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23 books match the query 'Illness'

cover of Articulations: The Body and Illness in Poetry

Articulations

The Body and Illness in Poetry

Jon Mukand

University of Iowa Press, 1994

In 1987 poet and physician Jon Mukand published Sutured Words, a volume of contemporary poems to help patients, their families and friends, and all health care professionals embrace the complexity of healing, illness, and death. Robert Coles called the collection “a wonderful source of inspiration and instruction for any of us who are trying to figure out what our work means”; Norman Cousins was impressed by the “discernment and high quality of the selections.” Now, in Articulations, Mukand adds more than a hundred new poems to the strongest poems from Sutured Words to give us a lyrical, enlightened understanding of the human dimensions of suffering and illness

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cover of Biomedicalization: Technoscience, Health, and Illness in the U.S.

Biomedicalization

Technoscience, Health, and Illness in the U.S.

Adele E. Clarke, Laura Mamo, Jennifer Ruth Fosket, Jennifer R. Fishman, and Janet K. Shim, eds.

Duke University Press, 2010

The rise of Western scientific medicine fully established the medical sector of the U.S. political economy by the end of the Second World War, the first “social transformation of American medicine.” Then, in an ongoing process called medicalization, the jurisdiction of medicine began expanding, redefining certain areas once deemed moral, social, or legal problems (such as alcoholism, drug addiction, and obesity) as medical problems. The editors of this important collection argue that since the mid-1980s, dramatic, and especially technoscientific, changes in the constitution, organization, and practices of contemporary biomedicine have coalesced into biomedicalization, the second major transformation of American medicine. This volume offers in-depth analyses and case studies along with the groundbreaking essay in which the editors first elaborated their theory of biomedicalization.

Contributors. Natalie Boero, Adele E. Clarke, Jennifer R. Fishman, Jennifer Ruth Fosket, Kelly Joyce, Jonathan Kahn, Laura Mamo, Jackie Orr, Elianne Riska, Janet K. Shim, Sara Shostak

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cover of Calricaram Naulluutem-llu Qanrutkumallra / Wellness and Illness in Yup'ik Oral Tradition

Calricaram Naulluutem-llu Qanrutkumallra / Wellness and Illness in Yup'ik Oral Tradition

Ann Fienup-Riordan

University of Alaska Press, 2027

Calricaram Naulluutem-llu Qanrutkumallra / Wellness and Illness in Yup’ik Oral Tradition brings together stories and information shared by more than a hundred Yup’ik tradition bearers over more than thirty years. Recorded during elder gatherings hosted by the Calista Elders Council beginning in 1997 and, since 2014, by Calista Education and Culture, the book passes on the words of wisdom that will remain enduring parts of these elders’ legacy.

Combining recent recordings with material from earlier gatherings, the narratives address various aspects of personal and community health: how people talk about sickness and health, traditional foods, qanruyutet (oral instructions) for living a healthy life, medicinal plants, medicinal uses of bodily fluids, ailments and treatments, traditional healing techniques, caring for those who are sick, mental health and mental illness, and epidemics.

Calricaram Naulluutem-llu Qanrutkumallra / Wellness and Illness in Yup’ik Oral Tradition invites readers to listen to these elders to better understand past practices and how they can contribute to a healthier future for all.

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cover of Chronic Conditions, Fluid States: Chronicity and the Anthropology of Illness

Chronic Conditions, Fluid States

Chronicity and the Anthropology of Illness

Manderson, Lenore

Rutgers University Press, 2010

Chronic Conditions, Fluid States explores the uneven impact of chronic illness and disability on individuals, families, and communities in diverse local and global settings. To date, much of the social as well as biomedical research has treated the experience of illness and the challenges of disease control and management as segmented and episodic. Breaking new ground in medical anthropology by challenging the chronic/acute divide in illness and disease, the editors, along with a group of rising scholars and some of the most influential minds in the field, address the concept of chronicity, an idea used to explain individual and local life-worlds, question public health discourse, and consider the relationship between health and the globalizing forces that shape it.
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cover of Having Epilepsy: The Experience and Control of Illness

