front cover of What Kind of Island in What Kind of Sea?
What Kind of Island in What Kind of Sea?
Franz Fühmann
Lever Press, 2021
The dignity of cognitively disabled people and the ethics of representing their lives are at the heart of an extraordinary yet little-known book first published in the former German Democratic Republic. Was für eine Insel in was für einem Meer, or What Kind of Island in What Kind of Sea (Rostock, Hinstorff, 1986) depicts residents of a church-run institution for people with cognitive disabilities in astonishing black-and-white photographs by Dietmar Riemann and in a probing, poignant essay by esteemed German writer Franz Fühmann. This important text, which moved from a medical model to a historical and cultural view of disability as an aspect of human identity and experience, is translated into English for the first time by Elizabeth Hamilton and includes reflections on the book and its impact. As fuller, global histories of disability are now being written, What Kind of Island in What Kind of Sea opens an essential window onto a formerly shuttered world, demonstrating the power of the arts to hone our capacity to perceive and appreciate human difference.
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What We Have Done
An Oral History of the Disability Rights Movement
Fred Pelka
University of Massachusetts Press, 2012

“Nothing about us without us” has been a core principle of American disability rights activists for more than half a century. It represents a response by people with disabilities to being treated with scorn and abuse or as objects of pity, and to having the most fundamental decisions relating to their lives—where they would live; if and how they would be educated; if they would be allowed to marry or have families; indeed, if they would be permitted to live at all—made by those who were, in the parlance of the movement, “temporarily able-bodied.”

In What We Have Done: An Oral History of the Disability Rights Movement, Fred Pelka takes that slogan at face value. He presents the voices of disability rights activists who, in the period from 1950 to 1990, transformed how society views people with disabilities, and recounts how the various streams of the movement came together to push through the Americans with Disabilities Act of 1990, the most sweeping civil rights legislation since passage of the Civil Rights Act of 1964. Beginning with the stories of those who grew up with disabilities in the 1940s and '50s, the book traces how disability came to be seen as a political issue, and how people with disabilities—often isolated, institutionalized, and marginalized—forged a movement analogous to the civil rights, women's rights, and gay rights movements, and fought for full and equal participation in American society.

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Wheelchair Warrior
Gangs, Disability, and Basketball
Melvin Juette and Ronald J. Berger
Temple University Press, 2008

Melvin Juette has said that becoming paralyzed in a gang-related shooting was “both the worst and best thing that happened” to him. The incident, he believes, surely spared the then sixteen year-old African American from prison and/or an early death. It transformed him in other ways, too. He attended college and made wheelchair basketball his passion—ultimately becoming a star athlete and playing on the U.S. National Wheelchair Basketball Team.

In Wheelchair Warrior, Juette reconstructs the defining moments of his life with the assistance of sociologist Ronald Berger. His poignant memoir is bracketed by Berger’s thoughtful introduction and conclusion, which places this narrative of race, class, masculinity and identity into proper sociological context, showing how larger social structural forces defined his experiences. While Juette’s story never gives into despair, it does challenge the idea of the “supercrip.”

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Why I Burned My Book
Paul Longmore
Temple University Press, 2003
This wide-ranging book shows why Paul Longmore is one of the most respected figures in disability studies today. Understanding disability as a major variety of human experience, he urges us to establish it as a category of social, political, and historical analysis in much the same way that race, gender, and class already have been. The essays here search for the often hidden pattern of systemic prejudice and probe into the institutionalized discrimination that affects the one in five Americans with disabilities.Whether writing about the social critic Randolph Bourne, contemporary political activists, or media representations of people with disabilities, Longmore demonstrates that the search for heroes is a key part of the continuing struggle of disabled people to gain a voice and to shape their destinies. His essays on bioethics and public policy examine the conflict of agendas between disability rights activists and non-disabled policy makers, healthcare professionals, euthanasia advocates, and corporate medical bureaucracies. The title essay, which concludes the book, demonstrates the necessity of activism for any disabled person who wants access to the American dream.
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Window Shopping with Helen Keller
Architecture and Disability in Modern Culture
David Serlin
University of Chicago Press, 2025
A particular history of how encounters between architects and people with disabilities transformed modern culture.
 
Window Shopping with Helen Keller recovers a series of influential moments when architects and designers engaged the embodied experiences of people with disabilities. David Serlin reveals how people with sensory and physical impairments navigated urban spaces and helped to shape modern culture. Through four case studies—the lives of Joseph Merrick (aka “The Elephant Man”) and Helen Keller, the projects of the Works Progress Administration, and the design of the Illinois Regional Library for the Blind and Physically Handicapped—Serlin offers a new history of modernity’s entanglements with disability.
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Work Requirements
Race, Disability, and the Print Culture of Social Welfare
Todd Carmody
Duke University Press, 2022
Throughout the history of the United States, work-based social welfare practices have served to affirm the moral value of work. In the late nineteenth century this representational project came to be mediated by the printed word with the emergence of industrial print technologies, the expansion of literacy, and the rise of professionalization. In Work Requirements Todd Carmody asks how work, even the most debasing or unproductive labor, came to be seen as inherently meaningful during this era. He explores how the print culture of social welfare—produced by public administrators, by economic planners, by social scientists, and in literature and the arts—tasked people on the social and economic margins, specifically racial minorities, incarcerated people, and people with disabilities, with shoring up the fundamental dignity of work as such. He also outlines how disability itself became a tool of social discipline, defined by bureaucratized institutions as the inability to work. By interrogating the representational effort necessary to make work seem inherently meaningful, Carmody ultimately reveals a forgotten history of competing efforts to think social belonging beyond or even without work.
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