BiblioVault - Books about Eldercare

A SCHOLARLY BOOK REPOSITORY

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11 books about Eldercare

American Eldercide

How It Happened, How to Prevent It

Margaret Morganroth Gullette

University of Chicago Press, 2024

A bracing spotlight on the avoidable causes of the COVID-19 eldercide in the United States.

Twenty percent of the Americans who have died of COVID since 2020 have been older and disabled adults residing in nursing homes—even though they make up less than one percent of the overall US population. Something about this catastrophic loss of life in government-sponsored facilities never added up.

Until now. In American Eldercide, activist and scholar Margaret Morganroth Gullette investigates this tragic public health crisis with a passionate voice and razor-sharp attention to detail, showing us that nothing about it was inevitable. Gullette argues that it was our collective indifference, fueled by ageism, that prematurely killed this vulnerable population, compounded by our own panic about aging and a bias in favor of youth-based decisions about lifesaving care. Walking us through the decisions that led to such discriminations, revealing how governments, doctors, and media reinforced ageist biases, and collecting the ignored voices of the residents who survived, Gullette helps us understand the workings of what she persuasively calls an eldercide.

The compassion this country failed to muster for the residents of our nursing facilities motivated Gullette to pen an act of remembrance and a call to action that aims to prevent similar outcomes for all those who will need long-term care.

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Choosing Medical Care in Old Age

What Kind, How Much, When to Stop

Muriel R. Gillick M.D.

Harvard University Press, 1994

You are old, ill, in pain, and your doctor asks you what you want to do about it. You may be uncertain but you're definitely not alone. By the year 2020, some 50 million Americans will be over sixty-five, and as the nation ages we must all ask what we ought to do about the health and medical care of our elderly. Our response will have profound consequences, not just for individuals and families, but for society as a whole. This book helps us start to form an answer.

To make decisions about medical care in old age, we need to know more about the reality of being elderly and sick, and Choosing Medical Care in Old Age gives us the opportunity. Muriel Gillick, a noted physician who specializes in the care of the elderly and in medical ethics, presents a panoply of stories drawn from her clinical experience. These encounters, with the robust and the frail, the demented and the dying, capture the texture of the experience of being old and faced with critical medical questions. From the stories of older people struggling to make choices in the face of acute illness, stories that are often poignant and sometimes tragic, Gillick develops broad guidelines for medical decision–making for the elderly. Within this framework, she confronts particular concerns and questions. When are certain procedures too burdensome to be justified? What are unacceptable risks? Should family members serve as exclusive spokespersons for relatives who can no longer speak for themselves? Gillick's bold and personal prescription for medical care for the elderly calls for a change in the way medicine is understood and practiced, as well as for changes in the institutions that serve the elderly, such as hospitals and nursing homes. An intelligent and deeply compassionate inquiry into the difficult issues and real–life dilemmas raised by current practices, her book offers a first step toward those changes.

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Determined Survivors

Smithers, Janice A.

Rutgers University Press, 1985

Community Life Among the Urban Elderly

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The Emotional Journey of the Alzheimer's Family

Robert B. Santulli and Kesstan Blandin

Dartmouth College Press, 2015

Alzheimer’s disease is a growing public health crisis. According to the Alzheimer’s Association, there are 5.4 million victims of this disease; by 2050, there will be close to 15 million people who suffer from this debilitating disorder of memory, thinking, personality, and functioning. The disease profoundly affects immediate family members, close friends, and neighbors. These people—the Alzheimer’s family—undergo tremendous psychological and emotional change as they witness the cruel and relentless progression of the disease in their loved one. Incorporating over thirty years of experience with Alzheimer’s patients and their families with current medical knowledge, the authors chart the complex emotional journey of the Alzheimer’s family from the onset of the disease through the death of the loved one. They discuss the anger that rises in the face of discordant views of the disease, the defenses that emerge when family members are unwilling to accept a dementia diagnosis, and the common emotions of anxiety, guilt, anger, and shame. They focus especially on grief as the core response to losing a loved one to dementia, and describe the difficult processes of adaptation and acceptance, which lead to personal growth. Final chapters emphasize the importance of establishing a care community and how to understand and cope with personal stress. This volume will be useful to medical professionals and ordinary people close to or caring for a person with dementia.

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The Last of His Mind

A Year in the Shadow of Alzheimer’s

John Thorndike

Ohio University Press, 2011

NEW EDITIONS AVAILABLE: Paperback ISBN 978–0804012362 / Electronic ISBN 978–0804041201 Joe Thorndike was managing editor of Life at the height of its popularity immediately following World War II. He was the founder of American Heritage and Horizon magazines, the author of three books, and the editor of a dozen more. But at age 92, in the space of six months he stopped reading or writing or carrying on detailed conversations. He could no longer tell time or make a phone call. He was convinced that the governor of Massachusetts had come to visit and was in the refrigerator. Five million Americans suffer from Alzheimer’s, and like many of them, Joe Thorndike’s one great desire was to remain in his own house. To honor his wish, his son John left his own home and moved into his father’s upstairs bedroom on Cape Cod. For a year, in a house filled with file cabinets, photos, and letters, John explored his father’s mind, his parents’ divorce, and his mother’s secrets. The Last of His Mind is the bittersweet account of a son’s final year with his father, and a candid portrait of an implacable disease. It’s the ordeal of Alzheimer’s that draws father and son close, closer than they have been since John was a boy. At the end, when Joe’s heart stops beating, John’s hand is on his chest, and a story of painful decline has become a portrait of deep family ties, caregiving, and love.