Having Epilepsy

The Experience and Control of Illness

Joseph W. Schneider and Peter Conrad

Temple University Press, 1985

"Well written and fascinating to read. This fine book takes a large step in...contributing to the only slowly dawning awareness of the general public, and the health workers too, of the significance of chronic illness." --Anselm Strauss, University of California, San Francisco Based on in-depth interviews with eighty people who have epilepsy, this book gives a first-hand account of what it is like to cope with a chronic illness, while working, playing, and building relationships. The authors recount how people discover they have epilepsy and what it means; how families respond to someone labeled "epileptic"; how seizures affect a person's sense of self and self-control. Epilepsy patients explain what they want from their doctors and why the medication practices they develop may not coincide with "doctor's orders." The variety of experiences of epilepsy is suggested both by the interviews and by the range of terms for seizures--Petit Mal, Grand Mal, auras, fits, absences. The principal difficulty for many people with epilepsy is not the medical condition but the social stigma. A person with epilepsy has to cope with discrimination in obtaining a job, insurance, or a driver's license, and he or she may be cautious about revealing this "disabling" condition to an employer or even a spouse. People with epilepsy may manage information about themselves and their "lapses" and look for "safe places" like restrooms where they can be alone should a seizure begin. Many of those interviewed complained of overreactions to seizures by colleagues or bystanders: epilepsy patients were embarrassed at having provoked a public crisis or were annoyed at waking up in a hospital emergency room. This is a book for people who have epilepsy, for their families and friends; for health care professionals who deal with chronic illnesses; and for students of medical sociology and the sociology of deviance. "For anyone who would like to 'get inside' the experience of having epilepsy, this book is probably as close as one can come." --Epilepsia "In dispelling the notion that 'the person is the illness,' these interviews with 80 individuals reveal that those suffering from epilepsy have learned to accept it as merely another facet of their lives. A valuable contribution for those with epilepsy, for their family and friends, for medical personnel, and for the general public." --Booklist "...carefully outlined and clearly written.... Those affected by chronic conditions may find the book most helpful.... Family and helping professionals may discover new insights.... Social scientists, especially those interested in chronic illnesses, will benefit from the research conclusions and suggestions for further research." --Medical Anthropology Quarterly "It represents an important advance in the medical sociology literature as well as a contribution to qualitative sociology. I think that the book should become a contemporary classic in medical sociology." --Qualitative Sociology "...an important contribution.... In focusing on what it is like to have epilepsy in this society, Schneider and Conrad have reversed an earlier concern for the medicalization of deviance, opting in this work for an understanding of the stigmatization of illness." --Contemporary Sociology
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cover of Illness or Deviance?: Drug Courts, Drug Treatment, and the Ambiguity of Addiction

Illness or Deviance?

Drug Courts, Drug Treatment, and the Ambiguity of Addiction

Jennifer Murphy

Temple University Press, 2015

Is drug addiction a disease that can be treated, or is it a crime that should be punished? In her probing study, Illness or Deviance?, Jennifer Murphy investigates the various perspectives on addiction, and how society has myriad ways of handling it—incarcerating some drug users while putting others in treatment.

Illness or Deviance? highlights the confusion and contradictions about labeling addiction. Murphy’s fieldwork in a drug court and an outpatient drug treatment facility yields fascinating insights, such as how courts and treatment centers both enforce the “disease” label of addiction, yet their management tactics overlap treatment with “therapeutic punishment.” The “addict" label is a result not just of using drugs, but also of being a part of the drug lifestyle, by selling drugs. In addition, Murphy observes that drug courts and treatment facilities benefit economically from their cooperation, creating a very powerful institutional arrangement.

