Results by title

15 books match the query 'Health Services Accessibility'

cover of AIDS and the Distribution of Crises

AIDS and the Distribution of Crises

Jih-Fei Cheng, Alexandra Juhasz, and Nishant Shahani, editors

Duke University Press, 2020

AIDS and the Distribution of Crises engages with the AIDS pandemic as a network of varied historical, overlapping, and ongoing crises born of global capitalism and colonial, racialized, gendered, and sexual violence. Drawing on their investments in activism, media, anticolonialism, feminism, and queer and trans of color critiques, the scholars, activists, and artists in this volume outline how the neoliberal logic of “crisis” structures how AIDS is aesthetically, institutionally, and politically reproduced and experienced. Among other topics, the authors examine the writing of the history of AIDS; settler colonial narratives and laws impacting risk in Indigenous communities; the early internet regulation of both content and online AIDS activism; the Black gendered and sexual politics of pleasure, desire, and (in)visibility; and how persistent attention to white men has shaped AIDS as intrinsic to multiple, unremarkable crises among people of color and in the Global South.

Contributors. Cecilia Aldarondo, Pablo Alvarez, Marlon M. Bailey, Emily Bass, Darius Bost, Ian Bradley-Perrin, Jih-Fei Cheng, Bishnupriya Ghosh, Roger Hallas, Pato Hebert, Jim Hubbard, Andrew J. Jolivette, Julia S. Jordan-Zachery, Alexandra Juhasz, Dredge Byung'chu Kang-Nguyễn, Theodore (Ted) Kerr, Catherine Yuk-ping Lo, Cait McKinney, Viviane Namaste, Elton Naswood, Cindy Patton, Margaret Rhee, Juana María Rodríguez, Sarah Schulman, Nishant Shahani, C. Riley Snorton, Eric A. Stanley, Jessica Whitbread, Quito Ziegler
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cover of Ancestors and Antiretrovirals: The Biopolitics of HIV/AIDS in Post-Apartheid South Africa

Ancestors and Antiretrovirals

The Biopolitics of HIV/AIDS in Post-Apartheid South Africa

Claire Laurier Decoteau

University of Chicago Press, 2013

In the years since the end of apartheid, South Africans have enjoyed a progressive constitution, considerable access to social services for the poor and sick, and a booming economy that has made their nation into one of the wealthiest on the continent. At the same time, South Africa experiences extremely unequal income distribution, and its citizens suffer the highest prevalence of HIV in the world. As Archbishop Desmond Tutu has noted, “AIDS is South Africa’s new apartheid.”

In Ancestors and Antiretrovirals, Claire Laurier Decoteau backs up Tutu’s assertion with powerful arguments about how this came to pass. Decoteau traces the historical shifts in health policy after apartheid and describes their effects, detailing, in particular, the changing relationship between biomedical and indigenous health care, both at the national and the local level. Decoteau tells this story from the perspective of those living with and dying from AIDS in Johannesburg’s squatter camps. At the same time, she exposes the complex and often contradictory ways that the South African government has failed to balance the demands of neoliberal capital with the considerable health needs of its population.
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cover of Borders of Care: Immigrants, Migrants, and the Fight for Health Care in the United States

Borders of Care

Immigrants, Migrants, and the Fight for Health Care in the United States

Beatrix Hoffman

University of Chicago Press, 2025

Probes the relationship between the immigration and health care systems in the United States.
 
For the roughly ten million undocumented immigrants living in the United States, federal health care coverage is out of reach. Barred from Medicare, Medicaid, and the Affordable Care Act, most rely on hospital emergency rooms when they get sick, or clinics that don’t inquire about immigration status. Further obstacles to health care, including discrimination and the fear of deportation, mean that immigrants, undocumented or not, seek and receive less medical attention than any other population in the country. Yet immigrants haven’t always been ostracized from health care in the United States—providers and activists have for over a century worked to make medical services available to newcomers and migrants, including, at times, the undocumented.
 
