front cover of Ancestors and Antiretrovirals
Ancestors and Antiretrovirals
The Biopolitics of HIV/AIDS in Post-Apartheid South Africa
Claire Laurier Decoteau
University of Chicago Press, 2013
In the years since the end of apartheid, South Africans have enjoyed a progressive constitution, considerable access to social services for the poor and sick, and a booming economy that has made their nation into one of the wealthiest on the continent. At the same time, South Africa experiences extremely unequal income distribution, and its citizens suffer the highest prevalence of HIV in the world. As Archbishop Desmond Tutu has noted, “AIDS is South Africa’s new apartheid.”

In Ancestors and Antiretrovirals, Claire Laurier Decoteau backs up Tutu’s assertion with powerful arguments about how this came to pass. Decoteau traces the historical shifts in health policy after apartheid and describes their effects, detailing, in particular, the changing relationship between biomedical and indigenous health care, both at the national and the local level. Decoteau tells this story from the perspective of those living with and dying from AIDS in Johannesburg’s squatter camps. At the same time, she exposes the complex and often contradictory ways that the South African government has failed to balance the demands of neoliberal capital with the considerable health needs of its population.
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front cover of Children as Caregivers
Children as Caregivers
The Global Fight against Tuberculosis and HIV in Zambia
Hunleth, Jean
Rutgers University Press, 2017
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front cover of Criminalized Lives
Criminalized Lives
HIV and Legal Violence
Alexander McClelland
Rutgers University Press, 2024
Canada has been known as a hot spot for HIV criminalization where the act of not disclosing one’s HIV-positive status to sex partners has historically been regarded as a serious criminal offence. Criminalized Lives describes how this approach has disproportionately harmed the poor, Black and Indigenous people, gay men, and women in Canada. In this book, people who have been criminally accused of not disclosing their HIV-positive status, detail the many complexities of disclosure, and the violence that results from being criminalized. 
 
Accompanied by portraits from artist Eric Kostiuk Williams, the profiles examine whether the criminal legal system is really prepared to handle the nuances and ethical dilemmas faced everyday by people living with HIV. By offering personal stories of people who have faced criminalization first-hand, Alexander McClelland questions common assumptions about HIV, the role of punishment, and the violence that results from the criminal legal system’s legacy of categorizing people as either victims or perpetrators. 
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Forget Burial
HIV Kinship, Disability, and Queer/Trans Narratives of Care
Marty Fink
Rutgers University Press, 2021
Finalist for the LGBTQ Nonfiction Award from Lambda Literary

Queers and trans people in the 1980s and early ‘90s were dying of AIDS and the government failed to care. Lovers, strangers, artists, and community activists came together take care of each other in the face of state violence. In revisiting these histories alongside ongoing queer and trans movements, this book uncovers how early HIV care-giving narratives actually shape how we continue to understand our genders and our disabilities. The queer and trans care-giving kinships that formed in response to HIV continue to inspire how we have sex and build chosen families in the present. In unearthing HIV community newsletters, media, zines, porn, literature, and even vampires, Forget Burial bridges early HIV care-giving activisms with contemporary disability movements. In refusing to bury the legacies of long-term survivors and of those we have lost, this book brings early HIV kinships together with ongoing movements for queer and trans body self-determination.
 
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HIV Exceptionalism
Development through Disease in Sierra Leone
Adia Benton
University of Minnesota Press, 2015

WINNER, 2017 RACHEL CARSON PRIZE, SOCIETY FOR THE SOCIAL STUDIES OF SCIENCE

In 2002, Sierra Leone emerged from a decadelong civil war. Seeking international attention and development aid, its government faced a dilemma. Though devastated by conflict, Sierra Leone had a low prevalence of HIV. However, like most African countries, it stood to benefit from a large influx of foreign funds specifically targeted at HIV/AIDS prevention and care.

What Adia Benton chronicles in this ethnographically rich and often moving book is how one war-ravaged nation reoriented itself as a country suffering from HIV at the expense of other, more pressing health concerns. During her fieldwork in the capital, Freetown, a city of one million people, at least thirty NGOs administered internationally funded programs that included HIV/AIDS prevention and care. Benton probes why HIV exceptionalism—the idea that HIV is an exceptional disease requiring an exceptional response—continues to guide approaches to the epidemic worldwide and especially in Africa, even in low-prevalence settings.

In the fourth decade since the emergence of HIV/AIDS, many today are questioning whether the effort and money spent on this health crisis has in fact helped or exacerbated the problem. HIV Exceptionalism does this and more, asking, what are the unanticipated consequences that HIV/AIDS development programs engender?