Murphy contextualizes her findings within theories of medical sociology as well as criminology to identify the policy implications of a medicalized view of addiction.
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cover of Mesoamerican Experiences of Illness and Healing

Mesoamerican Experiences of Illness and Healing

Rebecca Dufendach, special issue editor

Duke University Press, 0

The sixteenth-century encounter between Mesoamericans and Europeans resulted in a tremendous loss of life in indigenous communities and significantly impacted their health and healing strategies. Contributors to this special issue of Ethnohistory address how indigenous people experienced bodily health in the wake of this encounter. By exploring archival indigenous and Spanish-language documents, contributors address how bodily health was experienced in the wake of the European encounter and uncover transformations of health discourses and experiences of illness. They investigate eclectic healing practices and medical chants; changing notions of the causes of illnesses; and the language of cleansing ceremonies, bone-setting, midwifery, and maternal medicine.

Contributors. Sabina Cruz de la Cruz, Rebecca Dufendach, Servando Hinojosa, Timothy W. Knowlton, Gabrielle Vail, Edber Dzidz Yam
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cover of Metabolic Living: Food, Fat, and the Absorption of Illness in India

Metabolic Living

Food, Fat, and the Absorption of Illness in India

Harris Solomon

Duke University Press, 2016

The popular narrative of "globesity" posits that the adoption of Western diets is intensifying obesity and diabetes in the Global South and that disordered metabolisms are the embodied consequence of globalization and excess. In Metabolic Living Harris Solomon recasts these narratives by examining how people in Mumbai, India, experience the porosity between food, fat, the body, and the city. Solomon contends that obesity and diabetes pose a problem of absorption between body and environment. Drawing on ethnographic fieldwork carried out in Mumbai's home kitchens, metabolic disorder clinics, food companies, markets, and social services, he details the absorption of everything from snack foods and mangoes to insulin, stress, and pollutants. As these substances pass between the city and the body and blur the two domains, the onset and treatment of metabolic illness raise questions about who has the power to decide what goes into bodies and when food means life. Evoking metabolism as a condition of contemporary urban life and a vital political analytic, Solomon illuminates the lived predicaments of obesity and diabetes, and reorients our understanding of chronic illness in India and beyond.
 
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cover of Osiris, Volume 19: Landscapes of Exposure: Knowledge and Illness in Modern Environments

Osiris, Volume 19

Landscapes of Exposure: Knowledge and Illness in Modern Environments

Edited by Gregg Mitman, Michelle Murphy, and Christopher Sellers

University of Chicago Press, 2004

Bringing together historians of science and medicine with environmental historians, and adding more contemporary vantage points from geography, anthropology, and sociology, Osiris Volume 19: Landscapes of Exposure offers an unprecedented interdisciplinary depiction of how, over the nineteenth and twentieth centuries, scientists and lay people have generated methods for connecting health and place, disease and ecology, calculation and risk.
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cover of Pedagogies of Woundedness: Illness, Memoir, and the Ends of the Model Minority

Pedagogies of Woundedness

Illness, Memoir, and the Ends of the Model Minority

James Kyung-Jin Lee

Temple University Press, 2022

The pressures Asian Americans feel to be socially and economically exceptional include an unspoken mandate to always be healthy. Nowhere is this more evident than in the expectation for Asian Americans to enter the field of medicine, principally as providers of care rather than those who require care. Pedagogies of Woundedness explores what happens when those considered model minorities critically engage with illness and medicine whether as patients or physicians. 

James Kyung-Jin Lee considers how popular culture often positions Asian Americans as medical authorities and what that racial characterization means. Addressing the recent trend of writing about sickness, disability, and death, Lee shows how this investment in Asian American health via the model minority is itself a response to older racial forms that characterize Asian American bodies as diseased. Moreover, he pays attention to what happens when academics get sick and how illness becomes both methodology and an archive for scholars. 

