Each day Burt Wheeler is plagued by the same question. When did it happen? If he could pinpoint the beginning, then he might begin to make peace with himself. He vividly remembers when the doctor diagnosed Kee, his loving wife of over fifty years, with "Alzheimer-type dementia." But, as hard as he tries, it's impossible for him to determine when his wife's dementia started. He remembers her bout with depression, but that, he thinks, was surely due to her breast cancer. There was their dream vacation to Greece when Kee seemed so tired and indifferent. There were the unopened books, when reading had always been such a source of pleasure to her. And, he recalls, the gradual personality changes with friends, and even with family.
Wheeler started writing this book as a form of self-therapy when he found himself thrust into the role of caretaker to his wife--a role for which he felt unprepared. He wrote in memory of the very special woman his wife had been—a wonderful mother, charming and gracious, as well as a deeply respected psychotherapist. She was also his best friend, and he loved her. So, to some degree, this is a love story—a story about two people who have shared life's ups and downs for over fifty years. It's also about commitment.
In Close to Me, but Far Away, Wheeler provides insight into what a caregiver's day is like, as he shares his most intimate thoughts with us. The book provides a window into the author's personal life as he seeks to confront his own ineptitude and the occasional despair he feels as he deals daily with Alzheimer's. He also touches on the question of what keeps him going through times of exhaustion and frustration. Part of his answer lies in holding tenaciously to memories, and part lies in what he believes is a human's extraordinary capacity to continue plodding along simply because he must. Wheeler also believes in rejoicing in the beauty that can be experienced, and he believes in humor, humor achieved only by distancing ourselves from the events that so deeply engage us. And, of course, there is also the indefinable nature of love.
Alzheimer's is a terrifying and horrible disease, as much for loved ones as for the patient. Those who are caregivers or friends of Alzheimer's patients or caregivers will empathize with Burton Wheeler's story. And some might receive comfort from his words or learn from him. Because Alzheimer's is a disease that could affect anyone, Close to Me, but Far Away is a story that should be read by all.
Dr. Harold Koenig opens a window on mental health, providing an unprecedented source of practical information about the relationship between religion and mental health. He examines how Christianity and other world religions deliver mental health services today, and he makes recommendations, based on research, expertise, and experience, for new programs to meet local needs.
Meticulously researched and documented, Faith and Mental Health includes
Presenting a combination of the history and current research of mental health and religion along with a thorough examination of faith-based organizations operating in the field, this book is a one-of-a-kind resource for the healthcare community; its valuable research and insights will benefit medical and religious professionals, and anyone concerned with the future of mental health care.
The United States faces a growing crisis in care. The number of people needing care is growing while the ranks of traditional caregivers have shrunk. The status of care workers is a critical concern.
Evelyn Nakano Glenn offers an innovative interpretation of care labor in the United States by tracing the roots of inequity along two interconnected strands: unpaid caring within the family; and slavery, indenture, and other forms of coerced labor. By bringing both into the same analytic framework, she provides a convincing explanation of the devaluation of care work and the exclusion of both unpaid and paid care workers from critical rights such as minimum wage, retirement benefits, and workers' compensation. Glenn reveals how assumptions about gender, family, home, civilization, and citizenship have shaped the development of care labor and been incorporated into law and social policies. She exposes the underlying systems of control that have resulted in women—especially immigrants and women of color—performing a disproportionate share of caring labor. Finally, she examines strategies for improving the situation of unpaid family caregivers and paid home healthcare workers.
This important and timely book illuminates the source of contradictions between American beliefs about the value and importance of caring in a good society and the exploitation and devalued status of those who actually do the caring.
The image of the female caregiver holding a midnight vigil at the bedside of a sick relative is so firmly rooted in our collective imagination we might assume that such caregiving would have attracted the scrutiny of numerous historians. As Emily Abel demonstrates in this groundbreaking study of caregiving in America across class and ethnic divides and over the course of ninety years, this has hardly been the case.
While caring for sick and disabled family members was commonplace for women in nineteenth- and early-twentieth-century America, that caregiving, the caregivers' experience of it, and the medical profession's reaction to it took diverse and sometimes unexpected forms. A complex series of historical changes, Abel shows, has profoundly altered the content and cultural meaning of care. Hearts of Wisdom is an immersion into that "world of care." Drawing on antebellum slave narratives, white farm women's diaries, and public health records, Abel puts together a multifaceted picture of what caregiving meant to American women--and what it cost them--from the pre-Civil War years to the brink of America's entry into the Second World War. She shows that caregiving offered women an arena in which experience could be parlayed into expertise, while at the same time the revolution in bacteriology and the transformation of the formal health care system were weakening women's claim to that expertise.
“A practical, highly informative, and sympathetic guide.”
—The Washington Post
Most of us will become a caregiver at some point in our lives. And we will assume this role for the most personal reason imaginable: wanting to help someone we love. But we may not know where to start, and we may be afraid of losing ourselves in this daunting task.
Former first lady Rosalynn Carter, a longtime advocate for caregivers and mental health, knows firsthand the challenges of this labor of love. Drawing upon her own experiences and those of hundreds of others whose stories she gathered over many decades, Mrs. Carter offers reassuring, practical advice to any caregiver who has faced stress, anxiety, or loneliness.
