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9 books match the query 'Terminally ill'

cover of Death with Dignity: Ethical and Practical Considerations for Caregivers of the Terminally Ill

Death with Dignity

Ethical and Practical Considerations for Caregivers of the Terminally Ill

Peter A. Clark, S.J

University of Scranton Press, 2010

End-of-life issues and questions are complex and frequently cause confusion and anxiety.  In Death with Dignity,theologian, medical ethicist, and pastoral caregiver Peter A. Clark examines numerous issues that are pertinent to patients, family members, and health care professionals, including physiology, consciousness, the definition of death, the distinction between extraordinary and ordinary means, medical futility, “Do Not Resuscitate” orders, living wills, power of attorney, pain assessment and pain management, palliative and hospice care, the role of spirituality in end-of-life care, and physicians’ communication with terminal patients. Patients, family members, medical students, and health care professionals will find in Death with Dignity thepractical and ethical knowledge they need to capably and confidently cope with end-of-life challenges.

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cover of Dying in Character: Memoirs on the End of Life

Dying in Character

Memoirs on the End of Life

Jeffrey Berman

University of Massachusetts Press, 2012

In the past twenty years, an increasing number of authors have written memoirs focusing on the last stage of their lives: Elizabeth Kübler-Ross, for example, in The Wheel of Life, Harold Brodkey in This Wild Darkness, Edward Said in Out of Place, and Tony Judt in The Memory Chalet. In these and other end-of-life memoirs, writers not only confront their own mortality but in most cases struggle to "die in character"—that is, to affirm the values, beliefs, and goals that have characterized their lives.

Examining the works cited above, as well as memoirs by Mitch Albom, Roland Barthes, Jean-Dominique Bauby, Art Buchwald, Randy Pausch, David Rieff, Philip Roth, and Morrie Schwartz, Jeffrey Berman's analysis of this growing genre yields some surprising insights. While the authors have much to say about the loneliness and pain of dying, many also convey joy, fulfillment, and gratitude. Harold Brodkey is willing to die as long as his writings survive. Art Buchwald and Randy Pausch both use the word fun to describe their dying experiences. Dying was not fun for Morrie Schwartz and Tony Judt, but they reveal courage, satisfaction, and fearlessness during the final stage of their lives, when they are nearly paralyzed by their illnesses.

It is hard to imagine that these writers could feel so upbeat in their situations, but their memoirs are authentically affirmative. They see death coming, yet they remain stalwart and focused on their writing. Berman concludes that the contemporary end-of-life memoir can thus be understood as a new form of death ritual, "a secular example of the long tradition of ars moriendi, the art of dying."
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cover of Every Last Breath: A Memoir of Two Illnesses

Every Last Breath

A Memoir of Two Illnesses

Joanne Jacobson

University of Utah Press, 2020

When Joanne Jacobson’s writing about her mother’s respiratory illness was interrupted by her own diagnosis with a rare blood disorder, she found her perspective profoundly altered. Every Last Breath follows these two chronic illnesses as they grow unexpectedly intertwined. Rejecting a fixed, retrospective point of view and the forward-moving trajectory of conventional memoir, Jacobson brings the reader to the emotionally raw present—where potentially fatal illness and “end of life” both remain, emphatically, life. As chronic illness blurs the distinction between illness and wellness, she discovers how a lifetime of relapse and remission can invite transformation. Written at the fluid, unsettling boundary between prose and poetry, these essays offer a narrative diagnosis of ongoing revision.
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cover of Prayers and Rituals at a Time of Illness and Dying: The Practices of Five World Religions

Prayers and Rituals at a Time of Illness and Dying

The Practices of Five World Religions

Patricia Fosarelli

Templeton Press, 2008

In the course of caring for the ill or dying, health care professionals are sometimes the only ones available to provide spiritual comfort to their patients. In our modern pluralistic society, where patients could come from any number of religious traditions, it can often be difficult to find exactly the right words in these situations.

Prayers and Rituals at a Time of Illness and Dying: The Practices of Five World Religions by experienced physician and theologian Pat Fosarelli offers clear instructions for health care professionals on how to better understand the needs of their Buddhist, Hindu, Muslim, Christian, and Jewish patients during these difficult times. Devoting separate chapters to each tradition, Fosarelli briefly outlines the basic beliefs and then looks at the main tenets of each religion, exploring the varied approaches that they take to illness and end-of-life issues. For each tradition, she also describes practices and offers suitable prayers. Each chapter suggests modifications that may be necessary for Western hospitals, modifications for children, and specific suggestions about what not to do or say in respect to different faith traditions.

This easy-to-use, pocket-sized resource will be referenced again and again by physicians, paramedics, hospital and military chaplains, pastoral counselors, hospice providers, and other medical professionals.

