Contents
Preface
Technical Note
Introduction
Part I: Facts and Values
A. What Is a Catastrophic Disease?
B. A Matter of Numbers and Chance
Chapter Two: Analytical Framework
Chapter Three: The Role of Goals and Values
A. Preservation of Life
B. Reduction of Suffering
C. Personal Integrity and Dignity
D. Equality
E. Pursuit of Knowledge
F. High Standards of Professionalism
G. Rationality
I. Public Involvement
A. Hemodialysis
B. Kidney Transplantation
C. Heart Transplantation
D. Conclusions on Facts and Values
Part II: Description of Participants - An Interactional Portrait
Chapter Five: The Authority and Capacity of Physician-Investigators
A. Background Characteristics of Physician-Investigators
B. Motivations and Goals
C. Limitations and Restraints
D. Moratoria and the Authority of Physician-Investigators
A. The "Informed Consent" Model
B. The Special Problems of "Consent" for the Legally Incompetent
C. The "Informed Consent Model" in Perspective
Chapter Seven: The Authority and Capacity of Professional and Public Institutions
A. Professional Groups
B. Public Bodies
C. Quasi-Public Groups
Part III: Stages of Decisionmaking - Proposals and Recommendations
Chapter Eight: The Formulation of Policy
A. Anticipating Medical Advances
B. The Reluctance of Existing Institutions to Formulate Policy
C. Formulating Policy - Who and What?
D. Conclusion
Chapter Nine: The Administration of Major Medical Interventions
A. Administration at the Local Level - The Institutional Advisory Committee
B. Administration at the National Level
Chapter Ten: Review of Decisions and Consequences
A. Review Through the Examination of Data
B. Review Involving Adjudication and Sanctions
C. Conclusion
Table of Sources
Index