Drawing together stories from diverse communities from the mid-nineteenth century to the present, Borders of Care examines how health care in the United States has both included and excluded immigrants. Beatrix Hoffman analyzes both the health and immigration systems, adding to our understanding of why these structures, and the policies that support them, have resisted reform. Moreover, she shows that immigrants, often scapegoated as burdens on the health-care system, have strengthened it through their responses to systemic exclusion. By creating hospitals and clinics, serving as practitioners, fighting for safer workplaces, filing lawsuits, organizing and protesting, immigrants and migrants have improved medical access for everybody and advanced the idea of health care as a universal right. As accessible as it is authoritative, Hoffman’s survey could not be more timely.
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cover of Eliciting Care: Health and Power in Northern Thailand

Eliciting Care

Health and Power in Northern Thailand

Bo Kyeong Seo

University of Wisconsin Press, 2020

In 2001, Thailand introduced universal health care reforms that have become some of the most celebrated in the world, providing almost its entire population with health protection coverage. However, this remarkable implementation of health policy is not without its weaknesses. Drawing on two years of fieldwork at a district hospital in northern Thailand, Bo Kyeong Seo examines how people in marginal and dependent social positions negotiate the process of obtaining care.
Using the broader concept of elicitation, Seo analyzes the social encounters and forces that shape caregivers. These dynamics challenge dichotomies of subjugation and resistance, consent and coercion, and dependence and autonomy. The intimate and moving stories at the core of Eliciting Care from patients and providers draw attention to a broader, critically important phenomenon at the hospital level. Seo's poignant ethnography engages with feminist theory on the ethics of care, and in so doing, makes a significant contribution to emerging work in the field of health policy and politics.
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cover of Global Pharmaceuticals: Ethics, Markets, Practices

Global Pharmaceuticals

Ethics, Markets, Practices

Adriana Petryna, Andrew Lakoff, and Arthur Kleinman, eds.

Duke University Press, 2006

In some parts of the world spending on pharmaceuticals is astronomical. In others people do not have access to basic or life-saving drugs. Individuals struggle to afford medications; whole populations are neglected, considered too poor to constitute profitable markets for the development and distribution of necessary drugs. The ethnographies brought together in this timely collection analyze both the dynamics of the burgeoning international pharmaceutical trade and the global inequalities that emerge from and are reinforced by market-driven medicine. They demonstrate that questions about who will be treated and who will not filter through every phase of pharmaceutical production, from preclinical research to human testing, marketing, distribution, prescription, and consumption.

Whether considering how American drug companies seek to create a market for antidepressants in Japan, how Brazil has created a model HIV/AIDS prevention and treatment program, or how the urban poor in Delhi understand and access healthcare, these essays illuminate the roles of corporations, governments, NGOs, and individuals in relation to global pharmaceuticals. Some essays show how individual and communal identities are affected by the marketing and availability of medications. Among these are an exploration of how the pharmaceutical industry shapes popular and expert understandings of mental illness in North America and Great Britain. There is also an examination of the agonizing choices facing Ugandan families trying to finance AIDS treatment. Several essays explore the inner workings of the emerging international pharmaceutical regime. One looks at the expanding quest for clinical research subjects; another at the entwining of science and business interests in the Argentine market for psychotropic medications. By bringing the moral calculations involved in the production and distribution of pharmaceuticals into stark relief, this collection charts urgent new territory for social scientific research.

Contributors. Kalman Applbaum, João Biehl, Ranendra K. Das, Veena Das, David Healy, Arthur Kleinman, Betty Kyaddondo, Andrew Lakoff, Anne Lovell, Lotte Meinert, Adriana Petryna, Michael A. Whyte, Susan Reynolds Whyte

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cover of Health Care for Some: Rights and Rationing in the United States since 1930