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cover of Secret Understandings: A Novel

Secret Understandings

A Novel

Morris Philipson

University of Chicago Press, 2000

Secret Understandings is a vibrant and richly textured portrait of Shelagh Jackman, a book illustrator who learns to cultivate the loving and complex relationships in her life while struggling to be true to her own best self, even when calamity puts her to the ultimate test-and triumph.
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cover of Speaking for the Dying: Life-and-Death Decisions in Intensive Care

Speaking for the Dying

Life-and-Death Decisions in Intensive Care

Susan P. Shapiro

University of Chicago Press, 2019

Seven in ten Americans over the age of age of sixty who require medical decisions in the final days of their life lack the capacity to make them. For many of us, our biggest, life-and-death decisions—literally—will therefore be made by someone else. They will decide whether we live or die; between long life and quality of life; whether we receive heroic interventions in our final hours; and whether we die in a hospital or at home. They will determine whether our wishes are honored and choose between fidelity to our interests and what is best for themselves or others. Yet despite their critical role, we know remarkably little about how our loved ones decide for us.
             
Speaking for the Dying
tells their story, drawing on daily observations over more than two years in two intensive care units in a diverse urban hospital. From bedsides, hallways, and conference rooms, you will hear, in their own words, how physicians really talk to families and how they respond. You will see how decision makers are selected, the interventions they weigh in on, the information they seek and evaluate, the values and memories they draw on, the criteria they weigh, the outcomes they choose, the conflicts they become embroiled in, and the challenges they face. Observations also provide insight into why some decision makers authorize one aggressive intervention after the next while others do not—even on behalf of patients with similar problems and prospects. And they expose the limited role of advance directives in structuring the process decision makers follow or the outcomes that result.
           
Research has consistently found that choosing life or death for another is one of the most difficult decisions anyone can face, sometimes haunting families for decades. This book shines a bright light on a role few of us will escape and offers steps that patients and loved ones, health care providers, lawyers, and policymakers could undertake before it is too late.
 
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cover of The Art of Life and Death: Radical Aesthetics and Ethnographic Practice

The Art of Life and Death

Radical Aesthetics and Ethnographic Practice

Andrew Irving

HAU, 2016

The Art of Life and Death explores how the world appears to people who have an acute perspective on it: those who are close to death. Based on extensive ethnographic research, Andrew Irving brings to life the lived experiences, imaginative lifeworlds, and existential concerns of persons confronting their own mortality and non-being.

Encompassing twenty years of working alongside persons living with HIV/AIDS in New York, Irving documents the radical but often unspoken and unvoiced transformations in perception, knowledge, and understanding that people experience in the face of death. By bringing an “experience-near” ethnographic focus to the streams of inner dialogue, imagination, and aesthetic expression that are central to the experience of illness and everyday life, this monograph offers a theoretical, ethnographic, and methodological contribution to the anthropology of time, finitude, and the human condition. With relevance well-beyond the disciplinary boundaries of anthropology, this book ultimately highlights the challenge of capturing the inner experience of human suffering and hope that affect us all—of the trauma of the threat of death and the surprise of continued life.  
 
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cover of These Granite Islands: A Novel

These Granite Islands

A Novel

Sarah Stonich

University of Minnesota Press, 2013


These Granite Islands is an arresting novel about a woman who, on her deathbed, recalls the haunting and fateful summer of 1936, a summer that forever changed her life. Sarah Stonich’s debut novel, set on the Iron Range of Minnesota, is an intimate and gripping story of a friendship, a portrait of marriage, and a meditation on the tragedy of loss.

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cover of Vigil

Vigil

Alan Shapiro

University of Chicago Press, 1997

The New York Times Book Review praised Alan Shapiro's The Last Happy Occasion as a "touching and intelligent, emotionally satisfying and elegant testimony to the power of poetry to instruct, heal and inspire." Vigi emerges from the final chapter of that book, "Sittin' in a Funeral Place," a powerful essay about Shapiro's sister Beth, her struggle with breast cancer, and the limitations of poetry in confronting the untransformable pain of loss.

In Vigil, Shapiro chronicles with heart-wrenching lyricism the final four weeks of Beth's life in a hospice, attended by her parents, brothers, husband, daughter and friends. One by one, as loved ones arrive to visit Beth, Shapiro reveals fragments of their personal history, bringing to life a troubled and poignant past. A visit from their brother David triggers the memory of a searing betrayal—the parents disowned Beth after learning from David that she was secretly dating a black man; a visit from the parents recalls their bitter quarrels over Beth's radical politics; a visit from Beth's black husband brings the painful memory of their wedding and her parents' refusal to attend. These recollections and feelings that surface with each visit evoke the unresolved, deeply disturbing issues that kept the Shapiro family estranged for so long, making the reconciliation that Beth's death brings to her family all the more extraordinary.

Shapiro gives an unconventionally honest account of our responses—horror, relief, impatience, exhaustion, exhilaration, projection, fear, self-criticism, and a sense of fulfillment—in the presence of the dying. Concluding with a selection of moving poems, Shapiro affirms the astonishing link between creativity and healing, and provides a coda to the whole experience. The price of human connection may be great, but human connection, in the end, has the power to redeem even the most painful of human experiences.
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