Pedagogies of Woundedness also explores the limits of biomedical “care,” the rise of physician chaplaincy, and the impact of COVID. Throughout his book and these case studies, Lee shows the social, ethical, and political consequences of these common (mis)conceptions that often define Asian Americans in regard to health and illness.

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cover of Recovering Bodies: Illness, Disability, and Life Writing

Recovering Bodies

Illness, Disability, and Life Writing

G. Thomas Couser

University of Wisconsin Press, 1997

    This is a provocative look at writing by and about people with illness or disability—in particular HIV/AIDS, breast cancer, deafness, and paralysis—who challenge the stigmas attached to their conditions by telling their lives in their own ways and on their own terms. Discussing  memoirs, diaries, collaborative narratives, photo documentaries, essays, and other forms of life writing, G. Thomas Couser shows that these books are not primarily records of medical conditions; they are a means for individuals to recover their bodies (or those of loved ones) from marginalization and impersonal medical discourse.
    Responding to the recent growth of illness and disability narratives in the United States—such works as Juliet Wittman’s Breast Cancer Journal, John Hockenberry’s Moving Violations, Paul Monette’s Borrowed Time: An AIDS Memoir, and Lou Ann Walker’s A Loss for Words: The Story of Deafness in a Family—Couser addresses questions of both poetics and politics. He examines why and under what circumstances individuals choose to write about illness or disability; what role plot plays in such narratives; how and whether closure is achieved; who assumes the prerogative of narration; which conditions are most often represented; and which literary conventions lend themselves to representing particular conditions. By tracing the development of new subgenres of personal narrative in our time, this book explores how explicit consideration of illness and disability has enriched the repertoire of life writing. In addition, Couser’s discussion of medical discourse joins the current debate about whether the biomedical model is entirely conducive to humane care for ill and disabled people.
    With its sympathetic critique of the testimony of those most affected by these conditions, Recovering Bodies contributes to an understanding of the relations among bodily dysfunction, cultural conventions, and identity in contemporary America.
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cover of Sex, Sickness, and Slavery: Illness in the Antebellum South

Sex, Sickness, and Slavery

Illness in the Antebellum South

Marli F. Weiner with Mazie Hough

University of Illinois Press, 2014

Marli F. Wiener skillfully integrates the history of medicine with social and intellectual history in this study of how race and sex complicated medical treatment in the antebellum South. Sex, Sickness, and Slavery argues that Southern physicians' scientific training and practice uniquely entitled them to formulate medical justification for the imbalanced racial hierarchies of the period. Challenged with both helping to preserve the slave system (by acknowledging and preserving clear distinctions of race and sex) and enhancing their own authority (with correct medical diagnoses and effective treatment), doctors sought to understand bodies that did not necessarily fit into neat dichotomies or agree with suggested treatments. 
 
Focusing on Southern states from Virginia to Alabama, Weiner examines medical and lay perspectives on the body through a range of sources, including medical journals, notes, diaries, daybooks, and letters. These personal and revealing sources show how physicians, medical students, and patients--both free whites and slaves--felt about vulnerability to disease and mental illnesses, how bodily differences between races and sexes were explained, and how emotions, common sense, working conditions, and climate were understood to have an effect on the body.
 
Physicians' authority did not go uncontested, however. Weiner also describes the ways in which laypeople, both black and white, resisted medical authority, clearly refusing to cede explanatory power to doctors without measuring medical views against their own bodily experiences or personal beliefs. Expertly drawing the dynamic tensions during this period in which Southern culture and the demands of slavery often trumped science, Weiner explores how doctors struggled with contradictions as medicine became a key arena for debate over the meanings of male and female, sick and well, black and white, North and South.
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cover of Shadows in the Valley: A Cultural History of Illness, Death, and Loss in New England, 1840-1916

Shadows in the Valley

A Cultural History of Illness, Death, and Loss in New England, 1840-1916

Alan Swedlund

University of Massachusetts Press, 2010

How does the experience of sickness, death, and loss change over time? We know that the incidence and virulence of particular diseases have varied from one period to another, as has their medical treatment. But what was it like for the individuals who suffered and died from those illnesses, for the health practitioners and institutions that attended to them, and for the families who buried and mourned them?

