front cover of Academic Ableism
Academic Ableism
Disability and Higher Education
Jay Timothy Dolmage
University of Michigan Press, 2017
Academic Ableism brings together disability studies and institutional critique to recognize the ways that disability is composed in and by higher education, and rewrites the spaces, times, and economies of disability in higher education to place disability front and center. For too long, argues Jay Timothy Dolmage, disability has been constructed as the antithesis of higher education, often positioned as a distraction, a drain, a problem to be solved. The ethic of higher education encourages students and teachers alike to accentuate ability, valorize perfection, and stigmatize anything that hints at intellectual, mental, or physical weakness, even as we gesture toward the value of diversity and innovation. Examining everything from campus accommodation processes, to architecture, to popular films about college life, Dolmage argues that disability is central to higher education, and that building more inclusive schools allows better education for all.
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front cover of Academic Ableism
Academic Ableism
Disability and Higher Education
Jay Timothy Dolmage
University of Michigan Press, 2017
Academic Ableism brings together disability studies and institutional critique to recognize the ways that disability is composed in and by higher education, and rewrites the spaces, times, and economies of disability in higher education to place disability front and center. For too long, argues Jay Timothy Dolmage, disability has been constructed as the antithesis of higher education, often positioned as a distraction, a drain, a problem to be solved. The ethic of higher education encourages students and teachers alike to accentuate ability, valorize perfection, and stigmatize anything that hints at intellectual, mental, or physical weakness, even as we gesture toward the value of diversity and innovation. Examining everything from campus accommodation processes, to architecture, to popular films about college life, Dolmage argues that disability is central to higher education, and that building more inclusive schools allows better education for all.
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front cover of Activist Affordances
Activist Affordances
How Disabled People Improvise More Habitable Worlds
Arseli Dokumaci
Duke University Press, 2023
For people who are living with disability, including various forms of chronic diseases and chronic pain, daily tasks like lifting a glass of water or taking off clothes can be difficult if not impossible. In Activist Affordances, Arseli Dokumacı draws on ethnographic work with differently disabled people whose ingenuity, labor, and artfulness allow them to achieve these seemingly simple tasks. Dokumacı shows how they use improvisation to imagine and bring into being more habitable worlds through the smallest of actions and the most fleeting of movements---what she calls “activist affordances.” Even as an environment shrinks to a set of constraints rather than opportunities, the improvisatory space of performance opens up to allow disabled people to imagine that same environment otherwise. Dokumacı shows how disabled people’s activist affordances present the potential for a more liveable and accessible world for all of us.
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front cover of Black Madness
Black Madness
: Mad Blackness
Therí Alyce Pickens
Duke University Press, 2019
In Black Madness :: Mad Blackness Therí Alyce Pickens rethinks the relationship between Blackness and disability, unsettling the common theorization that they are mutually constitutive. Pickens shows how Black speculative and science fiction authors such as Octavia Butler, Nalo Hopkinson, and Tananarive Due craft new worlds that reimagine the intersection of Blackness and madness. These creative writer-theorists formulate new parameters for thinking through Blackness and madness. Pickens considers Butler's Fledgling as an archive of Black madness that demonstrates how race and ability shape subjectivity while constructing the building blocks for antiracist and anti-ableist futures. She examines how Hopkinson's Midnight Robber theorizes mad Blackness and how Due's African Immortals series contests dominant definitions of the human. The theorizations of race and disability that emerge from these works, Pickens demonstrates, challenge the paradigms of subjectivity that white supremacy and ableism enforce, thereby pointing to the potential for new forms of radical politics.
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Disability and Passing
Blurring the Lines of Identity
Jeffrey A Brune
Temple University Press, 2013

Passing—an act usually associated with disguising race—also relates to disability. Whether a person classified as mentally ill struggles to suppress aberrant behavior to appear "normal" or a person falsely claims a disability to gain some advantage, passing is a pervasive and much discussed phenomenon. Nevertheless, Disability and Passing is the first anthology to examine this issue. 

The editors and contributors to this volume explore the intersections of disability, race, gender, and sexuality as these various aspects of identity influence each other and make identity fluid.  They argue that the line between disability and normality is blurred, discussing disability as an individual identity and as a social category. And they discuss the role of stigma in decisions about whether or not to pass.

Focusing on the United States from the nineteenth century to the present, the essays in Disability and Passing speak to the complexity of individual decisions about passing and open the conversation for broader discussion. 

