Academic Ableism brings together disability studies and institutional critique to recognize the ways that disability is composed in and by higher education, and rewrites the spaces, times, and economies of disability in higher education to place disability front and center. For too long, argues Jay Timothy Dolmage, disability has been constructed as the antithesis of higher education, often positioned as a distraction, a drain, a problem to be solved. The ethic of higher education encourages students and teachers alike to accentuate ability, valorize perfection, and stigmatize anything that hints at intellectual, mental, or physical weakness, even as we gesture toward the value of diversity and innovation. Examining everything from campus accommodation processes, to architecture, to popular films about college life, Dolmage argues that disability is central to higher education, and that building more inclusive schools allows better education for all.
In a book sure to inspire controversy, Gene Heyman argues that conventional wisdom about addiction - that it is a disease, a compulsion beyond conscious control - is wrong. At the heart of Heyman's analysis is a startling view of choice and motivation that applies to all choices, not just the choice to use drugs. Heyman’s analysis of well-established but frequently ignored research leads to unexpected insights into how we make choices - from obesity to McMansionization - all rooted in our deep-seated tendency to consume too much of whatever we like best.
Wisenberg may have lost a breast, but she retained her humor, outrage, and skepticism toward common wisdom and most institutions. While following the prescribed protocols at the place she called Fancy Hospital, Wisenberg is unsparing in her descriptions of the fumblings of new doctors, her own awkward announcement to her students, and the mounds of unrecyclable plastic left at a survivors’ walk. Combining the personal with the political, she shares her research on the money spent on pink ribbons instead of preventing pollution, and the disparity in medical care between the insured and the uninsured. When chemotherapy made her bald, she decorated her head with henna swirls in front and an antiwar protest in back. During treatment, she also recorded the dailiness of life in Chicago as she rode the L, taught while one-breasted, and attended High Holiday services and a Passover seder.
Wisenberg’s writing has been compared to a mix of Leon Wieseltier and Fran Lebowitz, and in this book, she has Wieseltier’s erudition and Lebowitz’s self-deprecating cleverness: “If anybody ever offers you the choice between suffering and depression, take the suffering. And I don't mean physical suffering. I mean emotional suffering. I am hereby endorsing psychic suffering over depression.”
From The Adventures of Cancer Bitch:
I found that when you invite people to a pre-mastectomy party, they show up. Even those with small children. The kids were so young that they didn't notice that most of the food had nipples. . . . I talked to everyone—about what I'm not sure. Probably about my surgery. Everyone told me how well I looked. I felt giddy. I was going to go under, but not yet; I was going to be cut, but not yet; I was going to be bald, but not yet. As my friend who had bladder cancer says: The thing about cancer is you feel great until they start treating you for it.
A Choice Significant University Press Titles for Undergraduates, 2005–2006
This history of the African AIDS epidemic is a much-needed, accessibly written historical account of the most serious epidemiological catastrophe of modern times. The African AIDS Epidemic: A History answers President Thabo Mbeki’s provocative question as to why Africa has suffered this terrible epidemic.
While Mbeki attributed the causes to poverty and exploitation, others have looked to distinctive sexual systems practiced in African cultures and communities. John Iliffe stresses historical sequence. He argues that Africa has had the worst epidemic because the disease was established in the general population before anyone knew the disease existed. HIV evolved with extraordinary speed and complexity, and because that evolution took place under the eyes of modern medical research scientists, Iliffe has been able to write a history of the virus itself that is probably unique among accounts of human epidemic diseases. In giving the African experience a historical shape, Iliffe has written one of the most important books of our time.
The African experience of AIDS has taught the world much of what it knows about HIV/AIDS, and this fascinating book brings into focus many aspects of the epidemic in the longer context of massive demographic growth, urbanization, and social change in Africa during the latter half of the twentieth century. The African AIDS Epidemic: A History is a brilliant introduction to the many aspects of the epidemic and the distinctive character of the virus.
Alive with Alzheimer's
Cathy Stein Greenblat University of Chicago Press, 2004 Library of Congress RC523.G745 2004 | Dewey Decimal 362.19683100222
The confusion, losses, and devastation of Alzheimer's disease are familiar to the millions of Americans suffering from the disease and to their family members. Understandably, declining abilities and changing personal characteristics shape our picture of the disease, leading some to refer to the "double death" of Alzheimer's in which the sufferer drifts away long before his or her eventual physical end.
This small, tender volume of 85 photographs and accompanying discussion powerfully shows the limitations of this view. Cathy Stein Greenblat, an internationally respected sociologist and photographer, demonstrates in Alive with Alzheimer's that, while the ravages of the disease are real, Alzheimer's sufferers can do more than survive, they can thrive. Her images, interviews, and observations attest to the possibility of their being "alive" with Alzheimer's far beyond the expectations of the general public and even of many physicians with long experience with the disease.