In Shadows in the Valley, Alan Swedlund addresses these questions by closely examining the history of mortality in several small communities in western Massachusetts from the mid-nineteenth to the early twentieth century—from just before the acceptance of the germ theory of disease through the early days of public health reform in the United States. This was a time when most Americans lived in rural areas or small towns rather than large cities. It was also a time when a wide range of healing practices was available to the American public, and when the modern form of Western medicine was striving for dominance and authority. As Swedlund shows, this juncture of competing practices and ideologies provides a rich opportunity for exploring the rise of modern medicine and its impact on the everyday lives of ordinary Americans.

To indicate how individuals in different stages of their lives were exposed to varying assaults on their health, the book is structured in a way that superimposes what the author calls “life-course time” onto chronological time. Thus the early chapters look at issues of infancy and childhood in the 1840s and 1850s and the last chapters at the problems of old age after 1900. The reader becomes familiar with specific individuals and families as they cope with the recurrent loss of children, struggle to understand the causes of new contagions, and seek to find meaning in untimely death. By using a broad time frame and a narrow geographical lens, Swedlund is able to engage with both the particularities and generalities of evolving medical knowledge and changing practice, and to highlight the differences in personal as well as collective responses to illness and loss.

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cover of Spirit Children: Illness, Poverty, and Infanticide in Northern Ghana

Spirit Children

Illness, Poverty, and Infanticide in Northern Ghana

Aaron R. Denham

University of Wisconsin Press, 2019

In parts of West Africa, some babies and toddlers are considered spirit children—nonhumans sent from the forest to cause misfortune and destroy the family. These are usually deformed or ailing infants, the very young whose births coincide with tragic events, or children who display unusual abilities. In some of these cases, families seek a solution in infanticide. Many others do not.

Refusing to generalize or oversimplify, Aaron R. Denham offers an ethnographic study of the spirit child phenomenon in Northern Ghana that considers medical, economic, religious, and political realities. He examines both the motivations of the families and the structural factors that lead to infanticide, framing these within the context of global public health. At the same time, he turns the lens on Western societies and the misunderstandings that prevail in discourse about this controversial practice. Engaging the complexity of the context, local meanings, and moral worlds of those confronting a spirit child, Denham offers visceral accounts of families' life and death decisions.
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cover of The Already Dead: The New Time of Politics, Culture, and Illness

The Already Dead

The New Time of Politics, Culture, and Illness

Eric Cazdyn

Duke University Press, 2012

In The Already Dead, Eric Cazdyn examines the ways that contemporary medicine, globalization, politics, and culture intersect to produce a condition and concept that he names "the new chronic." Cazdyn argues that just as contemporary medicine uses targeted drug therapies and biotechnology to manage rather than cure diseases, global capitalism aims not for resolution but rather for a continual state of crisis management that perpetuates the iniquities of the status quo. Engaging critical theory, philosophy, and psychoanalysis, he explores the ways that crisis affects perceptions of time and denies alternative ways of being and thinking.

To resist the exploitative crisis state, which Cazdyn terms "the global abyss," he posits the concept of "the already dead," a condition in which the subject (medical, political, psychological) has been killed but has yet to die. Embracing this condition, he argues, allows for a revolutionary consciousness open to a utopian future. Woven into Cazdyn's analysis are personal anecdotes about his battle with leukemia and his struggle to obtain Canadian citizenship during his illness. These narratives help to illustrate his systemic critique, one that reconfigures the relationship between politics, capitalism, revolution, and the body.