Health Care for Some

Rights and Rationing in the United States since 1930

Beatrix Hoffman

University of Chicago Press, 2012

In Health Care for Some, Beatrix Hoffman offers an engaging and in-depth look at America’s long tradition of unequal access to health care. She argues that two main features have characterized the US health system: a refusal to adopt a right to care and a particularly American approach to the rationing of care. Health Care for Some shows that the haphazard way the US system allocates medical services—using income, race, region, insurance coverage, and many other factors—is a disorganized, illogical, and powerful form of rationing. And unlike rationing in most countries, which is intended to keep costs down, rationing in the United States has actually led to increased costs, resulting in the most expensive health care system in the world.
While most histories of US health care emphasize failed policy reforms, Health Care for Some looks at the system from the ground up in order to examine how rationing is experienced by ordinary Americans and how experiences of rationing have led to claims for a right to health care. By taking this approach, Hoffman puts a much-needed human face on a topic that is too often dominated by talking heads.

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cover of Health Extension: Community-Based Healthcare and the Future of Cooperative Extension

Health Extension

Community-Based Healthcare and the Future of Cooperative Extension

Cheryl L. Eschbach

Michigan State University Press, 2024

Health Extension: Community-Based Healthcare and the Future of Cooperative Extension explores innovation in extension health programs, engaged scholarship promoting research-based information in communities, and the evaluation and documentation of community programs and their impacts. This volume provides land-grant and university-based colleagues up-to-date information on using the Cooperative Extension System (CES) for community engagement in healthcare while also familiarizing those outside CES and the academy with a roadmap for improvement. The contributions of a diverse array of scholars challenge the status quo in extension programs by characterizing the introspection, understanding, creativity, partnerships, and leadership that will be required to improve lives and communities  in the twenty-first century. This perspective underscores the role of CES as foundational to the future of Health Extension and offers an alternative to approaches that utilize the CES as a model without the accompanying advantages of history, community embeddedness, and sustainability.
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cover of Just Care: Messy Entanglements of Disability, Dependency, and Desire

Just Care

Messy Entanglements of Disability, Dependency, and Desire

Akemi Nishida

Temple University Press, 2022

Just Care is Akemi Nishida’s thoughtful examination of care injustice and social justice enabled through care. The current neoliberal political economy has turned care into a business opportunity for the healthcare industrial complex and a mechanism of social oppression and control. Nishida analyzes the challenges people negotiate whether they are situated as caregivers, receivers, or both. Also illuminated is how people with disabilities come together to assemble community care collectives and bed activism (resistance and visions emerging from the space of bed) to reimagine care as a key element for social change.

The structure of care, Nishida writes, is deeply embedded in and embodies the cruel social order—based on disability, race, gender, migration status, and wealth—that determines who survives or deteriorates. Simultaneously, many marginalized communities treat care as the foundation of activism. Using interviews, focus groups, and participant observation with care workers and people with disabilities, Just Care looks into lives unfolding in the assemblage of Medicaid long-term care programs, community-based care collectives, and bed activism. Just Care identifies what care does, and asks: How can we activate care justice or just care where people feel cared affirmatively and care being used for the wellbeing of community and for just world making?

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cover of Just Don't Get Sick: Access to Health Care in the Aftermath of Welfare Reform

Just Don't Get Sick

Access to Health Care in the Aftermath of Welfare Reform

Seccombe, Karen

Rutgers University Press, 2007

The ability to obtain health care is fundamental to the security, stability, and well-being of poor families. Government-sponsored programs provide temporary support, but as families leave welfare for work, they find themselves without access to coverage or care. The low-wage jobs that individuals in transition are typically able to secure provide few benefits yet often disqualify employees from receiving federal aid.

Drawing upon statistical data and in-depth interviews with over five hundred families in Oregon, Karen Seccombe and Kim Hoffman assess the ways in which welfare reform affects the well-being of adults and children who leave the program for work. We hear of asthmatic children whose uninsured but working mothers cannot obtain the preventive medicines to keep them well, and stories of pregnant women receiving little or no prenatal care who end up in emergency rooms with life-threatening conditions.

