Epilepsy and the Family: A New Guide updates Richard Lechtenberg’s classic handbook for people with seizure disorders and those closest to them. It offers coping strategies for the wide range of practical and emotional challenges that epilepsy can introduce into the family: marital and sexual difficulties, concerns about pregnancy and inheritance, drug compliance and abuse among teenagers, personality changes and suicide. This new guide addresses the personal questions that adults with epilepsy may be reluctant to ask their physician, and it offers chapters tailored to the special stresses of spouses, parents, and siblings who, like the patient, must live with a seizure disorder.

As many as two and a half million Americans have epilepsy. Thirty percent of them are children under the age of 18. And there are 125,000 newly diagnosed cases each year. A practicing neurologist with decades of clinical experience, Lechtenberg clearly and concisely explains the biology behind this complex and relatively widespread class of diseases. He discusses the various medical conditions that can cause seizures in children and adults and points out that the cause of many seizure disorders is never discovered. Patients and those who care about them will find authoritative but accessible advice on various medications and surgical approaches and the information they need to ask informed questions of their doctors. For the medical professional, this book offers important information on how to better treat the patient with epilepsy by recognizing the needs of the entire family.

This revised edition addresses:

— New drugs and surgical techniques that have been developed in the past 15 years
— Pharmaceutical and non-pharmaceutical treatment strategies
— New clinical data on drug combinations and side effects
— Up-to-date statistics for mortality, reproduction, violent behavior, divorce, and suicide

"Well written and fascinating to read. This fine book takes a large step in...contributing to the only slowly dawning awareness of the general public, and the health workers too, of the significance of chronic illness." --Anselm Strauss, University of California, San Francisco Based on in-depth interviews with eighty people who have epilepsy, this book gives a first-hand account of what it is like to cope with a chronic illness, while working, playing, and building relationships. The authors recount how people discover they have epilepsy and what it means; how families respond to someone labeled "epileptic"; how seizures affect a person's sense of self and self-control. Epilepsy patients explain what they want from their doctors and why the medication practices they develop may not coincide with "doctor's orders." The variety of experiences of epilepsy is suggested both by the interviews and by the range of terms for seizures--Petit Mal, Grand Mal, auras, fits, absences. The principal difficulty for many people with epilepsy is not the medical condition but the social stigma. A person with epilepsy has to cope with discrimination in obtaining a job, insurance, or a driver's license, and he or she may be cautious about revealing this "disabling" condition to an employer or even a spouse. People with epilepsy may manage information about themselves and their "lapses" and look for "safe places" like restrooms where they can be alone should a seizure begin. Many of those interviewed complained of overreactions to seizures by colleagues or bystanders: epilepsy patients were embarrassed at having provoked a public crisis or were annoyed at waking up in a hospital emergency room. This is a book for people who have epilepsy, for their families and friends; for health care professionals who deal with chronic illnesses; and for students of medical sociology and the sociology of deviance. "For anyone who would like to 'get inside' the experience of having epilepsy, this book is probably as close as one can come." --Epilepsia "In dispelling the notion that 'the person is the illness,' these interviews with 80 individuals reveal that those suffering from epilepsy have learned to accept it as merely another facet of their lives. A valuable contribution for those with epilepsy, for their family and friends, for medical personnel, and for the general public." --Booklist "...carefully outlined and clearly written.... Those affected by chronic conditions may find the book most helpful.... Family and helping professionals may discover new insights.... Social scientists, especially those interested in chronic illnesses, will benefit from the research conclusions and suggestions for further research." --Medical Anthropology Quarterly "It represents an important advance in the medical sociology literature as well as a contribution to qualitative sociology. I think that the book should become a contemporary classic in medical sociology." --Qualitative Sociology "...an important contribution.... In focusing on what it is like to have epilepsy in this society, Schneider and Conrad have reversed an earlier concern for the medicalization of deviance, opting in this work for an understanding of the stigmatization of illness." --Contemporary Sociology

The candid, inspiring story of a woman’s experience with a chronic, unpredictable neurological condition

When twenty-nine-year-old reporter Stacia Kalinoski regained consciousness on a couch at the  TV station where she worked, she assumed that she’d had another seizure. But the electrical storm that had just torn through her brain was more destructive than she could have imagined, and the broadcast journalism career she loved swiftly came to an end. Forced to confront the reality of her medical condition, Kalinoski made the risky decision to undergo brain surgery, targeting the epilepsy that was ravaging her life.

In Racing Uphill, Kalinoski describes the seizures that occurred while she was running, which led to her pursuit of an uncertain cure. Rallying the grit she developed as an athlete and engaging the research and reporting skills she acquired as a journalist, she gives us a rare inside look at the ways epilepsy can change a life. Moving beyond her own personal experience, Kalinoski interviews prominent epileptologists to understand how seizures can spread, steal memories, and create strange behaviors and mood disorders. She seamlessly joins what she learned from her research with her own story, offering valuable insight into the experience of grappling with a relentless neurological disease.

The vivid auras that preceded seizures and the damage that followed; the toll of her epilepsy on her family and loved ones; the extraordinary determination her reckoning required—these are all part of Kalinoski’s story of adversity, denial, acceptance, and resilience. In sharing the remarkable opportunity that epilepsy presented for her courage and growth, Stacia Kalinoski speaks to anyone facing an uphill battle and offers inspiration for taking control of one’s own health.