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cover of The Grey Zone of Health and Illness

The Grey Zone of Health and Illness

Alan Blum

Intellect Books, 2011

Most discussions of health care center on medical advances, cost, and the roles of insurers and government agencies. With The Grey Zone of Health and Illness, Alan Blum offers a new perspective, outlining a highly nuanced theoretical approach to health and health care alike. Drawing on a range of thinkers, Blum explains how our current understanding of health care tends to posit it as a sort of state of permanent emergency, like the nuclear standoff of the Cold War. To move beyond that, he argues, will require a complete rethinking of health and sickness, self-governance and negligence. A heady, cutting-edge intervention in a critical area of society, The Grey Zone of Health and Illness will have wide ramifications in the academy and beyond.

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cover of The Healing Body: Creative Responses to Illness, Aging, and Affliction

The Healing Body

Creative Responses to Illness, Aging, and Affliction

Drew Leder

Northwestern University Press, 2024

A philosophically and medically informed response to the physical vulnerabilities of our existence

As we grapple with the impacts of an aging population, the millions who struggle with chronic pain and illness, and the unknown number of COVID survivors dealing with long-term impairment, our individual and collective trust in our bodies is shaken. How to adapt? And how to live well, even when medical cure is unavailable? In The Healing Body: Creative Responses to Illness, Aging, and Affliction, philosopher and medical doctor Drew Leder shows how the phenomenology of lived embodiment makes available a variety of existential healing responses to bodily breakdown. Leder also turns to socially marginalized groups—people who have been incarcerated and those deemed “elderly”—to explore how individuals creatively cope with societal as well as physical challenges.

This book forwards current phenomenological research on the body, pain and suffering, disability, and aging. It deeply engages with the legacies of continental philosophy while also drawing insights from the traditions of Hinduism, Buddhism, and Taoism. The Healing Body is a uniquely creative and refreshingly innovative contribution to contemporary philosophy, demonstrating the importance of the philosophical method to the wider culture.
 
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cover of The Province of Affliction: Illness and the Making of Early New England

The Province of Affliction

Illness and the Making of Early New England

Ben Mutschler

University of Chicago Press, 2020

In The Province of Affliction, Ben Mutschler explores the surprising roles that illness played in shaping the foundations of New England society and government from the late seventeenth century through the early nineteenth century. Considered healthier than people in many other regions of early America, and yet still riddled with disease, New Englanders grappled steadily with what could be expected of the sick and what allowances were made to them and their providers. Mutschler integrates the history of disease into the narrative of early American social and political development, illuminating the fragility of autonomy, individualism, and advancement . Each sickness in early New England created its own web of interdependent social relations that could both enable survival and set off a long bureaucratic struggle to determine responsibility for the misfortune. From families and households to townships, colonies, and states, illness both defined and strained the institutions of the day, bringing people together in the face of calamity, yet also driving them apart when the cost of persevering grew overwhelming. In the process, domestic turmoil circulated through the social and political world to permeate the very bedrock of early American civic life.
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cover of The Renewal of Generosity: Illness, Medicine, and How to Live

The Renewal of Generosity

Illness, Medicine, and How to Live

Arthur W. Frank

University of Chicago Press, 2004

Contemporary health care often lacks generosity of spirit, even when treatment is most efficient. Too many patients are left unhappy with how they are treated, and too many medical professionals feel estranged from the calling that drew them to medicine. Arthur W. Frank tells the stories of ill people, doctors, and nurses who are restoring generosity to medicine—generosity toward others and to themselves.

The Renewal of Generosity evokes medicine as the face-to-face encounter that comes before and after diagnostics, pharmaceuticals, and surgeries. Frank calls upon the Roman emperor Marcus Aurelius, philosopher Emmanuel Levinas, and literary critic Mikhail Bakhtin to reflect on stories of ill people, doctors, and nurses who transform demoralized medicine into caring relationships. He presents their stories as a source of consolation for both ill and professional alike and as an impetus to changing medical systems. Frank shows how generosity is being renewed through dialogue that is more than the exchange of information. Dialogue is an ethic and an ideal for people on both sides of the medical encounter who want to offer more to those they meet and who want their own lives enriched in the process.