Helping Yourself Help Others, reissued here with a new foreword, is as relevant as ever. Long before the COVID-19 pandemic inspired national conversations about the vast undervaluing of unpaid caregiving, the dangers of burnout, and the merits of self-care for relief, Rosalynn Carter was shining a light on these matters and everything else that caregivers confront. Filled with empathy, this encouraging guide will help you meet a difficult challenge head-on and find fulfillment and empowerment in your caregiving role.
In the last fifteen years, the field of palliative care has experienced a surge in interest in spirituality as an important aspect of caring for seriously ill and dying patients. While spirituality has been generally recognized as an essential dimension of palliative care, uniformity of spiritual care practice has been lacking across health care settings due to factors like varying understandings and definitions of spirituality, lack of resources and practical tools, and limited professional education and training in spiritual care.
The engaging stories in Parish Nursing provide accessible and enjoyable accounts of real parish nurses, both paid and volunteer, who attend to the needs of their congregations in a variety of ways—from home, hospice, and hospital visits to community outreach. This revised edition gathers their stories of hearing and heeding God’s call, of their faith that they are doing the “right thing,” of their joys, sorrows, and challenges, and of their quiet dedication as they offer their time and talents to meet the needs of others.
By offering inspiration and encouragement, along with a healthy dose of updated practical advice, this collection will make parish nursing theory come to life. These stories will honor practicing parish nurses, will guide the way for anyone contemplating parish nursing as a career, and will challenge church members and leaders to examine the role that their congregations play in health ministry—especially in meeting the long-term care needs of an aging population.
Parkinson’s disease is a movement disorder characterized by tremor, stiffness, and slow gait. It affects 500,000 people in the United States, with approximately 50,000 new cases diagnosed annually. But its impact is much wider. Family members with little understanding of the disease often find themselves struggling to help their loved one navigate the complexities of the health care system. Patients wonder, Which treatments are best for me? Will I be able to live on my own? Should I join a drug trial?
In this straightforward, compassionate guide, Nutan Sharma and Elaine Richman address these concerns and more. They provide a thorough review of the etiology, diagnosis, and current treatment of Parkinson’s, with special consideration given to the effect on family dynamics and routines—including the often neglected topics of long-term care and sexual function. The authors also review the pros and cons of various alternative therapies, including nutritional supplements, massage therapy, and traditional Chinese medicine.
In the course of caring for the ill or dying, health care professionals are sometimes the only ones available to provide spiritual comfort to their patients. In our modern pluralistic society, where patients could come from any number of religious traditions, it can often be difficult to find exactly the right words in these situations.
Prayers and Rituals at a Time of Illness and Dying: The Practices of Five World Religions by experienced physician and theologian Pat Fosarelli offers clear instructions for health care professionals on how to better understand the needs of their Buddhist, Hindu, Muslim, Christian, and Jewish patients during these difficult times. Devoting separate chapters to each tradition, Fosarelli briefly outlines the basic beliefs and then looks at the main tenets of each religion, exploring the varied approaches that they take to illness and end-of-life issues. For each tradition, she also describes practices and offers suitable prayers. Each chapter suggests modifications that may be necessary for Western hospitals, modifications for children, and specific suggestions about what not to do or say in respect to different faith traditions.
This easy-to-use, pocket-sized resource will be referenced again and again by physicians, paramedics, hospital and military chaplains, pastoral counselors, hospice providers, and other medical professionals.
With today's cumbersome insurance procedures, government regulations, endless paperwork, and concerns about malpractice rates, many health care professionals are asking: "Why am I doing this? Am I making a difference to my patients? Is there a better way—and if so, what is it?" In this book, Carson and Koenig examine the state of the health care system with the goal of providing healthcare professionals and caregivers the inspiration and practical tools to reclaim their sense of purpose.
The book begins with an evaluation of the current system from the perspective of the spiritual vision that initially motivated and nourished many caregivers. The authors then pose a vision of a health care system that supports and nurtures the spirituality of patients and their families, of which some elements already exist.
An overview is provided on the preparation necessary for health care professionals to offer spiritual care when there are major implications—for people with chronic illnesses, psychiatric issues, devastating injuries, and those preparing for surgery, facing death, and those living with chronic pain. Also explored are ways that health professionals and caregivers can maintain their own spiritual health even as they work to bring about healing, comfort, and solace to others.
Woven throughout the book are the personal narratives of physicians, nurses, chaplains, health care educators, community resource workers, administrators, therapists, and psychologists—all from a wide range of religious traditions. Their examples inspire and assist professionals in renewing the spiritual focus of health care.
Ever since the first edition of Verna Benner Carson's Spiritual Dimensions of Nursing Practice went out of print, second-hand copies have been highly sought after by practitioners in the field and nursing school faculty who appreciated the comprehensive scope of the seminal work on spirituality and health. In this highly anticipated revised edition, Carson and her co-editor, Harold G. Koenig, have thoroughly revised and updated this classic in the field.
This book is intended as a guide for practicing physicians, medical students, and residents to help identify and address the spiritual needs of patients. Those who will benefit most will be physicians who wish to know how to integrate spirituality into clinical practice in an effective and sensitive manner. Other professionals, such as nurses and chaplains, may use this book as they interact with doctors, other health professionals, and hospital administrators.
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