logo for Harvard University Press
“They Never Want to Tell You”
Children Talk about Cancer
David J. Bearison
Harvard University Press, 1991

“They Never Want to Tell You” transcends the negative metaphors and clichés of life-threatening disease to give voice to the culture of cancer and to the behavior and attitudes of those who function within that culture—as patients, medical professionals, family, and friends.

In these extraordinary narratives, children coping with cancer reveal their most personal experiences, and they speak with a candor that breaks through the cultural taboos ostensibly designed to protect us from the disease. The rich, compassionate, and honest words of these children give expression to concerns that adults who are struggling with cancer find nearly impossible to articulate. Free of social conventions and cognitive distortions, each story presents a powerful variation on the theme of survival in the face of the continuing uncertainties of life-threatening disease.

David Bearison, a developmental psychologist and psychotherapist, is keenly aware of the psychological impact of cancer on children, particularly as survival times for childhood cancers lengthen and complex treatments intensify concern about the emotional—not merely physical—well-being of children. Bearison has culled from scores of interviews the most salient moments that represent these individual children in their shared struggle with disease. In these pages the children express their wildest hopes and worst fears about cancer. They speak of the absolute necessity of full disclosure, the problems of relating to friends and family, the difficult adjustment to hair loss, their feelings of punishment, grief, and spirituality, and many other issues. In the course of these stories the children reveal not only their will to survive and their extraordinary capacity to understand themselves and their condition, but their altruistic desire to share that understanding with other children as well as with adults who have cancer. “They Never Want to Tell You” is rich and rewarding reading for cancer patients, their families, and health-care professionals alike.

[more]

front cover of Toms River
Toms River
A Story of Science and Salvation
Dan Fagin
Island Press, 2015
WINNER OF THE PULITZER PRIZE • Winner of The New York Public Library’s Helen Bernstein Book Award
A new classic of science reporting.”—The New York Times


The true story of a small town ravaged by industrial pollution, Toms River won the 2014 Pulitzer Prize and has been hailed by The New York Times as "a new classic of science reporting." Now available in paperback with a new afterword by acclaimed author Dan Fagin, the book masterfully blends hard-hitting investigative journalism, scientific discovery, and unforgettable characters.

One of New Jersey’s seemingly innumerable quiet seaside towns, Toms River became the unlikely setting for a decades-long drama that culminated in 2001 with one of the largest environmental legal settlements in history. For years, large chemical companies had been using Toms River as their private dumping ground, burying tens of thousands of leaky drums in open pits and discharging billions of gallons of acid-laced wastewater into the town’s namesake river. The result was a notorious cluster of childhood cancers scientifically linked to local air and water pollution.

Fagin recounts the sixty-year saga of rampant pollution and inadequate oversight that made Toms River a cautionary tale. He brings to life the pioneering scientists and physicians who first identified pollutants as a cause of cancer and the everyday people in Toms River who struggled for justice: a young boy whose cherubic smile belied the fast-growing tumors that had decimated his body from birth; a nurse who fought to bring the alarming incidence of childhood cancers to the attention of authorities who didn’t want to listen; and a mother whose love for her stricken child transformed her into a tenacious advocate for change.

Rooted in a centuries-old scientific quest, Toms River is an epic of dumpers at midnight and deceptions in broad daylight, of corporate avarice and government neglect, and of a few brave individuals who refused to keep silent until the truth was exposed.
[more]


Send via email Share on Facebook Share on Twitter