The Renewal of Generosity views illness and medical work with grace and compassion, making an invaluable contribution to expanding our vision of suffering and healing.
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cover of The Social Medicine Reader, Second Edition: Volume One: Patients, Doctors, and Illness

The Social Medicine Reader, Second Edition

Volume One: Patients, Doctors, and Illness

Nancy M. P. King, Ronald P. Strauss, Larry R. Churchill, Sue E. Estroff, Gail E. Henderson, and Jonathan Oberlander, eds.

Duke University Press, 2005

Duke University Press is pleased to announce the second edition of the bestselling Social Medicine Reader. The Reader provides a survey of the challenging issues facing today’s health care providers, patients, and caregivers by bringing together moving narratives of illness, commentaries by physicians, debates about complex medical cases, and conceptually and empirically based writings by scholars in medicine, the social sciences, and the humanities. The first edition of The Social Medicine Reader was a single volume. This significantly revised and expanded second edition is divided into three volumes to facilitate use by different audiences with varying interests.

Praise for the 3-volume second edition of The Social Medicine Reader:
“A superb collection of essays that illuminate the role of medicine in modern society. Students and general readers are not likely to find anything better.”—Arnold S. Relman, Professor Emeritus of Medicine and Social Medicine, Harvard Medical School

Praise for the first edition:
“This reviewer strongly recommends The Social Medicine Reader to the attention of medical educators.”—Samuel W. Bloom, JAMA: The Journal of the American Medical Association

Volume 1:

A woman with what is quite probably a terminal illness must choose between courses of treatment based on contradictory diagnoses. A medical student causes acute pain in his patients as he learns to insert a central line. One doctor wonders how to react when a patient asks him to pray with her; another struggles to come to terms with his mistakes. A physician writes in a prominent medical journal about facilitating a dying woman’s wish to end her life on her own terms; letters to the editor reflect passionate responses both in support of and in opposition to his actions. These experiences and many more are vividly rendered in Patients, Doctors, and Illness, which brings together nineteen pieces that appeared in the first edition of The Social Medicine Reader and eighteen pieces new to this edition. This volume examines the roles and training of health care professionals and their relationship with patients, ethics in health care, and end-of-life experiences and decisions. It includes fiction and nonfiction narratives and poetry; definitions and case-based discussions of moral precepts in health care, such as truth telling, informed consent, privacy, and autonomy; and readings that provide legal, ethical, and practical perspectives on many familiar but persistent ethical and social questions raised by illness and care.

Contributors: Yehuda Amichai, Marcia Angell, George J. Annas, Marc D. Basson, Doris Betts, Amy Bloom, Abenaa Brewster, Raymond Carver, Eric J. Cassell, Larry R. Churchill, James Dickey, Gerald Dworkin, James Dwyer, Miles J. Edwards, Charles R. Feldstein, Chris Feudtner, Leonard Fleck, Arthur Frank, Benjamin Freedman, Atul Gawande, Jerome Groopman, Lawrence D. Grouse, David Hilfiker, Nancy M. P. King, Perri Klass, Melvin Konner, Bobbie Ann Mason, Steven H. Miles, Sharon Olds, Katha Pollitt, Timothy E. Quill, David Schenck, Daniel Shapiro, Susan W. Tolle, Alice Stewart Trillin, William Carlos Williams

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cover of The Wounded Storyteller: Body, Illness, and Ethics

The Wounded Storyteller

Body, Illness, and Ethics

Arthur W. Frank

University of Chicago Press, 1995

In At the Will of the Body, Arthur Frank told the story of his own illnesses, heart attack and cancer. That book ended by describing the existence of a "remission society," whose members all live with some form of illness or disability. The Wounded Storyteller is their collective portrait.

Ill people are more than victims of disease or patients of medicine; they are wounded storytellers. People tell stories to make sense of their suffering; when they turn their diseases into stories, they find healing.