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The Last of His Mind, Second Edition

A Year in the Shadow of Alzheimer’s

John Thorndike

Ohio University Press, 2021

The second, expanded edition of this acclaimed memoir by an Alzheimer’s caregiver living with his father during his final year includes a new introduction that illustrates the immense toll of the disease, important lessons from the author’s experience, and a readers' guide. Joe Thorndike was managing editor of Life at the height of its popularity immediately following World War II. He was the founder of American Heritage and Horizon magazines, the author of three books, and the editor of a dozen more. But at age ninety-two, in the space of six months he stopped reading or writing or carrying on detailed conversations. He could no longer tell time or make a phone call. He was convinced that the governor of Massachusetts had come to visit and was in the refrigerator. Over six million Americans suffer from Alzheimer’s, and like many of them, Joe Thorndike’s one great desire was to remain in his own house. To honor his wish, his son John left his own home and moved into his father’s upstairs bedroom on Cape Cod. For a year, in a house filled with file cabinets, photos, and letters, John explored his father’s mind, his parents’ divorce, and his mother’s secrets. The Last of His Mind is the bittersweet account of a son’s final year with his father and a candid portrait of an implacable disease. It’s the ordeal of Alzheimer’s that draws father and son close, closer than they have been since John was a boy. At the end, when Joe’s heart stops beating, John’s hand is on his chest, and a story of painful decline has become a portrait of deep family ties, caregiving, and love.

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Linked Lives

Elder Care, Migration, and Kinship in Sri Lanka

Michele Ruth Gamburd

Rutgers University Press, 2021

When youth shake off their rural roots and middle-aged people migrate for economic opportunities, what happens to the grandparents left at home? Linked Lives provides readers with intimate glimpses into homes in a Sri Lankan Buddhist village, where elders wisely use their moral authority and their control over valuable property to assure that they receive both physical and spiritual care when they need it. The care work that grandparents do for grandchildren allows labor migration and contributes to the overall well-being of the extended family. The book considers the efforts migrant workers make to build and buy houses and the ways those rooms and walls constrain social activities. It outlines the strategies elders employ to age in place, and the alternatives they face in local old folks’ homes. Based on ethnographic work done over a decade, Michele Gamburd shows how elders face the challenges of a rapidly globalizing world.

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My Mother's Hip

Lessons From The World Of Eldercare

Luisa Margolies

Temple University Press, 2004

Some 400,000 hip fractures occur every year, the vast majority among the elderly; all too often these fractures are associated with death or severe disability. After her mother's double hip fracture, Luisa Margolies immersed herself in identifying and coordinating the services and professionals needed to provide critical care for an elderly person. She soon realized that the American medical system is ill prepared to deal with the long-term care needs of our graying society. The heart of My Mother's Hip is taken up with the author's day-to-day observations as her mother's condition worsened, then improved only to worsen again, while her father became increasingly anxious and disoriented. As both a devoted daughter and a skilled anthropologist, Margolies vividly renders her interactions with physicians, nurses, hospital workers, nursing home administrators, the Medicare bureaucracy, home care providers, and her parents. In the Lessons chapter that follows each episode, she discusses in a broader context the weighty decisions that adult children must make on their parents' behalf and the emotional toll their responsibility takes. Here she addresses the complex practical issues that commonly arise in such situations: understanding the consequences of hip fracture and its treatment, preparing health care proxies and advanced directives, enabling elders to remain at home, and the heartbreaking dilemma of prolonging life. Like many adult children, Margolies learned her lessons about eldercare in the midst of crises. This book is intended to ease the information-gathering and decision-making processes for others involved in eldercare.

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Someday All This Will Be Yours

A History of Inheritance and Old Age

Hendrik Hartog

Harvard University Press, 2011

We all hope that we will be cared for as we age. But the details of that care, for caretaker and recipient alike, raise some of life’s most vexing questions. From the mid-nineteenth to the mid-twentieth century, as an explosive economy and shifting social opportunities drew the young away from home, the elderly used promises of inheritance to keep children at their side. Hendrik Hartog tells the riveting, heartbreaking stories of how families fought over the work of care and its compensation.

Someday All This Will Be Yours narrates the legal and emotional strategies mobilized by older people, and explores the ambivalences of family members as they struggled with expectations of love and duty. Court cases offer an extraordinary glimpse of the mundane, painful, and intimate predicaments of family life. They reveal what it meant to be old without the pensions, Social Security, and nursing homes that now do much of the work of serving the elderly. From demented grandparents to fickle fathers, from litigious sons to grateful daughters, Hartog guides us into a world of disputed promises and broken hearts, and helps us feel the terrible tangle of love and commitments and money.

From one of the bedrocks of the human condition—the tension between the infirmities of the elderly and the longings of the young—emerges a pioneering work of exploration into the darker recesses of family life. Ultimately, Hartog forces us to reflect on what we owe and are owed as members of a family.

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