Contributors include:  Dea Boster, Allison Carey, Peta Cox, Kristen Harmon, David Linton, Michael Rembis, and the editors.

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The Disability Rights Movement
From Charity to Confrontation
Doris Fleischer
Temple University Press, 2011

In this updated edition, Doris Zames Fleischer and Frieda Zames expand their encyclopedic history of the struggle for disability rights in the United States, to include the past ten years of disability rights activism.The book includes a new chapter on the evolving impact of the Americans with Disabilities Act, the continuing struggle for cross-disability civil and human rights, and the changing perceptions of disability.

The authors provide a probing analysis of such topics as deinstitutionalization, housing, health care, assisted suicide, employment, education, new technologies, disabled veterans, and disability culture.

Based on interviews with over one hundred activists, The Disability Rights Movement tells a complex and compelling story of an ongoing movement that seeks to create an equitable and diverse society, inclusive of people with disabilities.

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front cover of Disability Rights Movement
Disability Rights Movement
From Charity to Confrontation
Doris Fleischer
Temple University Press, 2000
Based on interviews with almost  a hundred activists, this book provides a detailed history of the struggle for disability rights in the United States. It is a complex story of shifts in consciousness and shifts in policy, of changing focuses on particular disabilities such as blindness, deafness, polio, quadriplegia, psychiatric and developmental disabilities, chronic conditions (for example, cancer and heart disease), and AIDS, and of activism and policymaking across disabilities.

Referring to the Americans with Disabilities Act as "every American's insurance policy," the authors recount the genesis of this civil rights approach to disability, from the almost forgotten disability activism of the 1930s to the independent living movement of the 1970s to the call for disability pride of the 1990s. Like other civil rights struggles, the disability rights movement took place in the streets and in the courts as activists fought for change in the schools, the workplace, and in the legal system. They continue to fight for effective access to the necessities of everyday life -- to telephones, buses, planes, public buildings, restaurants, and toilets.

The history of disability rights mirrors the history of the country. Both World Wars sparked changes in disability policy and  changes in medical technology as veterans without without limbs and with other disabilities return home. The empowerment of people with disabilities has become another chapter in the struggles over identity politics that began in the 1960s. Today, with the expanding ability of people with disabilities to enter the workforce, and a growing elderly population increasingly significant at a time when HMOs are trying to contain healthcare expenditures.
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front cover of The Disabled Child
The Disabled Child
Memoirs of a Normal Future
Amanda Apgar
University of Michigan Press, 2023
When children are born with disabilities or become disabled in childhood, parents often experience bewilderment: they find themselves unexpectedly in another world, without a roadmap, without community, and without narratives to make sense of their experiences. The Disabled Child: Memoirs of a Normal Future tracks the narratives that have emerged from the community of parent-memoirists who, since the 1980s, have written in resistance of their children’s exclusion from culture. Though the disabilities represented in the genre are diverse, the memoirs share a number of remarkable similarities; they are generally written by white, heterosexual, middle or upper-middle class, ablebodied parents, and they depict narratives in which the disabled child overcomes barriers to a normal childhood and adulthood. Apgar demonstrates that in the process of telling these stories, which recuperate their children as productive members of society, parental memoirists write their children into dominant cultural narratives about gender, race, and class.   By reinforcing and buying into these norms, Apgar argues, “special needs” parental memoirs reinforce ableism at the same time that they’re writing against it.
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front cover of Don't Call Me Inspirational
Don't Call Me Inspirational
A Disabled Feminist Talks Back
Harilyn Rousso
Temple University Press, 2013

 For psychotherapist, painter, feminist, filmmaker, writer, and disability activist Harilyn Rousso, hearing well-intentioned people tell her, "You're so inspirational!" is patronizing, not complimentary.

In her empowering and at times confrontational memoir, Don't Call Me Inspirational, Rousso, who has cerebral palsy, describes overcoming the prejudice against disability--not overcoming disability. She addresses the often absurd and ignorant attitudes of strangers, friends, and family. 

Rousso also examines her own prejudice toward her disabled body, and portrays the healing effects of intimacy and creativity, as well as her involvement with the disability rights community. She intimately reveals herself with honesty and humor and measures her personal growth as she goes from "passing" to embracing and claiming her disability as a source of pride, positive identity, and rebellion. 

A collage of images about her life, rather than a formal portrait, Don't Call Me Inspirational celebrates Rousso's wise, witty, productive, outrageous life, disability and all.