Drawing on the work of authors such as Oliver Sacks, Anatole Broyard, Norman Cousins, and Audre Lorde, as well as from people he met during the years he spent among different illness groups, Frank recounts a stirring collection of illness stories, ranging from the well-known—Gilda Radner's battle with ovarian cancer—to the private testimonials of people with cancer, chronic fatigue syndrome, and disabilties. Their stories are more than accounts of personal suffering: they abound with moral choices and point to a social ethic.

Frank identifies three basic narratives of illness in restitution, chaos, and quest. Restitution narratives anticipate getting well again and give prominence to the technology of cure. In chaos narratives, illness seems to stretch on forever, with no respite or redeeming insights. Quest narratives are about finding that insight as illness is transformed into a means for the ill person to become someone new.
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cover of The Wounded Storyteller: Body, Illness, and Ethics, Second Edition

The Wounded Storyteller

Body, Illness, and Ethics, Second Edition

Arthur W. Frank

University of Chicago Press, 1997

Since it was first published in 1995, The Wounded Storyteller has occupied a unique place in the body of work on illness. Both the collective portrait of a so-called “remission society” of those who suffer from some type of illness or disability and a cogent analysis of their stories within a larger framework of narrative theory, Arthur W. Frank’s book has reached a large and diverse readership including the ill, medical professionals, and scholars of literary theory.

Drawing on the work of authors such as Oliver Sacks, Anatole Broyard, Norman Cousins, and Audre Lorde, as well as from people he met during the years he spent among different illness groups, Frank recounts a stirring collection of illness stories, ranging from the well-known—Gilda Radner's battle with ovarian cancer—to the private testimonials of people with cancer, chronic fatigue syndrome, and disabilities. Their stories are more than accounts of personal suffering: they abound with moral choices and point to a social ethic.

In this new edition Frank adds a preface describing the personal and cultural times when the first edition was written. His new afterword extends the book’s argument significantly, writing about storytelling and experience, other modes of illness narration, and a version of hope that is both realistic and aspirational. Reflecting on both his own life during the creation of the first edition and the conclusions of the book itself, Frank reminds us of the power of storytelling as way to understanding our own suffering.
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cover of Treatments: Language, Politics, and the Culture of Illness

Treatments

Language, Politics, and the Culture of Illness

Lisa Diedrich

University of Minnesota Press, 2007

Creative expression inspired by disease has been criticized as a celebration of victimhood, unmediated personal experience, or just simply bad art. Despite debate, however, memoirs written about illness—particularly AIDS or cancer—have proliferated since the late twentieth century and occupy a highly influential place on the cultural landscape today.

In Treatments, Lisa Diedrich considers illness narratives, demonstrating that these texts not only recount and interpret symptoms but also describe illness as an event that reflects wider cultural contexts, including race, gender, class, and sexuality. Diedrich begins this theoretically rigorous analysis by offering examples of midcentury memoirs of tuberculosis. She then looks at Susan Sontag’s Illness As Metaphor, Audre Lorde’s The Cancer Journals, and Eve Kosofsky Sedgwick’s “White Glasses,” showing how these breast cancer survivors draw on feminist health practices of the 1970s and also anticipate the figure that would appear in the wake of the AIDS crisis in the 1980s—the “politicized patient.” She further reveals how narratives written by doctors Abraham Verghese and Rafael Campo about treating people with AIDS can disrupt the doctor–patient hierarchy, and she explores practices of witnessing that emerge in writing by Paul Monette and John Bayley.

Through these records of intensely personal yet universal experience, Diedrich demonstrates how language both captures and fails to capture these “scenes of loss” and how illness narratives affect the literary, medical, and cultural contexts from which they arise. Finally, by examining the ways in which the sick speak and are spoken for, she argues for an ethics of failure—the revaluation of loss as creating new possibilities for how we live and die.

Lisa Diedrich is assistant professor of women’s studies at Stony Brook University.

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