front cover of Living in the Lightning
Living in the Lightning
A Cancer Journal
Robins, Natalie
Rutgers University Press, 1999
November 27, 1995: Late this afternoon I was diagnosed with cancer. I learned that I had a form of non-Hodgkin's lymphoma called 'malt,' for mucous-associated lymphoid tissue.' My oncologist, J. Gregory Mears, M.D., said that mine 'was not a bad story,' because my tumors were 'indolent,' slow-growing. Not a bad story? Doesn't just about everyone know that non-Hodgkin's Lymphoma is incurable? I have incurable cancer." So begins Natalie Robin's journal, first serialized in Self magazine, now compiled and expanded in Living in the Lightning. Robins writes frankly, with grace and realism, of her personal journey of learning to live with cancer. Her candid observations, reactions, and emotions throughout her diagnosis and treatment hit home, as she asks questions all of us might when faced with such appalling news:
* How should I tell my mother?
* Will my husband remarry after I die?
* What should I wear to chemotherapy?
* What would happen if I jumped off the table during radiation treatment?
* Can I ever forget I have cancer? Robins's warm and sincerely uplifting portrait of quiet courage will give encouragement to the millions of people with cancer, and the millions more who love them.
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front cover of Racing to a Cure
Racing to a Cure
A Cancer Victim Refuses Chemotherapy and Finds Tomorrow's Cures in Today's Scientific Laboratories
Neil Ruzic
University of Illinois Press, 2003
Racing to a Cure is not a cancer memoir. It is a cancer cure memoir. In 1998 Neil Ruzic was diagnosed with mantle-cell lymphoma, the deadliest cancer of the lymph system, whose spread is reaching epidemic levels in the U.S. and Europe. Instead of following recommended courses of chemotherapy and radiation, he took control of his treatment by investigating cures being developed in the nation's cancer-research laboratories.

Although chemotherapy harms the immune system and is increasingly demonstrated to be an ineffective long-term cure for the vast majority of cancers, it remains the standard treatment for most cancer patients. Ruzic, a former scientific magazine publisher and originator of a science center, refused to accept this status quo, and instead plunged into the world of cutting-edge treatments, exploring the frontiers of cancer science with revolutionary results.

Ruzic went on the offensive: visiting scores of laboratories, gathering information, talking to researchers, and effectively becoming his own patient-care advocate. This book presents his findings. A scathing critique of the chemotherapy culture as well as unscientific "alternative" therapies, the book endorses state-of-the-art molecularly based technologies, making it an illuminating and necessary read for anyone interested in cancer research, especially patients and their families and physicians.

Neil Ruzic was expected to die within two years of his initial diagnosis. Five years later he has been declared cancer-free and considers himself cured.

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front cover of Remission Quest
Remission Quest
A Medical Sociologist Navigates Cancer
Virginia Adams O’Connell
Temple University Press, 2025
As a medical sociologist, Virginia Adams O’Connell long studied the healthcare system and people navigating illness. Then, in 2019, she confronted her own reality of being diagnosed with primary bone lymphoma. “Since my diagnosis, I joined a club of current and past patients that I never wanted or intended to join,” she writes with both candor and poignancy, adding, “But we can collectively work to make it the best club it can be.”

In the course of diagnosis, treatment, and recovery, Adams O’Connell lived through theories she had researched and applied her sociological ideas to help make sense of her personal experiences. Remission Quest chronicles how the reality of living with cancer changed her perspective on what she had studied. Adams O’Connell found her knowledge illustrated and enriched her sociological analysis of our medical institutions and that her own illness narrative shone new light on her theories.

With moving prose, Remission Quest captures the emotions of having cancer and dealing with elaborate medical systems, learning how to be a “good patient” while also managing indescribable fear and fatigue, and confronting questions about the meaning of life. Adams O’Connell’s experiences are both personal and universal. They provide inspiration, compassion, and understanding.
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