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The Life Worth Living
Disability, Pain, and Morality
Joel Michael Reynolds
University of Minnesota Press, 2022

A philosophical challenge to the ableist conflation of disability and pain

 

More than 2,000 years ago, Aristotle said: “let there be a law that no deformed child shall live.” This idea is alive and well today. During the past century, Supreme Court Justice Oliver Wendell Holmes Jr. argued that the United States can forcibly sterilize intellectually disabled women and philosopher Peter Singer argued for the right of parents to euthanize certain cognitively disabled infants. The Life Worth Living explores how and why such arguments persist by investigating the exclusion of and discrimination against disabled people across the history of Western moral philosophy.

Joel Michael Reynolds argues that this history demonstrates a fundamental mischaracterization of the meaning of disability, thanks to the conflation of lived experiences of disability with those of pain and suffering. Building on decades of activism and scholarship in the field, Reynolds shows how longstanding views of disability are misguided and unjust, and he lays out a vision of what an anti-ableist moral future requires.

The Life Worth Living is the first sustained examination of disability through the lens of the history of moral philosophy and phenomenology, and it demonstrates how lived experiences of disability demand a far richer account of human flourishing, embodiment, community, and politics in philosophical inquiry and beyond.

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front cover of Radical Health
Radical Health
Unwellness, Care, and Latinx Expressive Culture
Julie Avril Minich
Duke University Press, 2023
In Radical Health Julie Avril Minich examines the potential of Latinx expressive culture to intervene in contemporary health politics, elaborating how Latinx artists have critiqued ideologies of health that frame wellbeing in terms of personal behavior. Within this framework, poor health—obesity, asthma, diabetes, STIs, addiction, and high-risk pregnancies—is attributed to irresponsible lifestyle choices among the racialized poor. Countering this, Latinx writers and visual artists envision health not as individual duty but as communal responsibility. Bringing a disability justice approach to questions of health access and equity, Minich locates a concept of radical health within the work of Latinx artists, including the poetry of Rafael Campo, the music of Hurray for the Riff Raff, the fiction of Angie Cruz, and the performance art of Virginia Grise. Radical health operates as a modality that both challenges the stigma of unhealth and protests the social conditions that give rise to racial health disparities. Elaborating on this modality, Minich claims a critical role for Latinx artists in addressing the structural racism in public health. 
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front cover of Rights of Inclusion
Rights of Inclusion
Law and Identity in the Life Stories of Americans with Disabilities
David M. Engel and Frank W. Munger
University of Chicago Press, 2003
Rights of Inclusion provides an innovative, accessible perspective on how civil rights legislation affects the lives of ordinary Americans. Based on eye-opening and deeply moving interviews with intended beneficiaries of the Americans with Disabilities Act (ADA), David M. Engel and Frank W. Munger argue for a radically new understanding of rights-one that focuses on their role in everyday lives rather than in formal legal claims.

Although all sixty interviewees had experienced discrimination, none had filed a formal protest or lawsuit. Nevertheless, civil rights played a crucial role in their lives. Rights improved their self-image, enhanced their career aspirations, and altered the perceptions and assumptions of their employers and coworkers-in effect producing more inclusive institutional arrangements. Focusing on these long-term life histories, Engel and Munger incisively show how rights and identity affect one another over time and how that interaction ultimately determines the success of laws such as the ADA.
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front cover of Women with Disabilities
Women with Disabilities
Essays in Psychology, Culture, and Politics
edited by Michelle Fine and Adrienne Asch
Temple University Press, 1989

Women with disabilities are women first, sharing the dreams and disappointments common to women in a male-dominated society. But because society persists in viewing disability as an emblem of passivity and incompetence, disabled women occupy a devalued status in the social hierarchy. This book represents the intersection of the feminist and disability rights perspectives; it analyzes the forces that push disabled women towards the margins of social life, and it considers the resources that enable these women to resist the stereotype.

Drawing on law, social science, folklore, literature, psychoanalytic theory, and political activism, this book describes the experience of women with disabilities. The essays consider the impact of social class, race, the age at which disability occurs, and sexual orientation on the disabled woman's self esteem as well as on her life options. The contributors focus their inquiry on the self perceptions of disabled women and ask: From what sources do these women draw positive self images? How do they resist the culture's power to label them as deviant? The essays describe the ways in which disabled women face discrimination in the workplace and the failure of the mainstream women's movement to address their concerns.


In the series Health, Society, and Policy, edited by Sheryl Ruzek and Irving Kenneth Zola.
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