Greenblat offers a new vision, taking us into a world of life-enhancing institutional care. Nursing homes and similar facilities don't have to be a last resort; as Greenblat shows, with a dedicated and experienced staff and an enriched environment (that includes respect, choices, pets, and music), extraordinary changes can be effected in Alzheimer's patients. Alive with Alzheimer's, the first photographic book on the disease, offers hope and inspiration. Moreover, its vivid, impressive evidence that ongoing stimulation in a good institutional setting can sustain Alzheimer's patients at a far higher level than is generally believed has significant implications for personal and policy decisions.
The new standard of care chronicled in Alive with Alzheimer's will provide hope and inspiration to those touched by the disease. As Dr. Enid Rockwell writes in her Afterword to Greenblat's moving book, "These photographs are extraordinary for practitioners, for family members, for everyone to see what's going on with these people. The stimulation pictured in this book is more powerful than any medication that we will have in our lifetime. . . . They so vividly show us that there are people inside these bodies, people with personalities, who experience emotion, and they show that there is life after Alzheimer's."
In one case after another, Charles L. Bosk reveals the process by which parents, physicians and other health professionals come to guide decisions about pregnancies. A story of both extraordinary drama and ordinary routine, this is a pioneering case study of authority and control in a pediatric hospital, showing how genetic counselors work with colleagues and with parents to be, and how they deal with their powerlessness to control life-and-death decisions that they must address.
Alternative Health Care
Michael S. Goldstein Temple University Press, 1999 Library of Congress R733.G654 1999 | Dewey Decimal 615.5
In November of 1998 The Journal of the American Medical Association devoted an entire issue to alternative medicine for the first time in its publishing history. According to survey results reported in the journal, 83 million Americans used some form of alternative medicine to preserve and maintain their health in 1997, a sharp increase from the 61 million who turned to alternative forms of care in 1990.
Michael S. Goldstein's Alternative Health Care is the first comprehensive account of the growing presence of alternative medicine in American society. Beginning with the basic premises of alternative medicine, Goldstein's book examines the clinical, economic, and political realities of the broad range of alternative care options and practices in the United States and explains why alternative medicine has become a viable choice for so many people who are ill or who seek to remain healthy.
Bringing history, policy, practice, personal experience, and in-depth sociological analysis together into one comprehensive volume, Goldstein -- one of the first recipients of funding from the National Institute of Health for research on alternative medicine -- also studies the complexities of the relationship between spirituality and alternative medicine and the changing role of alternative medicine in the larger context of American health care. Probing such issues as the corporatization of medicine, the role of alternative medicine in health care, and the dynamic relationship between conventional and alternative treatments, Goldstein's Alternative Health Care is more than the long-awaited introduction to the many forms of alternative medicine. It is also the measure of the implications of such care for practitioners, businesses, policymakers, and patients alike.
Alternative Health Care is the definitive guide for the millions of Americans interested in alternative medicine and treatment, American health care, the sociology of medicine, and American social issues.
Individuals or families receiving a diagnosis of Alzheimer’s disease, dementia, or brain damage from a stroke face daunting questions: how to provide for care when the patient can no longer manage his or her own affairs, how to protect their rights and property, where to go for help, and how to cope with the day-to-day challenges of fading memory and diminished cognition. Here is a comprehensive guide specifically for aging Nevadans and for family members, professional caregivers, and health care workers who help them.
The authors—an elder law attorney and a specialist in geriatric care management—offer readers useful advice from the perspective of Nevada resources and Nevada law, addressing such topics as the legal and financial steps that patients and their families can take to protect themselves and their assets, paying for long-term care, arranging for guardianship, and tending to the details that follow the death of a loved one.
This edition, updated in 2011, includes information about recent changes in laws that affect seniors, new research and treatments, and a new guide to resources throughout the state that can provide assistance to people afflicted with these medical conditions.
Challenging what she sees as an obsession with sex and sexuality, Ela Przybylo examines the silence around asexuality in queer, feminist, and lesbian thinking—turning to Audre Lorde’s work on erotics to propose instead an approach she calls asexualerotics, an alternative language for discussing forms of intimacy that are not reducible to sex and sexuality. Beginning with the late 1960s as a time when compulsory sexuality intensified and became increasingly tied to feminist, lesbian, and queer notions of empowerment, politics, and subjectivity, Przybylo looks to feminist political celibacy/asexuality, lesbian bed death, the asexual queer child, and the aging spinster as four figures that are asexually resonant and which benefit from an asexual reading—that is, from being read in an asexually affirming rather than asexually skeptical manner.
Through a wide-ranging analysis of pivotal queer, feminist, and anti-racist movements; television and film; art and photography; and fiction, nonfiction, and theoretical texts, each chapter explores asexual erotics and demonstrates how asexuality has been vital to the formulation of intimate ways of knowing and being. Asexual Erotics assembles a compendium of asexual possibilities that speaks against the centralization of sex and sexuality, asking that we consider the ways in which compulsory sexuality is detrimental not only to asexual and nonsexual people but to all.