Representative of poor communities nationwide, the vivid stories recounted here illuminate the critical relationship between health insurance coverage and the ability to transition from welfare to work.
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cover of Physicians of the Future: Doctor-Influencers, Patient-Consumers, and the Business of Functional Medicine

Physicians of the Future

Doctor-Influencers, Patient-Consumers, and the Business of Functional Medicine

Rosalynn A. Vega

University of Texas Press, 2024

The first scholarly exploration of the forums, practice, and economics of functional medicine.

Physicians of the Future interrogates the hidden logics of inclusion and exclusion in functional medicine (FM), a holistic form of personalized medicine that targets chronic disease. Rosalynn Vega uncovers how, as “wounded healers,” some FM practitioners who are former chronic disease sufferers turn their illness narratives into a form of social capital, leveraging social media to relate to patients and build practices as “doctor-influencers.” Arguing that power and authority operate distinctly in FM when compared to conventional medicine, largely because FM services are paid for out of pocket by socioeconomically privileged “clients,” Vega studies how FM practitioners engage in entrepreneurship of their own while critiquing the profit motives of the existing healthcare system, pharmaceutical industry, and insurance industry. Using data culled from online support groups, conferences, docuseries, blogs, podcasts, YouTube, and TED Talks, as well as her own battles with chronic illness, Vega argues that FM practices prioritize the individual while inadvertently reinscribing inequities based on race and class. Ultimately, she opens avenues of possibility for FM interlocutors wrestling with their responsibility for making functional medicine accessible to all.

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cover of Policy Challenges in Modern Health Care

Policy Challenges in Modern Health Care

Edited by David Mechanic, Lynn B. Rogut, David Colby, and James R. Knickman

Rutgers University Press, 2005

Health care delivery in the United States is an enormously complex enterprise, and its $1.6 trillion annual expenditures involve a host of competing interests. While arguably the nation offers among the most technologically advanced medical care in the world, the American system consistently under performs relative to its resources. Gaps in financing and service delivery pose major barriers to improving health, reducing disparities, achieving universal insurance coverage, enhancing quality, controlling costs, and meeting the needs of patients and families.

Bringing together twenty-five of the nation’s leading experts in health care policy and public health, this book provides a much-needed perspective on how our health care system evolved, why we face the challenges that we do, and why reform is so difficult to achieve. The essays tackle tough issues including: socioeconomic disadvantage, tobacco, obesity, gun violence, insurance gaps, the rationing of services, the power of special interests, medical errors, and the nursing shortage.

Linking the nation’s health problems to larger political, cultural, and philosophical contexts, Policy Challenges in Modern Health Care offers a compelling look at where we stand and where we need to be headed.

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cover of Poor People's Medicine: Medicaid and American Charity Care since 1965

Poor People's Medicine

Medicaid and American Charity Care since 1965

Jonathan Engel

Duke University Press, 2006

Poor People’s Medicine is a detailed history of Medicaid since its beginning in 1965. Federally aided and state-operated, Medicaid is the single most important source of medical care for the poorest citizens of the United States. From acute hospitalization to long-term nursing-home care, the nation’s Medicaid programs pay virtually the entire cost of physician treatment, medical equipment, and prescription pharmaceuticals for the millions of Americans who fall within government-mandated eligibility guidelines. The product of four decades of contention over the role of government in the provision of health care, some of today’s Medicaid programs are equal to private health plans in offering coordinated, high-quality medical care, while others offer little more than bare-bones coverage to their impoverished beneficiaries.

Starting with a brief overview of the history of charity medical care, Jonathan Engel presents the debates surrounding Medicaid’s creation and the compromises struck to allow federal funding of the nascent programs. He traces the development of Medicaid through the decades, as various states attempted to both enlarge the programs and more finely tailor them to their intended targets. At the same time, he describes how these new programs affected existing institutions and initiatives such as public hospitals, community clinics, and private pro bono clinical efforts. Along the way, Engel recounts the many political battles waged over Medicaid, particularly in relation to larger discussions about comprehensive health care and social welfare reform. Poor People’s Medicine is an invaluable resource for understanding the evolution and present state of programs to deliver health care to America’s poor.