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Second Chances
Surviving AIDS in Uganda
Susan Reynolds Whyte, editor
Duke University Press, 2014
During the first decade of this millennium, many thousands of people in Uganda who otherwise would have died from AIDS got second chances at life. A massive global health intervention, the scaling up of antiretroviral therapy (ART), saved them and created a generation of people who learned to live with treatment. As clients they joined programs that offered free antiretroviral medicine and encouraged "positive living." Because ART is not a cure but a lifelong treatment regime, its consequences are far-reaching for society, families, and individuals. Drawing on personal accounts and a broad knowledge of Ugandan culture and history, the essays in this collection explore ART from the perspective of those who received second chances. Their concerns about treatment, partners, children, work, food, and bodies reveal the essential sociality of Ugandan life. The collection is based on research undertaken by a team of social scientists including both Western and African scholars.

Contributors. Phoebe Kajubi, David Kyaddondo, Lotte Meinert, Hanne O. Mogensen, Godfrey Etyang Siu, Jenipher Twebaze, Michael A. Whyte, Susan Reynolds Whyte
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front cover of Speech and Song at the Margins of Global Health
Speech and Song at the Margins of Global Health
Zulu Tradition, HIV Stigma, and AIDS Activism in South Africa
Steven P. Black
Rutgers University Press, 2019
Speech and Song at the Margins of Global Health tells the story of a unique Zulu gospel choir comprised of people living with HIV in South Africa, and how they maintained healthy, productive lives amid globalized inequality, international aid, and the stigma that often comes with having HIV. By singing, joking, and narrating about HIV in Zulu, the performers in the choir were able to engage with international audiences, connect with global health professionals, and also maintain traditional familial respect through the prism of performance. The focus on gospel singing in the narrative provides a holistic viewpoint on life with HIV in the later years of the pandemic, and the author’s musical engagement led to fieldwork in participants’ homes and communities, including the larger stigmatized community of infected individuals. This viewpoint suggests overlooked ways that aid recipients contribute to global health in support, counseling, and activism, as the performers set up instruments, waited around in hotel lobbies, and struck up conversations with passersby and audience members. The story of the choir reveals the complexity and inequities of global health interventions, but also the positive impact of those interventions in the crafting of community.
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front cover of Structural Intimacies
Structural Intimacies
Sexual Stories in the Black AIDS Epidemic
Mackenzie, Sonja
Rutgers University Press, 2013
One of the most relevant social problems in contemporary American life is the continuing HIV epidemic in the Black population. With vivid ethnographic detail, this book brings together scholarship on the structural dimensions of the AIDS epidemic and the social construction of sexuality to assert that shifting forms of sexual stories—structural intimacies—are emerging, produced by the meeting of intimate lives and social structural patterns. These stories render such inequalities as racism, poverty, gender power disparities, sexual stigma, and discrimination as central not just to the dramatic, disproportionate spread of HIV in Black communities in the United States, but to the formation of Black sexualities.

Sonja Mackenzie elegantly argues that structural vulnerability is felt—quite literally—in the blood, in the possibilities and constraints on sexual lives, and in the rhetorics of their telling. The circulation of structural intimacies in daily life and in the political domain reflects possibilities for seeking what Mackenzie calls intimate justice at the nexus of cultural, economic, political, and moral spheres. Structural Intimacies presents a compelling case: in an era of deepening medicalization of HIV/AIDS, public health must move beyond individual-level interventions to community-level health equity frames and policy changes
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Viral Frictions
Global Health and the Persistence of HIV Stigma in Kenya
Elizabeth J. Pfeiffer
Rutgers University Press, 2022
Viral Frictions takes the reader along a trail of intersecting narratives to uncover how and why it is that HIV-related stigma persists in the age of treatment. Pfeiffer convincingly argues that stigma is a socially constructed process co-produced at the nexus of local, national, and global relationships and storytelling about and practices associated with HIV. Based on a decade of fieldwork in one highway trading center in Kenya, Viral Frictions offers compelling stories of stigma and discrimination as a lens for understanding broader social processes, the complexities of globalization and health, and their profound impact on the everyday social lives and relationships of people living through the ongoing HIV epidemic in sub-Saharan Africa. This highly engaging book is ideal reading for those interested in teaching and learning about intersectionality, as Pfeiffer meticulously demonstrates how HIV stigma interacts with issues of treatment, race, ethnicity, class, gender, sexuality, social change, and international aid systems.
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