigma rewards those who procure such narratives and circulate them for public consumption.
The political economy of stigma is theorized from three primary research sites: a reading group with women living with HIV, a reading group with AIDS service workers, and participant observation research and critical close reading of practices in narrative medicine. Ultimately, it is the women living with HIV who provide an alternative way to understand disability and illness narratives, a practice of differential reading that can challenge stigmatizing tropes and reconceptualize the creation, reception, and circulation of patient memoir.
The Secret
Love, Marriage, and HIVJennifer S. Hirsch
Vanderbilt University Press, 2009
For many women around the world, their greatest risk of HIV infection comes from having sex with the very person with whom they are supposed to have sex: their spouse. The Secret situates marital HIV risk within a broader exploration of marital and extramarital sexuality in five diverse settings: Mexico, Nigeria, Uganda, Vietnam, and Papua New Guinea. In these settings, the authors write, men's extramarital sex is an officially secret but actually widespread (and widely acknowledged) social practice, rather than something men do because their bodies demand it and women can't stop them.
Drawing on research conducted as part of an innovative comparative ethnographic study, and modeling a novel approach to collaborative anthropological scholarship, the authors show men's extramarital sex to be a fundamental aspect of gendered social organization. Through theoretically sophisticated yet lucid writing and vivid ethnographic description, drawing on rich data from the marital case studies conducted by research teams in each country, they trace how extramarital opportunity structures, sexual geographies, and concerns about social risk facilitate men's participation in extramarital sex. Also documented throughout is the collision between traditional ways and the new practices of romantic companionate marriage.
United by AIDS
An Anthology on Art in Response to HIV/AIDSEdited by Raphael Gygax and Heike Munder
Scheidegger and Spiess, 2019
United by AIDS sheds light on the multifaceted and complex interrelation between art and HIV/AIDS from the 1980s to the present. Published to accompany an exhibition at Zurich’s Migros Museum of Contemporary Art, it looks at the blurred lines between art production and HIV/AIDS activism and showcases artists who played—and still play—leading roles in this discourse. Alongside fifty illustrations of important works, including many in color, the book includes brief texts on the featured artists and essays by Douglas Crimp, Alexander García Düttmann, Raphael Gygax, Elsa Himmer, Ted Kerr, Elisabeth Lebovici, and Nurja Ritter.
You're the First One I've Told
The Faces of HIV in the Deep SouthWhetten-Goldstein, Kathryn
Rutgers University Press, 2013
The Deep South has seen a 36 percent increase in AIDS cases while the rest of the nation has seen a 2 percent decline. Many of the underlying reasons for the disease’s continued spread in the region—ignorance about HIV, reluctance to get tested, non-adherence to treatment protocols, resistance to behavioral changes—remain unaddressed by policymakers.
In this extensively revised second edition, Kathryn Whetten and Brian Wells Pence present a rich discussion of twenty-five ethnographic life stories of people living with HIV in the South. Most importantly, they incorporate research from their recent quantitative study, “Coping with HIV/AIDS in the Southeast” (CHASE), which includes 611 HIV-positive patients from North Carolina, South Carolina, Georgia, Alabama, and Louisiana. This new edition continues to bring the participants’ voices to life while highlighting how the CHASE study confirmed many of the themes that originally emerged from the life histories. This is the first cohesive compilation of up-to-date evidence on the unique and difficult aspects of living with HIV in the Deep South.