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cover of Radical Health: Unwellness, Care, and Latinx Expressive Culture

Radical Health

Unwellness, Care, and Latinx Expressive Culture

Julie Avril Minich

Duke University Press, 2023

In Radical Health Julie Avril Minich examines the potential of Latinx expressive culture to intervene in contemporary health politics, elaborating how Latinx artists have critiqued ideologies of health that frame wellbeing in terms of personal behavior. Within this framework, poor health—obesity, asthma, diabetes, STIs, addiction, and high-risk pregnancies—is attributed to irresponsible lifestyle choices among the racialized poor. Countering this, Latinx writers and visual artists envision health not as individual duty but as communal responsibility. Bringing a disability justice approach to questions of health access and equity, Minich locates a concept of radical health within the work of Latinx artists, including the poetry of Rafael Campo, the music of Hurray for the Riff Raff, the fiction of Angie Cruz, and the performance art of Virginia Grise. Radical health operates as a modality that both challenges the stigma of unhealth and protests the social conditions that give rise to racial health disparities. Elaborating on this modality, Minich claims a critical role for Latinx artists in addressing the structural racism in public health. 
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cover of Treating AIDS: Politics of Difference, Paradox of Prevention

Treating AIDS

Politics of Difference, Paradox of Prevention

Sangaramoorthy, Thurka

Rutgers University Press, 2014

 There is an inherently powerful and complex paradox underlying HIV/AIDS prevention—between the focus on collective advocacy mobilized to combat global HIV/AIDS and the staggeringly disproportionate rates of HIV/AIDS in many places. In Treating AIDS, Thurka Sangaramoorthy examines the everyday practices of HIV/AIDS prevention in the United States from the perspective of AIDS experts and Haitian immigrants in South Florida. Although there is worldwide emphasis on the universality of HIV/AIDS as a social, political, economic, and biomedical problem, developments in HIV/AIDS prevention are rooted in and focused exclusively on disparities in HIV/AIDS morbidity and mortality framed through the rubric of race, ethnicity, and nationality. Everyone is at equal risk for contracting HIV/AIDS, Sangaramoorthy notes, but the ways in which people experience and manage that risk—and the disease itself—is highly dependent on race, ethnic identity, sexuality, gender, immigration status, and other notions of “difference.”

Sangaramoorthy documents in detail the work of AIDS prevention programs and their effect on the health and well-being of Haitians, a transnational community long plagued by the stigma of being stereotyped in public discourse as disease carriers. By tracing the ways in which public knowledge of AIDS prevention science circulates from sites of surveillance and regulation, to various clinics and hospitals, to the social worlds embraced by this immigrant community, she ultimately demonstrates the ways in which AIDS prevention programs help to reinforce categories of individual and collective difference, and how they continue to sustain the persistent and pernicious idea of race and ethnicity as risk factors for the disease.
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cover of We Are Having This Conversation Now: The Times of AIDS Cultural Production

We Are Having This Conversation Now

The Times of AIDS Cultural Production

Alexandra Juhasz and Theodore Kerr

Duke University Press, 2022

We Are Having This Conversation Now offers a history, present, and future of AIDS through thirteen short conversations between Alexandra Juhasz and Theodore Kerr, scholars deeply embedded in HIV responses. They establish multiple timelines of the epidemic, offering six foundational periodizations of AIDS culture, tracing how attention to the crisis has waxed and waned from the 1980s to the present. They begin the book with a 1990 educational video produced by a Black health collective, using it to consider organizing intersectionally, theories of videotape, empowerment movements, and memorialization. This video is one of many powerful yet overlooked objects that the pair focus on through conversation to understand HIV across time. Along the way, they share their own artwork, activism, and stories of the epidemic. Their conversations illuminate the vital role personal experience, community, cultural production, and connection play in the creation of AIDS-related knowledge, archives, and social change. Throughout, Juhasz and Kerr invite readers to reflect and find ways to engage in their own AIDS-related culture and conversation.
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